Monday, February 13, 2012

A Tribute to the Simon Foundation for Continence

As you know, I generally try to keep my personal life separated from this sharepost, but every so often the two worlds must intersect. This is just such an occasion. In just a few short months my husband I will be welcoming our first child into this world. Along with the many changes that motherhood ...
8/30/08 6:43pm

Jasmine - Let me be the first to congratulate you! This is going to be an exciting time for you and your husband. Raising children maybe one hardest jobs there is, but, trust me, it has to be the most rewarding.

 

My "babies" are nearly grown. I still cannot believe how quickly that happened. It was only yesterday I was changing diapers. Tomorrow I will be sending my last one off to college!

 

Cherish the time you get to spend with your new baby. Make your husband do the same. Sometimes parenthood seems like endless drudgery, but try to look past that. It does take effort, but will be rewarded with years of precious memories! Also, keep the camera handy. And put the pictures in albums or frames as soon as you get them. We were not as dilligent as we should have been with this and really regret it now.

 

Well, so much for my two cents. Again, congratulations! When the baby arrives, give it a big hug for me!

 

 

 

 

9/ 5/08 11:11am

Thanks!

8/31/08 9:32am

after just finding out last week that this is permanent iv'e just been so sad and I read your farewell talk it inspired me to fight and hold my head hi ty jasmine davidb

9/ 5/08 11:12am

I'm sorry to hear that your condition is permanent (at least, until a new treatment or cure is developed), but glad to have a part in inspiring you to keep on keepin' on. Hang in there!

9/12/08 10:30am

In response to: I'm sorry to hear that your condition is permanent (at least, until a new treatment or cure is developed), but glad to have a part in inspiring you to keep on keepin' on. Hang in there

 

jasmine thankyou

                  

I have found that the hope of breakthroughs is the only thing that helps but at the same time I am trying to except and face it and try and be thankfull I can walk .

My spine is fixed but the spinal cord was injured and the nuro doc says theres no way Its healed as much as it going to . Ive tried about every type of protection there is but I cant feel anything now at all. Im still very active the peremanent bag they offered is a last resort when I get older and comming here is helping accept that Im, I hope , still normal if I wear diapers it just feels so strange feels wierd but there right if you ever want a good nights sleep again the cloth ones Ive been trying since I came here  really work the best its like I thought I would never be able to look at shrimp they look like bugs to me I never thought I would eat one but I  can now its a mental thing to get over I guess except you dont have to worry someone will find out you eat shrimp . this is a good place its helping me be able to even think about talking about it and to watch for a new breakthrough hope is good thank you all davidb

9/12/08 11:44am

You have a great attitude about a difficult situation. One tip: try to have a response pre-planned in case someone accidentally finds out about the incontinence or use of briefs. Such as: "Well, I wear this because I have a medical condition called 'incontinence'. That means my bladder doesn't work as well as it should. It's kind of like how someone with a bad knee needs to wear a knee brace - this product helps me live a full and active life despite this disability."

 

If someone happens to notice you leak, you could say, "Sorry about that... I have a medical condition called 'incontinence', which means my bladder sometimes leaks. For some reason many people are embaressed about this, even though it's just a disability like any other. I wouldn't feel bad about it if my arm were broken or my heart didn't work correctly, so I don't feel bad about this."

 

Notice how in these responses I use the phrases "medical condition" and "disability" - I find that by being proactive and explaining incontinence in this way before someone can form their own opinions helps to stop any stigma or prejudice before it begins.

 

Good luck!

9/13/08 4:52pm

thank you so much for helping feel like a human being again I just wish there was some way to date over the net so I can meet a girl that already understands thats the hardest part of this thank you  you cant quit now im so lonley that way  but thank you for your time and carring it touches me davidb

 

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