I hope I've found the right place to discuss mesh erosion. :(
I had a hysterectomy and TVT sling done in 12/05 and now have mesh eroding into my vaginal wall. I knew something was not right almost immediately after surgery, but was impossible to figure it out unt...
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TVT troubles
Maria Gifford
Tuesday, November 06, 2007 at 10:18 PMre: TVT troubles
Magnolia48
Thursday, November 08, 2007 at 07:27 PMFor almost two years my hubby and me have lived with this inconvenience. NOW I'm truly frightened!!
The threat of infection, bleeding, all of it scares me so badly. I have noticed a burning pain down my leg, the same side the mesh is eroding through my vaginal wall. I hope it's something temporary :(
I also wonder how would you know if the mesh is eroding into the bladder? I know if I sit in a certain position, I feel pain somewhere in that area, but it's hard to pinpoint it.
It's hard getting scheduled with the specialist I found. He's done this removal before, and I just don't trust anyone else to do this. I'm waiting for his office to work out the details and they are taking way too long for me!!
Of course, the surgery will be hard I'm sure. It's better than the risks of not having it done. Just the thought of what he's going to do scares me to death!
If I'd only known when the ob/gyn said "it's the little miracle cure".....to run, fast.
replyre: re: TVT troubles
Maria Gifford
Sunday, November 11, 2007 at 10:29 AMI understand your fear and concern. It sounds like you've decided on and are finally ready for removal. I hope you don't have to wait too long to see your surgeon. Stay in touch as things progress.
Best,
Maria
replyre: re: re: TVT troubles
Magnolia48
Sunday, November 11, 2007 at 02:24 PMI have decided on *partial* removal. Only because the uro/gyn specialist informed me taking the entire mesh out can be very difficult and risky.
I hope that he can remove the exposed mesh, suture me up, and NEVER have an issue with this mess again!!
He said he's had many successes with this approach, with the exception of one, which ended in total removal.
I'm anxiously waiting to hear from his office about scheduling the procedure. He said it would be about 30 mins. give or take, and under general anesthesia. Just in case he gets in there and has to do more work than anticipated.
Thanks for your response.
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Untitled Comment
Betsy West
Thursday, January 10, 2008 at 02:41 PMI had a TVT done in 12/04 and have the same complications as you. If you recommend the surgeon who removed your tape, please share his name and location with me! Thanks in advance.
Betsy
replyre: Untitled Comment
Magnolia48
Monday, January 14, 2008 at 09:40 PMI had the first procedure the first week of December. During the second week afterwards, I noticed something was not right :(......the following week he had do some MORE removal, but this time we went with doing this in the office. Obviously, I'm still in recovery phase so I can't say with any certainty that this has been a success, yet.
I'll keep you informed, and if things heal well with no other problems I'll share the name of the surgeon.
This has been an awful experience. I wonder if I will ever be "normal" again.
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Another victim here!
Shelly
Friday, April 04, 2008 at 08:15 AMI too have erosion of the mesh used 5 months ago. I am scheduled for surger this Monday to have a complete removal of the mesh. I am really upset with my former Dr., as I told her repeatedly that something was wrong. She would not listen....I went to hospital out of town, where they specialize in this proceedure. I am scared to have this done, but I have no choice. I do like the specialist I am seeing now. I'm so angry, I want to sue my former Dr. I just don't know what to do at this point.
replyre: Another victim here!
Ginger
Saturday, August 02, 2008 at 03:57 PMWell, I emailed you once, but I am not sure if you got it. My Dr. wouldn't listen either. He told me it was in my head (although my husband could feel it as well). Prescribed Xanax. Anyway, please let me know how your surgery went and how did you get them to remove it all???? I want this stuff out of me!!! Thanks and I hope all is well.
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Looking for an expert surgeon
MeshVictim
Saturday, April 05, 2008 at 11:22 PMWhere do you go for the "experts" in this mesh removal? My doc removed the visible portion that had eroded into my vagina in November. Yellow discharge continues, constantly. It hurts when I sit a certain way, and when I sneeze, and after I run. I think there's more mesh in there that my doc can't see. How do we find it? He's open to a second opinion, but I don't know how to find a doc who has handled a lot of these mesh erosion removals. Any advice?
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erosion
fran
Saturday, June 14, 2008 at 04:16 AMi had a sling put in in 10 05 ive had nothing but pain every since the things should be outlawed
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Mesh Erosion Also in Australia
Amelia
Friday, June 20, 2008 at 08:16 AMI too had a tvt for incontinence in Sep 05...the mesh eroded and within a year I was having problems mostly a dragging pain some bleeding..The same surgeon decided to repair the mesh I waited for more than a year after finally seeing the him (because I am a public patient) to have the surgery so the mesh was catching all the germs that float in the Genital area for all that time...The surgeon did not remove the mesh in his words "He pushed it back in and stitched it up" 24 hours after surgery I was fighting for my life because I got Septicaemia.. The Strep bug Milleri entered my blood stream via the pushed in mesh... the germ had been getting released from my body as a foul smelly discharge.. But once he pushed it back in and closed it off my blood stream was attacked....I then from the same germ within a couple of weeks got an Empyema and Abcess in my left lung and had to undergo a Thorecotomy and Decortication.. major surgery it is now four months later and i am still not over it all..My lung collapsed and I have lost some % of lung capacity the pain is still at times overwhelming there is a huge area of numbness over my chest and where the wound is on my back.. my left breast has a horrid sensation... it is called Neuropathy or nerve pain and will most likely never go....Fatigue is a constant..I am finally off Antibiotics..I still live with the fear the bug is lurking it makes abcesses and only surgery will work once that happens..My CPR a thing in our blood that should be 3 was over 250..It went back down to 5.5 but now off antibiotics it is back to 6.5 so more blood tests more Lung Xrays it seems to be a waiting game....
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Question
Dawn
Friday, August 29, 2008 at 12:03 PMI have already had 5 surgeries this year and I have mesh eroding into my vaginal wall, but Im not sure about a lot of it, mine is from having a rectocele repaired. I did have a bladder prolapse repaired also but that sling didnt affect me, at least thats what the doctor is telling me. The doctor that done both the repairs and also a hysterectomy on me sent me to another specialist in a different state. So each time I have surgery I have about a 5 hr drive and have two small children that I have to make sure have a place to stay. This year has been hell, the specialist that Im going to now says she has no idea if it was the doctors fault who put the mesh in or if my body just didnt accept it. On top of all of that because the mesh started eroding it caused my body to try and protect itself by growing lots of scar tissue inside my vagina. So for 2 yrs now me and my husband have not been able to have a sexual relationship because my vagina is only around 3 inches deep because the mesh caused it to completely close up. I feel like I cant take much more, Im having another surgery in September and she still doesnt know if it will be the last. Im so angry over all of this, I wish there was someone I could hold responcible for it.
I have heard several ppl say that the doctor who done my surgery and put the mesh inside of me is being sued but I have no idea how to find out or how to find out if I would even have a case.
I have also heard that the makers of the mesh are having law suits filed against them as well but again I have no idea how to find out details.
I do feel for anyone else who's going thru this, Im 26 yrs old and it doesnt seem fair. Good luck with everyone else.
replyMesh erosion
Liz
Saturday, October 04, 2008 at 07:02 PMWOW! I had TOT done in April and was unable to sit for 6 weeks, very painful even after that, continued to bleed, no sex - impossible to enter and continued pain down my leg on the side of the TOT. After three consults, I found a specialist in my hometown and he told the mesh had eroded into my vagina (he could feel it during the exam) and it was infected. I had surgery last Monday for removal. I also had so much scar tissue that my vagina is very short. Because of the infection, he only did the repair and will wait until it has healed before proceeding with more surgery to correct the mess.
This doctor even builds vagina's for children and most of his work is corrective work after other surgeries.
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Hello and welcome to our community. You've come to the right place.
Please see this related SharePost and its accompanying comment:
TVT Erosion
http://www.healthcentral.com/incontinence/c/6987/15176/tvt-erosion/
Your experience with mesh erosion is not uncommon. I hope this information is helpful to you.
Also, feel free to contact others on the site. We have many community members and experts to connect with and learn from.
Let me know if I can find more specific information for you. Glad to assist.
Best regards,
Maria
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