Saturday, May 26, 2012

New I probably had migraines every 6 months months-devestating- just learned about cluster headaches

By kyilmaz Friday, December 07, 2007

Ive had headaches for years. My doctor suggested topmax. Im going to try that even though I get migraine/cluster headaches 2-3x /year. I'll have to take topomax 50 mg 2x a day everyday. Even when Im symptom free because when it hits - it hits like a ton of bricks and the headache doesnt go away. I take vicodin, aleve, butylbalbital....I think its allergies (I do have allergies) it could be sinusitis- Im going for allergy shots now, everyweek, take nasonex, maybe zyrtec (tried zytal seems to have severe side effects). i suffer from side effects so i have to find medicine that doesnt have side effects and I usually do.

 

Im a trial lawyer with 2 kids (one with autism). Ive been suicidal- too many problems that seem to be insurmountable. But im a fighter and i have to fight for my kids.

 

I think I have to be attentive to the problems even when Im synptom free which can be for 6 months. Im just sick of it. I found that Relpax is the only thing that kills the headache. Although right now its not killing the headache. I think it has to do with stress from other people. My research into Topomax was interesting because it says it reduces bicorbanate levels which can be from hyperventilating. I smoke quickly (started 5 years ago from working for bad lawyers). So I basically hyperventilate when i smoke which could raise bicarbonate which Topomax could lower.

 

Im actually in a "good" work situation now but you always have the stress. And you even have the stress from your own family - my brother a good friend who seems to not have worked out his issues.

 

It seems like life is a delicate balance and sometimes Im not attentive to the balance.

 

So I have to take Relpax when needed(have to fight Aetna because of course they wont cover it), take klonipin when needed, take nasonex everyday even when no allergies, take zyrtec(tried zytal severe side effects no), drink poland spring water, get my prescriptions tomorrow, deal with my migraine/cluster? headaches, get through tomorrow(friday), get through till vacation next week, get through the holidays and....

 

Anyway, does anyone have similar problems Id love to hear from you?

12/ 7/07 1:37pm

I was a high-powered transaction lawyer before my head made me quit. Mine are still daily, but better. I've got one child. He's now 21 and off at college (yay!), and he's turned into a pleasant, responsible adult in spite of having a mom in daily pain.

 

Topamax isn't the only drug out there. By all means, try it if you want to. Many antidepressants are great headache preventives. I'm currently taking Effexor, both for my head and for my Major Depression. Two birds with one stone. I've never been suicidal, but I've been in periods where I'd stay in bed for days. Migraines and depression tend to feed off each other. My head pain is easier to handle when my mood meds are balanced, and my depression is better when my head pain isn't so severe.

 

Gretchen 

Nancy Harris Bonk, Health Guide
12/ 7/07 2:19pm

Hello, and welcome to MyMigraineConnection.com!

 

Getting 2-3 cluster headaches a year may not warrant a preventive medication. But if you are having cluster cycles, cluster headaches that last for weeks, days or even months. than clearly a preventive is needed. Cluster Headaches - The Basics

 

Taking certain prescription and OTC medications more than 2-3 times during a one week period can create another problem called Medication Overuse Headache. This also includes some nasal sprays as well. Medication Overuse Headache - When the Remedy Backfires.

 

Seeing a Migraine specialist to get the right diagnosis may be the best thing you can do for you and your family. We have a list of patient recommended specialists you can see by clicking HERE.

 

Thank you for creating a SharePost.  SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

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Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

12/ 7/07 2:29pm

My sufferring has been immense. im lucky to have held my family together . Ihave 2 children 1 with autism . Many good doctors. Ive had a lot of hard times and suffering but hopefully Im seeing through to a solution. i will consider your advice. Thank You. Topmax so far seems to be very good as wellas there program and information.

 

Ken

By kyilmaz— Last Modified: 09/04/10, First Published: 12/07/07