Sunday, March 08, 2009 John'O asks

Q: Dear Professionals, I have a nephew at LSU in Baton Rouge, who suffers from Ulcerative Colitis;

he has been recently diagnosed with Uclerative Colotis. He is having a difficult time couping with this desease. I am a survivor of severe Colitis and eventually required surgery to remove the entire large intestine. I have been counceling himvia telephone, but feel he needs more than I can support thru phone wires. Is there any kind of support groups within your organization? If so would you please e-mail me and let me know how I can get him in contact with them. I would truly appreciate your assistance. If I can be of any service to your orgnaization (donations, insight on my own lifes struggles) anything at all. My e-mail address is johnh@comdesco.com.Thank you in advance for your assistance.John F. Hayes Jr.

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Answers (1)
Elizabeth Roberts, Health Guide
3/ 9/09 12:28pm

Hi John,

 

Thank you for writing and I am sorry to hear that your nephew is having a hard timing getting his UC under control. Having to deal with the emotional side of IBD as well as trying to get a flare-up under control can be very hard, as I'm sure you know.

 

I recommend that you have your nephew log on to our site www.healthcentral.com/ibd and read through the Shareposts, as well as the disease and diet information. I also encourage him to ask questions, here, and even write his own Sharepost telling us of his struggles and concerns so that our community members can lend an ear and their support. Another good resource for him will be the Crohn's and Colitis Foundation of America (CCFA), www.ccfa.org, where he will find information on local support groups in his area.

 

He also may want to read my book, Living with IBD & IBS: A Personal Journey of Success, which details my struggle to live a good and healthy life despite having UC.

 

Knowledge is power and the more information and suggestions he can get from other people, like you and me, who are living well with IBD I think the more he'll be able to learn and cope and live well with the disease himself.

 

You might consider writing your own Sharepost here and discussing how you came to the decision of having your colon removed and what the after experience was like for you.

 

Thanks for writing,

Elizabeth 

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By John'O— Last Modified: 12/24/10, First Published: 03/08/09