its a long story how I got here it sucks if my girlfriend of twenty years hadnt passed away 2 yrs ago from breast cancer that turned into brain tumors I wouldnt be here. I would have her to talk to.Although I feel for everyones plites im glad your all here . I know from having counseling when she died I need to talk. I just am so hurt and embarssed its hard right now. I'll try more later just wanted to get the process started thanks&love davidb
- Find
hello trying to absorb this is permanent
8/30/08 10:16am
ya know I called my mom up once and got real angy for not taking me to the hospital in time till they found me in the darn street on my paper route unable to move she said your father wouldnt let me that still bothers me I need to call her and say im sorry because now we know that it was the coach that should have known when you loose the feeling below your waist even if it is only for 20 minutes thats a flag something is really not right I should have gone then mom didnt realize, its not her fault after all
9/14/08 10:47am
HI to whoever,
Since i've come here I have learned to accept whats happened and not be mad any more. I joined a dissability dating place. I took some advise from a member here and tried cloth diapers and plastic pants and it may sound wierd but its the best that I have slept in months they really work! no leaks or worry I dont have that pad that makes you sweat any more on my bed . If I had'nt come here I would still be struggling with anger and leaks loneliness now I have hope and I can still be active . Just being able to talk is amazing for me I cant believe you all made such a differnce in my life. Thank you so much for being open and forth comming with information. I have to go nature called and my answering stuff got it oh oh lol davidb
12/16/08 12:33pm
Hi David......just read your comments and jsut wanted to say there's more for you to learn and get some relief from including not being angry at anyone......this is found in Jesus Christ and placing your faith in Him that He is and everythng will fall into place. You might want to try Him, he will change your life forever in case you dont' know Him already. If you have a Bible nearby prefarbaly an American Standard one, you may want to start reading in the New testgament Book of John.......I hope all will go well with your medical concerns but most importantly I hope you come to salvation in Jesus Christ...take care & God Bless ...He's your Real & Only friend no matter what........You can talk to Him too & He hears and answers you through reading His Word (Bible)......
KC
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Hello David,
Welcome to our community and thanks for writing. Dealing with incontinence is hard, and sometimes what's hardest about it is accepting that it's a real part of your life. I'm glad you've found us and reached out. There are many folks here who've been exactly where you are and who would be glad to offer support and guidance. Just keep writing to us -- we'll hear you and respond with help as much as we can.
Hang in there,
Maria
Thank you Maria I really needed that welcome. I have used a few clues to deal a couple of the situations I find my self in the most important is I had the best nights sleep I've had in months last night finaly. Mabee now It will be easier to understand the mental aspecs as well if I can sleep all night and not just being asleep but a nice deep sleep like being groggy because it takes longer to wake up thats nice.
I can't get myself to say any more right now Im trying but the emotions are welling up gota go thank you again at least I said something and didn't just look at the page today like every other day davidb
Hi David,
Just write when you feel up to it, and have faith that things will continue to get better. They always do, just never in our time. Here's a post I'd like to share with you:
Stigma and Incontinence
http://www.healthcentral.com/incontinence/c/45/1653/stigma
Take good care,
Maria
Good mornning Maria and all the article hit it right on the head made me realize alot of the anger I feel isn't because of the problem its the way I've been treated and miss diagnosed for so long starting at 12yrs old .If it hadn't been for a recent auto accident ( my spelling is still messed up from it ) we still wouldn't know what happened back then the nuro doc found it but now its too late because its on the spinal cord the second injury to the same area was more than I could take that was 8yrs ago.Thank god I got the use of my legs back I wish they had listened to me back when I was 12 becuse the first injury happened at school and went undetected becuse shortly after my appendics burst and the thought they hit nerves in a different area after 3 months in a coma every one forgot all about it . I told my mom and the docs it started right before the oppereation but they didn't listen to me. Any way this problem has gotton the worst it can be over time and won't get better again like it did before and thats only the tip of the ice burg of why I feel such anger. The sadness is in the details of how this could happen and could of been fixed I just found that out and Im so mad I cant write it all. But i'll try its just that it comes out all mumble jumbled. I wish I could talk on the phone while your at the institute some time Ive gota get this out some how thanks so much I dont know if its appropriate to talk to you Maria but its helped davidb