TVT Erosion

Gill Community Member October 19, 2007
  • TVT Tape Erosion was never mentioned when I was advised to have a TVT inserted.   Immediately after surgery on coming round I had a severe pain under my left buttock which the nurses and Drs just ignored.   The pain from the pubic catheter was even worse.  I was in hospital 4 days before I could pass urine.   I had 4 months of urine infections which were so painful.    Then I discovered the tape had eroded through the vaginal wall and was sticking out into my vagina.    I was too scared to go back to the original surgeon so took a second opinion and he removed this section of the tape and also a section from under the urethra as he thought this section of the tape may erode through the urethra too.   This was nearly 3 years ago and I still have problems sitting down.   It still feels like something inside of me that does not want to be there.   I still get pain either side of the pubic bone, a pulling pain and sometimes it feels like the tape is cutting me inside.   I sent away for a peice of the tape and the edges are really sharp.    I just have lost faith in any of the surgeons I have seen as they just look at me as if I am making it all up.   I am permanently on amitryptelene which they say will make any nerve damage less painful.   They talk about the removal of the rest of the tape but I just am so petrified of any further surgery.    I have just decided to get on with this as best as I can and take painkillers when necessary but dread the outcome.   I have heard of people having tape erosion as much as 5 years after their operations.    There is a very strong large group of people in the US who have formed a group and are taking the manaufacturers of the Gynecare tape to Court.    Does anyone know if there is a similar group of people in the UK?   I do not want to go to Court but I do want to save other poor people from going through this.    I know it has been successful for many women, but I also know that there has been a huge amount of misery for many too.   And, if I had known about the possibility of tape erosion, I would never have had it done.

32 Comments
  • Lor
    Lor
    Sep. 09, 2010

    Hi. Had TVT inserted in Aug 2008, was in a lot of pain early on which my surgeon dismissed. Eventually went to my gp as I could feel the tape coming through the vagina wall (feels like barbed wire) and was referred back to original surgeon. He immediately arranged to remove the tape that had eroded in Jan 2009. No great loss as it had never worked anyway. I...

    RHMLucky777

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    Hi. Had TVT inserted in Aug 2008, was in a lot of pain early on which my surgeon dismissed. Eventually went to my gp as I could feel the tape coming through the vagina wall (feels like barbed wire) and was referred back to original surgeon. He immediately arranged to remove the tape that had eroded in Jan 2009. No great loss as it had never worked anyway. I then had to have a second removal of more tape whihc had eroded in May 2010. I have just felt more tape which has eroded and am waiting to have this removed (probably Oct 2010). My new surgeon has suggested Autologous Sling or another tvt which may also erode. Still not fully decided but will probably go with sling as this uses my own muscle which I shouldn't reject. Has anyone had this surgery?

    Thanks

  • lilyflower
    Jun. 13, 2010

     Had surgery in 2006 and never could have sex with my husband without it being very painful ! I was pushed back and forth between my gyn and my urologist that did the surgery, saying nothing was wrong...well, just a few months ago I found a specialist (urogyn) that told me that my pain was coming from mesh eroding into the vagina and that it was put in...

    RHMLucky777

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     Had surgery in 2006 and never could have sex with my husband without it being very painful ! I was pushed back and forth between my gyn and my urologist that did the surgery, saying nothing was wrong...well, just a few months ago I found a specialist (urogyn) that told me that my pain was coming from mesh eroding into the vagina and that it was put in wrong. He removed the left side which was where the erosion was and told me that he couldn't remove the rest due to risks with nerves and blood vessels. He put in another sling further up on the bladder neck and out along the pubic bone. I asked him if I could have anymore erosion from what was left and he told me , there is that possibility. I pray that doesn't happen. I just hope I made the right decision to have another one put in.

    • jaque
      Jun. 18, 2010

      Please keep us posted on how it works. I pray that there is hope out there for all of us. It is pretty lonely being single and knowing that I couldn't be with a man it i wanted to.

  • jaque
    Jun. 06, 2010

    I don't know where all that stuff came from on my reply and i don't know how to get it off of there. Sorry about that.

  • Anonymous
    Liz S
    Nov. 09, 2009

    I had the op two years ago. Experienced vaginal bleeding and a very painful haematoma over the right abdominal incision afterwards. Once I had recovered from that, I have had nearly 2 years of normal life again.

    Really depressed in August then, to start the water infection cycle again and feeling very uncomfortable - like something is pricking/rubbing....

    RHMLucky777

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    I had the op two years ago. Experienced vaginal bleeding and a very painful haematoma over the right abdominal incision afterwards. Once I had recovered from that, I have had nearly 2 years of normal life again.

    Really depressed in August then, to start the water infection cycle again and feeling very uncomfortable - like something is pricking/rubbing. On investigating, I was horrified to feel the tape in the wall of my vagina. My practice nurse examined me and was also just as horrified.

    I have an appointment with the surgeon who performed to op tomorrow. Very worried about the outcome after reading everyone else's experiences. It will be difficult to trust any solution he may offer. Beginning to wish that I had never agree to it and had the traditional op instead.

  • Anonymous
    Anonymous
    Oct. 11, 2009

    Hi Ladies

     

    So it looks like i am not the only who has had problems witht he TVT. I had the operation in May 2009 and since had 5 eroisions needing to be taken back to theatre once  and awake for the other 4 cutting back of the tape. However, i can still feel pain when i stand, walk, bend or lift heavy loads. I have returned back to my surgeon...

    RHMLucky777

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    Hi Ladies

     

    So it looks like i am not the only who has had problems witht he TVT. I had the operation in May 2009 and since had 5 eroisions needing to be taken back to theatre once  and awake for the other 4 cutting back of the tape. However, i can still feel pain when i stand, walk, bend or lift heavy loads. I have returned back to my surgeon who stated even tho on this occassion the tape has not eroded through he can feel it on the mucosa which is only 2mm thick. He has advised me to use lidocaine jelly and massage the area in the attempt to retract the mesh backwards and when my partner returns fr on tour fr Afghan (6month tour) to have intercourse to also help pull the tape back. To help with the pain i have been given lidocaine jelly which is like a LA to numb the area. How defalted and frustrated do i feel. I was advised that i am unlucky and fall into the 10% cat of tape erosions. But how can i have so many in such a short time? The 1st erosion was jus 3 weeks following surgery and was large at that. I have also had it break itself down into strands and erode thru my vaginal wall and not just the insertion sites which his says he has never seen before. I am due to try and untake his regime when my partner returns and if it does not rectify the problem back to have another operation in NOV 2009. But the bulging heavy feeling & constant dull pain followed by sharp pain when active is driving me insane. I jus want to feel normal again. I hope we all get back to our normal selves in time. Hope all goes well for those who are due to return back to theatre.  

  • Anonymous
    Anonymous
    Oct. 01, 2009

    I had this tape inserted on 4th August this year - everything fine until me and hubby tried to resume a normal healthy relationship.  He described it like rubbing against a metal file!!

     

    Been for 6 week checkup today and mentioned it to dr, she told me she had been doing this operation for over ten years and had only once before come across a patient...

    RHMLucky777

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    I had this tape inserted on 4th August this year - everything fine until me and hubby tried to resume a normal healthy relationship.  He described it like rubbing against a metal file!!

     

    Been for 6 week checkup today and mentioned it to dr, she told me she had been doing this operation for over ten years and had only once before come across a patient who had similar problems.  After a quick feel, she immediately booked me in to have another operation as it seems the 'tape' has pushed through the original incision used to put the tape in.  This operation is taking place next tuesday, and am so glad I havnt got to wait months for this repair, as I may not have had a marriage left

    • Anonymous
      nurjol
      Oct. 08, 2009

      i had the surgery on 8/20/09 now 7 weeks later the mesh has eroded through my vagina i am now scheduled to have surgery again on 10/13/09 I realize this message was posted a long time ago. I hope you are fine now. thanks

    • Anonymous
      Donna
      Jun. 13, 2010

      I have had 3 operations so far, the first was a complete mess, but fear stopped me complaining.  I do have a good gynaecologist who has operated twice now to correct it/ My main problem was and I have to say STILL IS, that my husband can feel sharpness when we have sex, its so upsetting, we still really like each other and want a loving sexual relationship,...

      RHMLucky777

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      I have had 3 operations so far, the first was a complete mess, but fear stopped me complaining.  I do have a good gynaecologist who has operated twice now to correct it/ My main problem was and I have to say STILL IS, that my husband can feel sharpness when we have sex, its so upsetting, we still really like each other and want a loving sexual relationship, but i am now on edge all the time and he is going off the idea rapidly so its just becoming a random event due to us both being stressed.

       

      I am going to go back to the surgeon, what else can I do?  Does this tape removal work? can they get it all out once its imbedded and come through the vaginal wall? Please mail back someone. I have NEVER had any pain or discomfort - my husband can feel it but I cant>

    • Gill
      Jun. 14, 2010

      Dear Donna and all other TVT sufferers

       

      Sorry to hear about yours and all the problems still happening.    I posted on this website previously - I just wish more people could find it - I am sure there are so many many more of us out there.

      I am waiting for a date for my second surgery - I have had one partial removal but sitting is still...

      RHMLucky777

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      Dear Donna and all other TVT sufferers

       

      Sorry to hear about yours and all the problems still happening.    I posted on this website previously - I just wish more people could find it - I am sure there are so many many more of us out there.

      I am waiting for a date for my second surgery - I have had one partial removal but sitting is still painful and sex is still a no, no  - and yes, it is tragic and almost criminal that we should be denied this pleasure whatever age we are and especially when never ever warned of this risk.      Without sex, a marriage is different - less touching, cuddles, holding hands etc - the usual leadup to sex just does not happen, especially for men - they do not seem to be able to do this without having the 'whole package'.    He is sympathetic but things are not the same.

       

      My surgeon still says I am one of the unlucky ones and still is a devotee of tvt tapes, but uses a much shorter tape now than they did when I had mine done in 2005.     And I so totally understand your FEAR - that is why it has taken me so long to pluck up the courage to have another op - I just want to be able to sit again without taking a cushion everywhere with me -and I am afraid sex comes second to this - sitting you have to do every day!

       

      I have to weigh up whether I will be worse or not afterwards - it is really scary but if I don't - I will never know.

       

      One day I may send a story to a leading womens magazine - I am sure this is still a bombshell waiting to go off !    Gill

       

    • Anonymous
      Donna
      Jun. 14, 2010

      Gill,

       

      Thank you for replying, its amazing that this website exists, I cant seem to find it within myself to tell me husband that this is the case and that i am not the only one.  He is so angry that my first operation was carried out by a "team member" and not the surgeon I have now, he actually cant come with me any more as he wants to scream...

      RHMLucky777

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      Gill,

       

      Thank you for replying, its amazing that this website exists, I cant seem to find it within myself to tell me husband that this is the case and that i am not the only one.  He is so angry that my first operation was carried out by a "team member" and not the surgeon I have now, he actually cant come with me any more as he wants to scream at the doctor responsible, but he's afraid that if we upset them by suing then it would reflect in my future treatment? 

       

      Any way I now keep this very low key - but I am going to call the surgeon and will ask for another check up and chat to see if I can either have the tape removed or have it re-done.  My worry is that the scar tissue is now after 3 operations quite extensive. 

       

      I agree with you, this does affect our marriage, the touching and holding hands just seems pointless, and my husband feels guilty that he wants to have sex.

    • Anonymous
      Lolly
      Jun. 15, 2010

      Hi there all tvt sufferers,

      I had tvt inserted in Jan 2009 all appeared ok to begin with but after a few weeks bladder worse than ever and tape eroded through vagina wall. I had further surgery in October of that year to cut away wall of tape and had pelvic floor repair to bowel. Again symptoms returned even worse so went back to gyn again who said I was in...

      RHMLucky777

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      Hi there all tvt sufferers,

      I had tvt inserted in Jan 2009 all appeared ok to begin with but after a few weeks bladder worse than ever and tape eroded through vagina wall. I had further surgery in October of that year to cut away wall of tape and had pelvic floor repair to bowel. Again symptoms returned even worse so went back to gyn again who said I was in a 1% bracket and it was very unfortunate. He then operated again in April 2010 did colposuspension and further removal of tape. To my horror i have found tape eroding again. Since 1st operation i have had 15 lots of antibiotics for bladder infections and have been told this is nothing to do with tvt which i fing strange as i have only ever had 2 infections in my whole life. My husband today phoned gyn and asked for appointment which we now await as he is getting very annoyed about whole thing and i am now suffering depression. I wish we could all get together and go to a magazine as i would definately be prepared to warn other women about this.

      Lolly

       

       

    • Jaque10
      Sep. 26, 2010

      Hi,

      I see you are in the U.K. as I am also. I am trying to find a surgeon to take out my tape, it seems people have different symtoms, mine started 18 months after the TVT tape was put in and I didn't connect it to the tape. I got this vaginal infection which was buring very sore and swollen with an orderless discharge, I thought I had a bad dose of thrush...

      RHMLucky777

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      Hi,

      I see you are in the U.K. as I am also. I am trying to find a surgeon to take out my tape, it seems people have different symtoms, mine started 18 months after the TVT tape was put in and I didn't connect it to the tape. I got this vaginal infection which was buring very sore and swollen with an orderless discharge, I thought I had a bad dose of thrush of course I didn't have or any other type of infection. This would come and go over the next three years, it would always come back mainly if I sat down more than 2 hours. I went to many gynecolegists in my area who didn't seem to know what the problem was. This year I have been unable to sit down at all and its only since Ive used the internet this May that Ive found out its the TVT tape. When I look up my vagina with a mirror, my ureatha is in my vagina and not where it should be, underneath are two large lumps both an unhealthy colour. I am in constant pain now, burning and red down below, there is no cream that I have tried which eases this it feels like some one has shoved a re hot poker up me. I can't believe I have been suffering like this since May, I have been to my G.P of course a few times Telling them I have tape erousion and they have tested me for thrush and sent me to a V.D. clinic despite the fact they know I have been unable to have sex for two years.   I am getting no help and I am scared I am having to find some one myself and its not easy, I'm frightened of ending up worse, I would like to go to someone in the U.K. but not without talking to other people who have good results. Can you help?

      Thanks.

    • Jaque10
      Sep. 27, 2010

      Hi Gill,

      As I am also in the U.K. and you seem to have the same symtoms as me can you tell me who is your surgeon? I am desperate for help. I know I can't be the only person in the U.K. there must be hundreds of us but where are they all. I am in Yorkshire and as far as doctors and gynecolegist in this area are concerned, I am invisable.

      Please can you Help....

      RHMLucky777

      Read More

      Hi Gill,

      As I am also in the U.K. and you seem to have the same symtoms as me can you tell me who is your surgeon? I am desperate for help. I know I can't be the only person in the U.K. there must be hundreds of us but where are they all. I am in Yorkshire and as far as doctors and gynecolegist in this area are concerned, I am invisable.

      Please can you Help.

  • Anonymous
    Anonymous
    Sep. 08, 2009

    Hi, my name is Sue and I live in the UK.  I also had the tvt operation about 2 years ago, and have experienced tape erosion through the vaginal wall which was repaired 2 weeks ago.  I am now very worried about what may be in store for me and I am concerned about the future.  I am so sorry to hear about what is happening to other women. ...

    RHMLucky777

    Read More

    Hi, my name is Sue and I live in the UK.  I also had the tvt operation about 2 years ago, and have experienced tape erosion through the vaginal wall which was repaired 2 weeks ago.  I am now very worried about what may be in store for me and I am concerned about the future.  I am so sorry to hear about what is happening to other women.  All I can do now is hope that everything will be ok and I wish all of you to be well too.

    • Anonymous
      ANON
      Oct. 01, 2009

      Hello,I had th Tvt sling put in 4 months ago.The results were great from day one(leak wise) but experienced constant pain in my right butt cheek which descended down my leg, i thought this would pass but it has`nt.Then unfortunately six weeks later when my stitches eventually came out I discovered the tape had eroded into my vagina,sex is impossible as...

      RHMLucky777

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      Hello,I had th Tvt sling put in 4 months ago.The results were great from day one(leak wise) but experienced constant pain in my right butt cheek which descended down my leg, i thought this would pass but it has`nt.Then unfortunately six weeks later when my stitches eventually came out I discovered the tape had eroded into my vagina,sex is impossible as its too painful and I have a constant period like pain.I am booked in to have the tape resited immediately but am worried about what is going to happen next???

  • Anonymous
    A smith
    Oct. 14, 2008

    I too have problems form this procedure. 3 years ago I had this procedure. One year later dr went back in and removed some of the mesh.  I've had daily bleeding for 2 years now, bleeding from ureathra,  and bloody diarrhe from colitis the dr believes is all related.. Going for cystoscope today and friday colonoscopy.  Feel generally bad.

  • Anonymous
    Loreva
    Aug. 10, 2008

    I discovered the tape eroding just over a week ago early August 2008 and waiting to be seen by a gyny, I am still in shock, the GP's face said it all to me!  I had the surgery done in 2005 and did not think for one moment how dangerous this TVT is! I was told it is a simple operation and you will be a new woman!

     

    I have a long horror...

    RHMLucky777

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    I discovered the tape eroding just over a week ago early August 2008 and waiting to be seen by a gyny, I am still in shock, the GP's face said it all to me!  I had the surgery done in 2005 and did not think for one moment how dangerous this TVT is! I was told it is a simple operation and you will be a new woman!

     

    I have a long horror story to tell but cannot mention it on here for legal reasons.  In the meantime I have been reading horror stories and gathered many links on this subject and I am so outraged I want to start a group here in the UK.  If anyone is interested in getting a group together please contact me at lorevans@hotmail.co.uk

     

    I am so angry that not enough tests have been done on this TVT and I feel like I was used as some some of experiement.  It appears the erosion is happening a few years after surgery, so you may think it is working for now but you wait a few years ahead like me and then you discover the damage it is doing to your bodies.  It is a disgrace!

  • Anonymous
    jaque
    Feb. 23, 2008
    I have had nothing but trouble since i had this done. I have complained from day one about the pain in the pubic bone area. My damage is a little different than yours. I have pain all the time down there. I have nerve damage that isn't reverseable, and i can no longer enjoy sex. I don't have what you call erosion as of yet. My dr that did the surgery...
    RHMLucky777
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    I have had nothing but trouble since i had this done. I have complained from day one about the pain in the pubic bone area. My damage is a little different than yours. I have pain all the time down there. I have nerve damage that isn't reverseable, and i can no longer enjoy sex. I don't have what you call erosion as of yet. My dr that did the surgery made me go to my gyne and blamed it on my hesterectomy. Hello i had that 10 years ago and no pain until i had this done 4 years ago. The statue of limitations has expired and there isn't anything I can do. I feel so stupid. My marriage is ending because I can't take care of my husband the way i should. No, he isn't leaving me, I am leaving him. It isn't fair for him to have a sexless marriage. Any advice you could give me would be great. Do you know of any support groups.
    • Gill
      Feb. 24, 2008

      Dear Jacque

       

      I am not sure where you are but I can link you to a support group but it is in American but I have found out so much information from this and Lana who started the group is doing a fantastic job, along side a man called Jim who has had similar problems from the mesh used on his hernia operation.    I have also found ont he website...

      RHMLucky777

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      Dear Jacque

       

      I am not sure where you are but I can link you to a support group but it is in American but I have found out so much information from this and Lana who started the group is doing a fantastic job, along side a man called Jim who has had similar problems from the mesh used on his hernia operation.    I have also found ont he website an article from a UK Gyneacology & Urology conference held in London which he states that there could be an epidemic of problems with the use of mesh and in future years an outcry of huge proportions'  so some of these so called experts do know there are horrific problems with these tapes.  It is all bound up with money deals with the manufacturers of the tapes to keep problems hush hush.  

       

      Apart from this link I have not found any other groups and wish I had the strength to start one in the UK but am not very good with IT.  I have many times thought of writing to a well know womens magazine and see where it went from there.   I may do this some time.

       

      I will look out for future postings from you.    I am in Reading, UK.  Gill

    • Anonymous
      jaque
      Feb. 24, 2008
      I am from the United States of America. Do you know who the manufacturer of the tape is? My doctor won't give me any information. I agree it is time to let people know what is going on. Please let me know what to do next.....
    • Anonymous
      debbie ferris
      Feb. 25, 2008

      Hi Jaque,

      i was so sad to read your article.

      Have you had a second opinion ? A bad surgeon isnt likely to admit theyve made a mistake.

      Ive had problems in the sex department since the first op, and now after a second op I dont know if it all still works.

      Your husband loves you for who you are,sex is part but its not everything, many couples live happily without...

      RHMLucky777

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      Hi Jaque,

      i was so sad to read your article.

      Have you had a second opinion ? A bad surgeon isnt likely to admit theyve made a mistake.

      Ive had problems in the sex department since the first op, and now after a second op I dont know if it all still works.

      Your husband loves you for who you are,sex is part but its not everything, many couples live happily without peneratrive sex.

      Dont leave him because you dont think you are good enough anymore, you sound like a strong woman whos been damaged by this awful mesh, dont let it win.

      Debbie

    • Anonymous
      jaque
      Feb. 26, 2008

      Thanks for your advice, i will make an appointment with another Dr. My gyne didn't want to fix someone elses mess. So i kinda had a second opinion.

      You can contact me at jaque_6978@yahoo.com i want to talk about something really personal about this as well. I don't want to break any rules so if you can't it's alright.

    • Anonymous
      jaque
      Mar. 21, 2008
      I went to a different doctor and I had my second sugery and it didn't work either. There is one more thing they could try but it could cause more damage than i have now. They would have to go in and cut the whole tvt and everything out. He said he really doesn't want to have to do that. He had troble just cutting the two inches that he removed. I also...
      RHMLucky777
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      I went to a different doctor and I had my second sugery and it didn't work either. There is one more thing they could try but it could cause more damage than i have now. They would have to go in and cut the whole tvt and everything out. He said he really doesn't want to have to do that. He had troble just cutting the two inches that he removed. I also had a few issues during surgery. I just don't know what to do......I don't feel like much of a woman anymore.
    • Kate
      Mar. 08, 2010

      I had TVT-O bladder sling surgery over 4 years ago, with Cystocele & Rectocele Repair. My main problem is intercourse is so painful, after treatments with Pemarin Cream, lubricants, etc. I went back to my srgeon several diferent times over past few yrs. He examines me, says no mesh erosion. I've had a small leakage, since having the surgery, but now I have...

      RHMLucky777

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      I had TVT-O bladder sling surgery over 4 years ago, with Cystocele & Rectocele Repair. My main problem is intercourse is so painful, after treatments with Pemarin Cream, lubricants, etc. I went back to my srgeon several diferent times over past few yrs. He examines me, says no mesh erosion. I've had a small leakage, since having the surgery, but now I have some involuntary leakage which I didn't have before. But again, my main concern is I feel awful pressure, raw, intense pain when I try to have intercourse with my husband. Anyone had same or similar experience???  I did go to another surgeon, he said only solution is, to remove the bladder sling...  Thanks!  

    • Anonymous
      Denise
      Jun. 04, 2010

      I too cannot have sex with my husband,it is too painfull,my surgery a hysterectomy and monarc bladder sling and pelvic floor surgery left me un able to have sex. there is a bulge down there on the left side, i feel a sharp pain like a knife cutting me when the one time I tryed to have sex, now I am not young by any means, but I am not that old either,I am going...

      RHMLucky777

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      I too cannot have sex with my husband,it is too painfull,my surgery a hysterectomy and monarc bladder sling and pelvic floor surgery left me un able to have sex. there is a bulge down there on the left side, i feel a sharp pain like a knife cutting me when the one time I tryed to have sex, now I am not young by any means, but I am not that old either,I am going crazy. I still leak,even more then before surgery. Uro says all is fine, I tell him"all is not fine. He put me on Estrace cream,which did nothing for my pain. I feel ike I shrunk down there but ,I am so depressed. My surgery was 4 years ago.I don't know what to do.Thanks for letting me vent. Why can,t we sue or at least go public with our stories.                                                             Denise

    • jaque
      Jun. 06, 2010

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      Update on my problems, I have had two more surgeries and I am still where I was before. One surgery was to have the tape cut which did nothing but make me have more incontinence issues. (That was a 15 minute operation but due to complications it took about 2 hours…I hemorrhaged on the table.) My second surgery, I went to a specialist in Chicago and he removed the right side of the tape hoping it would fix the nerve damage. But guess what…it didn’t. I don't know what else to do or where else to turn.

      Any advice and information would be great.

       

  • Anonymous
    Debbie ferris
    Jan. 18, 2008

    Hi, my names Debbie, im 42 and live in the UK,and had a tvt sling put in back in July 2007. I healed quite well after the operation but had a lot of pain antime I walked for more than a few minutes, if I tried to lift anything I had more pain along with a bulging pulling feeling.Twice I went back to my gynie who said that I had a lump in my vagina at the wound...

    RHMLucky777

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    Hi, my names Debbie, im 42 and live in the UK,and had a tvt sling put in back in July 2007. I healed quite well after the operation but had a lot of pain antime I walked for more than a few minutes, if I tried to lift anything I had more pain along with a bulging pulling feeling.Twice I went back to my gynie who said that I had a lump in my vagina at the wound site that bulged, but this had nothing to do with the operation and I had probably always had it ....(NO).

    The pain on walking was "one of those things", would I like some lubricant jelly !!!

    Well ive gained loads of weight, cant even wander around the shops without pain, i felt disabled, all so I wouldnt leak...

    Luckily my husbands new job came with medical cover, went private, explained my problem, was examined.

    The bulge is my uretha which has herniaed into my vagina, the pain is the very top of my vagina where the tape has eroded and is pushing through.

    So Im booked in next week to have the tape removed and reset, the ureatha pushed back, and hopefully I will get my life back.

    Like you I am so angry that this seems to be a trial operation, but the problems are not properly explained or looked out for.

    I hope yours gets sorted, I will keep you posted

    • Gill
      Feb. 24, 2008
      Hi Debbie,  Your problems sound so similar to mine after my op.  They tried to convince me that the bulge in my vagina was a stitch left over!  After going for a second opinion it was the tape had eroded right through the vaginal wall.   I have been doing loads of research since and this is happening to lots of women even though our...
      RHMLucky777
      Read More
      Hi Debbie,  Your problems sound so similar to mine after my op.  They tried to convince me that the bulge in my vagina was a stitch left over!  After going for a second opinion it was the tape had eroded right through the vaginal wall.   I have been doing loads of research since and this is happening to lots of women even though our surgeons say it is very rare.   It is not.    I have made friends with one lady on the internet in Kent who has just had major surgery after 5 years of very little problems the tape just decided to move and embedded itself in her bladder which she has just had surgery to remove but when they tried to remove rest of tape it was so enmeshed in healthy tissue they could not get at it all.   She has sent me one email and is still in a bad way after the op with lots of pain.  Huge movement in the US to get the government involved in banning medical meshes for tvt and hernias. Log onto this miamiblog@bellsouth.net y in the US started by an amazing lady called Lana. you will find many people with heartbreaking stories but at least you realise you are not going mad and you are not on your own.   Wishing everyone living with this ongoing nightmare strength to carry on.   I wish I had the strength to start a group in the UK like Lanas.     Gill
    • Anonymous
      debbie ferris
      Feb. 25, 2008

      Hi Gill

      Thanks for your response.

      I had the removal surgery 3 weeks ago, at the time I was told I would be under General A for 1 hour. It turned out I was on the table for over threee hours !. I had agreed to have a TOT tape put back in but the surgeon said he had to remove so much tissue this would not be possible.( After more research i wouldnt want it )

      As...

      RHMLucky777

      Read More

      Hi Gill

      Thanks for your response.

      I had the removal surgery 3 weeks ago, at the time I was told I would be under General A for 1 hour. It turned out I was on the table for over threee hours !. I had agreed to have a TOT tape put back in but the surgeon said he had to remove so much tissue this would not be possible.( After more research i wouldnt want it )

      As with lots of other ladies the mesh had burrowed its way into my vagina,and onto my bladder wall.The surgeon could only partially remove it.

      It turns out the tape had perforated my vagina when it was inserted and was much too tight ( thus the pain which I described to my original gyne as "a puppet with its strings too tight , and someone sanding behind my Labia when I move " for which he offered me KY jelly !!!)

      The lower bulge on the vaginal opening feels as if its come back, but its early days and Im too scared to have a feel in case its bad..

      As soon as I was out of bed, even though Id had an operation I was instantly in so much less pain than before.

      So I would recommend any one to have the mesh removed if your having problems.

      Like you Im really angry about this,7 months of pain, two surgerys,and Im not back to normal yet.Plus Im leaking again, but to be honest I wish i had just put up with that (as it never totally stopped with the mesh in, I still had to wear pads, but not as thick ).

      Im going to print out everything I can find about this awful mesh and hand it over to my new and old gynes, if it makes them think or at least be honest with the next patient then thats something.

      I hope things get better for all of you, I really think this mesh is a ticking time bomb.

       

       

       

      y

       

    • Anonymous
      DEBBIE
      Jul. 06, 2008

       

      Hi,Debbie again, just an update,

      Im in for more surgery in the next couple of months as the tape is moving again and more has emerged from the flesh and cut another hole in my vagina, my husband jokes im turning into a sieve!

      I think this will probably be one of many unless I have major surgery to remove it totally, something my gynie says he does not...

      RHMLucky777

      Read More

       

      Hi,Debbie again, just an update,

      Im in for more surgery in the next couple of months as the tape is moving again and more has emerged from the flesh and cut another hole in my vagina, my husband jokes im turning into a sieve!

      I think this will probably be one of many unless I have major surgery to remove it totally, something my gynie says he does not want to do, so it looks like every six months I will have this awful tape cutting me open again with all the pain involved.

      WHY IS THIS NOT MORE PUBLIC,HOW MANY MORE WOMEN WILL SUFFER THIS ?

       

  • Maria Gifford
    Oct. 22, 2007

    Hello, Gill. Welcome to our community.

     

    I'm sorry to hear of your many troubles with TVT. Here is some related information from our site:

     

    Tension Free Tape/Sling Surgery for Stress Incontinence

    http://www.healthcentral.com/incontinence/c/52/2514/free-stress/

     

    TVT Removal

    http://www.healthcentral.com/incontinence/c/5101/9861/comments/

     

    Be...

    RHMLucky777

    Read More

    Hello, Gill. Welcome to our community.

     

    I'm sorry to hear of your many troubles with TVT. Here is some related information from our site:

     

    Tension Free Tape/Sling Surgery for Stress Incontinence

    http://www.healthcentral.com/incontinence/c/52/2514/free-stress/

     

    TVT Removal

    http://www.healthcentral.com/incontinence/c/5101/9861/comments/

     

    Be sure to scroll down through all of the comments as well. As you know, there are others who have similar experiences to yours.

     

    Let me know if I can help you find more specific information. Write again and keep us posted on your progress.

     

    Best to you,

    Maria