Hi all, I was on here a year or so ago but never could get the hang of how the site works with being able to know when someone responds to my posts. Got lost on the site trying to find my posts and the responses.... I thought I would once again try ith hopes of having better lck this time around. lol
I am a mom of seven biological children (all have FHM2-2 severe cases) and also have it as well. We have had a rough time with our youngest two daughters and had to fight to keep them alive with Mayo Clinic's help and a wonderful geneticist and neurologist. We are also asumed to have secondary Mitochondrial Dysfunction (wondering if anyone else here has been suggested the same?).
We have had about every stroke symptoms a person could experience between my kids and I. From sensory, visual, motor, abdominal, muscular weakness, vertigo, hort-term memory loss, confusion, coma/altered consciousness states, etc. etc.
I would love to connect with others who either deal with FHM (especially the second form) or who have kids with the condition. I have learned lots of things to do, and not do, to help our family but am always open to new thoughts....
Hello, and welcome to MyMigraineConnection.com!
Oh my goodness, your hands are overflowing with all kinds of things!! Seven children, FHM and you have it too? Whoa your plate is full! Coping with this may be difficult, here is some information that may be helpful:
Hemiplegic Migraine - The Basics, and Hemiplegic Migraine - Genetic Testing May Be Helpful.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. In the discussion forum we have a special thread devoted specifically to Hemiplegic Migraine that may be helpful in your situation. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
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Welcome again,
Nancy Bonk
MyMigraineConnection.com Community Manager
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!