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Monday, November, 23, 2009
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lymphma or chron's -- why laparscopy

kgh
05/28/08

I have already posted.  Is anyone out there that can give me some advice or thoughts on this?  My daughter is 23.  Past three years complained of stomach pain.  To make this short, had endoscopy, colonoscopy, CT (2 times) and pillcam.  Ct shows circumferential wall thicening of distal terminal ileum, mildly prominent mesenteric lymph nodes in right lower quadrant of abd, 1.3 x 2.2 lymph node in right lower quarant mesentery, other lymph nodes smaller in size in same location, uterus moderate hetrogeneous.  Hyperplastic lymph nodes in ileocolic region, intra-abdominal demonstrates nonspecific adenopathy involving ileocolic portion of the messentry, incidental right ovary cyst.  Pillcam shows small polyp in distal small bowel, mild lymphoid hyperplasia in distal small bowel, medium size submucosal nodule in mid to distal small bowel, multiple aphthous ulcers throughout, Grade II esophagitis.  Hemoglobin and Hemacrotic is low, monocytes low, very high CRP - inflammatory, low carbon dixoide, the two test for possible crohn's came back negative and ANA lupus test came back negative.  She is hurting in stomach always, nauseated but does not vomit, no engery at all, lymph nodes in neck and under arm swell at times, not sore and not always, but swell up and down.  The doctor not sure if chron's or lymphoma or what.  Doctor seems concerned, but is taking her own sweet time.  She wants her to have a laparscopy.  Does this sound normal.  I can handle whatever is wrong with my daughter be it chron's, cancer or just inflammed, but something needs to get done.  She is not staying at college because she is so tired of feeling bad.  Do you think laparscopy is the right direction and why and when will they find out.  Any suggestions?  She is also very pale and has spams in her stomach and low rectum and vagina that can wake her up at night?  Please any response would be sooo appreciated.

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daryl truty
Sunday, June 22, 2008

I am a male of italian heritage who has spent a lifetime of abdominal pain. I have been in and out of the hospital with every test known to mankind with no answers. My CRP levels were 200 times normal. The pain was so bad only high doses of narcotics made it liveable. I went to Cleveland Clinic where i was finally diagnosed with familial mediteranian fever.

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