Victim of Mesh Erosion

Magnolia48 Community Member November 06, 2007
  • I hope I've found the right place to discuss mesh erosion.  :(

     

    I had a hysterectomy and TVT sling done in 12/05 and now have mesh eroding into my vaginal wall.  I knew something was not right almost immediately after surgery, but was impossible to figure it out until the mesh itself showed itself.

     

    At first the Doctor who put it in said it was covered with a thin layer of mucosa.  Well, that thin layer completely eroded away, and I'm now left with pain, inability to be intimate with my husband, and an awful discharge.

     

    I read about the subject as much as I could, but there are not lots of us out there really.  I did find out the best bet for a Doctor is a urogynecologist who is experienced in mesh removal.

     

    I saw him yesterday and he says he has done many of these removals.  He takes the vaginal approach and clips as much tape as possible and stitches up the vaginal wall.  He says he's only had one erosion recur, and had to completely remove the tape with an open type surgery.

     

    There aren't too many of these Docs around, so I feel this is my only choice.  He practices 2 hours away, but he does surgery here once a week.  That in itself is a blessing for convenience.

     

    I'm scared, frustrated, mad....you name it.  I tried to live with this "thing" as long as I could, but I can't take it anymore.   The pain is bad at times if I sit a certain way, it even seems to make my leg all the way down to my foot hurt.  I think it's pressing on a nerve.

     

    I'll check around the site and see what's going on with everyone else.  Any advice is appreciated!!   

245 Comments
  • pupperoni
    Feb. 17, 2014

    Had transvaginal mesh removed 3 weeks ago, after living with it for almost 8 years (initial surgery, 6-13-06)  Anyone have this done and if so, did you have any pain in the bowel area following the surgery. Ie. bowel spasms.  Having terrible pain, like when in labor and being told not to push.  I am not constipated (have been taking stool softeners)...

    RHMLucky777

    Read More

    Had transvaginal mesh removed 3 weeks ago, after living with it for almost 8 years (initial surgery, 6-13-06)  Anyone have this done and if so, did you have any pain in the bowel area following the surgery. Ie. bowel spasms.  Having terrible pain, like when in labor and being told not to push.  I am not constipated (have been taking stool softeners) and pretty sure there is not an intestinal blockage. Diarhea with continuing pain after I'm finished.  When I had the mesh put in, I was on a catheter for 3 and 1/2 months after the surgery.  Going to call doctor in the morning to see if he can see me, but was hoping to have other peoples' experience, if any, with this.  Have seen dr twice since the surgery 1.  to have catheter removed and packing taken out (was fallen out after 3 days)  2.  Post op visit.  After each visit, I ended up having these spasms.  After the First visit, I thought I caught a bug.  But after the second visit, the same thing  happened.  Thanks for your imput.  BTW wish I had never, ever had the 1st surgery.  God bless you all

  • Shannon
    Sep. 06, 2013

    I am new to this site but I have read your comments and they are heartbreaking.

     

    Back in 2006 I had a TOT midurethral sling put in for SUI. The doctor and I discussed fixing the cystocele I have with the mesh (Apogee? Perigee? One of those) but he told me that the bladder sling mesh would cause me a lot of problems.

     

    The day of surgery for the TOT...

    RHMLucky777

    Read More

    I am new to this site but I have read your comments and they are heartbreaking.

     

    Back in 2006 I had a TOT midurethral sling put in for SUI. The doctor and I discussed fixing the cystocele I have with the mesh (Apogee? Perigee? One of those) but he told me that the bladder sling mesh would cause me a lot of problems.

     

    The day of surgery for the TOT I asked him to fix the cystocele so he turned and told the nurses to set up for the bladder sling also and THANKFULLY they told him that the last one had been used and they didn't have any more on site. I am so glad of that!

     

    Everything went great with the sling except I noticed some pain and burning but not with urination. In 2009 I noticed something wrong with the midurethral area and I found an open area where the mesh had eroded into the vagina. I went to the doc and he did a cystoscopy just to clarify that there was no erosion into the urethra and there was not. I did go into surgery for a mesh revision after the erosion was found. There is a bit of mesh exposed where the mesh was placed submucosally and enters the side of the underside of the urethra but it wasn't fixed since it would have involved a graft, etc. Great news is that I am not incontinent. Bad news is that sometimes it burns so bad I want to take it out myself. Sex is uncomfortable at times because of the pain upon entry where the mesh is. At least I guess it is the mesh...it could be scar tissue from the revision.

     

    Now, I never got rid of the cystocele and rectocele that I have and the cystocele, when it is at it's lowest puts pressure on the sling. The cystocele isn't as bad as some I have read about but as I get older (I am 44) my estrogen levels will drop, vaginal tissues will thin and the mesh will probably erode and the cystocele will get worse.

     

    I have decided to get the cystocele and rectocele fixed and the sling removed and replaced with a Burch procedure. I visited Dr. John Miklos at the International Center for Laparoscopic Urogynecology in Beverly Hills, CA (they also have their main office in Atlanta, GA but I am in Alaska and CA is closer). He said I have a paravaginal defect that he will repair with sutures and then do a Burch procedure after a partial removal of the sling. He will also repair my rectocele with no mesh and do a perineoplasty. Understand that if I ever have stress incontinence later on I would put a mesh sling back in but I would have Dr. Miklos do it. He told me that the pain I was having was from the tension on the, you guessed it, tension free tape. Of course the day I had my exam my bladder prolapse was only Grade 1 (figures, it's the only time I wanted my prolapse to be bad) but he said he understands that prolapse is different at different times of the month and from day to day. Sometimes it feels like my bladder is coming out and if I insert a finger to check the first thing I feel is rectocele and the second is the cystocele close to the opening. My rectocele and cystocele have become really good, close friends.

     

    If you are wondering, as I am, why I would get the sling taken out if it is keeping me continent and has for seven years, it's because I am afraid that when they do the paravaginal repair to fix the cystocele the bladder neck will be lower than it needs to be and I will begin leaking again. Sometimes if you have a cystocele and just get the surgery for SUI the urethra becomes kinked like a garden hose, if you will, and that is why no leaking is taking place. Say you get the cystocele repaired years after the sling is implanted, as I am doing, the kink goes away and the leaking begins again.

     

    Wish me luck ladies, I am most likely having surgery in December so wish me luck!

  • Anonymous
    Victoria H.
    Apr. 30, 2013
    I had a mesh put in .everything was fine for about two years.then I had horrible pain during intercourse. Then I started bleeding. I went to a doctor who didn't have any idea what was going on, so he sent me to a specialist. The specialist told me that I needed surgery right away or I would die. It seems that there was a huge hole in my vaginal vault and air...
    RHMLucky777
    Read More
    I had a mesh put in .everything was fine for about two years.then I had horrible pain during intercourse. Then I started bleeding. I went to a doctor who didn't have any idea what was going on, so he sent me to a specialist. The specialist told me that I needed surgery right away or I would die. It seems that there was a huge hole in my vaginal vault and air was getting into my abdomen. So I went with the surgery to remove the vaginal mesh. The doctor thought it would be less than an hour and that it wouldn't be too difficult. He got in there and found that the mesh had decompensated into a glue like substance, all tangled up in good tissue. He had to cut the good tissue in order to remove the mesh all over. I had a huge hole in my vagina that he had to cut away and now I have a much smaller vagina that's not usable. I also had the beginning of a hole in my intestine, and he had to check the full length of my intestines to make sure there was not another hole. It seems that anywhere this vaginal mesh touched it began eating my tissue. It took the doctor over 6 hours in surgery to get the mesh out. Then I had a problem with what to do with my prolapsed bladder. He made a basket out of fascia and so far things are working well, with my bladder anyway. After the surgery, my marriage of almost 34 years, disintegrated. I couldn't perform for him, we were unable to have intercourse because it was too painful. So I went through severe depression, a divorce, and then bankruptcy. The loss of my marriage also cost me precious time with my then teenage children. I have had problems mentally trying to hang on. My depression gets the better of me, and I have tried many times to kill myself. I don't feel like a woman, I don't feel like a man. I'm caught in the middle. A unich. I had continuing surgery to fix a rectocele and ostrocele because of this surgery in removing my mesh. It seems that this mesh thing has changed my life in every way. I suffer from daily pain and it just won't leave me alone. I would like to talk with anyone who has experienced something similar, I believe sharing my story and hearing the stories of others is a valuable part of my emotional healing. Please feel free to email me at vichansberry123@gmail.com at any time. I would eventually like to be able to talk to people on the phone since I don't have a computer at home right now.
    • Brandi
      Apr. 18, 2014

      I  had mesh bladder sling put in oct.09 and have been experiencing lots of pain from the very beginning. UTI with staph in my urine, pain in my left groin, then in 2011 I started experiencing a full stomach with severe pain with intercourse many of doctor visits and no one could tell me what was wrong. I finally found one dr. finally said that my uterus...

      RHMLucky777

      Read More

      I  had mesh bladder sling put in oct.09 and have been experiencing lots of pain from the very beginning. UTI with staph in my urine, pain in my left groin, then in 2011 I started experiencing a full stomach with severe pain with intercourse many of doctor visits and no one could tell me what was wrong. I finally found one dr. finally said that my uterus had prolapsed so he scheduled me for a hysterectomy now for the past year I've been experiencing constipation and the groin pain is getting worse. Still have the sling in.  I'm scared of what it's doing to my insides and when I read what it has done to u I was in tears   Brandi 

  • Anonymous
    Miserable with ...
    Mar. 23, 2013

    Did anyone go to Cleveland clinic for any type of mesh repair or removal.  I see a Dr. Goldman is a specialist in this area?  Thank you.

    • lisa q
      Mar. 19, 2014

      Please tell me if he is a specialist in removing the erosion?

      Lisa

  • Teresa
    Aug. 01, 2012

    I am a victime of mesh erosion. I am facing my second surgery this month for removal again. Meantime, my joints have began to swell and are painful. I was wondering if anyone else had experienced and auto immune symptoms going on.

    I did not have these symptoms until after the mesh was implanted. i believe this ha trigered some sort of arthritis or inflammatory...

    RHMLucky777

    Read More

    I am a victime of mesh erosion. I am facing my second surgery this month for removal again. Meantime, my joints have began to swell and are painful. I was wondering if anyone else had experienced and auto immune symptoms going on.

    I did not have these symptoms until after the mesh was implanted. i believe this ha trigered some sort of arthritis or inflammatory disease. I u have had similar symptoms please reply. I am a nurse and i do know that a foreign object in your body can cause the system to began to fight against its own tissue if i cannot find the object it is suppost to identify.

    • Anonymous
      Peggy Weathers
      Sep. 11, 2012

      I, like the rest of you women that are suffering, all i get is lied to by attorneys , doctors and nurses.It's not a good feeling of no hop and really being laughed at by those rich and powerful that are all out for what women are suffering from the bladder mesh.

       

      I am dying , i was lied to by attorneys and doctors even today, i paid out money I did not...

      RHMLucky777

      Read More

      I, like the rest of you women that are suffering, all i get is lied to by attorneys , doctors and nurses.It's not a good feeling of no hop and really being laughed at by those rich and powerful that are all out for what women are suffering from the bladder mesh.

       

      I am dying , i was lied to by attorneys and doctors even today, i paid out money I did not have waiting for surgery my mesh done in january 2009. 

       

      we were used as state guinea pigs, and someone needs to intervene, like Judge Goodwin. and cong. sen. rep in all states and say enough is enough, of lying attorneys , doctors and nurses fda, mesh companies , medical research, and do something fast . this murdering of women and children as those given drugs for another generation of guinea pigs had already been testewd on poor children in the 60's , I was 1 of them.

       

      I have always been told the rich and powerful will kill you if you expose them and truth. THEY HAVE MURDERED ME, LIFE ENDED FOR ME WITH MESH, I HAVE BEEN CALLING FOR YEARS ASKING THOSE IN STATE POWER TO STOP THESE THINGS. I WAS CHOSEN , TO BE MURDERED.

       

       

      THEY ARE NOT GOING TO HELP ME, ATTORNEYS , DOCTORS , NURSES, AS I WAS LET KNOWN TODAY, I CRIED THE MAJORITY OF THE 5 HURS IN HOSPITAL TO SOME OF THE MOST CRUEL AND EVIL PEOPLE IN MEDICAL FIELD THAT ARE NOT TO HELP ME. THE ATTORNEYS  LIED TO ME THAT I FOUND OUT THAT I THOUGHT A CASE WAS FILED OVER A YEAR AGO BY A LETTER , FOUND OUT NO CASE WAS FILED IN FEDERAL COURT ANOTHER LIE.

       

      MY HEART GOES OUT TO WOMEN SUFFERING, BUT SOMEONE NEEDS TO INTERVENE AND BRING IN SOME APPOINTED FEDEAL DOCTORS TO SEE THE TRUTH HOW WOMEN ARE BEING TREATED CRUELLY BY ATTORNEYS AND DOCTORS AND LIED TO . SOMEONE IN POWER NEEDS TO WORK FAST TO HELP THESE WOMEN EITHER SURGERY OR MEDICATION TO RELIEVE THEM OF THEIR PAIN AND SUFFERING BEING DENIED TO THEM, AS i AM. a HARD TIME TO GET ANTI BIOTICS FIGHTING INFECTIONS IS WHAT IS MURDERING SO MANY WOMEN IN THIS AND THEY KNOW IT.

       

      WE NEED SOME ONE IN POWER TO INTERVENE FAST FOR WOMEN SUFFERING FROM THIS MESH, SOMEONE THAT SEES HUMANS AS HUMANS NOT ANIMALS AND THEY DO NOT SEE THEIR SELF AS GODS TO MURDER PEOPLE.

    • Anonymous
      Peggy Weathers
      Sep. 11, 2012

      I, like the rest of you women that are suffering, all i get is lied to by attorneys , doctors and nurses.It's not a good feeling of no hop and really being laughed at by those rich and powerful that are all out for what women are suffering from the bladder mesh.

       

      I am dying , i was lied to by attorneys and doctors even today, i paid out money I did not...

      RHMLucky777

      Read More

      I, like the rest of you women that are suffering, all i get is lied to by attorneys , doctors and nurses.It's not a good feeling of no hop and really being laughed at by those rich and powerful that are all out for what women are suffering from the bladder mesh.

       

      I am dying , i was lied to by attorneys and doctors even today, i paid out money I did not have waiting for surgery my mesh done in january 2009. 

       

      we were used as state guinea pigs, and someone needs to intervene, like Judge Goodwin. and cong. sen. rep in all states and say enough is enough, of lying attorneys , doctors and nurses fda, mesh companies , medical research, and do something fast . this murdering of women and children as those given drugs for another generation of guinea pigs had already been testewd on poor children in the 60's , I was 1 of them.

       

      I have always been told the rich and powerful will kill you if you expose them and truth. THEY HAVE MURDERED ME, LIFE ENDED FOR ME WITH MESH, I HAVE BEEN CALLING FOR YEARS ASKING THOSE IN STATE POWER TO STOP THESE THINGS. I WAS CHOSEN , TO BE MURDERED.

       

       

      THEY ARE NOT GOING TO HELP ME, ATTORNEYS , DOCTORS , NURSES, AS I WAS LET KNOWN TODAY, I CRIED THE MAJORITY OF THE 5 HURS IN HOSPITAL TO SOME OF THE MOST CRUEL AND EVIL PEOPLE IN MEDICAL FIELD THAT ARE NOT TO HELP ME. THE ATTORNEYS  LIED TO ME THAT I FOUND OUT THAT I THOUGHT A CASE WAS FILED OVER A YEAR AGO BY A LETTER , FOUND OUT NO CASE WAS FILED IN FEDERAL COURT ANOTHER LIE.

       

      MY HEART GOES OUT TO WOMEN SUFFERING, BUT SOMEONE NEEDS TO INTERVENE AND BRING IN SOME APPOINTED FEDEAL DOCTORS TO SEE THE TRUTH HOW WOMEN ARE BEING TREATED CRUELLY BY ATTORNEYS AND DOCTORS AND LIED TO . SOMEONE IN POWER NEEDS TO WORK FAST TO HELP THESE WOMEN EITHER SURGERY OR MEDICATION TO RELIEVE THEM OF THEIR PAIN AND SUFFERING BEING DENIED TO THEM, AS i AM. a HARD TIME TO GET ANTI BIOTICS FIGHTING INFECTIONS IS WHAT IS MURDERING SO MANY WOMEN IN THIS AND THEY KNOW IT.

       

      WE NEED SOME ONE IN POWER TO INTERVENE FAST FOR WOMEN SUFFERING FROM THIS MESH, SOMEONE THAT SEES HUMANS AS HUMANS NOT ANIMALS AND THEY DO NOT SEE THEIR SELF AS GODS TO MURDER PEOPLE.

    • Anonymous
      Peggy Weathers
      Sep. 11, 2012

      I, like the rest of you women that are suffering, all i get is lied to by attorneys , doctors and nurses.It's not a good feeling of no hop and really being laughed at by those rich and powerful that are all out for what women are suffering from the bladder mesh.

       

      I am dying , i was lied to by attorneys and doctors even today, i paid out money I did not...

      RHMLucky777

      Read More

      I, like the rest of you women that are suffering, all i get is lied to by attorneys , doctors and nurses.It's not a good feeling of no hop and really being laughed at by those rich and powerful that are all out for what women are suffering from the bladder mesh.

       

      I am dying , i was lied to by attorneys and doctors even today, i paid out money I did not have waiting for surgery my mesh done in january 2009. 

       

      we were used as state guinea pigs, and someone needs to intervene, like Judge Goodwin. and cong. sen. rep in all states and say enough is enough, of lying attorneys , doctors and nurses fda, mesh companies , medical research, and do something fast . this murdering of women and children as those given drugs for another generation of guinea pigs had already been testewd on poor children in the 60's , I was 1 of them.

       

      I have always been told the rich and powerful will kill you if you expose them and truth. THEY HAVE MURDERED ME, LIFE ENDED FOR ME WITH MESH, I HAVE BEEN CALLING FOR YEARS ASKING THOSE IN STATE POWER TO STOP THESE THINGS. I WAS CHOSEN , TO BE MURDERED.

       

       

      THEY ARE NOT GOING TO HELP ME, ATTORNEYS , DOCTORS , NURSES, AS I WAS LET KNOWN TODAY, I CRIED THE MAJORITY OF THE 5 HURS IN HOSPITAL TO SOME OF THE MOST CRUEL AND EVIL PEOPLE IN MEDICAL FIELD THAT ARE NOT TO HELP ME. THE ATTORNEYS  LIED TO ME THAT I FOUND OUT THAT I THOUGHT A CASE WAS FILED OVER A YEAR AGO BY A LETTER , FOUND OUT NO CASE WAS FILED IN FEDERAL COURT ANOTHER LIE.

       

      MY HEART GOES OUT TO WOMEN SUFFERING, BUT SOMEONE NEEDS TO INTERVENE AND BRING IN SOME APPOINTED FEDEAL DOCTORS TO SEE THE TRUTH HOW WOMEN ARE BEING TREATED CRUELLY BY ATTORNEYS AND DOCTORS AND LIED TO . SOMEONE IN POWER NEEDS TO WORK FAST TO HELP THESE WOMEN EITHER SURGERY OR MEDICATION TO RELIEVE THEM OF THEIR PAIN AND SUFFERING BEING DENIED TO THEM, AS i AM. a HARD TIME TO GET ANTI BIOTICS FIGHTING INFECTIONS IS WHAT IS MURDERING SO MANY WOMEN IN THIS AND THEY KNOW IT.

       

      WE NEED SOME ONE IN POWER TO INTERVENE FAST FOR WOMEN SUFFERING FROM THIS MESH, SOMEONE THAT SEES HUMANS AS HUMANS NOT ANIMALS AND THEY DO NOT SEE THEIR SELF AS GODS TO MURDER PEOPLE.

    • Anonymous
      GUEST
      Jan. 06, 2013

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE...

      RHMLucky777

      Read More

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE DAMAGE AND PAIN, . 

       

      HOW MUCH MORE , THEY KNOW THEY HAVE MURDERED ME, BEFORE THE MESH CASES STARTED , IN COURTS . THIS IS CRUEL FOR DOCTORS THAT SHOULD TELL THEY KNOW NOTHING ABOUT REMOVING MESHJ, INSTEAD OF BUTCHERING ME AND LYING. AND MESH STILL IS STICKING OUT AND INFECTION AND PAIN, AND MORE , THEY HAVE REMOVED PARTS, THEY KNOW i CAN NEVER HAVE A RELATIONSHIP AGIN, MOST EVIL AND CRUEL OF DOCTORS AND NURSES, AT VANDERBILT HOSPITAL. . AND NOW THEY SAY THEY WILL NEVER SEE ME AGAIN, AFTER THEY LIED AND BUTCHERED ME.

       

      IT'S NOT JUST THE DAMN CHEMICAL COMPANIUES , IT IS THOSE DOCTORS AND NURSES AND EVIL HOSPITALS LIKE VANDERBILT THAT LIE ABOUT SURGERY, KNOWING THE MESH THEY DID NOT REMOVE THAT IS CUTTING ME INSIDE CAUSING INFECTIONS.  HOW MUCH MORE EVIL CAN MEDICAL RESEARCH GEWT TOWARD HUMAN BEINGS, THEY ARE MURDERING, PEOPLE IN POWER TO MURDER IN AMERICA.

    • Anonymous
      GUEST
      Jan. 06, 2013

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE...

      RHMLucky777

      Read More

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE DAMAGE AND PAIN, . 

       

      HOW MUCH MORE , THEY KNOW THEY HAVE MURDERED ME, BEFORE THE MESH CASES STARTED , IN COURTS . THIS IS CRUEL FOR DOCTORS THAT SHOULD TELL THEY KNOW NOTHING ABOUT REMOVING MESHJ, INSTEAD OF BUTCHERING ME AND LYING. AND MESH STILL IS STICKING OUT AND INFECTION AND PAIN, AND MORE , THEY HAVE REMOVED PARTS, THEY KNOW i CAN NEVER HAVE A RELATIONSHIP AGIN, MOST EVIL AND CRUEL OF DOCTORS AND NURSES, AT VANDERBILT HOSPITAL. . AND NOW THEY SAY THEY WILL NEVER SEE ME AGAIN, AFTER THEY LIED AND BUTCHERED ME.

       

      IT'S NOT JUST THE DAMN CHEMICAL COMPANIUES , IT IS THOSE DOCTORS AND NURSES AND EVIL HOSPITALS LIKE VANDERBILT THAT LIE ABOUT SURGERY, KNOWING THE MESH THEY DID NOT REMOVE THAT IS CUTTING ME INSIDE CAUSING INFECTIONS.  HOW MUCH MORE EVIL CAN MEDICAL RESEARCH GEWT TOWARD HUMAN BEINGS, THEY ARE MURDERING, PEOPLE IN POWER TO MURDER IN AMERICA.

    • Anonymous
      GUEST
      Jan. 06, 2013

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE...

      RHMLucky777

      Read More

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE DAMAGE AND PAIN, . 

       

      HOW MUCH MORE , THEY KNOW THEY HAVE MURDERED ME, BEFORE THE MESH CASES STARTED , IN COURTS . THIS IS CRUEL FOR DOCTORS THAT SHOULD TELL THEY KNOW NOTHING ABOUT REMOVING MESHJ, INSTEAD OF BUTCHERING ME AND LYING. AND MESH STILL IS STICKING OUT AND INFECTION AND PAIN, AND MORE , THEY HAVE REMOVED PARTS, THEY KNOW i CAN NEVER HAVE A RELATIONSHIP AGIN, MOST EVIL AND CRUEL OF DOCTORS AND NURSES, AT VANDERBILT HOSPITAL. . AND NOW THEY SAY THEY WILL NEVER SEE ME AGAIN, AFTER THEY LIED AND BUTCHERED ME.

       

      IT'S NOT JUST THE DAMN CHEMICAL COMPANIUES , IT IS THOSE DOCTORS AND NURSES AND EVIL HOSPITALS LIKE VANDERBILT THAT LIE ABOUT SURGERY, KNOWING THE MESH THEY DID NOT REMOVE THAT IS CUTTING ME INSIDE CAUSING INFECTIONS.  HOW MUCH MORE EVIL CAN MEDICAL RESEARCH GEWT TOWARD HUMAN BEINGS, THEY ARE MURDERING, PEOPLE IN POWER TO MURDER IN AMERICA.

    • Anonymous
      GUEST
      Jan. 06, 2013

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE...

      RHMLucky777

      Read More

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE DAMAGE AND PAIN, . 

       

      HOW MUCH MORE , THEY KNOW THEY HAVE MURDERED ME, BEFORE THE MESH CASES STARTED , IN COURTS . THIS IS CRUEL FOR DOCTORS THAT SHOULD TELL THEY KNOW NOTHING ABOUT REMOVING MESHJ, INSTEAD OF BUTCHERING ME AND LYING. AND MESH STILL IS STICKING OUT AND INFECTION AND PAIN, AND MORE , THEY HAVE REMOVED PARTS, THEY KNOW i CAN NEVER HAVE A RELATIONSHIP AGIN, MOST EVIL AND CRUEL OF DOCTORS AND NURSES, AT VANDERBILT HOSPITAL. . AND NOW THEY SAY THEY WILL NEVER SEE ME AGAIN, AFTER THEY LIED AND BUTCHERED ME.

       

      IT'S NOT JUST THE DAMN CHEMICAL COMPANIUES , IT IS THOSE DOCTORS AND NURSES AND EVIL HOSPITALS LIKE VANDERBILT THAT LIE ABOUT SURGERY, KNOWING THE MESH THEY DID NOT REMOVE THAT IS CUTTING ME INSIDE CAUSING INFECTIONS.  HOW MUCH MORE EVIL CAN MEDICAL RESEARCH GEWT TOWARD HUMAN BEINGS, THEY ARE MURDERING, PEOPLE IN POWER TO MURDER IN AMERICA.

    • Anonymous
      guest
      Jan. 06, 2013

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE...

      RHMLucky777

      Read More

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE DAMAGE AND PAIN, . 

       

      HOW MUCH MORE , THEY KNOW THEY HAVE MURDERED ME, BEFORE THE MESH CASES STARTED , IN COURTS . THIS IS CRUEL FOR DOCTORS THAT SHOULD TELL THEY KNOW NOTHING ABOUT REMOVING MESHJ, INSTEAD OF BUTCHERING ME AND LYING. AND MESH STILL IS STICKING OUT AND INFECTION AND PAIN, AND MORE , THEY HAVE REMOVED PARTS, THEY KNOW i CAN NEVER HAVE A RELATIONSHIP AGIN, MOST EVIL AND CRUEL OF DOCTORS AND NURSES, AT VANDERBILT HOSPITAL. . AND NOW THEY SAY THEY WILL NEVER SEE ME AGAIN, AFTER THEY LIED AND BUTCHERED ME.

       

      IT'S NOT JUST THE DAMN CHEMICAL COMPANIUES , IT IS THOSE DOCTORS AND NURSES AND EVIL HOSPITALS LIKE VANDERBILT THAT LIE ABOUT SURGERY, KNOWING THE MESH THEY DID NOT REMOVE THAT IS CUTTING ME INSIDE CAUSING INFECTIONS.  HOW MUCH MORE EVIL CAN MEDICAL RESEARCH GEWT TOWARD HUMAN BEINGS, THEY ARE MURDERING, PEOPLE IN POWER TO MURDER IN AMERICA.

    • Anonymous
      guest
      Jan. 06, 2013

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE...

      RHMLucky777

      Read More

      VANDERBILT HOSPITAL , NEEDS THEIR DOORS CLOSED , I had my surgery , they lied and dr dmochski, has not spent 5 mInutes to explain what he did in surgery, at 6 weeks,  A SELF EXAMiNATION ,. SHOWS THAT , DR D, AS THEY CALL HIM, LIED , AND THE MESH IS STILL PROTRUDING OUT, AND THEY HAVE REMOVED PARTS OF ME INSIdE IT FEELS LIKE i have been hoLLowed out, MORE DAMAGE AND PAIN, . 

       

      HOW MUCH MORE , THEY KNOW THEY HAVE MURDERED ME, BEFORE THE MESH CASES STARTED , IN COURTS . THIS IS CRUEL FOR DOCTORS THAT SHOULD TELL THEY KNOW NOTHING ABOUT REMOVING MESHJ, INSTEAD OF BUTCHERING ME AND LYING. AND MESH STILL IS STICKING OUT AND INFECTION AND PAIN, AND MORE , THEY HAVE REMOVED PARTS, THEY KNOW i CAN NEVER HAVE A RELATIONSHIP AGIN, MOST EVIL AND CRUEL OF DOCTORS AND NURSES, AT VANDERBILT HOSPITAL. . AND NOW THEY SAY THEY WILL NEVER SEE ME AGAIN, AFTER THEY LIED AND BUTCHERED ME.

       

      IT'S NOT JUST THE DAMN CHEMICAL COMPANIUES , IT IS THOSE DOCTORS AND NURSES AND EVIL HOSPITALS LIKE VANDERBILT THAT LIE ABOUT SURGERY, KNOWING THE MESH THEY DID NOT REMOVE THAT IS CUTTING ME INSIDE CAUSING INFECTIONS.  HOW MUCH MORE EVIL CAN MEDICAL RESEARCH GEWT TOWARD HUMAN BEINGS, THEY ARE MURDERING, PEOPLE IN POWER TO MURDER IN AMERICA.

    • Anonymous
      Lisa-Alabama
      Feb. 22, 2014
      Teresa, I have tested positive twice now having some sort of pos.itive tests to RA and possible something else. Seeing a specialist but I don't have joints acting as if I have RA for him to diagnose me with RA, this is only since After my vaginal repair couple years ago, I have been left with my legs swelling and I don't take blood pressure pills at all and...
      RHMLucky777
      Read More
      Teresa, I have tested positive twice now having some sort of pos.itive tests to RA and possible something else. Seeing a specialist but I don't have joints acting as if I have RA for him to diagnose me with RA, this is only since After my vaginal repair couple years ago, I have been left with my legs swelling and I don't take blood pressure pills at all and most times my bp is great. I'm feeling a place on my right vaginal wall feeling like something is hurting to the touch like a sharp something touching my skin and I feel this is what is causing me sexual pain and burning after. I have also had abdominal pain in my right ovary area which is no ovary there cause it was removed since the mesh repair. I'm told by my attorney from my operative report that I still have the old mesh in plus he used some small piece mesh on my last repair. I'm having pains in different places like hip and feet feeling crushed but I also have a herniated disc in back too so that could be my issue with feet. Like others I am so upset. My physician never told me any side effects other than if I cough I may feel a tightness. After surgery I had to lean forward just to urinate and my bowels are more constipated and I also don't void urine all the way. Seen an urologists and have confirmed this. Suggested me go back to my surgeon and surgeon does a hand feel inside ( no tests) and tells me I'm held up tight and if he removes or corrects I will be left with incontinence worse! So he tells me to tell my husband to make sure he aims straight during sex and he disagrees that men can be even touching where they insert this mesh or products. I think some of these doctors should be held accountable!!!
  • Teresa
    Aug. 01, 2012

    I am a victime of mesh erosion. I am facing my second surgery this month for removal again. Meantime, my joints have began to swell and are painful. I was wondering if anyone else had experienced and auto immune symptoms going on.

    I did not have these symptoms until after the mesh was implanted. i believe this ha trigered some sort of arthritis or inflammatory...

    RHMLucky777

    Read More

    I am a victime of mesh erosion. I am facing my second surgery this month for removal again. Meantime, my joints have began to swell and are painful. I was wondering if anyone else had experienced and auto immune symptoms going on.

    I did not have these symptoms until after the mesh was implanted. i believe this ha trigered some sort of arthritis or inflammatory disease. I u have had similar symptoms please reply. I am a nurse and i do know that a foreign object in your body can cause the system to began to fight against its own tissue if i cannot find the object it is suppost to identify.

    • pupperoni
      Feb. 17, 2014

      Had FMS since 1997, probably long before that.  When this pain started with the mesh, I thought it was the FMS, so I lived with it for almost 8 years (1st surgery, June 13, 2006)  Did see original surgeon and he kept telling me it was scar tissue, had 3 separate cauterizations (2 times in his office without anesthetic and the third one I insisted...

      RHMLucky777

      Read More

      Had FMS since 1997, probably long before that.  When this pain started with the mesh, I thought it was the FMS, so I lived with it for almost 8 years (1st surgery, June 13, 2006)  Did see original surgeon and he kept telling me it was scar tissue, had 3 separate cauterizations (2 times in his office without anesthetic and the third one I insisted that I be put in hospital and under anesthetic.  After that I was just more or less dismissed.  Joint pain, fatigue, depression, localized pain in the vaginal area, continued incontinence, frequency and urgency.  Had to retire from my job, thinking I would get better, only got worse.

  • tabitha22of2
    Jul. 13, 2012

    i had mesh put in me almost 7 years ago now and i have most of the problems listed and all the doctors cant find anything wrong with me they say it is in my head. when i did have insurance the dr i saw said there was nothing and that when i had another flear up to come back in and he would test me for herpies. i was so hurt i didnt go back but i also lost my...

    RHMLucky777

    Read More

    i had mesh put in me almost 7 years ago now and i have most of the problems listed and all the doctors cant find anything wrong with me they say it is in my head. when i did have insurance the dr i saw said there was nothing and that when i had another flear up to come back in and he would test me for herpies. i was so hurt i didnt go back but i also lost my insurance and now you can see the mesh it has made a hole and now the other side is hurting like it is sawing through the tissue no one will help me and with out insurance now they really wont. if anyone has any ideas for me please let me know thank you

  • Ms Mangled Mesh
    Jul. 10, 2012

    I am a 45 y/o mother of 6 who had AMS Propolene Mesh implanted in Oct 2010, for a rectocele/cystocele and incontinence.  I have had 14 surgeries since 2/2011 for mesh erosion, mesh removed from my bladder, intestines, vagina.  I have had serious hemorrhages requiring emergency surgery and blood transfusions.  I have had it "completely" removed,...

    RHMLucky777

    Read More

    I am a 45 y/o mother of 6 who had AMS Propolene Mesh implanted in Oct 2010, for a rectocele/cystocele and incontinence.  I have had 14 surgeries since 2/2011 for mesh erosion, mesh removed from my bladder, intestines, vagina.  I have had serious hemorrhages requiring emergency surgery and blood transfusions.  I have had it "completely" removed, only to find out later, that it is still eroding and traveling through my system attaching all over the place.  I have had bowel obstruction surgery, where the contents of my bowel were leaking into my abdomen, because mesh had perforated it,  I have a large mass on my left side the size of a grapefruit (my doc calls "fascial disorder that a tummy tuck could take care of...BS!) or he has blamed it on an Ovarian cyst, which after having the cyst surgically removed, the mass still remains.  I have had my vagina close up, where the sides of my vagina adhered to eachother, having to have it split open again. 

    I have lost 2 jobs. Had my car repossessed.  Lost my home, lost custody of my 2 smallest children for the last year and half (because I was too ill to care for them),  gone thru my savings, have collection agencies calling me non-stop (no kidding about 6 calls a day).  Lost my long term boyfriend due to the medical drama and everytime we tried to have sex he was being stabbed by mesh, or I was in pain. 

    And guess what?!  I have incontinence, a rectocele, a cystocele...still!  The very issue that the Mesh (what my dr called the "golden standard" cure all), was supposed to fix didnt even do that!!

    Of course, I have psychological issues now.  Pain, Severe depression, pain, nightmares of suicide (which sometimes feels like a pretty appropriate cure), pain, inability to have a life partner, pain, panic attacks, pain, anxiety-ridden...how will I ever be able to support my children. 

    This Mesh is killing me.  Literally.  Slowly, piece by little stupid piece.  My body cant take anymore. 

    I was healthy before the mesh.  Now, not so much.  I have grown children who have had to watch their mother struggle so hard, both physically and financially.

     

    Yes, I have an attorney.  An amazing attorney.  And we are sueing.  I am not part of some mass suit, which assigns me a number and I wait years. Just me and my attorney.  Why?  Because I want AMS to know me!  A human.  A mother.  A nurse for 27 years, who served in the US Navy!  A Woman.  A friend.  A daughter.  An Aunt.  Also because we have actually gotten AMS to look at my case already and we are in pre-settlement talks.  

     

    I have just recently gotten a non-recourse pre-settlement loan.  Its expensive, but I need to put food on the table. But, they saved me.  $20,000.  If I dont win my case, I owe them nothing.  I am not eligible for unemployment, because I cant work, due to an upcoming surgery.  (yep, mesh again...and try to help with the incontinence).  So, maybe that could help some of you with cases pending.

     

    So, I looked for a long time for a forum like this...where I could talk to other women suffering.  I am tired of feeling so alone.  None of my friends understand.  You cant.  Until you have mesh implanted.

     

    The only Dr. I have heard of, actuallly being successful, with complete mesh detection, removal and organ repair, is Dr. Raz in Los Angeles.  Has anyone used him?  Can anyone tell me more about him.  I heard he has the only diagnostic machine that can detect the mesh, in this country.  I dont know.  I have read alot of your posts, and you mention some other docs.  I am in Florida, but will go wherever I need to go.  To heal.  To have my life back.  To live.  Before the mesh takes my life from me.  And, mark my words...it will.

     

    Thanks!  (God that was depressing...but really good to just talk about!)

     

     

     

    • Victoria H.
      May. 13, 2013
      Hello, My name is Victoria. I've gone through a lot of what you've experienced, and they tell me because my mesh was taken out in 1996 that it is very doubtful that I'll be able to sue. And I must have more operations, and I'm just stuck with not being able to sue anyone because there is only a 5 year window to pursue legal action. I'm hoping to find someone...
      RHMLucky777
      Read More
      Hello, My name is Victoria. I've gone through a lot of what you've experienced, and they tell me because my mesh was taken out in 1996 that it is very doubtful that I'll be able to sue. And I must have more operations, and I'm just stuck with not being able to sue anyone because there is only a 5 year window to pursue legal action. I'm hoping to find someone I can talk to about my experience that has gone through what I have. I feel very alone, none of my family or friends understand. The physical and emotional effects that this mesh has had on my life are unbelievable, and unbearable. If you're willing to talk with me and share on your experiences I think it would be a very helpful part of emotional healing. Please email me at vichansberry123@gmail.com. I don't have a computer at home right now so it may take a little time for me to respond. We may be able to talk on the phone though if that's easier.
    • Texas Mom
      Mar. 05, 2014

      I have some questions for you . 

  • Geraldine Galvan
    Jun. 19, 2012

    It's better to have it removed it immediately. I've read a lot of articles about surgical mesh complications and I think it's not advisable to have it inside you body for a longer period of time. Most of theses meshes will eventually shrink or wear through time on the patient's vaginal mucosa. You do not want to add more pain and discomfort on your body,...

    RHMLucky777

    Read More

    It's better to have it removed it immediately. I've read a lot of articles about surgical mesh complications and I think it's not advisable to have it inside you body for a longer period of time. Most of theses meshes will eventually shrink or wear through time on the patient's vaginal mucosa. You do not want to add more pain and discomfort on your body, do you? 
    Did you also know that you can take legal actions to receive a compensation from the manufacturers of these defective meshes? You might want to consider a help from a surgical mesh lawyer

  • Revjay
    May. 09, 2012

    Dear person!  I am facing my third surgery for mesh erosion.  You are the first I hear to identify the discharge and I have fought it twice as long as I even knew what it was and was treated for a dizzying array of other infections, none of which helped, and even told it was in my mind.  I am a very logical person - for a woman!  It has...

    RHMLucky777

    Read More

    Dear person!  I am facing my third surgery for mesh erosion.  You are the first I hear to identify the discharge and I have fought it twice as long as I even knew what it was and was treated for a dizzying array of other infections, none of which helped, and even told it was in my mind.  I am a very logical person - for a woman!  It has been horrid.  And the pain is excruitating when you try to have intercourse.  I had 3 pieces removed, then 6 plus part of the vaginal wall.  Now the rectosele is eroding.  The bladder hasn't started yet.  Life is daily hard for anyone with this malady.  As a pastor of a church, I found great strength in knowing that though Paul prayed 3 times, his "thorn" was not removed, but God was made strong in his weakness.  It doesn't stop the suffering.  It only makes you able to endure and fight for others.  God bless the expert surgeon, Dr. Zimmern at UTSW!  I pray yours is fixed quickly.

     

    • cathy
      Jun. 01, 2012

      help!  i am having problems too.  contact me someone.  i need a surgeon in the houston area that can remove this mesh. heemomgma@gmail.com.

    • Revjay
      Jun. 01, 2012

      Hey, Cathy!  It's revjay again and I would like to give more hope than what I am reading from these comments.  I am seeing a RECONSTRUCTION specialist because I pray and hope to have a vagina recreated if I do not have enough left to have one.  And they can use YOUR OWN tissue to make a sling, not a pigs heart or whatever.  My 2 insurances...

      RHMLucky777

      Read More

      Hey, Cathy!  It's revjay again and I would like to give more hope than what I am reading from these comments.  I am seeing a RECONSTRUCTION specialist because I pray and hope to have a vagina recreated if I do not have enough left to have one.  And they can use YOUR OWN tissue to make a sling, not a pigs heart or whatever.  My 2 insurances have covered me 100% and one is Medicare.  Also, there is a website TRUTH IN MEDICINE that talks and is committed to fighting to get mesh off the market.  I urge you to find a TEACHING HOSPITAL and reputable expert who does nothing BUT mesh erosion.  Blessings - Revjay  p.s. I have not sued and my doctor did not put in the notes what mesh he used.  My surgeon told me that I have clear mesh and they can't see it and lawyers have tried to have it analyzed but still can not tell.  It's a journey and don't walk alone!  Connect with others and stay hopeful and strong.  There IS HOPE.

    • Revjay
      Jun. 01, 2012

      Hey, Cathy!  It's revjay again and I would like to give more hope than what I am reading from these comments.  I am seeing a RECONSTRUCTION specialist because I pray and hope to have a vagina recreated if I do not have enough left to have one.  And they can use YOUR OWN tissue to make a sling, not a pigs heart or whatever.  My 2 insurances...

      RHMLucky777

      Read More

      Hey, Cathy!  It's revjay again and I would like to give more hope than what I am reading from these comments.  I am seeing a RECONSTRUCTION specialist because I pray and hope to have a vagina recreated if I do not have enough left to have one.  And they can use YOUR OWN tissue to make a sling, not a pigs heart or whatever.  My 2 insurances have covered me 100% and one is Medicare.  Also, there is a website TRUTH IN MEDICINE that talks and is committed to fighting to get mesh off the market.  I urge you to find a TEACHING HOSPITAL and reputable expert who does nothing BUT mesh erosion.  Blessings - Revjay  p.s. I have not sued and my doctor did not put in the notes what mesh he used.  My surgeon told me that I have clear mesh and they can't see it and lawyers have tried to have it analyzed but still can not tell.  It's a journey and don't walk alone!  Connect with others and stay hopeful and strong.  There IS HOPE.

    • cathy
      Jun. 18, 2012

      revjay,

      thanks for the input.  i have recently found out that i have a recurrence of melanoma cancer so my mesh problem is going to have to wait for a while til i have my pain come back.  then i will have to contact my urologist and see what she can do for me if anything.  i am so devastated about this whole thing.

    • Lisa4296
      Jun. 16, 2012

      I had my first tvm surgery in june 2010, for the first like 9 months it seemed to be ok.  Feb of 2012 i had the one removed due to complications and another one put in, a different kind, in a different position.  Now four months later, i notice the vaginal area to be tender when bumped or laying on my stomach.  I did some investigating in my...

      RHMLucky777

      Read More

      I had my first tvm surgery in june 2010, for the first like 9 months it seemed to be ok.  Feb of 2012 i had the one removed due to complications and another one put in, a different kind, in a different position.  Now four months later, i notice the vaginal area to be tender when bumped or laying on my stomach.  I did some investigating in my vaginal area, and there are like 2 little pcs of metal eroding from my vaginal area.  i am so tired of dealing with this!  have an appt on the 26th of this month  i hope to have this removed for good.  has any1 else experienced this metal sticking out in the vaginal canal area?

    • kittycat
      Jul. 09, 2012

      Yes, that's "normal".  That's one of the major complaints that we all have.  My first husband called me "snaggle puss" and "barbie" (barbed wire) before he up and left me.

       

      Lovely, huh.

       

      I had the prickles trimmed several times over several years but it kept coming back.  I was told they couldn't take it all out.  I finally found...

      RHMLucky777

      Read More

      Yes, that's "normal".  That's one of the major complaints that we all have.  My first husband called me "snaggle puss" and "barbie" (barbed wire) before he up and left me.

       

      Lovely, huh.

       

      I had the prickles trimmed several times over several years but it kept coming back.  I was told they couldn't take it all out.  I finally found a good doctor and had the entire mesh removed last December.  It appears to be gone and I feel better, but I still can't have sex.  It's been 8 years now.  It is just too tender there from so many surgeries, and when I try I basically fall apart like I am shredding.  I rip and cause more damage.  So I am now celibate because of this stupid product.

       

       

    • kittycat
      Jul. 09, 2012

      Yes, that's "normal".  That's one of the major complaints that we all have.  My ex-husband called me "snaggle puss" and "barbie" (barbed wire) before he up and left me.

       

      Lovely, huh.

       

      I had the prickles trimmed several times over several years but it kept coming back.  I was told they couldn't take it all out.  I finally found...

      RHMLucky777

      Read More

      Yes, that's "normal".  That's one of the major complaints that we all have.  My ex-husband called me "snaggle puss" and "barbie" (barbed wire) before he up and left me.

       

      Lovely, huh.

       

      I had the prickles trimmed several times over several years but it kept coming back.  I was told they couldn't take it all out.  I finally found a good doctor and had the entire mesh removed last December.  It appears to be gone and I feel better, but I still can't have sex.  It's been 8 years now.  It is just too tender there from so many surgeries, and when I try I basically fall apart like I am shredding.  I rip and cause more damage.  So I am now celibate because of this stupid product.

       

       

  • Kitty 1960
    Apr. 24, 2012

    I have had 3 surgery but 2 of them where mesh implant one in 2005 and another in 2007. The one I had in  2007, I called my docotr and told im I was bleeding  and he didnt had any idea of what it was.

    I have had alot of pain and leaking. The pain in my legs and back are so bad I have been admited in the hosp. I also have pain on the right side under...

    RHMLucky777

    Read More

    I have had 3 surgery but 2 of them where mesh implant one in 2005 and another in 2007. The one I had in  2007, I called my docotr and told im I was bleeding  and he didnt had any idea of what it was.

    I have had alot of pain and leaking. The pain in my legs and back are so bad I have been admited in the hosp. I also have pain on the right side under my breast and the right side between the pelvic bone and the ovaries.

    I loose my balance alot and even fall, I also have a lump o top of my pelvic bone and the docotr told me is the mesh.

    I have been married for over 25 years and my marriage is in chambles, the pain is so bad I just cant bring my self to have any intercourse. Oh my hips also hurt alot.I am also in alot of pain whe I urinate. I cant urinate constantly it starts and stops. Also I have to stand up to finish going.

    Is all this related to the mesh I am so miserable. 

    • Anonymous
      cece
      May. 24, 2012

       

       

      I had my surgery in Jan 2006  and have had nothing but problems and pain since then.

       

      The problem with peeing ,unable to pee- it stoping, having to stand slightly to pee- pushing onto your bladder to make yourself pee are all from the mesh .

       

      I have had all of that.  I have gone now to 7 Doctors with my problem (I would never...

      RHMLucky777

      Read More

       

       

      I had my surgery in Jan 2006  and have had nothing but problems and pain since then.

       

      The problem with peeing ,unable to pee- it stoping, having to stand slightly to pee- pushing onto your bladder to make yourself pee are all from the mesh .

       

      I have had all of that.  I have gone now to 7 Doctors with my problem (I would never go back to the Original GYN that put this piece of garbage in me). 

       

      I begged Doctors to remove it but have been told over and over : IT can't be removed as it is embedded in your system!

       

      Well Why was this ever allowed to be even on the market! I know the doctor that put it in me did not explain any of the problems. She did not even give me  any liturature on it.  She made it sound simple. Her office nurse told me I would be a new women after the surgery!  

       

      I sure am- I can no longer have relations with my husband because of the pain. I have been on creams, now I am getting shots for nerve damage with a Specialist.

       

       

      I have all my medical records from Surgery. I have asked 2 years ago my former GYN's Office what was used in my surgery.  They told me it was up to the Hospital that the surgery was done to pick the product and contact them.  I call the Hospital and ask them for a detailed record as I need to know what mesh was used.  I get the report and it does not list a Manufacture! 

       

      ALL the Bill lists is SYSTEM TVT OBTURATOR

       

       

      Seems to me the Doctor is blaming the Hospital and the Manufacture is blaming the Doctors. 

       

      And we are the ones with our lives ruined.

       

       

       

       

       

       

       

  • Anonymous
    LindaE
    Mar. 26, 2012

    What a nightmare. Have had 5 years of pain, infections, 20 courses of antibiotics. Was just told I need to have mesh (partial) out. Why wouldn't they just take whole thing out so I don't have to deal with this anymore? And does anyone have any suggestions for sling removal specialists in the NYC area? So far I see that MN and KS are the only places to go. Any...

    RHMLucky777

    Read More

    What a nightmare. Have had 5 years of pain, infections, 20 courses of antibiotics. Was just told I need to have mesh (partial) out. Why wouldn't they just take whole thing out so I don't have to deal with this anymore? And does anyone have any suggestions for sling removal specialists in the NYC area? So far I see that MN and KS are the only places to go. Any direction would be greatly appreciated. THANKS EVERYONE. 

    • kittycat
      Mar. 28, 2012

      Toronto,  Go to Sunnybrook if your insurance will cover it.

      Dr. Kung.

  • smiles1966
    Jan. 17, 2012

    I had a t-sling in October 2009, had repeated leakage after sling but not as bad as before sling, I had a constant discharge and frequent urination, blood often in urine with antibiotic treatment over and over and low back pain with discomfort during intercourse, Sudden change in my life happened the end Of November 2011 when running into a doctor at a...

    RHMLucky777

    Read More

    I had a t-sling in October 2009, had repeated leakage after sling but not as bad as before sling, I had a constant discharge and frequent urination, blood often in urine with antibiotic treatment over and over and low back pain with discomfort during intercourse, Sudden change in my life happened the end Of November 2011 when running into a doctor at a Urgent care fianlly said somethings not right! Was sent to see a different urolgist and a MRI was done which revealed a tumor in my bladder and had surgery over Christmas of 2011 and went home with a catheter to find out that Biopsy showed no tumor but Foreign body material

    ( MESH ) IN MY BLADDER! A couple of weeks with catheter and going through the healing process after surgery approx 3 weeks one night I wake with a strong urge to urinate, and go to the bathroom to pour blood and clots into the comode, On call Doctor told me to drink plenty of water to flush my kidneys and call the office the next day, Went to doctor and cath was put back in because after the bleeding started I could no longer pee on my own.  i was sent home with catheter and I was ask to wait two weeks to have a cysto to look into the bladder, After a few days and dealing with pain,a nd stress, I called and said I refuse to wait 2 weeks to see why I am bleeding after surgeryw hen its already been a few weeks after surgery and I have had no problems untill now, and I was called back and told he would go ahead and move the cysto up so he could look into my bladder, The results were that I am not healing from my surgery thats now been approx 6 weeks ago and that the hole he cut out into my bladder that he thought was a tumor is not healing, I have infection in my bladder an durine shows positive for infection, and the bladders looks horrible on camera/cysto. Urologist tells me my only options is surgery, But jsut to remove the mesh on the other side of the bladder where it had gone through since he only removed it from the inside. So here I am trying to figure out were to go. Having some fear because I hear that doctors are just not trained in the mesh removal. I have also been told its better not to let him go in by making 2 holes in my low back and 2 in my abdomen and do it Robotically/Laser. I was told of another dcotor that would do it the old fashion way and just cut my belly and go into my bladder, Anyone know any Doctors in North Carolina that specialize in the removal of a t- sling for the bladder. My insurance requires me to stay in N.C. This has been very difficult for me. You can reach me at  sherryannsmiles@yahoo.com

    Thanks!

    • sweetjulze
      Jan. 31, 2012

      i had my surgery in 7/2009 and in 8/2011 i  started  having a brownish blood like discharge,   i went back to the   doctor  that did the surgery and  she examine me and told me that i have  a mesh erosion,  she put me on  a cream for 8weeks to treat the infection and  then. returned after the  8weeks and...

      RHMLucky777

      Read More

      i had my surgery in 7/2009 and in 8/2011 i  started  having a brownish blood like discharge,   i went back to the   doctor  that did the surgery and  she examine me and told me that i have  a mesh erosion,  she put me on  a cream for 8weeks to treat the infection and  then. returned after the  8weeks and was told that i need reconstruction surgery. well i lost my job in 9/2011  so i have no insurance and the doctors will not operate unless she knows that she will be paid for doing my surgery, you would think being that they put this mesh in me it should'nt be a problem for them to fix it inspite of me not having insurance at this time. i'm located in south new jersey, can anyone tell me what i need to do to have this problem fix,  i can't take this anymore....please help me!

  • Anonymous
    help my daughter!
    Jan. 11, 2012

    my daughter  has identical problems with the mesh / sling .I was reading about the doctor  that removed the sling from some of the patients .Please help me find  or where my daughter can go for help!! She hurts so bad every day .we live here in Las Vegas.

    • kittycat
      Jan. 24, 2012

      Hi,

      I am writing from Toronto.  I realize you live in LV so naturally I don't know any doctors there.  I just wanted you to know I had my Anterior/ Posterior vaginal repair mesh (Gynecare) and my TOT bladder mesh (Gynecare) both REMOVED totally at Sunnybrook Health Sciences Center (Hospital) in Toronto by an awesome, incredible, compassionate, talented...

      RHMLucky777

      Read More

      Hi,

      I am writing from Toronto.  I realize you live in LV so naturally I don't know any doctors there.  I just wanted you to know I had my Anterior/ Posterior vaginal repair mesh (Gynecare) and my TOT bladder mesh (Gynecare) both REMOVED totally at Sunnybrook Health Sciences Center (Hospital) in Toronto by an awesome, incredible, compassionate, talented and god-sent urogynecologist.  I had the mesh for 7 years and it was totally overgrown with new tissue but she got all of it out on December 15 despite five failed attempts just to "trim" it at other hospitals.   It has been 6 weeks and I went for my post-operative check up today.  I felt inside as well.  I feel wonderful!  No more prickles, no pain, no scar tissue... just a toned, healthy, snug, happy, pain-free body!!!!!!!!

       

      I am writing just so you know IT CAN BE DONE!!!!  Do  not give up!!!!  I thought for sure I would have the horrible pain for the rest of my life but this doctor is heaven sent.

       

      I did not have sex for 7 years because of the mesh but now I have the "green light" ... she told me to wait another 2 months beyond the 6 weeks I have already waited, just to make sure I am strong, but that's better than waiting another 7 years!!!
      Hang in there and keep up the good search.

       

      Kittycat 

    • kittycat
      Mar. 16, 2012

      Well, I still feel good and the mesh is definitely ALL gone...  but I tried having sex this morning for the first time since my December 15 surgery (I was told to wait three months... but I haven't actually had sex in about ten years since the mesh was put in because of the pain!!!)

       

      I was NOT able to have sex today.  It hurt too much and felt...

      RHMLucky777

      Read More

      Well, I still feel good and the mesh is definitely ALL gone...  but I tried having sex this morning for the first time since my December 15 surgery (I was told to wait three months... but I haven't actually had sex in about ten years since the mesh was put in because of the pain!!!)

       

      I was NOT able to have sex today.  It hurt too much and felt like I was ripping again. Couldn't even penetrate with lots of lube.

       

      Well, at least I don't have the daily mesh pain and I know my body isn't being injured inside, anymore.

       

      I guess I'll have to live without sex as I've been doing anyway.

       

      Damn those mesh makers!

       

      Cry

    • Anonymous
      worried in MS
      May. 03, 2012

      Who was this Dr.? Does anyone know of a good Dr. in Mississippi? I had my TOT sling put in in 2005 and am just realizing my problems may be from that. Continuous yeast infection for thwe last two years, major hip & back pain. I also feel like there is a raw nerve at the base of my tail bone. Have not been able to sit straight for two years. I am having...

      RHMLucky777

      Read More

      Who was this Dr.? Does anyone know of a good Dr. in Mississippi? I had my TOT sling put in in 2005 and am just realizing my problems may be from that. Continuous yeast infection for thwe last two years, major hip & back pain. I also feel like there is a raw nerve at the base of my tail bone. Have not been able to sit straight for two years. I am having leakage after I urinate. Burns during intercourse... Has anyone else had these same symptoms?

  • sherry
    Jan. 05, 2012

    Hello my name is Sherry 45 yr old female. I had a bladder sling approx 3 yrs ago and had grequent urination since and painful intercoursem and discharge and low back pain. I continued to have reoccurring blood in my urine and was treated for bladder infections, Now 3 yrs later after many treatments on antibiotic and seeing several doctors, I went to another...

    RHMLucky777

    Read More

    Hello my name is Sherry 45 yr old female. I had a bladder sling approx 3 yrs ago and had grequent urination since and painful intercoursem and discharge and low back pain. I continued to have reoccurring blood in my urine and was treated for bladder infections, Now 3 yrs later after many treatments on antibiotic and seeing several doctors, I went to another Urologist who done a MRI AND found I had a tumor in my bladder so I had surgery Dec 2011. Wore a cath for 2 weeks and found out from the doctor It was not a tumor after all it is foreign body material which is the mesh protruded into my bladder. So now 2 weeks after cath removal now all of the sudden Ive wolken one night and went to bathroom and passed alot of blood in urine along with clots, I also am unable to pee at all, I went to doctor and had 300 cc of urine I could not release on my own and had to have a catherder put in again, urine in catherder bag is full of blood, doctor treating me on a antibiotic called cipro and told me to drink alot of water, and to come back in 2 weeks for a cysto to look into bladder with the camera to see the surgery he done to see if the hole he cut out thinging he was cutting out a tumor he has to look to see if its healed or etc.. Doctor also said I will have to have another surgery to remove the mesh on the other side where he cut out on the inside. I am so worried. I do not understand how for 3 whole weeks after my surgery I have had no problems and I have been able to empty my own bladder and now I cant, and why would I be passing blood three weeks later. Does nayone have any advice for me and if so please email me at sherryannsmiles@yahoo.com

  • kittycat
    Dec. 16, 2011

    Hi,

    I had my TOT bladder sling mesh and my vaginal repair mesh (anterior and posterior) all removed yesterday by a Urogynecologist in Toronto.  I had all the mesh put in in 2004 and I have had 5 repairs / trims since that time!!! The mesh caused horrible pain, erosion (jagged wires in my vagina), foul odours, tinnitus (24/7 high pitched...

    RHMLucky777

    Read More

    Hi,

    I had my TOT bladder sling mesh and my vaginal repair mesh (anterior and posterior) all removed yesterday by a Urogynecologist in Toronto.  I had all the mesh put in in 2004 and I have had 5 repairs / trims since that time!!! The mesh caused horrible pain, erosion (jagged wires in my vagina), foul odours, tinnitus (24/7 high pitched ringing noises in my head), and constant outbreaks of bright red blood blisters all over my legs. (This is called purpura... Doctors said my immune system worked so hard to kill the mesh that it ended up attacking my blood vessels and popping them). I haven't been able to have sex once since getting the mesh because of pain to me and to my partner.  My husband divorced me for this reason.  My new boyfriend and I cannot even engage in sex with a finger or a toy because it hurts so much and sometimes even digital penetration can cause me to rip in half with exposed mesh(called a "sinus tear", similar to when you give birth and rip from vagina to rectum). 

     

    Anyway.... the mesh was all successfully removed.  My doctor kept it in a jar to show me.

    It was difficult to remove but I actually feel quite good.  It has been 24 hours and I am not even needing narcotics for pain management.  I am on Extra Strength Tylenol and Naproxen.

     

    Do not fear this surgery.

     

    I put it off for seven years, insisting on "repairs" only (rather than a removal) because I thought it would be an agonizing surgery.  I think that a TVT removal is more complex than TOT.

    My mesh was made by Gynecare.  It certainly did not give me any "care".

     

    The doctor had planned to replace the vaginal mesh with bovine tissue but it turned out that my vagina was sooooo damaged by the mesh that she had to cut away a lot of tissue, and there wasn't enough of my vaginal tissue left for her to attach the bovine tissue to me.  I am very upset that she had to cut away so much vaginal tissue on top of the mesh removal.

    The mesh makers have caused so much grief.  It is like having a mastectomy in your vagina. I do not even feel like a woman anymore.

     

    We will re-assess in 6 weeks whether I will need YET ANOTHER surgery to put in the bovine tissue, after I heal.

     

    My TOT sling likely won't be replaced because I don't want anything to do with mesh, ever again.  I think I will be getting collagen or silicone periurethral injections to help with my incontinence, but they will cost me about $1000 and they aren't covered on my insurance.

     

    Kittycat

     

     

    • kittycat
      Dec. 19, 2011

      Hi,

      It's Kittycat again.  I had two kinds of mesh fully removed last week (vaginal repair mesh and TOT bladder sling mesh).  It had been in me since 2004 with five other mesh "trim" operations since that time. The medications have worn off and I am in a lot of pain now but it is still worth it, just knowing this horrible product is out of my body....

      RHMLucky777

      Read More

      Hi,

      It's Kittycat again.  I had two kinds of mesh fully removed last week (vaginal repair mesh and TOT bladder sling mesh).  It had been in me since 2004 with five other mesh "trim" operations since that time. The medications have worn off and I am in a lot of pain now but it is still worth it, just knowing this horrible product is out of my body.

       

      My surgery was four days ago and as far as I know all of the mesh was removed from my TOT sling and my vaginal repairs. 

       

      I have bad cramping in my front and back (like labour pains) as well as from the pain of all the incisions.  I am sleeping a lot and mentally preparing myself to be in bed for a month or two.  I am still thankful that I was able to have the removal done by an excellent doctor here in Toronto.  

       

      Originally I was supposed to have the vaginal repair mesh replaced with an organic bovine tissue to hold me together again, but apparently there was so much mesh and so much damage that my doctor had to cut away big sections of my vagina (Ew???!!!)  There was not enough of my own tissue left to attach the bovine tissue to it. Apparently, the surgeon needed to do a lot of tissue stretching just to pull my own body back together again once the mesh came out.  This will make it fragile and full of scar tissue.

       

      Regarding the TOT Mesh, the plan was just to remove it and not replace it with anything.  It was removed.  I am still having incontinence which actually got worse during my time with the TOT sling. My doctor is suggesting collagen needles into the urethra to engorge the tubes so I don't leak in the future.  These needles will be $1000 each and not covered on my insurance.

       

      I have been told I will have a lot of scar tissue (I have had five surgeries to trim the mesh in the past, so I am full of scarring).  I don't know if I will ever have sex again even with the removal.  There has been a lot of nerve damage from all the surgeries as well.  So I am a virtual mess "down there", but I am thrilled to think it may be out.

       

      Please, do not allow any woman to even consider having a mesh implant.

       

      I will keep you posted on my recovery.

       

      K

       

       

       

       

       

  • Jake
    Nov. 28, 2011

    Firstly, do not even consider having a TVT or any other synthetic mesh put in to your body for any reason whatsoever, you will end up with considerably more problems which can also be life threatening. Yes people have died due to this operation, how doctors can do this to people l do not understand except that it is a cheaper option than using...

    RHMLucky777

    Read More

    Firstly, do not even consider having a TVT or any other synthetic mesh put in to your body for any reason whatsoever, you will end up with considerably more problems which can also be life threatening. Yes people have died due to this operation, how doctors can do this to people l do not understand except that it is a cheaper option than using your own tissue to correct your problems. My wife had a TVT mesh inserted a few years ago and has since had many of the problems that you read about on this web site. The problem is locating a surgeon who can remove ALL the tape from your body. We took a long time searching for a suitable surgeon and in the end we went to a Dr. Philippe Zimmern at the UT Southwestern Hospital in Dallas. We had no insurance so had to put up $30000 for tests and any operation needed. After various tests he said he would remove as much of the tape as possible and that afterwards my wife would have a better quality of life. He removed a 3 cm segment of the tape from under the urethal tube which when you consider there is at least 20+ cms of tape in there was hardly a significant amount to remove. However he convinced us that within 6 to 8 weeks my wife would be much better off. It is now over three months since the operation and my wife is much worse off now with more symptoms than she had previously? We also have found out that Dr. Zimmern did what is called "Tape Division" which he did not tell us about, we have since found out that "Tape Division" does not work with these tapes and can make matters significantly worse which is what my wife is experiencing now. Dr. Zimmern must have known this but still went ahead and did it without informing us. Some of the operation costs have now been refunded back to us but my wife is now regrtting having the operation done. Therefore if anyone is considering having partial or full tape removal do not go to Dr Zimmern. We have been in touch with the UT Southwestern hospital since the operation telling them of the new problems but have not heard one single word friom Dr. Zimmern, oh well, l suppose he has got his money and thats what is important!   

    • danbury5
      Dec. 02, 2011

      Wow, when I was researching for my Grandmother, Dr Zimmern was one of the choices. (His name came up a lot during my research as someone who was reccomended). She ended up choosing Dr Klingele at the Mayo in MN. She has so much nerve damage from previous partial removals that he felt that trying to get the remainder out was going to cause even more nerve damage...

      RHMLucky777

      Read More

      Wow, when I was researching for my Grandmother, Dr Zimmern was one of the choices. (His name came up a lot during my research as someone who was reccomended). She ended up choosing Dr Klingele at the Mayo in MN. She has so much nerve damage from previous partial removals that he felt that trying to get the remainder out was going to cause even more nerve damage and he did not reccomend it. He would have done it if she insisted but he said if it was his mother he would not do it and reccomended trying non narcotic pain meds and therapy. He said to try everything and see what works. He was very kind and offered to consult with her by phone (we are on the east coast) free of charge and consult with any pain management therapy Drs. He also did not want to put in a sling made of her own tissue at this time. He discovered after tests that she has a leak in her urethra (we knew about that) but also has spastic bladder. Her old DR told her there was no such thing as spastic bladder and that is why he put in the mesh (TVT-O sling to support urethra). She never should have had the mesh put in before trying spastic bladder medication. Makes me so bad how imcompetent some Doctors are. Also, what exactly is "tape division"? is that just a partial mesh removal?

      Thanks and I hope your wife finds a souloution. The pain is debilitating.

    • Jake
      Dec. 06, 2011

      Sorry to hear about your Grandmother, its sad when the tape cannot be fully removed which is the only way to fully relieve any symptoms it would seem. Yes Dr.Zimmern comes highly recommended but l do not believe he has fully removed any synthetic meshes. We initially did not know what tape division was but a doctor has told us that tissue is peeled off the...

      RHMLucky777

      Read More

      Sorry to hear about your Grandmother, its sad when the tape cannot be fully removed which is the only way to fully relieve any symptoms it would seem. Yes Dr.Zimmern comes highly recommended but l do not believe he has fully removed any synthetic meshes. We initially did not know what tape division was but a doctor has told us that tissue is peeled off the mesh from under the uretha and then the mesh is cut diagonally? don't know if this is fully correct, Zimmern told us he had removed 70 to 80% of the tape, in fact he removed none by the sound of it. My wife is seeing someone soon to see if full tape removal is possible, will let all know if this is successful and who the surgeon is.

      Jake.

    • danbury5
      Dec. 06, 2011

      Update to my Grandmothers visit with Dr Klingele- He feels like she has extensive nerve damage (pudendal nerves) because of the mesh and her two removal surgeries. He felt like if he tried to remove the rest of the mesh (she had a tvt-o sling to support urethra) that he would leave her with further nerve damage and possibly in more pain that she already is....

      RHMLucky777

      Read More

      Update to my Grandmothers visit with Dr Klingele- He feels like she has extensive nerve damage (pudendal nerves) because of the mesh and her two removal surgeries. He felt like if he tried to remove the rest of the mesh (she had a tvt-o sling to support urethra) that he would leave her with further nerve damage and possibly in more pain that she already is. She is in terrible pain and has to use a wheelchair when she goes out, where preivously she was an active woman. She has some relief when sitting or lying down. He could also have put in a sling with using her own body tissue but he discovered she has spastic baldder. Her other dr told her there was no such thing and that is why she has the mesh. If she had known that, she could have tried medication first before ever having the mesh. Dr Klingele was very kind and said he would take out the mesh if she insisted (he just took someones out that very day-first removal) but he strongly advised against it in her case becasue of the nerve damage he thinks she already has. He feels that she can be relatively pain free with some type of pain management. (non narcotic). She is in more pain everyday and is discoraged that after traveling so far he could not help her although he is going to work closely with any doctor she goes to here. (we live on the east coast, he is in MN). I would STRONGLY advise anyone who wants to have mesh removal, to go to an experienced surgeon the FIRST time. More and more damage is done everytime they go in there and try to get it out. If anyone wants any more info on nerve damage, google "pelvic nerve pain" or "pelvic nerve damage".

    • Anonymous
      anonymous
      Oct. 01, 2013
      Jake, I know this post is almost 2 years old, but I am about to have surgery with Dr. Z next week. After seeing your post, I am deeply concerned because I am scheduled to have a partial removal. Now, after seeing your posts, I'm seriously about to cancel. Please email me at kamrs14 @ hushmail dot com.
    • Jake
      Oct. 02, 2013

      Hi,

      I have just seen your letter on Health Central requesting me to contact you. I see you are about to see Dr Zimmern, obviously l cannot advise you about this, it has to be your decision all l can do is say that he increased my wife's problems regarding the mesh. Originally my wife was convinced by the UK medical staff to have the mesh fitted even though...

      RHMLucky777

      Read More

      Hi,

      I have just seen your letter on Health Central requesting me to contact you. I see you are about to see Dr Zimmern, obviously l cannot advise you about this, it has to be your decision all l can do is say that he increased my wife's problems regarding the mesh. Originally my wife was convinced by the UK medical staff to have the mesh fitted even though she was not incontinent at the time but it seems they wanted more guinea pigs for their mesh trials here? We travelled to Dallas because we were told by Dr.Zimmern that he could remove ALL of the mesh, this turned out to be not true and he only did a partial removal, going by the photos he took of the piece of mesh he showed me he removed about 3 cms of tape from under the Uretha (partial removal) which sounds ok but it actually increased my wifes problems and she also became incontinent? I do not believe Dr Zimmern has the expertise to remove all of the mesh, the only person we know of who can is a Dr Raz in LA, California but we have never been able to contact any of his patients who have had full mesh removal to confirm this. Dr Zimmern actually trained under Dr Raz so he appears to be the expert, my wife has tried to contact some of Dr Raz's patients after they have had full mesh removal without success. All l can tell you is that my wife has researched this subject extensively and she has found that partial removal does not help and in many cases it creates more problems. We believe only full mesh removal is the answer but it is difficult to do if you have had this mesh in your body for many years. The sooner the mesh is removed the better the outcome, my wife had the mesh implant in 2004 so we are not sure if it can be fully removed now and we are still not sure about going to Dr Raz without a reccommendation from one of his patients who has had full mesh removal. I hope this helps you but it will probably cause more confusion about what to do butat least you can make a better judgement about whether having partial removal is the answer to your problems. Tried to send to your email but it would not go?

      Best Wishes,

      Jake

  • Anonymous
    KJL
    Nov. 20, 2011

    I feel the need to add something to the comments here for those that are suffering, my heart goes out to all of you!My mum is a sufferer and has been desperately trying to find someone to remove it!she acted on some advice which was supported by someone who calls herself 'TVT mum' aka Lorrain Evans, this women is fake and a presumed advocate for Johnson and...

    RHMLucky777

    Read More

    I feel the need to add something to the comments here for those that are suffering, my heart goes out to all of you!My mum is a sufferer and has been desperately trying to find someone to remove it!she acted on some advice which was supported by someone who calls herself 'TVT mum' aka Lorrain Evans, this women is fake and a presumed advocate for Johnson and Johnson collecting information for them, a shark amongst us!Dr Zimmerman was recommend and is endorsed on her site and my mother spent thousands getting over to Texas to have her TVT sling removed after increasing pain, inability to sit down, stinging, burning and swelling, and complete decrease in her quality of life, and he performed an experimetal procedure on her called 'Tape division' this made things 100x worse, instead of urging incontinence she now suffers total incontinance, a serveer bladder, vaginal and bowel prolaps none of which she had before, there is very little information on this procedure but what information there is on these 'trial methods' can be found on google! Dr Zimmerman has further ruined her life and left her feeling hopeless.I have just had a little girl and now worried she will never know her grandmother due to fake sites and people pointing desperate people in the wrong direction!
    SHAME ON YOU!!!

    I have had to used intials due to harrassment from these individuals but hope that this helps even just one of you to avoid making the same mistake my mother did!

    • Jake
      Nov. 28, 2011

      With reference to TVT MUM, there is also a UK TVT MUM website (www.tvt-messed-up-mesh.org.uk), the woman who runs it is not helping mesh sufferers and l believe it is an information gathering website for Johnson and Johnson who make the Gynecare TVT mesh. When my wife contacted the website owner she was very rude and obnoxious, my wife has spoken to other...

      RHMLucky777

      Read More

      With reference to TVT MUM, there is also a UK TVT MUM website (www.tvt-messed-up-mesh.org.uk), the woman who runs it is not helping mesh sufferers and l believe it is an information gathering website for Johnson and Johnson who make the Gynecare TVT mesh. When my wife contacted the website owner she was very rude and obnoxious, my wife has spoken to other sufferers who have also told her the same and now have nothing to do with this woman or the website. Incidentally, this is the website where we obtained Dr. Zimmern's name from who does "Tape Division". If and when we find a surgeon who can successfully remove all the tape, if we ever do, l will post their name on Health Central. 

    • Jake
      Nov. 28, 2011

      With reference to TVT MUM, there is also a UK TVT MUM website (www.tvt-messed-up-mesh.org.uk), the woman who runs it is not helping mesh sufferers and l believe it is an information gathering website for Johnson and Johnson who make the Gynecare TVT mesh. When my wife contacted the website owner she was very rude and obnoxious, my wife has spoken to other...

      RHMLucky777

      Read More

      With reference to TVT MUM, there is also a UK TVT MUM website (www.tvt-messed-up-mesh.org.uk), the woman who runs it is not helping mesh sufferers and l believe it is an information gathering website for Johnson and Johnson who make the Gynecare TVT mesh. When my wife contacted the website owner she was very rude and obnoxious, my wife has spoken to other sufferers who have also told her the same and now have nothing to do with this woman or the website. Incidentally, this is the website where we obtained Dr. Zimmern's name from who does "Tape Division". If and when we find a surgeon who can successfully remove all the tape, if we ever do, l will post their name on Health Central. 

    • Jake
      Nov. 28, 2011

      With reference to TVT MUM, there is also a UK TVT MUM website (www.tvt-messed-up-mesh.org.uk), the woman who runs it is not helping mesh sufferers and l believe it is an information gathering website for Johnson and Johnson who make the Gynecare TVT mesh. When my wife contacted the website owner she was very rude and obnoxious, my wife has spoken to other...

      RHMLucky777

      Read More

      With reference to TVT MUM, there is also a UK TVT MUM website (www.tvt-messed-up-mesh.org.uk), the woman who runs it is not helping mesh sufferers and l believe it is an information gathering website for Johnson and Johnson who make the Gynecare TVT mesh. When my wife contacted the website owner she was very rude and obnoxious, my wife has spoken to other sufferers who have also told her the same and now have nothing to do with this woman or the website. Incidentally, this is the website where we obtained Dr. Zimmern's name from who does "Tape Division". If and when we find a surgeon who can successfully remove all the tape, if we ever do, l will post their name on Health Central. 

  • sandrared
    Nov. 12, 2011

    Hi. I have been reading everyone's post's and wonder if this is my problem?? I have Interstitial Cystitis and am in pain all the time. So it's hard to tell if the pain is from the IC flare up or from the mesh implant I had put in last Feb.2010. I had POP. My bladder felt like it was falling out. I was leaking and in severe pain.  I have not had to...

    RHMLucky777

    Read More

    Hi. I have been reading everyone's post's and wonder if this is my problem?? I have Interstitial Cystitis and am in pain all the time. So it's hard to tell if the pain is from the IC flare up or from the mesh implant I had put in last Feb.2010. I had POP. My bladder felt like it was falling out. I was leaking and in severe pain.  I have not had to have any additional surgeries so not really sure if this is the problem or not. I asked my Dr and found out he used the mini-arc sling. I didn't see anyone mention that particular mesh product. How would I know if the mesh is eroding or not?? I have SEVERE pain in my back all the time now. It used to only hurt when i was working and twisted it or something. Now it's 24/7. I actually was fired from my job because I was in too much pain to work.  I had to go to a pain clinic and the pills don't even touch the pain i have. I have pelvic pain as well at times. My stomach cramps so bad at times it feels like everyday is my period. My period has been pretty regular my whole life until the last few months. After a cystoscope with hydration, I bled for 14 days. Stopped, then started bleeding again. My Dr. said it was "Nothing to worry about". He made me feel like an idiot and I was just imagining the whole thing.

     

    My regular Dr. gave me Neurotin to help with the nerve pain. It's not working either. I have an appt with a eurogyn on the 29th of this month. I have an implant in my back so getting an MRI is out of the question. Would a CT scan show if there was any mesh eroding anywhere?? 

     

    I pray for all of us women that are going thru this. If someone could answer my post I would greatly appreciate it.

     

    Thanks and God Bless!!

    • susieq59
      Nov. 20, 2011

      If the sling was eroding I think you could feel it .Mine pierced through my flesh interally and I was diagnosed with the intersticial cystitis after i went in for the erosian. I was so ticked but have been greatly able to help myself with the bladder pain by avoiding coffee and drinking alot of water with baking soda . Look up earth clinic . com they have tons...

      RHMLucky777

      Read More

      If the sling was eroding I think you could feel it .Mine pierced through my flesh interally and I was diagnosed with the intersticial cystitis after i went in for the erosian. I was so ticked but have been greatly able to help myself with the bladder pain by avoiding coffee and drinking alot of water with baking soda . Look up earth clinic . com they have tons of cures and testimonies to help with ic. the mesh is another story . I think only getting it out will help. my body is rejecting the mesh and it pains me where they attached it and internally also its messed up my hormones really badly. God please help all us woman with this suffering.

    • Linda
      Jun. 08, 2012

      I have heard of many women having complications with this sling.  There is help.  http://teapapers.com/bladdersling/2012/05/taking-a-break-from-mesh 

  • Melissa
    Nov. 11, 2011

    I had the mesh TVT procedure in 2005. I though I was water tight for a time. Several years ago I started having severe urgency incontinence. I have had several embarrassing accidents in public. I am 41 and have found this problem is getting worse. I have a high pain tolerence, but am now realizing that all of the pains and woes I try to ignore are most likely...

    RHMLucky777

    Read More

    I had the mesh TVT procedure in 2005. I though I was water tight for a time. Several years ago I started having severe urgency incontinence. I have had several embarrassing accidents in public. I am 41 and have found this problem is getting worse. I have a high pain tolerence, but am now realizing that all of the pains and woes I try to ignore are most likely attributed to this problem. 

     

    This mess has seriously messed up my life. I can hardly remember what is was like to feel normal and of course urninate normally. I am too young to have suffered this long. 

     

    I saw a urologist (FINALLY) a few months ago and after much ado he sent me on to UCLA. I have had a cystoscopy and urodynamics done to discover sever prolasp of my bladder and the mest has eroded into my urethra. 

     

    I am scheduled for surgery at the end of this month. I am praying that all the repairs can be done as well as the removal of all of the mesh. 

     

    Anyone have an ongoing case they are involved in? 

     

     

     

  • orlandofl
    Nov. 04, 2011

    Hello Everyone,

     

    My prayers go out to everyone having problems with the mesh. Does anyone have a dr that can remove the mesh in Orlando? My mother has to have it removed after having it only for a few months and has had several surgeries prior to the mesh. Her current dr. isnt listening to her complaints that she has had from day one and now she is bleeding....

    RHMLucky777

    Read More

    Hello Everyone,

     

    My prayers go out to everyone having problems with the mesh. Does anyone have a dr that can remove the mesh in Orlando? My mother has to have it removed after having it only for a few months and has had several surgeries prior to the mesh. Her current dr. isnt listening to her complaints that she has had from day one and now she is bleeding. Please let me know if you know of someone in Orlando area. Thank you and bless you all!

    • danbury5
      Nov. 04, 2011

      I don't know of anyone in the Orlando area and I have done a lot of research trying to find someone for my Grandmother. She has had 2 mesh removal surgeries already and now the dr says the nerve damage from the mesh and the additional surgeries may be permanant. Make sure that it is done right the first time! Don't settle for someone with little experience...

      RHMLucky777

      Read More

      I don't know of anyone in the Orlando area and I have done a lot of research trying to find someone for my Grandmother. She has had 2 mesh removal surgeries already and now the dr says the nerve damage from the mesh and the additional surgeries may be permanant. Make sure that it is done right the first time! Don't settle for someone with little experience with mesh removal. My grandmother is going to the Mayo Clinic in MN to Dr. Klingele.

       

      I hope you find someone who can help your mother!

    • orlandofl
      Nov. 04, 2011

      Thank you for the reply. Its furstrating. You think you found someone that can do it to find out they arent so great:( You dont know who to trust and not trust. I was thinking the Mayo clinic in Fl or Shans but Im at such a lost. Thank you for the reply.

    • danbury5
      Nov. 04, 2011

      I have read some posts from people who were not happy with the mayo clinic in FL. I don't remember specifics...search on this site and on hyster sisters site. There is a lot of good info there as well. It IS very frustrating. My grandmother new the first two doctors who did her removals were not super experienced with it, but they seemed confident and she didn't...

      RHMLucky777

      Read More

      I have read some posts from people who were not happy with the mayo clinic in FL. I don't remember specifics...search on this site and on hyster sisters site. There is a lot of good info there as well. It IS very frustrating. My grandmother new the first two doctors who did her removals were not super experienced with it, but they seemed confident and she didn't want to travel (we live on the east coast) but now she has no choice. She was very active before this. Now the pain is so bad she can barely move.

    • Graceanne
      Nov. 04, 2011

      Hello in Florida:   I had my mesh removed at the Univ of Michigan - - Urogynecologist - Dr. Fenner.   I searched a great deal prior to choosing her.  I am now 4 weeks post op and doing ok.  So happy to have the mesh out of my body.

      Good luck to all.

    • danbury5
      Nov. 04, 2011

      Hi Graceanne,  Did they remove all of your mesh? I was just wondering if they ever get it all out. They told my grandmother it was too dangerous to get out the arms that are in her pelvis. I am glad you are doing well!!

    • Graceanne
      Nov. 05, 2011

      Reply to getting all the mesh out:    Yes, in my case I only had a mesh sling and not the entire large mesh patch.   The Dr. told me she was 98% sure that she got it all out.  I had a TOT and I think it was attached/wrapped around some bones in my pelvic area.   I'm hoping that the nasty stuff is 100% out and gone for...

      RHMLucky777

      Read More

      Reply to getting all the mesh out:    Yes, in my case I only had a mesh sling and not the entire large mesh patch.   The Dr. told me she was 98% sure that she got it all out.  I had a TOT and I think it was attached/wrapped around some bones in my pelvic area.   I'm hoping that the nasty stuff is 100% out and gone for good.  I'm not sure how much they can remove from the larger mesh patch that so many women have.  I know that my Dr. came highly recommended as a pelvic floor specialist - - - urogynecologist.  I guess you will have to ask lots of questions after you find an excellent surgeon.   Good luck.

       

    • danbury5
      Nov. 06, 2011

      Interesting...my grandmother has it wrapped around some bones in her pelvis as well. She has the TVT-O sling.

       

      Thanks for the information and I sincerely hope you continue to do well!

       

      Katie

    • Graceanne
      Nov. 07, 2011

      Good luck to your Grandmother.   I also contacted the Mayo Clinic - Rochester, MN and had to wait too long to see Dr. K.   The Dr. I found at the Univ of Mi did a fellowship at the Mayo Clinic prior to coming to Mi.  I sure hope they will be able to get all the mesh out for your Grandmother.  It's hard to explain the pain you feel...

      RHMLucky777

      Read More

      Good luck to your Grandmother.   I also contacted the Mayo Clinic - Rochester, MN and had to wait too long to see Dr. K.   The Dr. I found at the Univ of Mi did a fellowship at the Mayo Clinic prior to coming to Mi.  I sure hope they will be able to get all the mesh out for your Grandmother.  It's hard to explain the pain you feel with it in your body.  I know your Grandmother will feel much better when this is all over.  I will also have to have some physical therapy in the near future.  The damage caused by the mesh is a shame.  Sorry your Grandmother is suffering.   Good luck to her.

       

    • susieq59
      Nov. 20, 2011

      Wow this is so sad and horrible. I also am in Orlando area of Florida. Wonder if the same doc put in your poor grandmothers. Mine has been a nightmare and I have been searching and have spoken to a lawyer and she is going to tell me if there is anyone inFlorida who is competent at removing the mesh. I will let you know. I have only found 2 that sound competent...

      RHMLucky777

      Read More

      Wow this is so sad and horrible. I also am in Orlando area of Florida. Wonder if the same doc put in your poor grandmothers. Mine has been a nightmare and I have been searching and have spoken to a lawyer and she is going to tell me if there is anyone inFlorida who is competent at removing the mesh. I will let you know. I have only found 2 that sound competent and they are in 2 different states. This really is a tragity .

  • tammy
    Oct. 30, 2011

    i to am having problems both the mesh and sling used for my incontience repairs r causing problems  for many myself included 2 surgerys already and my gynecologist says the mesh has erroded thru! hve infections pain thats horrible at times cant urinate normal at all  cant even tell im peeing unless i hear it ! see a new dr in 2 days even hve pain...

    RHMLucky777

    Read More

    i to am having problems both the mesh and sling used for my incontience repairs r causing problems  for many myself included 2 surgerys already and my gynecologist says the mesh has erroded thru! hve infections pain thats horrible at times cant urinate normal at all  cant even tell im peeing unless i hear it ! see a new dr in 2 days even hve pain in kidneys at times !why did they approve this stuff if it wasnt tested as should hve been it appears

  • plugg1533
    Oct. 24, 2011

    Thes stories are unbelievable ! I too had a Mesh put in in June 07 and have had a lot of trouble with leg and vaginal pain but did NOT know it was from that until recently ! I have been having BACK injections for it, with NO help ! I have often smelled a horrible odor and wondered what it was ??!! Now I know I'm not crazy ! I too am searching for...

    RHMLucky777

    Read More

    Thes stories are unbelievable ! I too had a Mesh put in in June 07 and have had a lot of trouble with leg and vaginal pain but did NOT know it was from that until recently ! I have been having BACK injections for it, with NO help ! I have often smelled a horrible odor and wondered what it was ??!! Now I know I'm not crazy ! I too am searching for a doctor to remove the mesh. I had a uro/gynocologist put mine in. I live in Baltimore, MD This is a living nightmare !!!Cry

    • danbury5
      Oct. 28, 2011

      My grandmother had her mesh surgery and removals done in Baltimore at the U of Maryland. No results though. Going up to Mayo clinic in Rochester in Nov. I messaged  you but I am not sure if I did it right.

       

  • Lily
    Oct. 07, 2011

    I need some advise, i had my bladder lifted about 1 year ago, since then i have had pressure, pain, burning and itching... I went back to my urologist and told him about my pain, etc.. Since he performed the surgery i figured i will go back to him, at the time he told me everything was fine and put me on estrase cream, said the estrase cream should take care...

    RHMLucky777

    Read More

    I need some advise, i had my bladder lifted about 1 year ago, since then i have had pressure, pain, burning and itching... I went back to my urologist and told him about my pain, etc.. Since he performed the surgery i figured i will go back to him, at the time he told me everything was fine and put me on estrase cream, said the estrase cream should take care of the problem, i took the estrase cream it did not work, months later and the pain , pressure , burning is worst.. Made an appointment with my gyn went to see her today, she said i have an erosion caused by the mesh, i have to go back to my urologist and have this mesh removed and i am scared because of everything i am reading. Should i go back to my urologist since he performed the surgery? Months ago when i asked him what type of mesh and what company did i have inside me, he said , he didn't know...I am just so frustrated and upset , being that i was having problems and thought this bladder lift would solve my issues and now it's making it worse.. Any advise, would be greatly appreciated... I just don't know who to turn too .. I have an appointment on Friday with my urologist , do i let him do the surgery or should i find someone who specialized in mesh removal? Also has anyone had their mesh removed and had any kind after complications because of it?

    • kittycat
      Oct. 07, 2011

      I am having my mesh removed on Dec. 15 2011 by a Urogynecologist in Toronto. I have had five or six "repairs" (trims and skin grafts to cover the erosion) but they have all failed. I have heard that the removal can cause paralysis and horrible complications because it gets very stuck to the tissues.  I am afraid but feel I have a good surgeon.  I...

      RHMLucky777

      Read More

      I am having my mesh removed on Dec. 15 2011 by a Urogynecologist in Toronto. I have had five or six "repairs" (trims and skin grafts to cover the erosion) but they have all failed. I have heard that the removal can cause paralysis and horrible complications because it gets very stuck to the tissues.  I am afraid but feel I have a good surgeon.  I will let you know what happens.

    • Graceanne
      Nov. 04, 2011

      Response to "kittykat":   I had my mesh sling removed and a new one made from my own body tissue in October 2011.   I went to a good urogynecologist at the Univ of Mi - - - Dr. Fenner.   I am four weeks post op and doing ok - - - no leaking!  All the leg, butt, lower back and pain when sitting are gone.   I suggest...

      RHMLucky777

      Read More

      Response to "kittykat":   I had my mesh sling removed and a new one made from my own body tissue in October 2011.   I went to a good urogynecologist at the Univ of Mi - - - Dr. Fenner.   I am four weeks post op and doing ok - - - no leaking!  All the leg, butt, lower back and pain when sitting are gone.   I suggest you find a really good urogynecologist who has lots of experience with removing mesh.   Good luck to you.

       

    • kittycat
      Nov. 04, 2011

      Hi,

      I do have a good urogynecologist (finally) who is taking out the mesh on Dec. 15. The problem is she isn't replacing it at that time. she said we have to do one operation at a time to assess whether I even need a new sling.  SOmetimes the body has corrected itself on its own.  She also said if i do get one down the road it will be pig tissue (?) ...

      RHMLucky777

      Read More

      Hi,

      I do have a good urogynecologist (finally) who is taking out the mesh on Dec. 15. The problem is she isn't replacing it at that time. she said we have to do one operation at a time to assess whether I even need a new sling.  SOmetimes the body has corrected itself on its own.  She also said if i do get one down the road it will be pig tissue (?)  Wait and see, I guess.  I can't believe this. I've had about six repairs and 12 pelvic surgeries in total.  Here we go again.

    • kittycat
      Dec. 07, 2011

      I went for my pre-operative appointment and check up today.  My surgery for mesh removal is on December 15.  I was told that she will take out the mesh in my vaginal repair and the mesh in my TOT sling.  Both have been there for seven years, with five repairs done in the past.  I am so scared.  She said I will need to be off work until...

      RHMLucky777

      Read More

      I went for my pre-operative appointment and check up today.  My surgery for mesh removal is on December 15.  I was told that she will take out the mesh in my vaginal repair and the mesh in my TOT sling.  Both have been there for seven years, with five repairs done in the past.  I am so scared.  She said I will need to be off work until at least February.  I just had strep throat for two weeks and missed two weeks of work.  I thought I would go back to work after the new year but NO.   I am really worried.  I am getting the bovine tissue put in to replace the vaginal mesh but nothing at this point to replace the bladder mesh.  Apparently they might give me a shot of something in the urethra that makes it stronger (?) but this would be a few months from now if needed.


      Prayers please for my 12th pelvic surgery.

       

      Damn those mesh makers.

       

      Kittycat

    • kittycat
      Dec. 07, 2011

      I went for my pre-operative appointment and check up today.  My surgery for mesh removal is on December 15.  I was told that she will take out the mesh in my vaginal repair and the mesh in my TOT sling.  Both have been there for seven years, with five repairs done in the past.  I am so scared.  She said I will need to be off work until...

      RHMLucky777

      Read More

      I went for my pre-operative appointment and check up today.  My surgery for mesh removal is on December 15.  I was told that she will take out the mesh in my vaginal repair and the mesh in my TOT sling.  Both have been there for seven years, with five repairs done in the past.  I am so scared.  She said I will need to be off work until at least February.  I just had strep throat for two weeks and missed two weeks of work.  I thought I would go back to work after the new year but NO.   I am really worried.  I am getting the bovine tissue put in to replace the vaginal mesh but nothing at this point to replace the bladder mesh.  Apparently they might give me a shot of something in the urethra that makes it stronger (?) but this would be a few months from now if needed.


      Prayers please for my 12th pelvic surgery.

       

      Damn those mesh makers.

       

      Kittycat

    • kittycat
      Oct. 07, 2011

      I am having my mesh removed on Dec. 15 2011 by a Urogynecologist in Toronto. I have had five or six "repairs" (trims and skin grafts to cover the erosion) but they have all failed. I have heard that the removal can cause paralysis and horrible complications because it gets very stuck to the tissues.  I am afraid but feel I have a good surgeon.  I...

      RHMLucky777

      Read More

      I am having my mesh removed on Dec. 15 2011 by a Urogynecologist in Toronto. I have had five or six "repairs" (trims and skin grafts to cover the erosion) but they have all failed. I have heard that the removal can cause paralysis and horrible complications because it gets very stuck to the tissues.  I am afraid but feel I have a good surgeon.  I will let you know what happens.

    • Kerri Jones
      Oct. 08, 2011

      I wish you the best of luck.  You will be in my prayers.

    • kittycat
      Oct. 17, 2011

      I am the person who finally tried sex for the first time in my three year relationship... Hadn't engaged because of the horrible jagged mesh and pain inside.  It was about three weeks ago when we finally tried.  We barely even started when I had a terrible pain and started bleeding.  I appeared to have ripped in two which was totally abnormal...

      RHMLucky777

      Read More

      I am the person who finally tried sex for the first time in my three year relationship... Hadn't engaged because of the horrible jagged mesh and pain inside.  It was about three weeks ago when we finally tried.  We barely even started when I had a terrible pain and started bleeding.  I appeared to have ripped in two which was totally abnormal seeing as I am a grown woman with two children.

       

      I must admit that the pain subsided and I didn't go to a doctor right away.

       

      In the past weeks since this happened I have had fevers and chills and a lot of vertigo.  I finally went to the doctor today and mentioned the incident, not knowing if it was related.

       

      She checked me and said I have a "sinus tear" similar to what would happen during childbirth, and my pelvic floor all tore apart where the mesh is from a previous repair, and also in the top where the TVT sling is.  The broken top wall

      has caused my pelvic organs to prolapse and herniate.  On top of this I appear to have a full body infection going on (waiting on blood test results, but have the symptoms).

       

      I also need a CT Scan to see the extent of organ prolapse and the degree of infection.

       

      All of this with barely two seconds of penetration.

       

      As it is, I already have a surgery booked for December 15 to have the mesh removed after 12 years.  Now it will be more extensive to repair this new nightmare.

       

      This is unbelievable and I am livid.  These mesh makers need to be held accountable.

       

       

    • kittycat
      Oct. 17, 2011

      I am the person who finally tried sex for the first time in my three year relationship... Hadn't engaged because of the horrible jagged mesh and pain inside.  It was about three weeks ago when we finally tried.  We barely even started when I had a terrible pain and started bleeding.  I appeared to have ripped in two which was totally abnormal...

      RHMLucky777

      Read More

      I am the person who finally tried sex for the first time in my three year relationship... Hadn't engaged because of the horrible jagged mesh and pain inside.  It was about three weeks ago when we finally tried.  We barely even started when I had a terrible pain and started bleeding.  I appeared to have ripped in two which was totally abnormal seeing as I am a grown woman with two children.

       

      I must admit that the pain subsided and I didn't go to a doctor right away.

       

      In the past weeks since this happened I have had fevers and chills and a lot of vertigo.  I finally went to the doctor today and mentioned the incident, not knowing if it was related.

       

      She checked me and said I have a "sinus tear" similar to what would happen during childbirth, and my pelvic floor all tore apart where the mesh is from a previous repair, and also in the top where the TVT sling is.  The broken top wall

      has caused my pelvic organs to prolapse and herniate.  On top of this I appear to have a full body infection going on (waiting on blood test results, but have the symptoms).

       

      I also need a CT Scan to see the extent of organ prolapse and the degree of infection.

       

      All of this with barely two seconds of penetration.

       

      As it is, I already have a surgery booked for December 15 to have the mesh removed after 12 years.  Now it will be more extensive to repair this new nightmare.

       

      This is unbelievable and I am livid.  These mesh makers need to be held accountable.

       

       

    • Kerri Jones
      Oct. 27, 2011

      Get a copy of all your medical records and surgeries they know what kind it is.  Just go to the hospital you had your surgeries.  Call an attorney,  and talk with them first.  My attorney said if they take and of the mesh out they have to save it and give it to them.  I wish you well.  I know it is hell that we have to go through...

      RHMLucky777

      Read More

      Get a copy of all your medical records and surgeries they know what kind it is.  Just go to the hospital you had your surgeries.  Call an attorney,  and talk with them first.  My attorney said if they take and of the mesh out they have to save it and give it to them.  I wish you well.  I know it is hell that we have to go through this at all.  I am facing 2 hernias surgeries and I am going to see a specialist she deals with pelvic floor stuff.  Kerri

    • kittycat
      Oct. 28, 2011

      When my husband left me (because of the sharp mesh and my inability to have sex) the divorce and custody settlement cost me over $100 000 and I spent

      five years in court.

       

      I don't have the financial or emotional strength to deal with another lawyer.

      As it is I have post traumatic stress disorder from everything I went through in the legal system.

       ...

      RHMLucky777

      Read More

      When my husband left me (because of the sharp mesh and my inability to have sex) the divorce and custody settlement cost me over $100 000 and I spent

      five years in court.

       

      I don't have the financial or emotional strength to deal with another lawyer.

      As it is I have post traumatic stress disorder from everything I went through in the legal system.

       

      I don't have the strength to deal with

      litigation, although I wish to heck I did.  I know it would do me in.

       

      K

  • suzanne
    Oct. 04, 2011

    okay..i have been reading.. and came to this site.   I will start current and go backwards.  I have been sorta incontinent for a few years.. it has gotten worse in the last few months.  I suddenly started having HORRID pain like someone pushing my hips together,stabbing me up the rectum with a long sword and pulling things down thru my vagina.....

    RHMLucky777

    Read More

    okay..i have been reading.. and came to this site.   I will start current and go backwards.  I have been sorta incontinent for a few years.. it has gotten worse in the last few months.  I suddenly started having HORRID pain like someone pushing my hips together,stabbing me up the rectum with a long sword and pulling things down thru my vagina..   its not constant..but when i dont have that feeling i have the feeling of a 9 month pregnant woman with constant urge to urniate and feeling like things are fallin out.  

     

    internal dr said last thurs that gyn would have to handle it, he thought i was a prolapsed bladder.  gyn today referred me to a uriologist (which hasnt called me back to make an appt.) 

    I am 13 years post hysterectomy.  I dont know what its called, but I had two holes in my stomach and one in my belly button and he removed it all thru my vagina including my cervix, ovaries and all.       I recall that the doctor told me he did some other repairs for me.. but i dont recall what..  i guess i need to contact his old office and see if i can find that out..   OKAY.. all that to ask this..  is there the possiblity that a mesh was used on me?  i am basing my question purely on how you women are describing your pain and it sounds like mine.     I hope I can find my way back here to see any answers you might have for me.  

    • Kerri Jones
      Oct. 04, 2011

      Hi, you can go to the hospital and get a copy of your medical records of all the surgeries you've had.  That is what I did.  It will have everything in there that they did. 

  • suzanne
    Oct. 04, 2011

    okay..i have been reading.. and came to this site.   I will start current and go backwards.  I have been sorta incontinent for a few years.. it has gotten worse in the last few months.  I suddenly started having HORRID pain like someone pushing my hips together,stabbing me up the rectum with a long sword and pulling things down thru my vagina.....

    RHMLucky777

    Read More

    okay..i have been reading.. and came to this site.   I will start current and go backwards.  I have been sorta incontinent for a few years.. it has gotten worse in the last few months.  I suddenly started having HORRID pain like someone pushing my hips together,stabbing me up the rectum with a long sword and pulling things down thru my vagina..   its not constant..but when i dont have that feeling i have the feeling of a 9 month pregnant woman with constant urge to urniate and feeling like things are fallin out.  

     

    internal dr said last thurs that gyn would have to handle it, he thought i was a prolapsed bladder.  gyn today referred me to a uriologist (which hasnt called me back to make an appt.) 

    I am 13 years post hysterectomy.  I dont know what its called, but I had two holes in my stomach and one in my belly button and he removed it all thru my vagina including my cervix, ovaries and all.       I recall that the doctor told me he did some other repairs for me.. but i dont recall what..  i guess i need to contact his old office and see if i can find that out..   OKAY.. all that to ask this..  is there the possiblity that a mesh was used on me?  i am basing my question purely on how you women are describing your pain and it sounds like mine.     I hope I can find my way back here to see any answers you might have for me.  

  • TLJ83
    Sep. 21, 2011

    PLEASE HELP!

    I am 27 yrs old and had a hyestorectomy back in October 2009. during the surgery the doctor said i had really bad scar tissue that had made my bladder attach to the abdominal wall. While the doc was removing the scar tissue from the bladdar she punctured my bladder twice, i had to keep a cath in for over a week, so i could heal. She also used some...

    RHMLucky777

    Read More

    PLEASE HELP!

    I am 27 yrs old and had a hyestorectomy back in October 2009. during the surgery the doctor said i had really bad scar tissue that had made my bladder attach to the abdominal wall. While the doc was removing the scar tissue from the bladdar she punctured my bladder twice, i had to keep a cath in for over a week, so i could heal. She also used some type of MESH aroumd my bladder "to protect it from scar tissue and it becoming attached again"....after about 3 months, sex was a major issue!!! during sex, it felt like something was stopping my husband from entering all the way, and would hurt me really bad. the doc said it just needed to be stretched back out again! after about 6 months it got ok. BUT in March of 2011 the pain started again with sex, my husband said it felt like he would go in and then pop around something, and it was painful to him, as far as the pain for me with sex, it is still there, certain places he hits it is a sharp shooting pain for me, and sometimes the bottom of my stomach will be soar the next day. In June 2011 (sorry I knw this is alot) i got sick!! hurting on the lower part of the left side of my stomach, they thought it was my apendix! test after test, and nothing. it lasted about 2 weeks, sick on my stomach and bad pain! then a gastro doc said it PID (pelvic inflammatory disease). now here i am today...went back to the doc for pain during sex, and a white discharge when i wipe. they said i had a yeast infection, which i didnt believe cause i had no kind of itching or anything, and when she done the inner exam with her finger she hit the spot that hurt during sex, she said that i was tight, and that where i said hurt was the part where they sewed up the vaginal wall from removing the uterus! could this be???? im a little worried. she gave me a hormone cream to injected and said it would help thin it out. soooo confused! oh and i forgot to mention that since the surgery in 09, i have had blood (trace and small amounts) in my urine test! they said at first kidney stones, but when they check...nothing! now he just says some people have a little blood in urine...WHAT???? What is going on? ANYONE HAVE ANY SUGGESTIONS? Sorry this was so long of a story i tried to a short version lol THANK U!

    • kittycat
      Sep. 23, 2011

      I have seen another specialist (a female Urogynecologist in Toronto), and she said I definitely need to just get the mesh OUT .... no questions asked.

      She booked me in for December.

       

      She said that the mesh can't be replaced during that surgery, because the results have to be evaluated first.  She said perhaps I won't need a sling anymore because...

      RHMLucky777

      Read More

      I have seen another specialist (a female Urogynecologist in Toronto), and she said I definitely need to just get the mesh OUT .... no questions asked.

      She booked me in for December.

       

      She said that the mesh can't be replaced during that surgery, because the results have to be evaluated first.  She said perhaps I won't need a sling anymore because the bladder would be settled into its proper location now because of scar tissue, etc... , but if I do still need one put back in it would be the organic pig tissue (heart??) type.

       

      Has anyone had that????  Is it still a nightmare???  Is it just another problem???

       

      At first I was against more surgery /removal... but I have decided to go for it, things can't get much worse can they?  I have already had about five "repairs" done to the scratchy mesh but it is still breaking through all the time and it has ruined my life (e.g., have never had sex with my man despite three years together... have never been penetrated by him ... sigh....  it just hurts too much even with a finger).

       

      Any thoughts?

       

      Someone please wish me well because I'm very nervous to do another surgery after my five year hiatus.  I am at a different hospital now and I really like this doctor so I am trying my best to be hopeful?  It is considered the best women's hospital in the country and she is the head of the department.

       

      Thanks

       

       

       

    • Kerri Jones
      Sep. 24, 2011

      Best of luck to you Kitty I hope it all goes well for you and they fix it and you don't have anymore problems. I see my surgeon the first of Oct. 2011 to see about the two hernias I have trying to get them taken care of then work on the mesh issue.  It is a very scary ordeal that us women have to go through they use us as their lab research patients to...

      RHMLucky777

      Read More

      Best of luck to you Kitty I hope it all goes well for you and they fix it and you don't have anymore problems. I see my surgeon the first of Oct. 2011 to see about the two hernias I have trying to get them taken care of then work on the mesh issue.  It is a very scary ordeal that us women have to go through they use us as their lab research patients to test things on.  They are greedy and want the money at any cost.  I hope they make things right for us women. Best of luck Kitty!  Kerri

    • kittycat
      Sep. 24, 2011

      Well, since I booked my mesh removal surgery (December 2011) I decided to finally try intercourse with my boyfriend after three years.  We are mature adults (57 / 43) but have never attempted sex because of the pain from my mesh.  Well today we tried.

       

      It hurt like **@%$ * and we couldn't even achieve full penetration. I had to stop after about...

      RHMLucky777

      Read More

      Well, since I booked my mesh removal surgery (December 2011) I decided to finally try intercourse with my boyfriend after three years.  We are mature adults (57 / 43) but have never attempted sex because of the pain from my mesh.  Well today we tried.

       

      It hurt like **@%$ * and we couldn't even achieve full penetration. I had to stop after about 5 seconds of trying to penetrate... because of the pain.  I couldn't feel "him" in any way except for mesh pain, anyway.

       

      I felt very sore externally afterward and when I looked with a mirror, I see that I am bleeding and torn around the vaginal entrance (it is ripped about half an inch with a gaping hole inside).   Considering he barely entered me (and he's certainly not massive as this may suggest), I am totally freaked out.

       

      Why would I rip that much?

      Is this to do with the mesh?

       

      I have had two children and I'm 43 so why in the world would a moment of very brief (and incomplete) penetration do this?

       

      I am not bleeding any more but I am still torn with a gaping view of the inside.

       

      ?

       

    • Kerri Jones
      Sep. 24, 2011

      You should go to the hospital and have it checked cause you could get infection.  Just to play safe you don't need anything else to add to what you are already going through.  Good luck hun!  I hope all works out for you. Kerri

    • 109eagles
      Oct. 04, 2011

      Try to find a Uro-Gynecologist to evaluate you.  Good luck!

    • Michel
      Apr. 26, 2012
      I am 33 And am having some issues now can you please let me know how you are and the steps you are taking. Are you still dealing with these problems or have you worked them out?
  • Anonymous
    sickofit
    Sep. 09, 2011

    I have had 6 surgerys due to mesh erosion and believe me I know what you are all going through. I had the pain, severe bleeding, many infections and could not have intercourse because it would rip my partners penis to shreds. I finally went back to doctor for the last surgery I would ever have for this and he removed what mesh he could and then went abdominally...

    RHMLucky777

    Read More

    I have had 6 surgerys due to mesh erosion and believe me I know what you are all going through. I had the pain, severe bleeding, many infections and could not have intercourse because it would rip my partners penis to shreds. I finally went back to doctor for the last surgery I would ever have for this and he removed what mesh he could and then went abdominally and took my own skin to make the sling and then with that did it vaginally. Again I had bleedina a week later that he stopped and now have been fighting a very serious infection for the last 2 weeks. I am so frustrated with it all, thought it would help but for the last 5 months I have done nothing but recover from a surgery and then had to have another. I have so much scare tissue I guess that intercourse may never feel the same, and I am only 40 years old. What to do????

    • Luppy
      Sep. 12, 2011

      Wow - after reading all of these posts I can say THANK goodness I am not alone.  I've been suffering since 2009.  Had POP last July (2010), another POP in October and then mesh eronsion. 4 surgeries later I am still suffering.  Constant bleeding, abdominal pain, inability to have intercourse, mood swings, irritability and lack of faith in a solution. ...

      RHMLucky777

      Read More

      Wow - after reading all of these posts I can say THANK goodness I am not alone.  I've been suffering since 2009.  Had POP last July (2010), another POP in October and then mesh eronsion. 4 surgeries later I am still suffering.  Constant bleeding, abdominal pain, inability to have intercourse, mood swings, irritability and lack of faith in a solution.  Sick of surgery. 

      What now?  The mesh needs to come out, but I feel as though my body needs to heal a bit before I subject myself to anymore cutting. 

      My procedures were done vaginally and lapariscopically, but after READING so many articles on this complication, I think that the fix for me is going to involve a very long, tedious surgery and lots of recuperation.

      Not happy at all.

      And once the mesh is removed am I going to have to walk around with Surgilube and gloves qto push my stuff back in when it plops out after any exertion?  No-one seems to be able to give me direct, concise answers , options or solutions.

      This has ruined my life and made me a miserble shell of myself.

       

       

    • kittycat
      Sep. 14, 2011

      I feel for you.

      I am the person who posted to say that I've had many, many repairs ... my husband divorced me because we couldn't have sex and my new boyfriend and I have never had sex despite nearly three years together. It is so sharp on his finger that it's not worth trying and hurting him / me.

       

      All I can say is that the erosion repairs DO NOT WORK....

      RHMLucky777

      Read More

      I feel for you.

      I am the person who posted to say that I've had many, many repairs ... my husband divorced me because we couldn't have sex and my new boyfriend and I have never had sex despite nearly three years together. It is so sharp on his finger that it's not worth trying and hurting him / me.

       

      All I can say is that the erosion repairs DO NOT WORK.  Even if they work while you are a young woman, once you hit menopause it will be worse than ever because the vagina thins out and the walls are not strong enough to hold back the jagged mesh.  Unless they can get the stuff out entirely (which is doubtful), I hate to say it but the best bet is to give up on sex and just treat the infections.

       

      It is butchery, plain and simple.

       

       

    • Luppy
      Sep. 14, 2011

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I...

      RHMLucky777

      Read More

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I seek medical assistance.

      So far, my surgeries have been lapariscopic and vaginal, but after reading the numerousd articles I found on the web ot seems removal is most successful via cutting?!

      We need to be compensated!

      Sex!  Definitely a distant memory.  I hate bleeding all of the time, and the discharge is often so awful I hate having to deal with it.  The pain drives me batty - sometimes the pain runs down the back of my legs and I can barely stand, let alone walk,  Sneezing is a nightmare for me, because when I had my first POP experience it was after a sneeze! 

      Has anyone had an opportunity to see what the solutions are in Europe?  Are they having the same complications?  Are there any holistic healing approaches?  I cannot give up because although i am in my mod forties i have a lot of life left to live, and I want to enjoy it and be painfree.

    • Luppy
      Sep. 14, 2011

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I...

      RHMLucky777

      Read More

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I seek medical assistance.

      So far, my surgeries have been lapariscopic and vaginal, but after reading the numerousd articles I found on the web ot seems removal is most successful via cutting?!

      We need to be compensated!

      Sex!  Definitely a distant memory.  I hate bleeding all of the time, and the discharge is often so awful I hate having to deal with it.  The pain drives me batty - sometimes the pain runs down the back of my legs and I can barely stand, let alone walk,  Sneezing is a nightmare for me, because when I had my first POP experience it was after a sneeze! 

      Has anyone had an opportunity to see what the solutions are in Europe?  Are they having the same complications?  Are there any holistic healing approaches?  I cannot give up because although i am in my mod forties i have a lot of life left to live, and I want to enjoy it and be painfree.

    • Luppy
      Sep. 14, 2011

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I...

      RHMLucky777

      Read More

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I seek medical assistance.

      So far, my surgeries have been lapariscopic and vaginal, but after reading the numerousd articles I found on the web ot seems removal is most successful via cutting?!

      We need to be compensated!

      Sex!  Definitely a distant memory.  I hate bleeding all of the time, and the discharge is often so awful I hate having to deal with it.  The pain drives me batty - sometimes the pain runs down the back of my legs and I can barely stand, let alone walk,  Sneezing is a nightmare for me, because when I had my first POP experience it was after a sneeze! 

      Has anyone had an opportunity to see what the solutions are in Europe?  Are they having the same complications?  Are there any holistic healing approaches?  I cannot give up because although i am in my mod forties i have a lot of life left to live, and I want to enjoy it and be painfree.

    • class action helper
      Sep. 25, 2011

      please contact me and i will see if I can help Lawyerreferralservice@yahoo.com

      Transvaginal mesh helpline

    • Luppy
      Sep. 14, 2011

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I...

      RHMLucky777

      Read More

      I am in my mid 40's.  Been suffering with one gynecological issue after another, but this one really sucks. 

      I live in Bermuda - there is no-one here that treats this so I have to travel to the US for treatment.  I am a single mother of a young child and this is so hard because I then have to rely on my parents to care for here whilst I seek medical assistance.

      So far, my surgeries have been lapariscopic and vaginal, but after reading the numerousd articles I found on the web ot seems removal is most successful via cutting?!

      We need to be compensated!

      Sex!  Definitely a distant memory.  I hate bleeding all of the time, and the discharge is often so awful I hate having to deal with it.  The pain drives me batty - sometimes the pain runs down the back of my legs and I can barely stand, let alone walk,  Sneezing is a nightmare for me, because when I had my first POP experience it was after a sneeze! 

      Has anyone had an opportunity to see what the solutions are in Europe?  Are they having the same complications?  Are there any holistic healing approaches?  I cannot give up because although i am in my mod forties i have a lot of life left to live, and I want to enjoy it and be painfree.

    • 109eagles
      Oct. 04, 2011

      You should find a good Uro-Gynecologist in America, preferably at a teaching hospital from a large university.  Good luck!

    • susieq59
      Nov. 20, 2011

      I am truly sorry for your pain and I am exsperiencing much of the same. At least you gave me a good laugh picturing the gloves and pushing the parts back in. Laughter is good medicine which I have not had many laughs with this bladder mesh evil! Rarely try to have sex and its like being a virgin trying to go really careful and try not to feel the pain.That...

      RHMLucky777

      Read More

      I am truly sorry for your pain and I am exsperiencing much of the same. At least you gave me a good laugh picturing the gloves and pushing the parts back in. Laughter is good medicine which I have not had many laughs with this bladder mesh evil! Rarely try to have sex and its like being a virgin trying to go really careful and try not to feel the pain.That really doesnt happen so i have resorted to other forms of entertaining my virile husband.

  • Anonymous
    Anonymous
    Sep. 04, 2011

    Oh boy, me too!  I have been in constant discomfort and pain ever since I had mesh put in during a hysterectomy back in June of 2010.  It eroded a few months after the surgery and I had an infection that just wouldn't heal. From what I understand I never needed mesh to begin with.  My surgeon said she would put it in to "suspend my...

    RHMLucky777

    Read More

    Oh boy, me too!  I have been in constant discomfort and pain ever since I had mesh put in during a hysterectomy back in June of 2010.  It eroded a few months after the surgery and I had an infection that just wouldn't heal. From what I understand I never needed mesh to begin with.  My surgeon said she would put it in to "suspend my bladder because I was getting older and this would "save" me from doing it down the road".  Wow, was I dumb for agreeing to that.  I ended up having repair surgery by another doctor in March of this year and still I'm feeling awful.  I just want it out and be done with the whole thing. Now my problem is finding a doctor who will do this type of surgery and even more critical is finding someone who is experienced in removing mesh. The doctors that I have come across are all "pro mesh" and don't want to even consider taking it out.  Help!  I live in NJ.

  • Anonymous
    peg6324
    Aug. 31, 2011

    I had the bladder mesh sling surgery 2 years ago, and the leakage was still apparent. so was the mesh protruding inside that was immediatley before 6 weeks showing that you could feel it.

     

    I am having a hard time with going from one doctors from another getting different , words of what is going on, none of these doctors were the ones that done the surgery....

    RHMLucky777

    Read More

    I had the bladder mesh sling surgery 2 years ago, and the leakage was still apparent. so was the mesh protruding inside that was immediatley before 6 weeks showing that you could feel it.

     

    I am having a hard time with going from one doctors from another getting different , words of what is going on, none of these doctors were the ones that done the surgery. not one will do anything or give me answer of when they can do anything. which has made me angry from the way I am suffering, 

     

    I am getting so weak and sick at my stomach all the time, infections not one doctor has gave me to help fight the infection, which no one can fight for 2 years without their body go down and getting weak. they want to put me on physical therapy, for 6 weeks which I am too weak to do. but nothing to give me anything for infection and pain. 

     

    no answers, I am in my 60's and I have been so weak in my life, I have got angry because I get no answers from to when they could do something, and i am scared because I have heard women have worse damage trying to get the mesh removed. 

     

    I don't know how bad other women are going through with trying to find a doctor that will even say alright come in for surgery , and we will trim or remove the mesh, I get no answers just merry go round that will get me out of this pain, and nothing for infections , no human can fight without it killing them for 2 years, all i have done is get weaker and on going non stop infections which one doctor said I didn't have infection, the mesh was cutting inside that blood was causeing test to show infection, that's ridiculous because their was apparent infection that could be seen signs of.

     

    I don't to die ,not from this, I don't know what to do, as I told someone it does not take a doctor to examine me and see all the scarring on the outside and fell the mesh out 3 places inside. but if someone does not do something, soon, this will take me out of this world, some times the infection is worse than other times. i cannot go on without something to fight infections  on going and do something to  to correct it and SOON. 

     

    I don't know what to do any more, it's literally killing me , for doctor to do this to women and then drag their feet doing something to correct it. is inhuman and I have called congressmen and senators and said somebody needs to do something fast.  It's getting worse and doctors seem to really not care. 

     

    WHY?  if anyone has answers to anything that relieves the pain and knows anything a doctor has gave them for infection that i can ask for please let me know.

     

    I don't have anyone to even go to doctors with me, I am not married . and have to stay at home except for short time to get food and what i need. I have never had anything to take me down so fast, even when the leakage and mesh was apparent , I was stronger, but 2 years fighting this, is killing me . 

    • kittycat
      Aug. 31, 2011

      Hi 

      I am the person who wrote two posts back (My husband divorced me because of the sharp mesh, and my new boyfriend first thought I had warts....)  Lovely, huh? We have never had sex because of the sharp jagged mesh inside me. It's kind of like having barbed wire inside me.  Yes, it hurts too.  

      I am so sorry  to hear what you are...

      RHMLucky777

      Read More

      Hi 

      I am the person who wrote two posts back (My husband divorced me because of the sharp mesh, and my new boyfriend first thought I had warts....)  Lovely, huh? We have never had sex because of the sharp jagged mesh inside me. It's kind of like having barbed wire inside me.  Yes, it hurts too.  

      I am so sorry  to hear what you are telling us.  Where do you live?  Can you go to the Emergency Room of a hospital if your regular doctors aren't doing anything? 

      My doctors (and the original surgeon) have "repaired" it many times.  In fact I have two more consultations with two new surgeons on Sept.21 and 29th, but I doubt I will go through with the surgery because I have tried likely five times in the past and it does not work to have a "repair".  My situation is also complicated because I had a hysterectomy, so without estrogen it is very easy for the mesh to break through internally.  It is almost guaranteed it will recur.

      I would think that since you are in your 60s you have likely been through menopause... so you might be facing the same challenge (low estrogen will intensify the erosion).  I am now on VagiFem after having tried Estrogel and Premarin with no good results (except massive weight gain).

      You could try asking for Vagi Fem.  It is helping me "a little" ... meaning that I am more comfortable day to day, but still not well enough to have sex.

      Regarding the infection, I have had a high pitched buzzing sound in my head non-stop since about a month after the mesh was put in.  This is called Tinnitus and it can't be cured. I am convinced it is related to an infection from the mesh. I have been so "unwell" since it was put in.  I also get blood vessels breaking in my legs which is known as petechiae or purpura (you can google these conditions to see pictures). Do you have these conditions?  I am sure they are from the mesh somehow but doctors can't figure out how.

      Are you on antibiotics?

      Try the vagi fem.

      Keep in touch and good luck.

       

       

    • Kerri Jones
      Aug. 31, 2011

      Hi my name is Kerri

      I too have had the sling put in then shortly after I had to go back in to have scar tissue removed and the sling loosened up.  Then 2 years after that they cut me 10 1/2 inches to do a complete hysterectomy.  I have had multiple problems with it all.  Now I have 2 hernias ( 1 left groin bad and in the belly button) they want...

      RHMLucky777

      Read More

      Hi my name is Kerri

      I too have had the sling put in then shortly after I had to go back in to have scar tissue removed and the sling loosened up.  Then 2 years after that they cut me 10 1/2 inches to do a complete hysterectomy.  I have had multiple problems with it all.  Now I have 2 hernias ( 1 left groin bad and in the belly button) they want to put more mesh in me.  I don't think so.  I am so tired of them use us women as their damn guinnie  pigs.  I still have the leakage and can't have sex with my husband.  The surgeon that did the surgery he left and went to another state.  So I get sent to another surgeon and I tell him what is going on and my husband went with me.  After telling this surgeon who took over for the surgeon that originally did my surgery everything that was going on he looks at me and says I don't know about the female I am a male doctor.  I was very shocked.  So I go to the surgeon who did my hysterectomy and he asked me where my pain was and I told him everywhere and he said just pick on spot and we will take 1 thing at a time.  So he order a ct scan of my pelvic and stomach so I get sent to another surgeon and she says that I have 2 hernias and the left groin is bad and 1 in the belly button.  She proceeded to tell me that they attach the sling to each side of the pelvic and your tailbone.  I told her that they couldn't of attached it to my tailbone I don't have a tailbone.  She basically called me a liar. And I told her I had my tailbone removed because I broke it twice.  So I go back to the surgeon who did my tailbone and he says my bowels might be stuck in the groin hernia but he doesn't know because he is not a bowel doctor.  Then sends me on my way.  Still nothing except more run around.  I was told it was a miracle cure. For what?  It is scarry and very aggravating.  I take counseling for it. I am looking for a good surgeon who can help me.  I also have an attorney but all the money in the world doesn't make it right.  I would rather have my life back and be and feel normal again.  I feel worthless, scarred and I can't walk to far with out the pain shooting down my legs sometimes it is so bad even the bottoms of my feet hurt.  If anyone can help me to find a good surgeon please email me @ hurricanehead2001@yahoo.com  I live in Ohio.   

    • Anonymous
      Hurting in Florida
      Nov. 06, 2011

      Hello Kerri and everyone,

      I have been reading all of these posts, and my heart goes out to each and everyone of you.  I really hate that everyone has been in so much pain and enduring such agony in their lives.  I had the bladder sling for incontinence in 2007.  Initially, I was so happy with my doctor and was amazed at how wonderful I fealt.  Prior...

      RHMLucky777

      Read More

      Hello Kerri and everyone,

      I have been reading all of these posts, and my heart goes out to each and everyone of you.  I really hate that everyone has been in so much pain and enduring such agony in their lives.  I had the bladder sling for incontinence in 2007.  Initially, I was so happy with my doctor and was amazed at how wonderful I fealt.  Prior to the surgery, I couldn't bend, walk fast, jump, laugh, or cough without urinating.  After the surgery I was able to do anything and everything.  I was convinced I had a miracle.  Prior the sling surgery, I had two hernia repairs, a benign tumor removal (in my abdomen but attached to my ovary), and a hysterectomy.  Since the sling procedure I have been having abdominal and pelvic pain.  I went to the gyn because I thought it was my one ovary that was left.  The ultrasound couldn't even find the ovary.  I have been back and forth to different doctors since March with the pain.  The pain has only gotten worse and seems to have spread to different areas.  I'm now having a lot of pain and fullness above the hair line and pain that radiates down through my groin and into my legs.  I had a CT scan that shows two pelvic hernias and possibly multiple abdominal hernias.  I have also been told that I'm constipated because my bowels have looped with the hernias.  I have been to two surgeons that say hernia surgery is not an option anymore because I already have mesh from under my breastbone, from hip to hip, to right above my hair line.  They are now telling me I have to have component seperation surgery (which is abdominal / pelvic reconstruction surgery.  I have mentioned and asked about the mesh recalls and the sling issues but they keep ignoring them and blaming all of my pain on the hernias.  Is there any way of knowing if some of this could be from the sling procedure and the mesh?  Any help or guidance is definately appreciated.  I apologize for the lengthy note.  I have another consultation tomorrow with the surgeon to discuss the seperation surgery.  I'll keep in touch and keep reading.  Good luck to everyone.  I'll pray for you all.  Thanks for listening.

    • Kerri Jones
      Nov. 06, 2011

      Hi Hurting in Florida,

       

      Yeah these doctors seem to want to make it like it is all in our heads and we are making this shit up.  But it is real and it is very frustrating when your life is put on hold and basically taken from you by no fault of ours.  They make us think this is a miracle cure and we believe them because they are doctors. ...

      RHMLucky777

      Read More

      Hi Hurting in Florida,

       

      Yeah these doctors seem to want to make it like it is all in our heads and we are making this shit up.  But it is real and it is very frustrating when your life is put on hold and basically taken from you by no fault of ours.  They make us think this is a miracle cure and we believe them because they are doctors.  But when something goes wrong they seem to want to turn their heads the other way.  And give us a round around sending us to this specialist and another and yet another.  They are eager to put the stuff in us.  But they aren't so eager when it comes to fixing it to make it right and let us be able to live a normal life again.  I have even went as far as tell my husband to just give me a divorce because it is not fair to him that we can't be intimant although it is not my fault.  He said, "No, I married you for better or worse and I love you we will get through this.  He is so wonderful to stand by me through the depression and aggravasion I am going through.  I have another specialist to see in Feb. 2012. I also have a left groin hernia and a belly button hernia which I have to have surgery on them next month (Dec.2011).  I am not looking forward to these 2 surgeries because they have to put more mesh in me and I don't want it.  I go to counseling still and my counselor ask me rate your depression and anxiety on a scale of 1-10 (10 being the highest) I told him they don't make a number high enough.  I am so tired of getting poked and proded on and tests after tests and the pain everyday.  And getting the run around this is ridiculous that they can get by with doing these things to us.  It is like they don't care and that they don't have a concienous they just want to pass us on to who ever they can and hope someone else will deal with us.  But it seems nobody wants to listen to us.  Hopefully we will all get the help we all need despartly and they will be held accountable for what they have put us all through.  The best of luck to you and everyone else.  God Bless each an everyone of us. Kerri

    • susieq59
      Nov. 20, 2011

      I saw a video on the mesh removal at the Clevland clinic and its on you tube. They look very competent and I even considered going there. Im in Florida with no medical insurance and suffering greatly.

    • Anonymous
      peg
      Sep. 05, 2011

      I understand all comments that women have made. Why hasn't someone come up with something to at least stop these infections, i have these out breaks  and scarring from sometimes to mild under skin to all heck at times most painful. HOW CAN THESE DOCTORS LIVE WITH WHAT THEY HAVE DONE TO WOMEN AND THESE COMPANIES THAT PUT THIS PRODUCT OUT. i want to know...

      RHMLucky777

      Read More

      I understand all comments that women have made. Why hasn't someone come up with something to at least stop these infections, i have these out breaks  and scarring from sometimes to mild under skin to all heck at times most painful. HOW CAN THESE DOCTORS LIVE WITH WHAT THEY HAVE DONE TO WOMEN AND THESE COMPANIES THAT PUT THIS PRODUCT OUT. i want to know and cannot get any answers , how long have they known, and why did they let doctors keep on putting this in women knowing it destroys their lives in so many ways. 

       

      I feel like a death warrant was signed on me  since I am on medicare and get the most ridiculous answers from doctors to one saying with apparent out break that could be seen that i did not have an infection. I got angry to say the least.

       

      and these companies that put this mesh out will not even answer questions, I am getting weaker and no one can fight these infections without medication, the pain I try to deal with. they give me no answers. even medicare is being sarcastic with me.

       

      I have gone to doctors over 200 miles away, specialist in bladder mesh, no answers to what or when they can do anything, no medications given to relieve me of infections at all. they want me to go to physical therapy for 6 weeks nothing to do with mesh at all, as week as I am. they are draining medicare with these surgeries and doing nothing but really signed a death warrant, I have 2 letters of doctors saying they will not see me again. one of the doctors that did my surgery one left the area after he did mine. when I asked where he was , the other doctor said he had to move with his horses, I got very angry at that sarcastic remark after being butchered by these doctors.

       

      one examined me after 6 weeks , and the mesh was protruding then, he never said one word, I have not had a relationship since my surgery, the mesh is protruding 3 places and feels like small wires in the vagina, but what is not showing is in the back , that is causing infections both through vagina and rectum and very painful, it has been over 2 years.

       

       

      what do women do? just wait to die because these infections will break them down as it would any human being, I am so angry and trust in doctors is gone. and I am scared to  let them try to correct it. but I do need medications  which no one will give me, and I don't drink, no drugs of any kind ever in my life and they know that. so I want to know why, to me medical research just murdered a lot of women and they are sitting on death row  that did not deserve this butchering of doctors to be guinea pigs fro their medical research.

  • LA1970
    Aug. 24, 2011

    Thank Magnolia48 I've been having very similiar problems and could figure out what it was. I will now contact my doctor and see if it is in fact my mesh

  • Anonymous
    Kim
    May. 24, 2011

    I just had my bladder erosion mesh removed & the DR. who did mine punctured my bladder 3 times and now i have a bladder cath that i have to wear for 2 weeks & i can't seem to get any answers prolonged problems. Please be cautious

    • Anonymous
      veryupset
      Aug. 16, 2011

      I had the bladder sling mesh implanted nearly ten years ago, after having two children and noticing bladder leakage.  I have had serious mesh complications ever since.  I have had the mesh and my vaginal erosion repaired FIVE times, during which my vaginal nerves have been ruined and the erosion always returns.  The mesh continues to erode through...

      RHMLucky777

      Read More

      I had the bladder sling mesh implanted nearly ten years ago, after having two children and noticing bladder leakage.  I have had serious mesh complications ever since.  I have had the mesh and my vaginal erosion repaired FIVE times, during which my vaginal nerves have been ruined and the erosion always returns.  The mesh continues to erode through my vagina causing very foul odors and pain.  My husband left me because we could not have sex for five years after the surgery (he called me "Snaggle Puss").  I was terrified to date afterward because of my "limitations".  I have had a new boyfriend for two years and we have NEVER had intercourse.  I doubt we ever will.  He can feel the sharp mesh with his finger.  The first time he felt it, he very cautiously asked me if I had warts!! He didn't know what else to think. I was so upset that this could be happening again.  We have never tried sex because even with "toys" the pain is unbearable and I tend to get infections right afterward.  This surgery has completely ruined my self-esteem, my marriage, my kids' lives (having divorced parents), and my new relationship.  I live in Canada and I completely have no faith in the system to even try a new repair or removal.  

  • ambulldogs@sbcglobal
    Apr. 04, 2011

    If you are still alive and having problems this man saved my life

    Dr. Rodney Appell Baylor Urology I had 7 surgeries to remove this mesh

    almost died. I am at ambulldogs@sbcglobal.net

    • tiredofpain
      Apr. 09, 2011

      Please. I am at my wits end and just had a URO confirm I am not crazy it is the sling.

      He cannot remove it but will repair I am scared.

  • Anonymous
    Lyndi
    Mar. 03, 2011

    I had the vaginal mesh inserted in July 2010, at my 6 week check-up the Dr. had to trim edges that had not attached (in his words) by 8 weeks I knew something was terribly wrong!  Returning to the same Dr. he asked if I had been having sexual relations (No, I hadn't been released for that yet) plus I hadn't stopped spotting since the surgery. ...

    RHMLucky777

    Read More

    I had the vaginal mesh inserted in July 2010, at my 6 week check-up the Dr. had to trim edges that had not attached (in his words) by 8 weeks I knew something was terribly wrong!  Returning to the same Dr. he asked if I had been having sexual relations (No, I hadn't been released for that yet) plus I hadn't stopped spotting since the surgery.  Well, he told me I could try and thought I was going to be alright. (Wrong, much pain husband said he was being scratched and I hurt plus started bleeding more.  Return to Dr. who stated I needed immediate removal of mesh and scheduled operation for the next day.  I was furious.  Got home, got on computer and thats when I found out about all the complications the Dr. never told me about with this mesh.  I immediately called a called 150 miles away to a Womans gynecologists specialist and cancelled my surgery with the first Dr.  Most of the mesh was removed in Grand Rapids at Spectrum Hospital by the second in Nov.  I still have some problems and am addressing them as we speak but I"m 75% better, have resumed relations with my husband, not like it use to be but better, and have contacted a lawyer regarding  my ordeal.  Word of Caution-(The first Dr. also stated he was a specialist and his practice even states so) Why did he not inform me of the dangers and complications?  A nurse I know told me "Dr.s make more MONEY off operations than they do office calls"

     

    • Graceanne
      Oct. 03, 2011

      I am interested in finding out the name of the Dr. at Spectrum Hospital who removed your mesh.   I need to have mine removed.  Looking for someone in Michigan to do it.  

       

    • walker michigan
      Apr. 15, 2012

      I live in Michigan, could you please give me the name of the Dr. that removed your mesh?  Thank so much.

  • Survivor626
    Jan. 05, 2011

    In 2006, I had a partial historectomy with rectocele repair and bladder sling to correct tearing during childbirth. My bladder was punctured and I spiked a 104 fever during the first night after the procedure. My urologist talked me into having the procedure. I'm not one to pass blame and take responsibility for allowing him to convince me to have the implant...

    RHMLucky777

    Read More

    In 2006, I had a partial historectomy with rectocele repair and bladder sling to correct tearing during childbirth. My bladder was punctured and I spiked a 104 fever during the first night after the procedure. My urologist talked me into having the procedure. I'm not one to pass blame and take responsibility for allowing him to convince me to have the implant telling me that there is a 1 to 3% failure rate. I understand now how that is possible - I was probably one of the earliest patients with no statistics to base a more accurate rate on. I've since had 4 addtional surgeries to remove erroded mesh in my vagina and rectom. I discovered the problem about 3 months after the initial surgery with mesh suddenly hanging from my rectom. The doc that implanted the mesh took no further care of me and sent me to a general surgeon who seemed to be shocked and refused to treat me. Fortunately, he referred me to a colorectal specialist an hour + away from where I live. She referred me to a Urogynocologist and together, they have been removing mesh as it errodes. I fight constant pelvic pain and bouts of infection (indication that errosion is occuring). I am concerned about a comment that the original urologist made. He was excited that he was "able to attach the mesh to my tail bone." For the last 6 months, I've developed pain in my hips and down my left leg. This concerns me and I have no idea who to see about that. My trust level is very low and I am afraid the mesh attached to my tail bone is causing inflamation or infection.

    Has anyone else experienced this? Or been told the mesh was attached to their tail bone?

     

    Thank you,

    • missouri
      May. 30, 2011

      I would love to talk to you...I am looking for a surgeon to remove the mesh as we speak. and yes I have the hip pain, leg pain thigh and buttock pain and I was also

       told that they attached the mesh to my tail bone...wha a mess.

      My email is tmcbeerealty@AOL.COM. EMAIL ME AND WE WILL TALK. 

      I posted a comment today...May 31,2011...

      Missouri

    • Kerri Jones
      Sep. 05, 2011

      Yes I was told it was attached to both sides of the pelvic and the tailbone. When I told the surgeon that they couldn't have attached it to my tailbone because my tailbone was removed because I broke it 2 times.  The surgeon called me a liar.  They must have attached it to my spine.  Which explains why I have so much lower back pain.

  • Kat
    Kat
    Nov. 15, 2010

    Here is my story, I am 37 years old. Had a hysterectomy about 5 years ago with cyctocele repair with only sutures. That failed within months and the dr. denied it. I knew he was wrong, I could see for myself that my vaginal opening looked the same as it did previous to surgery! I also have the TVT sling? in the uerthra. That I believe is fine.

    Went to a specialist....

    RHMLucky777

    Read More

    Here is my story, I am 37 years old. Had a hysterectomy about 5 years ago with cyctocele repair with only sutures. That failed within months and the dr. denied it. I knew he was wrong, I could see for myself that my vaginal opening looked the same as it did previous to surgery! I also have the TVT sling? in the uerthra. That I believe is fine.

    Went to a specialist. She put in the propelene mesh. Within months it began eroding. Pain on the right side. Scar tissue has filled that "arm" of the sling and it is "chronically" inflammed. The mesh has eroded and I have many in and out of hospital procedures to removed the mesh that pokes thru.

    Question 1. Will the scar tissue continue to grow as that area is always inflammed or does that stop forming at some point? I have refused surgery simply because i am so sick of dealing with it.

    Question 2. I KNOW i have a fistula. I had one CT scan or someother scan (I forget). That showed air in the vagina. The test was taken because I complained that everytime my body has gas...I have gas coming out of my vagina!! I can be sitting, not feeling the need to pass gas, stand up and all of a sudden, with NO control over it, the sounds of gas come out of my vagina. I KNOW that is where it is coming from OR my urethra. Not sure, but it comes out and NOT from my anus. Has anyone experienced this?

     

    I have pushed off this next surgery but now experience pain on a weekly basis. I take valium suppositories to stop  the cramping. But the pain is like a ring around my pelvic area inclucing my back. I'm ok to stand to some degree but sitting is awful! I don't think i have any nerve damage. No numbness, just pain, sometimes mid back, others bottocks bone type pain.

     

    If anyone has any of these symptoms or can answer theses questions I'd be so grateful.

    Also, is this just going to continue to get worse if I do nothing about it? Is it progressive (it has always been in the past) but I'm wondering if it will EVER or if there is even a chance that this will all stablize?

    Thanks so much in advance and so sorry to hear all these stories. I wasn't aware that there were that many people with problems. I was told they are VERY rare when i had this put in. I just wanted to have a normal looking vagina and to not have stress incontinence.

    • trbrown22
      Nov. 16, 2010

      I finally went back to my original dr out of desperation (a urologist), he could not find but a very small piece of mesh, about the size of a mosquito. All the mesh I had in the past year had absorbed into my body. I don't know why, or how, unless my body finally accepted it as part of my body and not a forgien object. However, my bladder was bothering me horribly...

      RHMLucky777

      Read More

      I finally went back to my original dr out of desperation (a urologist), he could not find but a very small piece of mesh, about the size of a mosquito. All the mesh I had in the past year had absorbed into my body. I don't know why, or how, unless my body finally accepted it as part of my body and not a forgien object. However, my bladder was bothering me horribly because I have interstitial cystitis and he had to do a cystoscopy and hydrodistention, which I have had multiple times with good results to ease my bladder pain. He also ran a scope into my vagina and found the tiny piece of mesh and removed it while I was under. He had a lot of blood drawn to do some testing of my hormones which were all messed up. He now has me on hormones that are making feel better. I still have my pelvic pain and always will due to my IC (Interstital Cystitis) or (Pelvic Pain Syndrome).

       

      I don't think you mentioned what type of dr did your surgeries, but maybe you need to see a urologist, or go the other way, ob/gyn, which ever you haven't already seen.

       

      I was very angry with my urologist for a long time, but once I got over myself and realized he had put the mesh in me to help me and he was the only one that really knew where it was to remove it, I went back to him. My husband by my side, with questions and a notepad. My trust has been restored in this dr and he knows that I am a case to handle due to all of my illnesses, so for him to take on all my problems and study everything together, gives me even more faith. No other dr I have been to goes that extra mile.

       

      I may still need a vaginal reconstruction eventually, but I have to heal right now and let the hormones do their thing, and I've been feeling a few twinges that I haven't felt in a long time.

       

      Good luck with your problems, I hope you eventually have some hope, just don't give up and don't back down when it comes to the drs or their nurses. Demand the care they would give their mothers.

      God Bless!

    • Kat
      Kat
      Nov. 17, 2010

      Thanks for responding. I went to to first a gyn that had an assist in the o.r.  with a urologist that stitched the cyctocele. When that failed, they sent me to the Female medical Institute. The Dr. has been great with me. Offering me care  without insurance and doing what she can to help, but she knows the only thing to make it better is yet another...

      RHMLucky777

      Read More

      Thanks for responding. I went to to first a gyn that had an assist in the o.r.  with a urologist that stitched the cyctocele. When that failed, they sent me to the Female medical Institute. The Dr. has been great with me. Offering me care  without insurance and doing what she can to help, but she knows the only thing to make it better is yet another surgery to fix it. I just don't know if it would EVER get better without it. it's only gotten worse. My Dr. said my body has rejected the mesh in certain areas (the chronically inflamed area) but the other areas look good. So now that I developed a cyctocle she doesn't even know if she wants to use the mesh again, in case, that area rejects the mesh as well..They are I believe all uro/gyn's thereat the institute that specialize in the mesh and incont.

       

  • RaineP
    Jul. 01, 2010

    Ok so first surgery was 11/23/09 for hysterectomy and bladder sling/mesh, due to constant chronic pain and not being able to walk, sit or stand I went back to the same Doctor who tricked me into having a suture removed 12/23/09. During this 2nd surgery he cut my prudental nerve so I have partial paralysis on right side and right leg. Now nearly eight months...

    RHMLucky777

    Read More

    Ok so first surgery was 11/23/09 for hysterectomy and bladder sling/mesh, due to constant chronic pain and not being able to walk, sit or stand I went back to the same Doctor who tricked me into having a suture removed 12/23/09. During this 2nd surgery he cut my prudental nerve so I have partial paralysis on right side and right leg. Now nearly eight months later and now facing my 3rd surgery for mesh removal for which I have a highly recommened surgeon at USF in Tampa. The mesh had folded on the right side and the left side is eroding. I have contacted two very well known lawyers in Tampa who will not help me with surgical negligence as my condition has not been given a permenant dignosis. I do not know if any of you are aware you have only 2 years to file a claim, and you cannot file a claim unless the doctor advising it is permenant.......as we all know the doctors are backing each other up, this is disgusting, I bet he is able to have intercourse, I have not since 11/22/09, I am in constant pain, doubling over most of the time........is there not one lawyer or someone in authority that can help us. I have to keep taking time off work, I dont want to lose my home, this is so stressful.Frown

    • jazzyc
      Dec. 09, 2010

      I am in Tampa also and have had the mesh recommended to me! Can you contact me as I would like to talk to you more about the doctor that has been recommended to you. ajnmm@juno.com

       

      Thanks!

  • Anonymous
    Sharon
    Feb. 01, 2010

    I was wondering if there is any update to your condition? Thanks Sharon

    • EM
      EM
      May. 18, 2010

      Hi my name is Earl my wife just had this Mesh removed it took me 6 mos. to even find a Doc to remove th Mesh. We knew somthing was wrong soon after the Mesh was put in. Then the Doc told us that he did not have anything to replace it with put it this way she has nerve damage and will be on 2 pain meds. We have a Lawyer but in the State of FL. we have to prove...

      RHMLucky777

      Read More

      Hi my name is Earl my wife just had this Mesh removed it took me 6 mos. to even find a Doc to remove th Mesh. We knew somthing was wrong soon after the Mesh was put in. Then the Doc told us that he did not have anything to replace it with put it this way she has nerve damage and will be on 2 pain meds. We have a Lawyer but in the State of FL. we have to prove that the Doc was at fault and did nonthing to help resolve the his screw up.

    • RaineP
      Jul. 01, 2010

      Hi Earl

      Sorry to hear your wife is going through a similar situation as me. You said you have a lawyer, I have not been able to get one to take my case, and you are right you have to prove medical negligence but we only have 2 years to prove it.

      What city are you in ?

  • Anonymous
    Sharon
    Feb. 01, 2010

    This is a continuing nightmare and I would love to talk with you. I had the same thing done in 05 only the sling was too tight and they had to go in and cut it and said they had to leave it in because it is impossible to remove. I haven't had any real bad pain or discomfort until recently. It is the same pain as after the surgery so I know where it is. Just...

    RHMLucky777

    Read More

    This is a continuing nightmare and I would love to talk with you. I had the same thing done in 05 only the sling was too tight and they had to go in and cut it and said they had to leave it in because it is impossible to remove. I haven't had any real bad pain or discomfort until recently. It is the same pain as after the surgery so I know where it is. Just recently experiencing the discharge and pain during sex. can you tell me how you see if it is eroding or who can diagnose? My doctor had only performed around 50 and it was a botch. He sent me to his friend who is a urologist to finish. I am so scared and have no idea what to do. What other symptons do you have?

    • Suzanne McClain
      Feb. 23, 2010

      There are a lot of people fighting dilligently to get this garbage (surgical mesh) off the market.  It is affecting people with incontinence issues as well as hernia issues, and as Chuck stated in an earlier post, we were all used as guinea pigs.  

       

      The FDA approves these devices under the 510K approval process, which does not require clinical...

      RHMLucky777

      Read More

      There are a lot of people fighting dilligently to get this garbage (surgical mesh) off the market.  It is affecting people with incontinence issues as well as hernia issues, and as Chuck stated in an earlier post, we were all used as guinea pigs.  

       

      The FDA approves these devices under the 510K approval process, which does not require clinical trials.  All a manufacturer has to do is show substantial equivalence to a device already on the market, and they are usually given approval to proceed to maket within 90 days.

       

      I have researched many bladder mesh devices since becoming injured in June of 2008, four years after my doctor implanted Ethicon's Transvaginal Taping (TVT) Device in my body.  I was not told/warned of the serious complications that this device could cause in the human body; erosion of tissues like a cheese grater, adherence to organs and nerve beds, dyspareunia (painful sexual relations.)  Had I been told of these atrocities, my decision would have been made for me, it would have been a resounding NO!

       

      I have started a petition to try to get surgical mesh off the market, and I have been pushing for a Congressional Hearing.   Please take the time to read/sign this petition at:   http://www.thepetitionsite.com/1/-the-danger-of-surgical-mesh-and-the-push-to-have-it-removed-from-the-market

       

      I Have also written an article on CNN's page, and request that you also read/post comments to it.  I am trying desperately to get this issue picked up by the national media so we can blow the powder keg on this controversy that is injuring so many people globally.  This article can be found at:  http://www.ireport.com/docs/DOC-406234

       

      The first thing you need to do is get copies of your hospital records to find out the exact type of mesh you were implanted with.  You can then file an accurate adverse event report with the FDA on form 3500.

       

      If anyone needs assistance, please email me at:  aunt_sanner@yahoo.com

       

      If I don't respond right away, please be patient as I am helping many others through this process.  If I haven't answered within 3-4 days at most, assume I didn't get it and email me again.

       

      best,

       

      Suzanne

    • Susan
      Mar. 20, 2010

      Hey Suzanne, Have you had your mesh removed?  I had the prolift for anterior repair in Oct '09, then had erosion surgery Dec'09 and it had to be freed from my bladder which was punctured in th process. I cam home from tha surgery with a catheter and ureteral stent for 14 days, very painful. I continue to have chroin pelvic and groin pain, buttocks too....

      RHMLucky777

      Read More

      Hey Suzanne, Have you had your mesh removed?  I had the prolift for anterior repair in Oct '09, then had erosion surgery Dec'09 and it had to be freed from my bladder which was punctured in th process. I cam home from tha surgery with a catheter and ureteral stent for 14 days, very painful. I continue to have chroin pelvic and groin pain, buttocks too. I had to quit my job. I too was not told of any of the FDA warnings or severe complications. I am now having to go out of network to Vanderbilt to have a surgeon take as much out as possible. We are going to have to pay out of pocket. I did go to the Mayo in FL, but the lady uro/gyn, told me I had to live with it and do pain management and pelvic PT. She uses mesh in her practice. She said my pain was not from the mesh, just from having pelvic surgery!!!! Please email me at sghall82@yahoo.com. I would appreciate your imput.

       

      Sincerely,

      S. Hall

    • Anonymous
      ladyjane
      Nov. 08, 2011

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004....

      RHMLucky777

      Read More

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004. I wonder what the long term affects will be on my body going with the vitimins that come from fruits and vegetables??? Have you heard of this happening as a result of the bladder sling?  Looking forward to hearing back from you.  ladyjane7654@live.com

    • susieq59
      Nov. 20, 2011

      Yes I have heard about this and was diagnosed with interstitcial cystits after the mesh probably has been poking at the bladder for yrs. It is very painful and acidic foods make it worse. Baking soda in water and lots of water are helpful.

    • Anonymous
      ladyjane
      Nov. 08, 2011

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004....

      RHMLucky777

      Read More

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004. I wonder what the long term affects will be on my body going with the vitimins that come from fruits and vegetables??? Have you heard of this happening as a result of the bladder sling?  Looking forward to hearing back from you.  ladyjane7654@live.com

    • ladyjane
      Nov. 08, 2011

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004....

      RHMLucky777

      Read More

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004. I wonder what the long term affects will be on my body going with the vitimins that come from fruits and vegetables??? Have you heard of this happening as a result of the bladder sling?  Looking forward to hearing back from you.  ladyjane7654@live.com

    • ladyjane
      Nov. 08, 2011

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004....

      RHMLucky777

      Read More

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004. I wonder what the long term affects will be on my body going with the vitimins that come from fruits and vegetables??? Have you heard of this happening as a result of the bladder sling?  Looking forward to hearing back from you.  ladyjane7654@live.com

    • ladyjane
      Nov. 08, 2011

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004....

      RHMLucky777

      Read More

      Hi, I've been reading everyone's posting and feel so relieved that it's not all in my head.  Though no one has mentioned intentinal cystitis, and six months after having my bladder sling put in (Apogee) done at UAB in Birmingham, AL I came down with severe intentinal cystits.  I've gone without fruit and any foods that have acid in it since 2004. I wonder what the long term affects will be on my body going with the vitimins that come from fruits and vegetables??? Have you heard of this happening as a result of the bladder sling?  Looking forward to hearing back from you.  ladyjane7654@live.com

  • Anonymous
    Anonymous
    May. 11, 2009

    NYTimes writes editorial about my bloody, painful ongoing ObTape ordeal http://bit.ly/auCck

  • Anonymous
    Chuck
    Mar. 09, 2009

    What is the current data for success with the use of Mesh?  It seems that the Manufactures picked a magic # and ran with it.  I have read many documents from many obgyn's who state they wont know the effects of mesh untill they follow their patiants for several years.  Is this to say you are all unpayed test subjects?  Was anyone told that...

    RHMLucky777

    Read More

    What is the current data for success with the use of Mesh?  It seems that the Manufactures picked a magic # and ran with it.  I have read many documents from many obgyn's who state they wont know the effects of mesh untill they follow their patiants for several years.  Is this to say you are all unpayed test subjects?  Was anyone told that they were the guinnie pig for a multi million $ company?  How can physician sleep at night knowing they have hurt #'s of woman with this junk.  I feel the manufactures & phyicians should be held responsible for the damages done to every woman and family this has impacted.  It strikes me as odd that they throw this junk in your body but when it goes bad you cant find anyone to correct it.  Most Dr. wont even repport complications to the FDA as they are required to.  I think the # of complications would be stagering if they did.  This buchering needs to stop!  My wife who was full of life pre surg. is in constant pain and I am furious.  Please write your state reps and flood there desks with your stories and help stop this mesh mess.  Stop being there test subjects.

    • Anonymous
      Peggy
      Mar. 10, 2009

      I came across this article today that might help those of you who are suffering from vaginal erosion from the mesh implant.  I was fortunate enough not to be implanted with the mesh when my urinary gynecologist performed my hysterectomy/bladder lift/cyctocele & rectocele repairs in 2001. 

       


      Cook Medical Reports Positive Results...

      RHMLucky777

      Read More

      I came across this article today that might help those of you who are suffering from vaginal erosion from the mesh implant.  I was fortunate enough not to be implanted with the mesh when my urinary gynecologist performed my hysterectomy/bladder lift/cyctocele & rectocele repairs in 2001. 

       


      Cook Medical Reports Positive Results from Clinical Trial Designed to Evaluate Safety and Efficacy of Biodesign Vaginal Erosion Repair Graft
      3/10/2009

      BLOOMINGTON, Ind.--(BUSINESS WIRE)--An 11-month clinical study led by Manish P. Patel, M.D., generated positive results on Cook Medical's BiodesignTM Vaginal Erosion Repair Graft for the treatment of vaginal mesh exposures, a common complication resulting from the use of synthetic mesh in pelvic floor repair, the procedure used to treat pelvic organ prolapse. The results, which confirmed the safety and efficacy of Biodesign, were presented at the 2009 Society for Urodynamics and Female Urology Winter Meeting in Las Vegas.

       

      The study examined the efficacy of the Biodesign Vaginal Erosion Repair Graft in treating 10 women with large, symptomatic extrusions that resulted from the use of polypropylene or synthetic mesh in a previous pelvic floor reconstruction procedure. To treat the complication, the exposed synthetic mesh was completely removed and the Biodesign graft was implanted to help fully restore and repair the pelvic floor. Research findings showed that all 10 large mesh exposures were successfully repaired with the Biodesign graft with no evidence of recurrence or further complication.

      According to the National Institute of Health, an estimated one-third of all U.S. women are affected by pelvic floor disorders including pelvic organ prolapse, a condition that occurs when the pelvic muscles become weakened and stretched, often as a result of childbirth. Although pelvic floor reconstruction is the most common form of treatment, synthetic mesh-based procedures have recently come under scrutiny after the FDA received more than 1,000 reports of rare but serious complications, including vaginal erosion, linked specifically to the use of synthetic mesh. Cook's Biodesign Vaginal Erosion Repair Graft will play an especially important role in treating these synthetic mesh-based complications and more.

      "The surgical repair of prolapse remains one of the most difficult challenges in pelvic floor reconstruction due to the large recurrence rate and postoperative complications including foreign body reaction and mesh extrusion," said Patel, who is a physician at Piedmont Urology Associates in North Carolina. "I'm pleased that Biodesign has proven to be an effective and lasting treatment option for patients suffering from painful, large-scale vaginal mesh exposures."

      The Biodesign Vaginal Erosion Repair Graft incorporates the best attributes of a biologic graft - resistance to infection and complete remodeling - with the added benefits of moderate price, ease of use and ample shelf life for on-site availability. Upon deployment, the graft reinforces the pelvic floor or vaginal wall and, over time, communicates with the patient's body, signalling surrounding tissue to grow across the scaffold where the pelvic floor needs to be repaired. Unlike synthetic mesh, Biodesign is resistant to infection, encapsulation and erosion into surrounding tissue.

      "The complications associated with the use of synthetic mesh in treating pelvic organ prolapse can clearly cause a significant decrease in quality of life for women," said Andy Cron, vice president of Cook Medical's Surgery strategic business unit. "The results of this study come at a very important time, as reports continue to surface around the complications resulting from synthetic mesh treatments. We are excited by the results of Dr. Patel's research and look forward to providing many women with a natural, lasting solution."

    • Anonymous
      Peggy
      Mar. 10, 2009

      Here is a link to another article describing the biological material used in place of the synthetic mesh:  http://www.livestrong.com/health-article/warning-common-incontinence-treatment-found-risky-plus-safer-alternatives_24cb1744-e05a-4a60-6f0d-11ccc2d9cb49/.  It appears to be made of a biofilm of porcine (pig) tissue fibers that somehow "knit" with...

      RHMLucky777

      Read More

      Here is a link to another article describing the biological material used in place of the synthetic mesh:  http://www.livestrong.com/health-article/warning-common-incontinence-treatment-found-risky-plus-safer-alternatives_24cb1744-e05a-4a60-6f0d-11ccc2d9cb49/.  It appears to be made of a biofilm of porcine (pig) tissue fibers that somehow "knit" with human tissue throughout the healing process - I would guess somewhat similar to how tissue grafts are done on burn victims.  Anyway, it's tissue that's compatible and incorporated in the human body, similar to pig valves used to replace defective human heart valves.

    • Anonymous
      Anonymous
      Sep. 14, 2009

      I only read your statement, but then chose not to read about all the testing being done on any kind of mesh implant...I had a Bard Avaulta Mesh Implant put in for a cystocele and rectocele in late March, 2009 and then had two sterile abcesses with emergency surgery to correct this problem and remove the ends of the tape because the obgyn doc said this is where...

      RHMLucky777

      Read More

      I only read your statement, but then chose not to read about all the testing being done on any kind of mesh implant...I had a Bard Avaulta Mesh Implant put in for a cystocele and rectocele in late March, 2009 and then had two sterile abcesses with emergency surgery to correct this problem and remove the ends of the tape because the obgyn doc said this is where the problem usually occurs.  I am now 7 weeks post-op from my last surgery in July and still have draining/bleeding wounds on my buttocks, only now to be told by a second opinion that I have a fistual/granulation tissue tracking...am now being referred to a colorectal specialist.  I would not recommend a mesh implant for anyone ever, as they are only life threatening to a woman's health.  In some of my recent research there does seem to be different alternatives I could have used that would not have been as invasive/damaging, but I never was informed that I had that choice.  Too late now.

    • Anonymous
      Sharon
      Feb. 01, 2010

      This article makes me feel better.....I hope I can afford Dr. Patel and that he will be able to help....

  • Anonymous
    Erika
    Feb. 07, 2009

    I am 32 years old and had my first surgery on october 22nd 2008. I thought everything would be fine after the mesh sling was put in boy was I wrong. I was having pain and fevers which the doctor said was nothing. I went in for my 4 week check up and what do you know there was mesh exposed. I had my second surgery on November 21st 2008 and was hoping everything...

    RHMLucky777

    Read More

    I am 32 years old and had my first surgery on october 22nd 2008. I thought everything would be fine after the mesh sling was put in boy was I wrong. I was having pain and fevers which the doctor said was nothing. I went in for my 4 week check up and what do you know there was mesh exposed. I had my second surgery on November 21st 2008 and was hoping everything would be fine after they stitched everything back together wrong again.

     

    I moved from Texas to California and followed up with my doctor here because I was still having pain and my husband said he could feel something poking him inside me during intercourse. I was told the mesh is exposed yet again. I am undergoing surgery again Feb 23rd to remove the exposed part of the mesh. I told the doctor to just take it all out because I don't want to be having surgery every 2 months from this. She said it is too risky and that hopefully removing just the exposed part will help.

     

    I am so frustrated with this all. I am so glad I found other people going through the same thing.

    • Anonymous
      Teresa
      Feb. 12, 2009

      Hello all, I hate it's taken me THIS long to respond to all of the above.  I was in the middle of receiving treatment for the mesh erosion when I was diagnosed with cancer.

      It's been more than a year of absolute hell on earth for me and my family as you can imagine.

       

      I ended up having one major surgery to pull out as much mesh as possible. ...

      RHMLucky777

      Read More

      Hello all, I hate it's taken me THIS long to respond to all of the above.  I was in the middle of receiving treatment for the mesh erosion when I was diagnosed with cancer.

      It's been more than a year of absolute hell on earth for me and my family as you can imagine.

       

      I ended up having one major surgery to pull out as much mesh as possible.  There was still some eroding into the vaginal wall and the doctor snipped and clipped several more times under local anesthetic.  Then scar tissue formed around a nerve and near my femoral artery.  I was advised at that point that any more removal could lead to paralysis or bleeding to death, so the only thing left to do was to inject steroid shots into the scar tissue.  This really helped with the pain, but had to stop doing the injections due to cancer treatment.

       

      I wish I could have ALL of this stuff removed, but again if it's a risky business to do so I guess I'll just live in fear of what this stuff could do later on down the road.  And live with the constant pain. 

       

      I feel like I need to take action regarding what happened to me, and I'm not sure if I am allowed to talk about that here.  I don't wish this to happen to ONE more person and I'd like to see this barbaric procedure outlawed!!

       

      I am in remission right now with the cancer, but when it comes back (mine kind typically does) I'll have to go through Stem Cell Transplant or die within a year.  That's pretty scary stuff to have on top of the mesh that took YEARS out of my personal life.  I guess you could say I have Post Traumatic Stress!!

    • gwen
      Nov. 20, 2011

      Teresa how are you today? My heart goes out to you and your family. I hope you are doing well. God will just continue to bless you.God please let that cancer stay in remission in the name of Jesus.

    • Anonymous
      Josie
      Dec. 07, 2009

      Havw there been any recent changes in your health?  Any more surgeries?  I had a rectocele and cystocele surgery done in Nov. 2006.  I was recently diagnosed with mesh erosion and just had surgery to have the infected mesh removed.  I am being told I have a lot of mesh inside me and it cannot be taken out except in pieces as it erodes. ...

      RHMLucky777

      Read More

      Havw there been any recent changes in your health?  Any more surgeries?  I had a rectocele and cystocele surgery done in Nov. 2006.  I was recently diagnosed with mesh erosion and just had surgery to have the infected mesh removed.  I am being told I have a lot of mesh inside me and it cannot be taken out except in pieces as it erodes.  I cannot seem to get any straight answers from the doctor and am looking for answers.

    • Michel
      Apr. 26, 2012
      Hello my name is Michel and I was wondering if you can please share with me how it is all turning out for you? I am a 33 yr old mother and have had alot of pain also. Just had surgery two weeks ago to release some pressure because the sling was to tight is what the doctor told me. She did find a old stitch in me above the bladder and felt it may need to come...
      RHMLucky777
      Read More
      Hello my name is Michel and I was wondering if you can please share with me how it is all turning out for you? I am a 33 yr old mother and have had alot of pain also. Just had surgery two weeks ago to release some pressure because the sling was to tight is what the doctor told me. She did find a old stitch in me above the bladder and felt it may need to come out if erosion starts. Please Please tell me what you've done to help and how you feel.I too live in California.
  • Anonymous
    frustrated pati...
    Jan. 21, 2009

    You are definitly not alone!  I have had two mesh slings.  One eroded into my vaginal wall, the other into my bladder.  I had the first (synthetic) removed and replaced by a sling made of pig collegen--this supposedly is better tolerated by the body.  Right!  It hdid the same thing in a different location.  Surgery #3 was to remove...

    RHMLucky777

    Read More

    You are definitly not alone!  I have had two mesh slings.  One eroded into my vaginal wall, the other into my bladder.  I had the first (synthetic) removed and replaced by a sling made of pig collegen--this supposedly is better tolerated by the body.  Right!  It hdid the same thing in a different location.  Surgery #3 was to remove sling #2.  Then I developed a urethral/vaginal fistula which, if you are unfamiliar with the term, is basically a tunnel that forms through the existing scar tissue.  The location of this fistuala created an opening between my urethra and vaginal wall that effectively diverted any urine entering my bladder directly to my vagina.  Completely incontinent!  More surgery to correct that problem.  I took two years to get up my nerve to contact the doctor again.  This time he said my best bet was a traditional bladder suspension.  I trusted him, as he was the head of urogynocology at a major hospital nearby.  After two weeks I was back in the hospital for over a week with a severe infection under the incision.  That surgery has also failed (after less than three months), according to the doctor I've been passed off to now.  Now he wants to do a hysterectomy, vaginal vault suspension, yet another sling (he says the last three doctors' work failed due to "technique issues"--does that mean none of them knew what they were doing?).  How can I possible trust yet another doctor?  He also wants to put even more mesh in my vaginal walls to correct a rectocele (bulge in the vaginal wall from the rectum) and a cystocele (bulge in the vaginal wall from bladder prolapse).  I'm seeking a second opinion outside of my hospital network on the recommedation of a friend who used to see her.  Yes, "her".  I'm fed up with male doctors.

    • trbrown22
      Jul. 12, 2010

      I see that it has been over a year since you posted this particular information. I had a bladder prolapse with no problem. But once I had a rectal prolapse, I was in trouble without knowing it. I had the initial surgery and never stopped bleeding but the dr put me off for 3 months before doing an exam and seeing the mesh had eroded through the vaginal lining,...

      RHMLucky777

      Read More

      I see that it has been over a year since you posted this particular information. I had a bladder prolapse with no problem. But once I had a rectal prolapse, I was in trouble without knowing it. I had the initial surgery and never stopped bleeding but the dr put me off for 3 months before doing an exam and seeing the mesh had eroded through the vaginal lining, so he scheduled me for surgery 2 to repair the mesh, I never stopped bleeding again, but again 3 months passed. During these times of trying to heal he wanted me to stay still, no bending, stooping, walking too much, stretching, lifting, or living basically. Surgery 3 was the same....I had a nervous breakdown but didn't stop bleeding! My son was getting married and I could not do anything! Surgery 4 he decided that I was allergic to the mesh (well no kidding!) and he had to remove it. Two years had passed since the first rectocele, so plenty of scar tissue has had time to grow around, and through the mesh.

       

      I stopped bleeding after the fourth surgery, but the pain never went away. Sex is impossible, I can feel a huge scar. I finally got the nerve up to go to another doctor only find out that I again have mesh eroded through and I need a vaginal reconstruction to be able to enjoy sex again...if I ever find a dr that will remove the mesh.

       

      The doctor that recently found the eroded mesh is a ob/gyn, has done surgery on me in the past by removing what he thought was an enlarged left ovary, but turned out to be a ruptured diverticuli and he had to call in another dr to help him with the surgery, where they removed 4 inches of my colon and my ovary. So after the past surgery and my story of how the mesh has eroded through so many times already, he chose not to work on me this time and gave me his apologies, wishing me luck. He also recommended a colon/rectal dr in case the mesh has eroded through either of those.

       

      I saw a colon/rectal doctor in Houston, he examined my rectum and gave it a clean bill of health, but did no other exam or tests. He told me he did not do the surgery that I needed done and sent me on my way. I was so very upset and mad, very mad!

       

      Here I sit with again with my clinical depression, my aggressive anger, my self pity and my pain.

       

      I need a doctor. I am willing to drive to Houston. I have some family down there and can re-coop at their house a bit before making the drive back home. I am married so I would not be driving my self.

  • Anonymous
    Beth
    Dec. 05, 2008

    I had a hysterectomy and bladder reconstruction (mesh inserted in between the vaginal and uterine wall). in Sept 2008.  I've known something was wrong right away just like you all have been saying.  My gyno didn't want to talk negative about the dr who did the bladder work.  He looked at me and put me off for 8 weeks.  I'm now scheduled...

    RHMLucky777

    Read More

    I had a hysterectomy and bladder reconstruction (mesh inserted in between the vaginal and uterine wall). in Sept 2008.  I've known something was wrong right away just like you all have been saying.  My gyno didn't want to talk negative about the dr who did the bladder work.  He looked at me and put me off for 8 weeks.  I'm now scheduled to have the mesh removed that is sticking out in the vagina on Friday but what if the mesh is elsewhere.  Who determines that?

  • Anonymous
    Matt
    Oct. 17, 2008

    Our law firm is currently litigating against Ethicon and Johnson & Johnson in their home state of New Jersey, and are investigating additional cases.  If you believe that you have been seriously injured due to the Gynecare Prolift or a similar mesh system, and you are interested in learning more about how we can help, please visit our website at:  www.MeshComplications.com...

    RHMLucky777

    Read More

    Our law firm is currently litigating against Ethicon and Johnson & Johnson in their home state of New Jersey, and are investigating additional cases.  If you believe that you have been seriously injured due to the Gynecare Prolift or a similar mesh system, and you are interested in learning more about how we can help, please visit our website at:  www.MeshComplications.com

    • Susan
      Feb. 25, 2010

      Hi, I had the prolift anterior mesh by gynecare Oct 13, 2009, and had another surgery related to mesh in the vagina and bladder Dec. 15th.  I am scheduled to have it removed by a specialist soon.  I have been in severe pain, had to quit my job, can't take care of my family, etc.  I am an emotional wreck.  I am only 49 and this has been hell. ...

      RHMLucky777

      Read More

      Hi, I had the prolift anterior mesh by gynecare Oct 13, 2009, and had another surgery related to mesh in the vagina and bladder Dec. 15th.  I am scheduled to have it removed by a specialist soon.  I have been in severe pain, had to quit my job, can't take care of my family, etc.  I am an emotional wreck.  I am only 49 and this has been hell.  I was not told of the FDA warnings or anything, just that it was a "great new way" to keep the bladder up forever!  I am also a nurse, I trusted my doctor completely, did not research it, the doctor is the first line of protection, he should have told me the complications, I know I would not have chosen this mesh! Are you having any luck with getting this stuff orr the market, I do not want any other women to be harmed!  It is not about the money, it is about women's lives and their families too!

    • susieq59
      Nov. 10, 2011

      Hi Susan ,Did you have the mesh successfully removed? I am so sad that most all I can find out is lawyers and I am desperate for a competent doctor. I have all the same symptoms as everyone ive read. Some seem even more horrendous than my story. I live in Florida but am interested only in finding someone with exspertise in removing this torcher device. email...

      RHMLucky777

      Read More

      Hi Susan ,Did you have the mesh successfully removed? I am so sad that most all I can find out is lawyers and I am desperate for a competent doctor. I have all the same symptoms as everyone ive read. Some seem even more horrendous than my story. I live in Florida but am interested only in finding someone with exspertise in removing this torcher device. email me an excellent doctor please, susandaytoday@hotmail.com   Thank you ladies. 

    • meandfluffy
      Apr. 25, 2012

      I agree it's not about the money or lawsuits; I would pay them.  I want the mesh out.  They say it can't come out.  Mine is a posterior prolift+M mesh and although it was put in behind the perineum wall to hold up my rectum (I don't think this is the correct way to fix rectal prolapse, is it), they can't get it out.  It's too deep and attached...

      RHMLucky777

      Read More

      I agree it's not about the money or lawsuits; I would pay them.  I want the mesh out.  They say it can't come out.  Mine is a posterior prolift+M mesh and although it was put in behind the perineum wall to hold up my rectum (I don't think this is the correct way to fix rectal prolapse, is it), they can't get it out.  It's too deep and attached to something in there that might be damaged.  As far as getting money from a lawsuit, I'd like to see the Doctor Bastards spend the rest of their lives with having mesh implanted in them!

    • Linda
      Jun. 08, 2012

      Just want you to know one doctor has peformed miracles when others said it was impossible to remove their mesh.  I keep a blog and know women who had gone to him and he did remove it.  http://teapapers.com/bladdersling/2012/05/taking-a-break-from-mesh/  He will be removing mine later this year.

  • Anonymous
    Dawn
    Aug. 29, 2008

    I have already had 5 surgeries this year and I have mesh eroding into my vaginal wall, but Im not sure about a lot of it, mine is from having a rectocele repaired. I did have a bladder prolapse repaired also but that sling didnt affect me, at least thats what the doctor is telling me. The doctor that done both the repairs and also a hysterectomy on me sent...

    RHMLucky777

    Read More

    I have already had 5 surgeries this year and I have mesh eroding into my vaginal wall, but Im not sure about a lot of it, mine is from having a rectocele repaired. I did have a bladder prolapse repaired also but that sling didnt affect me, at least thats what the doctor is telling me. The doctor that done both the repairs and also a hysterectomy on me sent me to another specialist in a different state. So each time I have surgery I have about a 5 hr drive and have two small children that I have to make sure have a place to stay. This year has been hell, the specialist that Im going to now says she has no idea if it was the doctors fault who put the mesh in or if my body just didnt accept it. On top of all of that because the mesh started eroding it caused my body to try and protect itself by growing lots of scar tissue inside my vagina. So for 2 yrs now me and my husband have not been able to have a sexual relationship because my vagina is only around 3 inches deep because the mesh caused it to completely close up. I feel like I cant take much more, Im having another surgery in September and she still doesnt know if it will be the last. Im so angry over all of this, I wish there was someone I could hold responcible for it.

    I have heard several ppl say that the doctor who done my surgery and put the mesh inside of me is being sued but I have no idea how to find out or how to find out if I would even have a case.

    I have also heard that the makers of the mesh are having law suits filed against them as well but again I have no idea how to find out details.

    I do feel for anyone else who's going thru this, Im 26 yrs old and it doesnt seem fair. Good luck with everyone else.

    • Anonymous
      Liz
      Oct. 04, 2008

      WOW!  I had TOT done in April and was unable to sit for 6 weeks, very painful even after that, continued to bleed, no sex - impossible to enter and continued pain down my leg on the side of the TOT.   After three consults, I found a specialist in my hometown and he told the mesh had eroded into my vagina (he could feel it during the exam) and...

      RHMLucky777

      Read More

      WOW!  I had TOT done in April and was unable to sit for 6 weeks, very painful even after that, continued to bleed, no sex - impossible to enter and continued pain down my leg on the side of the TOT.   After three consults, I found a specialist in my hometown and he told the mesh had eroded into my vagina (he could feel it during the exam) and it was infected.   I had surgery last Monday for removal.  I also had so much scar tissue that my vagina is very short.  Because of the infection, he only did the repair and will wait until it has healed before proceeding with more surgery to correct the mess.

       

      This doctor even builds vagina's for children and most of his work is corrective work after other surgeries.

    • Anonymous
      Anonymous
      Jun. 02, 2009

      Please help - My Gyno suggested Gynecare TVT Secure in May 08 and my whole life changed. Tape eroded through vaginal wall 2 months after sugery. I have had one surgery to remove some of it but i am still in so much pain. Has anyone found an expert doctor that can i can try to talk with.

    • susieq59
      Nov. 20, 2011

      Liz Where is he located?

    • lilmomma
      Apr. 18, 2009

      man ifeel for u ladies out there i really do!! i had my first bladder tack up in 2005 and to be honest i wish i would have left it alone. im still having surgey cuz the mesh eroeded inside my bladder i just had surgery my 6th surgery a month ago. and i went for my 6 week check up and there is stillmesh so looks like ill go for number 7. im 49 yrs old and have...

      RHMLucky777

      Read More

      man ifeel for u ladies out there i really do!! i had my first bladder tack up in 2005 and to be honest i wish i would have left it alone. im still having surgey cuz the mesh eroeded inside my bladder i just had surgery my 6th surgery a month ago. and i went for my 6 week check up and there is stillmesh so looks like ill go for number 7. im 49 yrs old and have to wear depends all the time cuz of the incontinence. im sick of it too. i have a law firm looking onto the mesh part. but as far as the dr goes i cant get anyone to take my case. i would love to chat with someone with the same problem. godbless

    • Anonymous
      Sharon
      Feb. 02, 2010

      I would love to chat also............sounds just like what I had done. My nightmare is just beginning I don't know what to do or whether to go back to the same doctor. The discomfort doesn't seem to go away...but up to a month ago I was fine and now the burning and pulling down in my groin just is constant even when I sleep. What were your first symptons? Email...

      RHMLucky777

      Read More

      I would love to chat also............sounds just like what I had done. My nightmare is just beginning I don't know what to do or whether to go back to the same doctor. The discomfort doesn't seem to go away...but up to a month ago I was fine and now the burning and pulling down in my groin just is constant even when I sleep. What were your first symptons? Email me I would love to chat Shar3p0@hotmail.com Good Luck with your next surgery if you haven't already had it.

    • Survivor626
      Jan. 05, 2011

      Dawn,

      I hope you get this message, I am new to this site. There are attourneys that are filing civil suites against the manufacturers of certain mesh products. You may already be aware of this but I also believed that my body was the problem and that the doctor made mistakes. I still believe the doctor made mistakes but also, I recently learned that the mesh...

      RHMLucky777

      Read More

      Dawn,

      I hope you get this message, I am new to this site. There are attourneys that are filing civil suites against the manufacturers of certain mesh products. You may already be aware of this but I also believed that my body was the problem and that the doctor made mistakes. I still believe the doctor made mistakes but also, I recently learned that the mesh product itself fails and causes problems. I encrourage you to search the web to find out if you have been emplanted with the fautly mesh.

       

      cheers,

      stop-mesh-madness

  • Anonymous
    Amelia
    Jun. 20, 2008

    I too had a tvt for incontinence in Sep 05...the mesh eroded and within a year I was having problems mostly a dragging pain some bleeding..The same surgeon decided to repair the mesh I waited for more than a year after finally seeing the him (because I am a public patient) to have the surgery so the mesh was catching all the germs...

    RHMLucky777

    Read More

    I too had a tvt for incontinence in Sep 05...the mesh eroded and within a year I was having problems mostly a dragging pain some bleeding..The same surgeon decided to repair the mesh I waited for more than a year after finally seeing the him (because I am a public patient) to have the surgery so the mesh was catching all the germs that float in the Genital area for all that time...The surgeon did not remove the mesh in his words "He pushed it back in and stitched it up"  24 hours after surgery I was fighting for my life because I got Septicaemia.. The Strep bug Milleri entered my blood stream via the pushed in mesh... the germ had been getting released from my body as a foul smelly discharge.. But once he pushed it back in and closed it off my blood stream was attacked....I then from the same germ within a couple of weeks got an Empyema and  Abcess in my left lung and had to undergo a Thorecotomy and Decortication.. major surgery it is now four months later and i am still not over it all..My lung collapsed and I have lost some % of lung capacity the pain is still at times overwhelming there is a huge area of numbness over my chest and where the wound is on my back.. my left breast has a horrid sensation... it is called Neuropathy or nerve pain and will most likely never go....Fatigue is a constant..I am finally off Antibiotics..I still live with the fear the bug is lurking it makes abcesses and only surgery will work once that happens..My CPR a thing in our blood that should be 3 was over 250..It went back down to 5.5 but now off antibiotics it is back to 6.5 so more blood tests more Lung Xrays it seems to be a waiting game....

  • Anonymous
    fran
    Jun. 14, 2008

    i had a sling put in in 10 05 ive had nothing but pain every since the things should be outlawed

    • Survivor626
      Jan. 05, 2011

      Fran,

      I couln't agree with you more. I can't believe this proceedure is still being performed. I'm praying for the FDA to recall.

       

      best wishes

  • Anonymous
    MeshVictim
    Apr. 05, 2008
    Where do you go for the "experts" in this mesh removal? My doc removed the visible portion that had eroded into my vagina in November. Yellow discharge continues, constantly. It hurts when I sit a certain way, and when I sneeze, and after I run. I think there's more mesh in there that my doc can't see. How do we find it? He's open to a...
    RHMLucky777
    Read More
    Where do you go for the "experts" in this mesh removal? My doc removed the visible portion that had eroded into my vagina in November. Yellow discharge continues, constantly. It hurts when I sit a certain way, and when I sneeze, and after I run. I think there's more mesh in there that my doc can't see. How do we find it? He's open to a second opinion, but I don't know how to find a doc who has handled a lot of these mesh erosion removals. Any advice?
  • Anonymous
    Shelly
    Apr. 04, 2008
    I too have erosion of the mesh used 5 months ago. I am scheduled for surger this Monday to have a complete removal of the mesh. I am really upset with my former Dr., as I told her repeatedly that something was wrong. She would not listen....I went to hospital out of town, where they specialize in this proceedure. I am scared to have this done, but I have...
    RHMLucky777
    Read More
    I too have erosion of the mesh used 5 months ago. I am scheduled for surger this Monday to have a complete removal of the mesh. I am really upset with my former Dr., as I told her repeatedly that something was wrong. She would not listen....I went to hospital out of town, where they specialize in this proceedure. I am scared to have this done, but I have no choice. I do like the specialist I am seeing now. I'm so angry, I want to sue my former Dr. I just don't know what to do at this point. 
    • Ginger
      Aug. 02, 2008

      Well, I emailed you once, but I am not sure if you got it.  My Dr. wouldn't listen either.  He told me it was in my head (although my husband could feel it as well).  Prescribed Xanax.  Anyway, please let me know how your surgery went and how did you get them to remove it all???? I want this stuff out of me!!!  Thanks and I hope all...

      RHMLucky777

      Read More

      Well, I emailed you once, but I am not sure if you got it.  My Dr. wouldn't listen either.  He told me it was in my head (although my husband could feel it as well).  Prescribed Xanax.  Anyway, please let me know how your surgery went and how did you get them to remove it all???? I want this stuff out of me!!!  Thanks and I hope all is well.Laughing

    • Anonymous
      Sharon
      Feb. 02, 2010

      I am so frustrated as many on here. I told my doctor that this wasn't right and he wouldn't listen. then went me to his freiend who was a urologist and he cut the tape but said it the tape could not be removed and it would just stay in there. It has been 4 years and I am having severe pain and a funny warm feeling down in the groin area. Who is doing your surgery...

      RHMLucky777

      Read More

      I am so frustrated as many on here. I told my doctor that this wasn't right and he wouldn't listen. then went me to his freiend who was a urologist and he cut the tape but said it the tape could not be removed and it would just stay in there. It has been 4 years and I am having severe pain and a funny warm feeling down in the groin area. Who is doing your surgery and how did they diagnose that the mesh was causing the problems...Good Luck :)

  • Anonymous
    Betsy West
    Jan. 10, 2008

    I   had a TVT done in 12/04 and have the same complications as you.  If you recommend the surgeon who removed your tape, please share his name and location with me!  Thanks in advance.

     

    Betsy

    betsy019@centurytel.net

    • Magnolia48
      Jan. 14, 2008

      I had the first procedure the first week of December.  During the second week afterwards, I noticed something was not right :(......the following week he had do some MORE removal, but this time we went with doing this in the office.  Obviously, I'm still in recovery phase so I can't say with any certainty that this has been a success, yet....

      RHMLucky777

      Read More

      I had the first procedure the first week of December.  During the second week afterwards, I noticed something was not right :(......the following week he had do some MORE removal, but this time we went with doing this in the office.  Obviously, I'm still in recovery phase so I can't say with any certainty that this has been a success, yet.

       

      I'll keep you informed, and if things heal well with no other problems I'll share the name of the surgeon.

       

      This has been an awful experience.  I wonder if I will ever be "normal" again. 

    • Anonymous
      ragoolroo
      Feb. 13, 2012

      your story touched me on a personal level. I to had a tvt put in during a surgery in nov. and just like you, it was only a short time, that i noticed things were not feeling right.. i was in and out of emergency room for un godly pain in my stomache and vaginal area.. it is now 2012 and as of last week, they confirmed that my mesh was to eroding and has broke...

      RHMLucky777

      Read More

      your story touched me on a personal level. I to had a tvt put in during a surgery in nov. and just like you, it was only a short time, that i noticed things were not feeling right.. i was in and out of emergency room for un godly pain in my stomache and vaginal area.. it is now 2012 and as of last week, they confirmed that my mesh was to eroding and has broke loose, they have already confirmed that the mesh product that was used in my surgery and was listed as defective and has been recalled.it was used in hospitals during 2008 - 2010.. for this procedure.. but i dont want to write on this wall what all my problems are, but would love to write you or vice versa.. it is good to know there is someone to talk to, who knows exactly what your going threw.

  • Maria Gifford
    Nov. 06, 2007

    Hello and welcome to our community. You've come to the right place.

     

    Please see this related SharePost and its accompanying comment:

     

    TVT Erosion

    http://www.healthcentral.com/incontinence/c/6987/15176/tvt-erosion/

     

    Your experience with mesh erosion is not uncommon. I hope this information is helpful to you.

     

    Also, feel free to contact others...

    RHMLucky777

    Read More

    Hello and welcome to our community. You've come to the right place.

     

    Please see this related SharePost and its accompanying comment:

     

    TVT Erosion

    http://www.healthcentral.com/incontinence/c/6987/15176/tvt-erosion/

     

    Your experience with mesh erosion is not uncommon. I hope this information is helpful to you.

     

    Also, feel free to contact others on the site. We have many community members and experts to connect with and learn from.

     

    Let me know if I can find more specific information for you. Glad to assist.

     

    Best regards,

    Maria

    • Magnolia48
      Nov. 08, 2007

      For almost two years my hubby and me have lived with this inconvenience.  NOW I'm truly frightened!!

       

      The threat of infection, bleeding, all of it scares me so badly.  I have noticed a burning pain down my leg, the same side the mesh is eroding through my vaginal wall.   I hope it's something temporary :(

       

      I also wonder how would...

      RHMLucky777

      Read More

      For almost two years my hubby and me have lived with this inconvenience.  NOW I'm truly frightened!!

       

      The threat of infection, bleeding, all of it scares me so badly.  I have noticed a burning pain down my leg, the same side the mesh is eroding through my vaginal wall.   I hope it's something temporary :(

       

      I also wonder how would you know if the mesh is eroding into the bladder?  I know if I sit in a certain position, I feel pain somewhere in that area, but it's hard to pinpoint it.

       

      It's hard getting scheduled with the specialist I found.  He's done this removal before, and I just don't trust anyone else to do this.  I'm waiting for his office to work out the details and they are taking way too long for me!!

       

      Of course, the surgery will be hard I'm sure.  It's better than the risks of not having it done.  Just the thought of what he's going to do scares me to death!

       

      If I'd only known when the ob/gyn said "it's the little miracle cure".....to run, fast. 

    • Maria Gifford
      Nov. 11, 2007

      I understand your fear and concern. It sounds like you've decided on and are finally ready for removal. I hope you don't have to wait too long to see your surgeon.  Stay in touch as things progress.

       

      Best,

      Maria

    • Magnolia48
      Nov. 11, 2007

      I have decided on *partial* removal. Only because the uro/gyn specialist informed me taking the entire mesh out can be very difficult and risky.

       

      I hope that he can remove the exposed mesh, suture me up, and NEVER have an issue with this mess again!!

       

      He said he's had many successes with this approach, with the exception of one, which ended in total...

      RHMLucky777

      Read More

      I have decided on *partial* removal. Only because the uro/gyn specialist informed me taking the entire mesh out can be very difficult and risky.

       

      I hope that he can remove the exposed mesh, suture me up, and NEVER have an issue with this mess again!!

       

      He said he's had many successes with this approach, with the exception of one, which ended in total removal.

       

      I'm anxiously waiting to hear from his office about scheduling the procedure. He said it would be about 30 mins. give or take, and under general anesthesia. Just in case he gets in there and has to do more work than anticipated.

       

      Thanks for your response.

    • Anonymous
      Yvonne Bent
      Jan. 19, 2009

      Please let me know what your surgery outcome was.  I am currently interviewing surgeons to remove most or all of my mesh.  Though I do not have exposed mesh, I have severe nerve damage from the mesh becoming detached 2 weeks after implant and falling on a large nerve area.  All the area is damaged, numb and I have severe pain there.  I am...

      RHMLucky777

      Read More

      Please let me know what your surgery outcome was.  I am currently interviewing surgeons to remove most or all of my mesh.  Though I do not have exposed mesh, I have severe nerve damage from the mesh becoming detached 2 weeks after implant and falling on a large nerve area.  All the area is damaged, numb and I have severe pain there.  I am on Neurotin all the time.

      I am so dissappointed in the physician that did this surgery, but I am also concerned now about selecting a new physician.  I alread spoke to one who admitted he cannot help me. EVidently it is far easier to place the mesh, but it is entirely a different thing to remove it. My physician said it could not be done.  If I don't get rid of this, I will never be able to be normal.  I have been unable to have relations with my husband now for nearly 7 months.  My vagina has altered since the mesh was placed and there is a large enough obstruction to have caused a cessation in intercourse.

      I am frustrated, upset, and tired of talking to doctors, looking on the internet, and hearing, "Oh, yes, we do this".  I don't have any idea who I can trust.

      Frustrated near San Franicisco

    • Susan
      Feb. 15, 2010

      I am going to the Mayo Clinic, Jacksonville, FL to have my prolift anterior mesh removed. I have been in constant pain since my surgery Oct 13, 2009 and a 2nd surgery Dec 15, 2009 for erosion on the bladder, they punctered it, had to have a cath and ureter stint for 2wks. Now I am to go to the Mayo Clinic Mar 15th for a consult with a urogyn to see about having...

      RHMLucky777

      Read More

      I am going to the Mayo Clinic, Jacksonville, FL to have my prolift anterior mesh removed. I have been in constant pain since my surgery Oct 13, 2009 and a 2nd surgery Dec 15, 2009 for erosion on the bladder, they punctered it, had to have a cath and ureter stint for 2wks. Now I am to go to the Mayo Clinic Mar 15th for a consult with a urogyn to see about having it all removed.  Also, the UCSF Medical Center may have someone that can take it out for you.  This has been a nightmare for me, I am 49 and depressed about it and could kick myself for trusting my gyn for this "cure" for bladder prolapse.

    • Gail Wickham
      Dec. 07, 2010

      I would like to know the urologist name at Mayo CLinic in Jacksonville, Fl. I have had 20= surgeries since 1990 to remove this horrible mesh that is embedded everywhere. I have once before had the mesh embed itself within the bladder and clasify of which the Dr. shattered it (much like a kidney stone) and it worked then I was irrigated for 24 hours. Another...

      RHMLucky777

      Read More

      I would like to know the urologist name at Mayo CLinic in Jacksonville, Fl. I have had 20= surgeries since 1990 to remove this horrible mesh that is embedded everywhere. I have once before had the mesh embed itself within the bladder and clasify of which the Dr. shattered it (much like a kidney stone) and it worked then I was irrigated for 24 hours. Another time the mesh clasified on the outer part of the bladder, the Drt. removed it and a slice of my bladder. I have had the mesh removed 3 times from vaginal wall. Just recently had CT scan and mesh has calsified once again inside of bladder and I feel that there is mesh on the inside vaginal wall once again.

      I am trying to find a Urologist in Florida that is very familiar with removing this mesh. Any help from anyone would be greatly appreciated.

      the sooner the better

      Thanks everyone.

      Gail

    • Lisa
      Sep. 21, 2011

      I was told there was a piece on each side of my pelvis that my doctor could not get and I would have to see an orthopedic surgeon if it caused any problems later.  Well it's seven years later and I think it may be the mesh that is causing my back and hip pain. TOT mesh is what was used in my bladder surgery. Have you ever heard if that kind is...

      RHMLucky777

      Read More

      I was told there was a piece on each side of my pelvis that my doctor could not get and I would have to see an orthopedic surgeon if it caused any problems later.  Well it's seven years later and I think it may be the mesh that is causing my back and hip pain. TOT mesh is what was used in my bladder surgery. Have you ever heard if that kind is attached to the pelvis?

    • danbury5
      Sep. 21, 2011

      Lisa, My grandmother has a TVT-O sling to support her urethra. Is it attached to her pelvis and that is the part that she still has in. Dr K from the Mayo in MN called her yesterday and said it is risky to take it out and he thinks it might be nerve damage. He feels that if he tries to get it all out it may cause more nerve damage and the nerve damage, not...

      RHMLucky777

      Read More

      Lisa, My grandmother has a TVT-O sling to support her urethra. Is it attached to her pelvis and that is the part that she still has in. Dr K from the Mayo in MN called her yesterday and said it is risky to take it out and he thinks it might be nerve damage. He feels that if he tries to get it all out it may cause more nerve damage and the nerve damage, not the remaining mesh could be the cause of her pain. She has never been told it has eroded. She is travelling across the country for an appt with him anyway because she is in debilitating constant pain. He will do tests and go from there.  If she has it done it will be her third removal surgery.

       

      I will update...Is anyone mostly pain free after having a total, or nearly total removal? Has anyone had this removed from their pelvis?

       

      Thanks!

      Katie

    • Lisa
      Sep. 23, 2011

      Thanks for the info.  I would really appreciate it if you let me know how things turn out for her.  I hope she hears some good news!  Since I work in the health care field I have always thought it was a back injury, and it may be, but it is nice to know if they don't find anything that I can look into this whole thing further. 

       

    • Becky
      Oct. 23, 2011

      Gail, Hi my name is Becky.  My heart goes out to you and to all of us women that have had our lives,Totaly turned upside down!!! I had my sling put in ,June 2008,Every thing was great or well i thought so,(Had know idea ,what was going on inside,or the nite mare,i was about to face!!!)! In Feb.2011, i felt a buldge,between my legs. Went too my Doc.He said...

      RHMLucky777

      Read More

      Gail, Hi my name is Becky.  My heart goes out to you and to all of us women that have had our lives,Totaly turned upside down!!! I had my sling put in ,June 2008,Every thing was great or well i thought so,(Had know idea ,what was going on inside,or the nite mare,i was about to face!!!)! In Feb.2011, i felt a buldge,between my legs. Went too my Doc.He said that my stuff was trying to fall out!At that time he said the sling looked good,But i needed suregy, .During suregy, he nicked my Bladder,I dont blame him,for this mess ! After my suregy, he said that he had done so much work in there, that no one should have to go back in again!!! That was in march .Within a month ,I started leaking,before long i had no control at all.I also felt somthing sharp inside my Vag. (MESH),The mesh had embeded its self, in three places in my bladder,I was leaking from the bladder and this caused Mesh Erosion,i also had a whole in the Vag.Wall.I then went too 2 other Docs.I found a specialist,Who told me ,I had alot too straighten out!!! So ,i had sugery (2) in June,I hoped that it was taken care of! He said he got all the Mesh out that he could ! All was well for about 2or3 weeks,Well again i started leaking again!(From The bladder,and again the Vag.).He said that my smokeing,May. be why i wasnt healing!!!After reading all these stories, i dont think that has anything too do with it!!! So ,I just had suregy (3)...i go back too get my,Cathiders out,( I have 2 of them , reg. one and one below the hair line....) this week,,,,the first thing i am going to ask him is,Did he get all the Mesh OUT!!! This stuff , has got too stop. I am haveing lower back pian.I move around slowly.Sometimes,I feel like I am 70, instead of 53...I used too feel like i was 16...LOL...I hope and pray,that we all can feel like that again!!!! I know one thing ,Someone or alot of someones,,Needs too ,Help us....This has effected all areas of our lives,,,,and our familys and friends.........I own my own small business,But i have not been able too be there alot this year!!! I MISS THE WAY ,I USED TOO BE!!!!!We All should MARCH ON WASHINGTON......I Think , THE FDA ,DROPPED the ball on us!!!!!( THEY ALL NEED ANOTHER JOB!!!)!!! Hope , it all gets better with you and all of us! My facebook is Rebecca Thedford Pleasants! Get a hold of me there or here,That goes for all of you (LADYS).......(SISTERS).......LATER....................................................

    • Anonymous
      Debbi
      Oct. 27, 2011

      I am with you girl....we should march on Washington!  THe FDA finally issued a warning the other week on the mesh.

       

      I also have mesh embedded and have been in pain since the week I had the mesh put in.  I have a very patient husband...but I feel my life will never be the same.

    • Anonymous
      Mivagina
      Dec. 02, 2012

      Please update me on your surgeries.  I have vaginal erosion and am waiting for an appointment in either Birmingham, or Jacksonville. 

      I have pain in my lower stomach area, low back pain, and signifigant spotting that occurs for days, then none for a few days. I am 61 yrs old, and have not had sexual intercourse for over a yr, because of the pain. ...

      RHMLucky777

      Read More

      Please update me on your surgeries.  I have vaginal erosion and am waiting for an appointment in either Birmingham, or Jacksonville. 

      I have pain in my lower stomach area, low back pain, and signifigant spotting that occurs for days, then none for a few days. I am 61 yrs old, and have not had sexual intercourse for over a yr, because of the pain.  I had a DA VINCI robot assisted surgery in 2008 for Pelvic Prolapse.     I have been treated  by a urologist for bladder infections, had urethra exams and a lower abdomen CT, but was not diagnosed with bladder erosion from the mesh until I visited an D.O. and GYN.

      I have been so happy that they have not found cancer, but I do not know the next road of this journey.  My question to  those who have gone through this removal is 1.- How long did your  surgery last?   2.  Did it require hospitalization?   3.- Did it require a catheter and for how long?   4.- What type of problems are you still experiencing?  5. Have you been able to have intercourse without pain?

      Thanks for your info.

    • mivagina
      Dec. 02, 2012

      Please update me on your surgeries.  I have vaginal erosion and am waiting for an appointment in either Birmingham, or Jacksonville. 

      I have pain in my lower stomach area, low back pain, and signifigant spotting that occurs for days, then none for a few days. I am 61 yrs old, and have not had sexual intercourse for over a yr, because of the pain. ...

      RHMLucky777

      Read More

      Please update me on your surgeries.  I have vaginal erosion and am waiting for an appointment in either Birmingham, or Jacksonville. 

      I have pain in my lower stomach area, low back pain, and signifigant spotting that occurs for days, then none for a few days. I am 61 yrs old, and have not had sexual intercourse for over a yr, because of the pain.  I had a DA VINCI robot assisted surgery in 2008 for Pelvic Prolapse.     I have been treated  by a urologist for bladder infections, had urethra exams and a lower abdomen CT, but was not diagnosed with bladder erosion from the mesh until I visited an D.O. and GYN.

      I have been so happy that they have not found cancer, but I do not know the next road of this journey.  My question to  those who have gone through this removal is 1.- How long did your  surgery last?   2.  Did it require hospitalization?   3.- Did it require a catheter and for how long?   4.- What type of problems are you still experiencing?  5. Have you been able to have intercourse without pain?

      Thanks for your info.

    • Anonymous
      susieq59
      Nov. 10, 2011

      Hi ,Did you ever find a competent doctor for the removal. I am desperate for a trustworthy doctor for removal . I am in Florida but willing to travel if needed.

       

    • Graceanne
      Nov. 10, 2011

      Hi in Florida:   I also live in Florida and traveled to Michigan to have my mesh sling TOT removed.  I went to the University of Michigan - - - Dr. Dee Fenner.   She removed the mesh last month and I am recovering.   She also made another sling for me made out of my own body's tissue.   I'm not leaking.  ...

      RHMLucky777

      Read More

      Hi in Florida:   I also live in Florida and traveled to Michigan to have my mesh sling TOT removed.  I went to the University of Michigan - - - Dr. Dee Fenner.   She removed the mesh last month and I am recovering.   She also made another sling for me made out of my own body's tissue.   I'm not leaking.   All the major pain is gone.  I had pain in my butt, hips, lower back, thighs and could not sit without extreme pain.  I also had mesh eroding into my vagina - - - a mess.   If you are willing to travel, you may want to check out Dr. Fenner.   She is a urogynecologist and pelvic floor specialist.   I am very pleased with my outcome.   Good luck to you.

    • susieq59
      Nov. 10, 2011

      Thank you so much for the reccomendation . I am finally getting a referral. Im tired of all this lawyer talk when we need a doctor more. Wonder how many yrs all those law suits will take anyway. How long was recouperation and was the doctor able to remove all the mesh? God bless you

    • Anonymous
      Deb
      Jul. 16, 2012

      Hello.  Thank you for sharing your info. I'm wondering how things are going now...  I am looking to have my Monarc sling removed... and i'm in NY.  So far I just keep hearing about how great Dr. Raz is in California. I would like to go see him, but he is across the country from NY.   Michigan is a lot closer than California.  Are you...

      RHMLucky777

      Read More

      Hello.  Thank you for sharing your info. I'm wondering how things are going now...  I am looking to have my Monarc sling removed... and i'm in NY.  So far I just keep hearing about how great Dr. Raz is in California. I would like to go see him, but he is across the country from NY.   Michigan is a lot closer than California.  Are you still happy with your removal surgery from Dr. Fenner?

       

    • dee
      dee
      Sep. 12, 2012

      Hi Graceanne,

      Are you sure you had a """TOT' sling, not a TVT sling? Don't be offended by my question, but I have all the symptoms that everyone has, and my Gyno says there has been NO literature about the TOT sling ever having problems!! Then he felt something in my vagina and ordered a cat scan. The radiologist said nothing about seeing any mesh (it was put...

      RHMLucky777

      Read More

      Hi Graceanne,

      Are you sure you had a """TOT' sling, not a TVT sling? Don't be offended by my question, but I have all the symptoms that everyone has, and my Gyno says there has been NO literature about the TOT sling ever having problems!! Then he felt something in my vagina and ordered a cat scan. The radiologist said nothing about seeing any mesh (it was put it two years ago). Now I will see the gyno again for 'a look' under anethetic. I also have a family doctor who agrees that all my symptoms are NOT from the mesh.......how can I get medical info to my gyno that the
      TOT sling IS having these terrible side effects? Do you know of any doctors' site that mentions the tot? I have researched for months and cannot find any 'official'  reports from the medical or legal field online. I am at a loss. I have no other reason for my pain and suffering. Any help is appreciated.

      dee

    • susieq59
      Nov. 20, 2011

      Gail did you find someone qualified in Florida. Dear God I hope you got the help you needed. Im in florida also and need a real exspert.

    • meandfluffy
      Apr. 25, 2012

      if you found a doctor in florida who will remove the mesh, please let me know    I have been suffering with that nerve pain inside my right leg between vagina and leg (that hollow spot); burning nerve pain down inside right leg, under right buttocks, and back by that bone you sit on (ischium?)   I need to find a doctor who will remove...

      RHMLucky777

      Read More

      if you found a doctor in florida who will remove the mesh, please let me know    I have been suffering with that nerve pain inside my right leg between vagina and leg (that hollow spot); burning nerve pain down inside right leg, under right buttocks, and back by that bone you sit on (ischium?)   I need to find a doctor who will remove the mesh.  the doctor who put it in says "Oh, it's very difficult to remove."   And he suggested Mayo Clinic.   Will they remove it at Mayo Clinic? or just give you another excuse about "oh, it's too difficult to remove." and of course after waiting six weeks after surgery, we tried sex.  WAY WAY TOO PAINFUL!   had to stop.

    • Anonymous
      danbury5
      Apr. 07, 2011

      My grandmother needs to have her mesh completely removed and is looking for a doctor. She has already had a partial removal and is in constant pain. Does anyone have any reccomendations? She had a TVT O sling put in to support her urethra. It was put in through her thigh.

       

      Than you!

    • Sereda Parker
      Jan. 18, 2013

      My name is Sereda I have appt with Dr.Raz on Fed 20, 13 out LA he is a good doctor.I will give you his phone number 310-794-0755 call his office soon to get appt.Thank You.

       

       

       

    • danbury5
      Apr. 08, 2011

      Hi, was your surgery sucessful? If you could reccomend specific Doctors it would be so helpful. A family member is in constant pain and needs her mesh completely removed but is having trouble finding a doctor who seems to know much about it. 

       

      Thank you!

    • class action helper
      Sep. 25, 2011

      I am reading all your stories  We are trying to put together a group of compassionate ob/gyns. Sorry no luck yet. Unfortunately there are no miracle cures. Thousands of womwn are victims of this. There was just a meeting of the FDA last week to review additional warnings. This comes late,I know. There is an opportunity for financial compensation. This,...

      RHMLucky777

      Read More

      I am reading all your stories  We are trying to put together a group of compassionate ob/gyns. Sorry no luck yet. Unfortunately there are no miracle cures. Thousands of womwn are victims of this. There was just a meeting of the FDA last week to review additional warnings. This comes late,I know. There is an opportunity for financial compensation. This, of course will never really compensate for the agonies i hear on a daily basis. However I welcome all contacts Transvaginal mesh helpline 1 888 733 5342 I think it will be ok from canada and the US  Our main location is Florida but we handle cases all over

      Lawyerreferralservice@yahoo.com

    • susieq59
      Nov. 20, 2011

      Hi Susan, Were you successful at the removal of the mesh? If so could you private message me on my email or put the name of a good qualified doctor in Jacksonville. All other qualified persons have been out of state for me. Thank you

    • charlotte dennis
      May. 18, 2012

      hi im charlotte im going thru the samething ur going thru i dnt want the mesh put in i said no 3 times and i let him talk me into im angry at myself for not sticking to  my answer now im in a lots of pain for 16 months now and my dr dnt want to talk about the mesh . he avoids it. but whos paying for it now me.my whole life has change im depress and...

      RHMLucky777

      Read More

      hi im charlotte im going thru the samething ur going thru i dnt want the mesh put in i said no 3 times and i let him talk me into im angry at myself for not sticking to  my answer now im in a lots of pain for 16 months now and my dr dnt want to talk about the mesh . he avoids it. but whos paying for it now me.my whole life has change im depress and trumatize by it all . here is my phone no. call me i need someone to talk to thats feeling my pain:(    s.o.s

       

       

       

       

    • Anonymous
      guest
      May. 21, 2012

      Charlotte,

      Dont give up.  I know you are tired and sick.  You are not alone.  There is a doctor at Mayo.  I went to Vanderbilt and had Dr. D take mine out. He took it out to the bone where it was bolted in. Hopefully the bolt in site wont be a future infection site.  He is a urologist and has specialized also in neurology.  My...

      RHMLucky777

      Read More

      Charlotte,

      Dont give up.  I know you are tired and sick.  You are not alone.  There is a doctor at Mayo.  I went to Vanderbilt and had Dr. D take mine out. He took it out to the bone where it was bolted in. Hopefully the bolt in site wont be a future infection site.  He is a urologist and has specialized also in neurology.  My obgyn when i started having problems with the mesh sent me home with premarin.  My mesh had eroded the vagina from one side to the other.  I just had it taken out 4 weeks ago.  Still having some pain. I may still need one more surgery for reconstruction its still too early to tell.  I may also have to have some physical therapy.  But I now have hope for some kind of a decent recovery.  You cant keep it in when it has eroded.  It can cause serious infections and due to the shrinkage which is what the mesh does it could get worse if you dont get it out.  Good luck to you

    • Anonymous
      guest
      May. 21, 2012

      Charlotte,

      Dont give up.  I know you are tired and sick.  You are not alone.  There is a doctor at Mayo.  I went to Vanderbilt and had Dr. D take mine out. He took it out to the bone where it was bolted in. Hopefully the bolt in site wont be a future infection site.  He is a urologist and has specialized also in neurology.  My...

      RHMLucky777

      Read More

      Charlotte,

      Dont give up.  I know you are tired and sick.  You are not alone.  There is a doctor at Mayo.  I went to Vanderbilt and had Dr. D take mine out. He took it out to the bone where it was bolted in. Hopefully the bolt in site wont be a future infection site.  He is a urologist and has specialized also in neurology.  My obgyn when i started having problems with the mesh sent me home with premarin.  My mesh had eroded the vagina from one side to the other.  I just had it taken out 4 weeks ago.  Still having some pain. I may still need one more surgery for reconstruction its still too early to tell.  I may also have to have some physical therapy.  But I now have hope for some kind of a decent recovery.  You cant keep it in when it has eroded.  It can cause serious infections and due to the shrinkage which is what the mesh does it could get worse if you dont get it out.  Good luck to you

    • Anonymous
      rockabye1
      Dec. 12, 2012
      What is Dr. Ds full name at Vanderbilt
    • Anonymous
      rockabye1
      Dec. 12, 2012
      What is Dr. Ds full name at Vanderbilt
    • dd
      dd
      Aug. 19, 2012

      I just had my mesh removed. It had totally eroded into my urethra.My urologist said it looked like a birds nest. He sent me to the Mayo Clinic in Jacksonville Fla.

      This was just the place for me. My dr Anita Chen was wonderful. It;s not an easy surgery to have, but it's great to know your in the right place, Everyone was extremely nice. All procedures...

      RHMLucky777

      Read More

      I just had my mesh removed. It had totally eroded into my urethra.My urologist said it looked like a birds nest. He sent me to the Mayo Clinic in Jacksonville Fla.

      This was just the place for me. My dr Anita Chen was wonderful. It;s not an easy surgery to have, but it's great to know your in the right place, Everyone was extremely nice. All procedures were done promptly. The hospital was extremely clean and you felt like you were the most important patient there. I go back next week to have my catheter removedI should have done trhis 2 yrs ago, but kept putting it off. As a result, the mesh had embedded more and more into my urethra,causing my surgery to be more complicated.  Good luck and Gd bless. You will be in good hands,   DONNA

    • Anonymous
      Tracy A.
      Feb. 03, 2012

      I too am living the mest and sling nightmare.  But in addition to that when have mesh implanted the doctor punctured my bladder.  So now I'm living a nightmare of Pain, many surgeries, hospital stays and lack of intercourse.  The doctor whodid the surgery said "You will just have to live with it".  That's when I started to look for a specialist,...

      RHMLucky777

      Read More

      I too am living the mest and sling nightmare.  But in addition to that when have mesh implanted the doctor punctured my bladder.  So now I'm living a nightmare of Pain, many surgeries, hospital stays and lack of intercourse.  The doctor whodid the surgery said "You will just have to live with it".  That's when I started to look for a specialist, lucky I live 30 minutes from Pittsburg.  I found a great Doctor, Dr. Wendy Leng,  I am scheduled for my 4 th surgery on 02/13/2012,  She is going to remove the mesh.  I have had many surggeries due to Crohn's diesease, but this on scares me too death.  Hope there are no complications this time.  So all you women out there are not alone, just try to stay postitve.

    • Dawn
      Feb. 24, 2012

      I was wondering how your surgery turned out? I hope it went well for you and they were able to get the mesh.

    • Milkkeway
      Aug. 17, 2012
      I'm in Sacramento. In need of a doctor too. I fell at work an have damage to my right hip. Anterior labral tear. Nov 2008. In feb 2009 began experiencing leakage. 3 gyn later including surgeon. Ahh nothing wrong. Tests negative. My trauma injury according to them no injury to bladder. After reading about recall and other stories I am begging to see now the...
      RHMLucky777
      Read More
      I'm in Sacramento. In need of a doctor too. I fell at work an have damage to my right hip. Anterior labral tear. Nov 2008. In feb 2009 began experiencing leakage. 3 gyn later including surgeon. Ahh nothing wrong. Tests negative. My trauma injury according to them no injury to bladder. After reading about recall and other stories I am begging to see now the pain I have from the injury not in my head. I have right groin pain , lumbar pain an down my leg. Vaginal pain with intercourse . Doctor say from my injury but I'm now realizing otherwise. Everything was great until I tripped . No leakage 2003 to Feb 2009. And getting worse. Help needed please. Had kaiser then now Blue Shield. Hopefully prove work comp trama. My injury was to tear hip. Tear knee tear shoulder crushed talor ankle all right side. Had to have did some damage with now leaking. . thanks anyone. Msel369429@aol.com
    • stella
      Sep. 16, 2013

      I recently had my mesh removed. I'm reading this in tears,I have never felt so alone until I started going through this. The pain the emotions and the silence. My mesh eroded into my bladder and the lining of my vaginal wall. I spent 3 months on bedrest after surgery. I'm currently going through a divorce cause as we all know intimacy isn't something we can...

      RHMLucky777

      Read More

      I recently had my mesh removed. I'm reading this in tears,I have never felt so alone until I started going through this. The pain the emotions and the silence. My mesh eroded into my bladder and the lining of my vaginal wall. I spent 3 months on bedrest after surgery. I'm currently going through a divorce cause as we all know intimacy isn't something we can help. I'm going through vaginal injections right now and soon starting physical therapy. I need a minimum of 7 more surgeries. But all I really want is to be normal again. I'm emotionally exhausted and tired of being silent. I'm going to pray for your journey so God will give you peace. Never forget your not alone we are here for you.

    • Terrianed
      Mar. 10, 2012

      Hi,

       

      Did you have this surgery?  I am trying to find a surgeon to remove this horrible mesh in Chicago.  Do you know of someone?

       

      Thanks.

       

      Terri

    • Anonymous
      guest
      May. 21, 2012

      I have heard read where women have had the tape trimmed and it erodes again. The women strongly recommended not doing that.  I would advise you to get to a medical hospital like Vanderbilt or Mayo.  I had the sling put in mar 09 just had it taken out 4 weeks ago today.  I must say the take out surgery was not near as painful as the putting in...

      RHMLucky777

      Read More

      I have heard read where women have had the tape trimmed and it erodes again. The women strongly recommended not doing that.  I would advise you to get to a medical hospital like Vanderbilt or Mayo.  I had the sling put in mar 09 just had it taken out 4 weeks ago today.  I must say the take out surgery was not near as painful as the putting in surgery.  When they put it in there was so much swelling it did not look like my body down there anymore.  I had to have the sling removed because it had cut through the vaginal wall from one side to the other.  Still having some pain.  I am only fifty but starting to feel like 90.  I am still walking pretty slow.   But I am hopeful that will go away.  I was told that I may need to have some physical therapy to help the muscle where they bolted the sling in to help relieve the pain.  The doctor was able to get all out except for at the bolt down sites on each side.  I am concerned after reading about the bacteria that attaches to the mesh that those bolt in sites could become a future site of infection.  I havent had any leakage issues yet.  But the doctor said that that could be due to swelling we should know more by the six week point.  They also warned me that I could still have to do an additional surgery for repair work.  I would advise you doing some research on the doctor before you have it removed. Also from what I have read from some medical studies the problem with the mesh is shrinkage once its in the body it starts to shrink and continues with time.   I wish all women that are going through this the best.  If you cant afford to take care of this get an attorney.

    • Anonymous
      guest
      May. 21, 2012

      I have heard read where women have had the tape trimmed and it erodes again. The women strongly recommended not doing that.  I would advise you to get to a medical hospital like Vanderbilt or Mayo.  I had the sling put in mar 09 just had it taken out 4 weeks ago today.  I must say the take out surgery was not near as painful as the putting in...

      RHMLucky777

      Read More

      I have heard read where women have had the tape trimmed and it erodes again. The women strongly recommended not doing that.  I would advise you to get to a medical hospital like Vanderbilt or Mayo.  I had the sling put in mar 09 just had it taken out 4 weeks ago today.  I must say the take out surgery was not near as painful as the putting in surgery.  When they put it in there was so much swelling it did not look like my body down there anymore.  I had to have the sling removed because it had cut through the vaginal wall from one side to the other.  Still having some pain.  I am only fifty but starting to feel like 90.  I am still walking pretty slow.   But I am hopeful that will go away.  I was told that I may need to have some physical therapy to help the muscle where they bolted the sling in to help relieve the pain.  The doctor was able to get all out except for at the bolt down sites on each side.  I am concerned after reading about the bacteria that attaches to the mesh that those bolt in sites could become a future site of infection.  I havent had any leakage issues yet.  But the doctor said that that could be due to swelling we should know more by the six week point.  They also warned me that I could still have to do an additional surgery for repair work.  I would advise you doing some research on the doctor before you have it removed. Also from what I have read from some medical studies the problem with the mesh is shrinkage once its in the body it starts to shrink and continues with time.   I wish all women that are going through this the best.  If you cant afford to take care of this get an attorney.

    • missouri
      May. 30, 2011

      Hopefully someone can help me.  May 31,2011

      I have mercilene mesh eroding into my vagina.

      I have been treated for the past 6 months for a yeast infection, a ecoli infection and a strepticochal bacterial infection.

      Finally after getting a diagnosis of the problem I went to a urogyne and he made the removal of the mesh sound very serious and complicated....

      RHMLucky777

      Read More

      Hopefully someone can help me.  May 31,2011

      I have mercilene mesh eroding into my vagina.

      I have been treated for the past 6 months for a yeast infection, a ecoli infection and a strepticochal bacterial infection.

      Finally after getting a diagnosis of the problem I went to a urogyne and he made the removal of the mesh sound very serious and complicated. I went back to the DR. who put the mesh in she said she would not take it out that she would manage it...by removing it from the vagina and then wait and see,if that takes care of the problem. I can hardly walk from the pain in my low back and hips...could this pain e from the mesh invading nerves...I feel like I;m in the early stages of labor...lowback pain and I have constant diarreah.

      Is there any kind of trust fund that the courts have set up to help victims bear the cost of removal of this mesh?  This would come from the individual manufacturers. I am from Columbia, Mo. Please give me Dr. names who are qualified to remove this mesh and feedback on what to expect. ect. ect.

      I would love to talk to someone that has been through the surgery successfully.

      Signed.....Missouri

       

    • KMRIA
      Jun. 14, 2011
      Getting ready for my fourth mesh erosion repair....The doctor's still look at me like i am crazy and don't understand why the three new pieces of mesh sticking through me and into me cause pain!!!!!!!! Does anyone know of a good doctor who can remove the whole thing? I had four original repairs with a bladder sling so i have five pieces of mesh that should...
      RHMLucky777
      Read More
      Getting ready for my fourth mesh erosion repair....The doctor's still look at me like i am crazy and don't understand why the three new pieces of mesh sticking through me and into me cause pain!!!!!!!! Does anyone know of a good doctor who can remove the whole thing? I had four original repairs with a bladder sling so i have five pieces of mesh that should come out. Also, what happens if they come out? Has anyone had the operation reversed with any luck or did you suffer an immediate prolapse again? Good Luck to us all, we really need it.
    • kathy
      Aug. 08, 2011

      having all the same crazy problems.  i had a partial hyterectomy along with mesh put it for my prolapsed bladeer. i have had 2 surgeries and facing a third. also no relations with my husband. i feel like i can feel 2 areas where the mesh is falling. not good if you can feel it in your vagina. got my DR appointment coming up,and demanding help for this....

      RHMLucky777

      Read More

      having all the same crazy problems.  i had a partial hyterectomy along with mesh put it for my prolapsed bladeer. i have had 2 surgeries and facing a third. also no relations with my husband. i feel like i can feel 2 areas where the mesh is falling. not good if you can feel it in your vagina. got my DR appointment coming up,and demanding help for this.

    • SEA
      SEA
      Aug. 28, 2011

      I had my first Surgery July 2009, second October 2009. Since then I have had problem after problem. Today and yesterday I feel like I am in labor and that is impossible. On the few occations that I have intercourse with my husband, about 1/2 inch down his penus, the mesh cuts him and he bleeds. I hurt, my back, legs thighs and sex life is distroyed with the...

      RHMLucky777

      Read More

      I had my first Surgery July 2009, second October 2009. Since then I have had problem after problem. Today and yesterday I feel like I am in labor and that is impossible. On the few occations that I have intercourse with my husband, about 1/2 inch down his penus, the mesh cuts him and he bleeds. I hurt, my back, legs thighs and sex life is distroyed with the one I love. I bleed often, my stomach has 3 places that pull and hurt, I am very bloated and have had weight gain just in my abdoman area. I look pregnant at 48! I have requested doctors records and have an attorney. I no longer have insurance and I do not feel I should have to pay for the repair and have my life upside down. cant een pick upi grandchildren without bleeding...I dont want money..I want to be fixed right and my love life back with my husband. I am now in Montgomery Al, had my original surgery with my doctor of 20 years in Henry County Ga. I dont believe it is the doctors I believe it is the inventor of the mesh....and they need to fix it.

    • Barbara Lucius
      Nov. 08, 2011

      I'm sorry to hear about your problems.  I am having the same thing.  My doctor sent me to an oncologist/gynecologist for an exam.  No cancer thank God however, he said he was going to recommend to my urologist that he treat in first with pain management then if that doesn't work he would refer me to a Dr. in Birmingham, AL at UAB.  He does...

      RHMLucky777

      Read More

      I'm sorry to hear about your problems.  I am having the same thing.  My doctor sent me to an oncologist/gynecologist for an exam.  No cancer thank God however, he said he was going to recommend to my urologist that he treat in first with pain management then if that doesn't work he would refer me to a Dr. in Birmingham, AL at UAB.  He does reconstruction.  I am still waiting for a response from my dr. as to what the next procedure will be.  The pain in the lower abdomen and back is horrible.  Just thought I would let you know about Birmingham.

    • Angie
      Dec. 07, 2011

      I am 36yrs old and had a hysterectomy and the bladder sling done in June 2011 and since my surgery I have had all the same symptoms that all of you women are also facing. I have not talked to anyone else that goes through my agony that I go through on a daily basis. Noone seems to understand my pain....I wake up in the mornings and sometimes cant even walk...

      RHMLucky777

      Read More

      I am 36yrs old and had a hysterectomy and the bladder sling done in June 2011 and since my surgery I have had all the same symptoms that all of you women are also facing. I have not talked to anyone else that goes through my agony that I go through on a daily basis. Noone seems to understand my pain....I wake up in the mornings and sometimes cant even walk and am in tears from the pain. I have told my Ob/Gyn that done my surgery something was wrong and he keeps telling me its normal but THIS IS NOTTT normal. He has made me an appt to see a specialist in Birmingham Alabama in 2 days and  I am praying that they remove this sling cause I dont think I can do this anymore, I have to take 7 medications everyday for the rest of my life due to this! I would love to talk to any of you ladies out there that is going through the same thing to pleaseeee contact me so I can talk to them. Email me at wowimsane@yahoo.com or I am on facebook also as AngieandBruce Roxby. I really look forward to actually talking to someone who understands my pain physically and emotionally!!!

    • Dawn
      Jan. 06, 2012

      Hi, I am 39 and I to had mesh bladder suspension TOT in June 2011 I have been in Pain since,I had bleeding so bad right after that I had to be burned inside   the vigina to stop it in the dr's office 3 days after ,have had Lower back pain that went into a burning pain, Left groin going numb, Upper buttock pain,pain with sex, Hip pain, left...

      RHMLucky777

      Read More

      Hi, I am 39 and I to had mesh bladder suspension TOT in June 2011 I have been in Pain since,I had bleeding so bad right after that I had to be burned inside   the vigina to stop it in the dr's office 3 days after ,have had Lower back pain that went into a burning pain, Left groin going numb, Upper buttock pain,pain with sex, Hip pain, left leg is giving out and I have fallen many times, I had bladder inf. You are not alone. It is the mesh that is causing it !!! and don't let anyone tell you different, I will try to make a long stroy short but I have seen many Dr.'s over this, I did tell each dr that I had this surgery in June and Have had this problem since, I have had MRI's on brain and back, Ct of back, venous duplex to rule out blood clot in leg, EMG. I was told I have mild osteoarthrosis in my back, went to back sep. not knowing about the side effect of the mesh, I had 2 ESI injections in my lower back that made me hurt worse,and that Dr. wanted to burn my nerve endings I said no not until I know forsure, I have been givin pain pills that I don't like to take, But some days the pain just makes me cry, I did call my Dr. that did the surgery and I talked to him he asked what the MRI showed and he said he belives that is what my pain is from, he said he never heard of people having pain this long from the surgery, and he hopes I feel better, I then decided to look on line about pain in lower back and buttock after TOT and found the FDA warnings,I work for Dr.'s and told them what I found, they said it needs to come out, Yes I work in the medical Field. I then called his office back and was told he was on vacation and they could not see me for over a month. I find it hard to belive that no one is covering for him. I called my  PCP that had me seen by another obgyn that said he belives it is a side effect of the mesh,but he dose not do them. then went to a urogynecoloist, that did a cysto on me and a udt witch proved I was still leaking and I am leaking worse then before I had this surgery, He said he wanted me to try antidepression meds,for the incontinence,he dose not belive the sling is causing my pain, but if the meds didn't work he would take it out, I said I would not take them,I did not needs meds before this surgery and told him to just take it out. When I asked him how many slings he has completly removed he tried getting out of answering me I asked 3 times and he fininaly fessed up that he had not removed any, I told him thank you for his time but I want to go to U OF M,and would like for him to put in writting that he did not think the sling was causing my pain he was not happy at first, but I told him this is my body and he is not the one living like this and I want it out!!!He siad he would put in writting that it is "unlikley" see he changed it now it is "unlikey" so it could be,  see I did my research before I went because I was tired of these Dr's making me think this is all in my head, i have felt as if there is no help, the Dr's I work for belive it is and they did help me get my Appt. at UofM with Dr. Dee fenner I am having surgery Feb10,2012 to have it all taken out and a sling made out of my own tissue she said what I am having is a classic side effect of the mesh, she has seen it alot and done alot of these surgery's she knew right away and when she did the vaginal exam she touched the sling and the pain was 3 times what I have been feeling, it went right through my butt cheeck to the groin, so  please don't feel like there is no hope because there is, I do understand what you are going through don't give up and If you don't like what you are hearing go some where else it is your body!!and your right, Try to go to a university hosp. where you live these other Dr.'s know how to put them in but do not know how to take them out. I was told by Dr. Fernner that the mesh in my thighs will have to stay they can't remove that because of to many blood vessels I did not even know that Mesh is in my thighs she seems to think this will take most of the pain if not all of it away. I am Happy that I have found Dr. Fenner and her Asst. Dr. Smith, she said to me I do not want you to think you are Crazy because your not it is a side effect, I was also happy my Husband was with me on this appt. so he can see what i have been going through, and understand it a little more. and he dose now.  GET THE MESH OUT... ALL OF IT.. IT IS BAD STUFF !!!   I will let you know how I am doing after my surgery Good Luck, The FDA needs to take this stuff off the market it is making people's lives a living HELL.

    • danbury5
      Jan. 06, 2012

      Sorry for your horrible troubles and thanks for sharing your story. I have been watching my grandmother go through it. Horrible. She had two removal surgeries and now they say the nerve damage is so bad that it would make it worse to try to remove what is in her thighs. She even went all the way to the Mayo in MN. Now she is going to a nerve specialist. Total...

      RHMLucky777

      Read More

      Sorry for your horrible troubles and thanks for sharing your story. I have been watching my grandmother go through it. Horrible. She had two removal surgeries and now they say the nerve damage is so bad that it would make it worse to try to remove what is in her thighs. She even went all the way to the Mayo in MN. Now she is going to a nerve specialist. Total nightmare. Please let us know how you do after the mesh removal. This site and others are the only way others can get first hand information.

    • Dawn
      Feb. 24, 2012

      Ok so it's been 2wks since I had the Mesh removed, I am slowly starting to feel better, If you live in Mich or are willing to travel you need to see Dr. Dee fenner at U of M she is a great Dr. She removed all the mesh except for what is in my thighs, She can't remove that because of to many blood vessels and nerve's she said that the mesh in...

      RHMLucky777

      Read More

      Ok so it's been 2wks since I had the Mesh removed, I am slowly starting to feel better, If you live in Mich or are willing to travel you need to see Dr. Dee fenner at U of M she is a great Dr. She removed all the mesh except for what is in my thighs, She can't remove that because of to many blood vessels and nerve's she said that the mesh in me had turned inside out and twisted and errored through my vaginal wall, she was able to get it out and repair, then she took tissue of my own from my lower ab. ( Pelvic Region) and made a sling out of that and attached that tissue to the lower end of my spine. The surgery was about 3 hrs. then in recovery for 2 then I was able to see my husband and family. I am so blessed that I have such a wonderful support team, and that I found such a wonderful Doctor. I will be seeing her again in 6wks. My prayers go out to all of you that are suffering from this.  I know first hand the helpless feeling you are having. This Mesh took alot of my life away it was hard to listen to my Son's 14  and 11 tell me mom you are no fun anymore it broke my heart I was very acvtive with my boys and then mom just couldn't do it anymore, I just hope that now I will get my life back, Only time will tell.

    • Anonymous
      LINDASBEST
      Jun. 28, 2012

      I was just ready your message and was wondering how your surgery came out. Good I would hope.

      I had a mess implant, gynecare tvto, in August 2009. I have not had a problem until recently. My family doctor said I had a urinary infection, gave me bactrim, it didn't help. Went to the OBGYN that put the mess in and he said there wasn't anything wrong with it. The...

      RHMLucky777

      Read More

      I was just ready your message and was wondering how your surgery came out. Good I would hope.

      I had a mess implant, gynecare tvto, in August 2009. I have not had a problem until recently. My family doctor said I had a urinary infection, gave me bactrim, it didn't help. Went to the OBGYN that put the mess in and he said there wasn't anything wrong with it. The pain I am having is in the urinary area. He said he believes that my hormone levels are extremely low and that affects your bladder. He put me on estrace cream. I honestly believe it is the mess even though he told me that he has never had a problem with the one he used on me. Do not know what my next step should be.

      Thanks.

    • Gemini
      Feb. 07, 2012

      Hi, I just signed my wife up on this site. She has had partial MESH removal done in Birmingham @ Brookwood Medical center by Dr. Rookis (female) who has been very caring and the most understanding of all doctors we have delt with.

      While she told us up front she would not be able to fully remove the mesh she was able to remove a good bit and give my wife some...

      RHMLucky777

      Read More

      Hi, I just signed my wife up on this site. She has had partial MESH removal done in Birmingham @ Brookwood Medical center by Dr. Rookis (female) who has been very caring and the most understanding of all doctors we have delt with.

      While she told us up front she would not be able to fully remove the mesh she was able to remove a good bit and give my wife some much needed relief!

      The mesh had protruded through the vag wall and was causing severe abdominal pain & infection in her body. She ran fever almost constantly!

      She still has a great deal of pain but not what it was before the partial removal. She will probably have to have more surgeries to remove what they can of the remaining MESH which scares us to death.

      Oh and for anyone who was wondering she was a very active and healthy woman before this MESH implant was placed in her body only a slight incontinence problem but the doctor recommended a bladder tact procedure for this problem and did not inform her she would even have a mesh implant put in her body!!!! We first found out about the sling after the surgery when she was in recovery !!!!

       

      I just want to say that we are praying for anyone going through this!

       

    • Victoria H.
      May. 13, 2013
      Hello, My name is Victoria. I've gone through a lot of what you've experienced, and they tell me because my mesh was taken out in 1996 that it is very doubtful that I'll be able to sue. And I must have more operations, and I'm just stuck with not being able to sue anyone because there is only a 5 year window to pursue legal action. I'm hoping to find someone...
      RHMLucky777
      Read More
      Hello, My name is Victoria. I've gone through a lot of what you've experienced, and they tell me because my mesh was taken out in 1996 that it is very doubtful that I'll be able to sue. And I must have more operations, and I'm just stuck with not being able to sue anyone because there is only a 5 year window to pursue legal action. I'm hoping to find someone I can talk to about my experience that has gone through what I have. I feel very alone, none of my family or friends understand. The physical and emotional effects that this mesh has had on my life are unbelievable, and unbearable. If you're willing to talk with me and share on your experiences I think it would be a very helpful part of emotional healing. Please email me at vichansberry123@gmail.com. I don't have a computer at home right now so it may take a little time for me to respond. We may be able to talk on the phone though if that's easier.
    • danbury5
      Aug. 24, 2011

      Have you found any luck with doctors? My grandmother is having the same problem and is going to the Mayo Clinic in Rochester MN to Dr K (don't think we can put doctor's names on here). This will be her third mesh removal surgery after two done locally. I have heard very good reports about Dr K removing all of the mesh.

       

      Katie

    • Anonymous
      why
      Nov. 07, 2012

      You have had 4 repairs to take the mesh out, and still having a lot of problems with it protruding out? I have my first next week, I would love to hear someone tell of a good report of after the first removal to take some, as I have already been told all cannot be gotten , I want to hear a good report, after the first. that infections decreased and they are...

      RHMLucky777

      Read More

      You have had 4 repairs to take the mesh out, and still having a lot of problems with it protruding out? I have my first next week, I would love to hear someone tell of a good report of after the first removal to take some, as I have already been told all cannot be gotten , I want to hear a good report, after the first. that infections decreased and they are better , I do not want to be a guinea pig the rest of my life. what life I have left, already I AM HOUSE BOUND, 95% OF THE TIME, NOT KNOWING FROM ONE DAY TO THE NEXT WHAT INFECTIONS i WILL DEAL WITH WHAT KIND OF PAIN,  AND WHAT FEELS LIKE HEMORRHOIDS IN MY BUTTOCKS, WHAT IS THIS AND WHAT HAS BEEN IMPLANTED IN THE WOMEN. TO CAUSE SUCH SYMPTOMS WOMEN ARE SUFFERING FROM.  IT IS NOT JUST 1 BACTERIA THAT WE ARE FIGHTING,  WHY, THEY SHOULD STOP THE MESH BEING PUT IN WOMEN , UNTIL THEY CAN ANSWER THESE QUESTIONS, PERIOD , BECAUSE THIS IS MURDERING WOMEN.

       

      NOT THAT i AM NOT THANKFUL FOR THOSE DOCTORS, THAT ARE TRYING TO HELP THE REMOVING THE MESH EVEN PARTS, BUT MORE DAMAGE. WHO IS GOING TO GET RICH OFF THESE CASES? ATTORNEYS, SO MANY THAT TO THEM IT IS A CARNIVAL, AND NO CARING AT ALL, THEY DO NOT CARE TO ASK WHAT THE WOMEN HAVE SUFFERED EVEN TRYING TO FIND DOCTORS TO TAKE THE MESH OUT, AND BEING TREATED SO CRUEL BY SOME DOCTORS AND NURSES.

      NO MEDICINES , GOING THROUGH PERIODS OF NO MEDICINES AT ALL TO HELP, NOT EVEN WITH INFECTION, THEY ARE WANTING THE GUINEA PIGS THEY USED TO DIE, IS THE WAY IT SEEMS.  i WANT TO CUSS , BUT i WON'T. 

    • Lisa
      Sep. 21, 2011

      Dr Butrick in Overland Park Kansas is the urogynocologist who removed my mesh.  I was very thankful to find him because there was nobody else who would remove it after it had eroded through my vaginal wall.  Good luck! 

    • Anonymous
      heymickey
      Jan. 16, 2012

      Hi! I had a erosion intrusion into the vaginal wall as well my bladder was also bulging through I wanted it all out but the doctor kept saying it  was to risky. I asked how I would know if it happens again the erosion that is and he said when I have pain..  I am located in IL but had my surgery in St.Louis, I just had the surgery on Nov 10th 2011...

      RHMLucky777

      Read More

      Hi! I had a erosion intrusion into the vaginal wall as well my bladder was also bulging through I wanted it all out but the doctor kept saying it  was to risky. I asked how I would know if it happens again the erosion that is and he said when I have pain..  I am located in IL but had my surgery in St.Louis, I just had the surgery on Nov 10th 2011 and was wondering how yours was doing

       

    • Anonymous
      Heymickey
      Jan. 16, 2012

      Hi! I had a erosion intrusion into the vaginal wall as well my bladder was also bulging through I wanted it all out but the doctor kept saying it  was to risky. I asked how I would know if it happens again the erosion that is and he said when I have pain..  I am located in IL but had my surgery in St.Louis, I just had the surgery on Nov 10th 2011...

      RHMLucky777

      Read More

      Hi! I had a erosion intrusion into the vaginal wall as well my bladder was also bulging through I wanted it all out but the doctor kept saying it  was to risky. I asked how I would know if it happens again the erosion that is and he said when I have pain..  I am located in IL but had my surgery in St.Louis, I just had the surgery on Nov 10th 2011 and was wondering how yours was doing

       

    • SwtSusan
      Aug. 22, 2012

      I had a Rectocele repair with apogee mesh. I have had pain and could feel the mesh exposed thru vaginal wall. Original Dr says that it takes time to heal. Doctor want to treat anxiety and Depression. But couldn't find one to remove the problem.I was 43 years old, unable to have intercourse. Pain and Burning constant. I could feel large area of mesh inside vagina,...

      RHMLucky777

      Read More

      I had a Rectocele repair with apogee mesh. I have had pain and could feel the mesh exposed thru vaginal wall. Original Dr says that it takes time to heal. Doctor want to treat anxiety and Depression. But couldn't find one to remove the problem.I was 43 years old, unable to have intercourse. Pain and Burning constant. I could feel large area of mesh inside vagina, which began to have oder. I finally built up courage and requested that my Dr refer me to a specialist which he did. I had to have part of the mesh removed at the hospital. This helped pain for awhile then I noticed pain inside vagina and could feel small pieces of Mesh. I returned to Dr who removed small part. He states that the entire Mesh must be removed. I was sent to another Dr, who wanted to attempt pelvic floor therapy. This did not help caused increased pain burning. I was unable to work due to Medications that the put me on. I was sent to colorectal dr to see if this was a factor. After Sitz Marker test. Dr states that now my whole entire Large Bowel are dead. They need to be removed. I have had this surgery but mesh is still in place. I had a hemmorhage that required 8 units of blood. Emergency surgery the next day. On a Vent for 3 days. Now I had uncontroll diarrhea must wear depends at 48 years old. Cannot have intercourse. My reg Dr. continues to say I need to have Mesh removed and in process of finding ine who has expierience doing them. I have to wait for new dr to review records. Colorectal dr says it can't be done now. Due to Mesh being at rectum. If they damage that during surgery I would then have to have a colostomy.  Colorectal Dr was able to attach small bowel to rectum. So now I continue to Have Pain Burning in vagina and into my right thigh. I have bowel and Bladder incontinence. I know I need a good Dr but I am afraid of what will happen next. It seems like I try to fix 1 thing and 2 more go wrong.

      ο»Ώ

    • Anonymous
      Ihatedrd1
      Oct. 14, 2013

      When you find someone to perform surgery, please send me the info. I need help now! The TVT has given me recurrent UTI's and infected my heart valves. I now need surgery to repair the MR mitrovalve regurgitation. But before I can do heart surgery , my doc told me I must have TVT mesh removed. I have been lethargic almost immediately after placement, Im going...

      RHMLucky777

      Read More

      When you find someone to perform surgery, please send me the info. I need help now! The TVT has given me recurrent UTI's and infected my heart valves. I now need surgery to repair the MR mitrovalve regurgitation. But before I can do heart surgery , my doc told me I must have TVT mesh removed. I have been lethargic almost immediately after placement, Im going on 4 years. Its taken this long to figure this. And only bc I went to a different ER room when the Edema was horrific mid evening. Here are a few of the illness' that I suffered with and still do. Incontinence, lethargy, painful intercourse, pain when sitting or standing for any length of time. Itchiness, leg pain, lower back pain,hip pain, depression, anxiety, recurrent UTIs, abdominal discomfort. Just to name a few. I need to now get started with surgeries and resume a normal life if thats even possible. God willing, yesπŸ™πŸ™πŸ™β€β€β€β€

    • Anonymous
      Brenda Jones
      Sep. 24, 2011

      Maria Magnolia,

       

      I would personall like to talk with you.  My dr was also in Henry County, GA.  I had surgery in 2005.  I was his number 4 patient and sister was number 3.  My dr did not know what he was doing with this MESH. 

      Have many, many problems.  Just too many to explain on this board!

      You can email me at bkjones3@gmail.com....

      RHMLucky777

      Read More

      Maria Magnolia,

       

      I would personall like to talk with you.  My dr was also in Henry County, GA.  I had surgery in 2005.  I was his number 4 patient and sister was number 3.  My dr did not know what he was doing with this MESH. 

      Have many, many problems.  Just too many to explain on this board!

      You can email me at bkjones3@gmail.com.

       

      God Bless,

       

      Brenda

    • Teresa
      Sep. 12, 2012

      Magnolia, I dont know where u live but i have been seeing a urogynocologist in dallas texas by the name of Dr. Michael Carley. I experienced the mesh erosion in 2011 and have had 2 mesh surgeries for extraction (removal). Dr Carley was a God send for me. I to was scared but am able to move forward because of dr. carley. He is so wonderful with a great bedside...

      RHMLucky777

      Read More

      Magnolia, I dont know where u live but i have been seeing a urogynocologist in dallas texas by the name of Dr. Michael Carley. I experienced the mesh erosion in 2011 and have had 2 mesh surgeries for extraction (removal). Dr Carley was a God send for me. I to was scared but am able to move forward because of dr. carley. He is so wonderful with a great bedside manner. So caring and understanding and explains every step to you. I do suffer from an autoimmune disorder now due to this mesh mess but am able to cope day to day.  If you need any more info please feel free to email me at kelleyjetk@gmail.com  Hope this is helpful.

    • Sereda Parker
      Jan. 18, 2013

      Hello my name is Sereda I have appt to go out to LA to see Dr.Raz he is a good doctor here is his phone number 310-794-0755 he is aurologist .Thank You

    • Sereda Parker
      Jan. 18, 2013

      Hello my name is Sereda I have appt to go out to LA to see Dr.Raz he is a good doctor here is his phone number 310-794-0755 he is aurologist .Thank You

    • Kat
      Kat
      Nov. 16, 2010

      Hi

      I have the propelene vaginal mesh that needs to come out. The nerve pain you speak of on your leg is it in the front, inside, back our outer thigh area? I have a pain that runs down the front of my leg and sometimes i feel it in the inner thigh..Wondering if perhaps that's nerve pain. It runs from the inflamed area inside straight down from there.

      My name...

      RHMLucky777

      Read More

      Hi

      I have the propelene vaginal mesh that needs to come out. The nerve pain you speak of on your leg is it in the front, inside, back our outer thigh area? I have a pain that runs down the front of my leg and sometimes i feel it in the inner thigh..Wondering if perhaps that's nerve pain. It runs from the inflamed area inside straight down from there.

      My name is KAT and I made a post yesterday. Hope you are doing well these days.

    • shelly
      Aug. 07, 2012

      I had my surgery on Sep.3,2010 and was told I could return to work within 4 days. I was in the worst pain ever. Worse than having childbirth. I was bleeding before the surgery for 2 weeks, my dr. told me it was normal. I thought ok well if the he says so...then the bleeding came and went...for about a month I said it's not normal for me to have a month period....

      RHMLucky777

      Read More

      I had my surgery on Sep.3,2010 and was told I could return to work within 4 days. I was in the worst pain ever. Worse than having childbirth. I was bleeding before the surgery for 2 weeks, my dr. told me it was normal. I thought ok well if the he says so...then the bleeding came and went...for about a month I said it's not normal for me to have a month period. So he checked me and said I had cysts on my cervix. He removed them. I asked at a later time about my bleeding. After I had my surgery that I was on my period after I healed a bit and it lasted for 2 weeks, then I was told it wasn't normal and for me to go to the ER. I felt as if this doctor just wasn't giving me the right answers I needed. I now have pain on my right leg going up to the right side of my hip and my butt feels like i had a shot. I have severe back pain, bowel bleeding and it's like a heavy period when I have bowel movements. I feel like my body is just weak and I haven't done much since the surgery. I am always tired, sometimes i have energy, but it's just not the same of how I felt before the surgery. I am so upset because he has left the country, the staff are all rude and I wanted to see my records, i was told I had a bill that was passed due and i couldn't pay it so they wouldn't give me my records. I am so upset and not knowing about this doctor only being around the area for 3 months and has an unknown years of practice when I looked him up just has me worried. I don't even strain myself when I have bowel  movements and still bleed heavily. I do strain sometimes just to urinate. I sure hope this will all be taken care of by a law firm who is doing investigating on my case, because I am getting nowhere with this doctor. Good luck with yourself and don't let pass the time to get some help that could get you what you deserve in a suit that has been filed from many women going through this. I just want to feel normal. I was not able to walk for a week, when the pain started, then it got better, and now it's getting worse a long with my hip and butt cheek hurting. 

    • vicki
      Aug. 15, 2011

      I am having problems with my mesh and am looking for a doctor in the western states to remove this. Can anyone give me any help on this. I am hoping to find someone who has had experience and a good track record. My name is Vicki

    • sling victim
      Apr. 11, 2012

      Is there a uro gyno dr surgeon in New York City, that can remove the mesh  for me. My heart goes out to all of you, I am ihe same horrible place, so many of you are. God help us all.

    • Anonymous
      Jane Akre
      Apr. 15, 2012

      Hello Maria-

       

      I note your site began a number of years ago before the two FDA notices on surgical mesh for POP and SUI. Since then there has been an increase in the number of women coming forward with complaints - now that they recognize they are not alone.  I have compiled many stories for Mesh Medical Device News Desk dot com  in an effort...

      RHMLucky777

      Read More

      Hello Maria-

       

      I note your site began a number of years ago before the two FDA notices on surgical mesh for POP and SUI. Since then there has been an increase in the number of women coming forward with complaints - now that they recognize they are not alone.  I have compiled many stories for Mesh Medical Device News Desk dot com  in an effort to put a face on "adverse events" as they are called.

       

      Far too many of them.  I thought we should be acquainted with each other in that we are doing the same sort of work. I do not offer medical or legal advice however.  Thank you-

      Jane Akre

       

       

    • francie
      Apr. 23, 2012

      i had pelvic prolapse mesh surgery as well as tvt-o sling for bladder prolapse in 2010.  i have had basically non-stop agitation and pressure sensations as well as i can not walk 2 blocks without kicking off an incredible pain on the right vaginal wall.  recently i had surgery to take out some of the mesh from the tvt-o and no mesh was found.  has...

      RHMLucky777

      Read More

      i had pelvic prolapse mesh surgery as well as tvt-o sling for bladder prolapse in 2010.  i have had basically non-stop agitation and pressure sensations as well as i can not walk 2 blocks without kicking off an incredible pain on the right vaginal wall.  recently i had surgery to take out some of the mesh from the tvt-o and no mesh was found.  has anyone heard of this? 

      i am looking for names of doctors who have reputations of being the very very best at removing mesh.

      starting to feel pretty desperate.

      all thanks.

    • Anonymous
      Sands64
      Feb. 19, 2014

      Hello everyone, I am almost 50, had the mesh inserted in 2006 after I had a full hysterectomy for uterine prolapse. After that surgery, my bladder prolapsed, had someone explained to me the complications, I would NEVER have had it done. I would have lived with my bladder almost falling out.... My husband and I will soon be divorced, we love each other but I...

      RHMLucky777

      Read More

      Hello everyone, I am almost 50, had the mesh inserted in 2006 after I had a full hysterectomy for uterine prolapse. After that surgery, my bladder prolapsed, had someone explained to me the complications, I would NEVER have had it done. I would have lived with my bladder almost falling out.... My husband and I will soon be divorced, we love each other but I can't have intercourse, it's excruciating, he also felt like he was in a "mousetrap" his words. I have had so many bladder/UTI's since then, I have lost count. Currently, I have a throbbing, burning in my low abdomen, a CT scan yesterday showed all is well, it can't be, something is wrong, does anyone else know if a CT scan shows mesh erosion? I have pain in my back, my legs get weak, lately I have severe bone pain in one leg, I still have to wear pads, as even after all this, urine still leaks, can anyone suggest what to do next? I believe I need to see a Uro/Gyno and schedule it to be removed, I am afraid to know where this mesh is at this point.  I am part of the lawsuit, and I believe we do deserve compensation. I lost a marriage and much more. I am too young for all of this. Thanks to everyone, it looks like all of us are in the same horrible boat!