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I'm sorry to hear about your struggle - while I don't have IC, and I don't really know a whole lot about it, from what I have heard I've deducted that it sounds very painful and difficult to live with. One tip is to keep in mind that this condition is now sometimes called "painful bladder syndrome", so if you're looking up information online you might try using that search phrase. The interstitial cystitis association might be able to give you some more help: www.ichelp.org.  
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