Monday, May 28, 2012

Migraine, headaches, and doctors -- Is it any wonder?

By Teri Robert, Health Guide Sunday, November 25, 2007
How many times do we see SharePosts and forum posts where people are talking about their doctor not understanding Migraines? We all understand that doctors treat many people with many medical conditions, but it seems that a basic understanding of Migraine should be taught in medical school. Ri...
Is Migraine a Progressive Brain Disease?
Anonymous
Josh
11/25/07 5:47pm

Hey, thanks for linking to my blog, Teri.  You're right in claiming that in my 2nd year neuro course we weren't taught the complete list of prodromal symptoms for migraine.  However, I will quibble with the use of the term "migraine headache".  We were correctly taught in our class that migraine is a syndrome and that headaches are one component of migraine.  However, because the headache is due to the syndrome I don't think I'm incorrect in referring to "migraine headaches", that is headaches due to migraine.

 

Teri Robert, Health Guide
11/25/07 11:30pm

Hi, Josh,

 

You're welcome for the link. I'm always looking out for good blogs and bloggers with whom to have enlightening conversation.

 

In recent years, Migraine actually has been classified as a neurological disease. As for "Migraine headache," I agree that's a perfectly acceptable way to refer to a headache when it's a Migraine symptom. What bothers me is when the entire Migraine attack / episode is called a "Migraine headache." As you know, a headache is but one possible symptom of Migriane, and some Migraine attacks occur without the headache. Sorry if I misquoted you.

 

Teri 

11/25/07 5:50pm

I'm discovering that I have been lucky. My doctor does recognize migraines as a legitimate disease, and wants to help me as much as he can. However, he has very few patients with migraine, so he appreciates my getting information through this site and my other Migraineur friends. Also, my boss suffers from migraines. As cursed as migraine is, I have many blessings for which to be thankful, including you, Teri, and this site. I'm thankful for your gift of writing and that you use it for good. I hope you have a wonderful, migraine-free Holiday season.

 

Win

Teri Robert, Health Guide
11/25/07 7:19pm

Win,

 

I'm glad you have a good doctor and an understanding boss. Big Smile

 

Thank you, Win. It's nice to know that we're helping people here.

 

Wishing you happy and pain-free holidays too,

Teri 

11/25/07 8:03pm

Great share post Teri *as per usual!*

That is quite astounding that they didnt mention euphoria as a possibility in prodrome...Aren't mood changes like the biggest tip off? Though really i shouldnt be surprised should I? I feel that  doctors  in general are  woefully undereducated about migraines, simply because migraine is still a misunderstood disease, still falling prey to many myths.

I know that I am very grateful for your site in all its migraine myth debunking splendorCheesy... Because seriously, without it, I wouldnt know as much as I do...

Thank you Teri...

much love alwaysHeart

Bim 

11/26/07 8:42am

After what happend to my aunt during turkey day (passed out at the table, suffers from seizures) I was reminded of another friend I have that also suffers from seizures. She used to tell me how she felt "off" before a seizure.

 

I have started to do research on this. I find it interesting that many neurological disorders share similar symptoms such as some sort of a prodrome or aura.

 

I thought it was interesting that the paramedics mentioned aura to her - that they knew about it - since that would not even have occured to me - someone who is familiar with this type of stuff! (Then again, I was panic stricken! Oh my!)

 

I enjoyed your post Teri - and also the other blog!

 

Eileen

11/30/07 11:16am
I am almost always euphoric the day before a particularly horrible migraine hits. It's interesting that I'm just now putting the symptoms together. I feel really stupid sometimes when it comes to my own pain...
Anonymous
Lynn
12/ 2/07 9:37am

I feel the same way and it is much worse for cluster headache suffers. First off, I can't believe the word "headache" is used to describe it....it's more like "head explosion".  If a doctor knows about clusters, they think it mainly men and dismiss the idea of a women possibly having the disorder.

 

I suffer from chronic clusters (2 1/2 years now) w/ associated migraines and occasionally optic migraine.  On disability at 40 years old and doctors keep shoving the Rx down my throat with no real results.  It's bad enough that migraines do not get the funding it deserves, but there is zero funding for clusters from what I can tell.       

Teri Robert, Health Guide
12/ 2/07 11:21am

Lynn,

 

Please keep watching my SharePosts. There's an advocacy group working toward more NIH research funding for headache disorders, including clusters. Shortly after the first of the year, we're going to need everyone's help sending email to Congress at the right time to make a difference. Cluster sufferers haven't been forgotten in this.

 

Teri 

12/ 2/07 6:26pm

I would like to participate in any way I can, even if that means going to DC.  Since I am not working (due to my headaches), I would like to put my energy into helping the cause.  Any advise as to how to get started using my time to promote education,funding, etc.?

 

Thx, Lynn (Cluster Queen)

Teri Robert, Health Guide
12/ 2/07 6:35pm

Hi, Lynn!

 

We're going to try email first. If it comes down to it, we may ask people to join us in DC to visit Congress. You might read this SharePost on Headache on the Hill to see what's been done so far. 

 

We're setting up a new web site to work on this issue. As soon as it's ready, I'll be posting on it.

 

I'm so glad you're interested!

 

Thank you,

Teri 

Anonymous
L Scott
12/ 4/07 2:22pm
I agree that doctors don't understand migraines. I've had hormonal migraines for years and years. Recently, about 3 months ago they became much more severe and have gradually gotten much worse. On a pain scale at times they are a 15, no joke. They are OFF the pain scale. I have tried and tried to discuss it with my dr's office and they just chalk it up to migraines. They are at a loss as to how to address it and meanwhile I'm in tears because they are so severe and I have to suffer with no relief. It upsets me and makes me even more tense. I get tense because of the migraines, which makes matters worse, and then I get tense and upset because the dr's office isn't satisfactorily addressing the issue. I can't go to the emergency room because they aren't considered "life threatening" either. I don't think anyone should be forced into living in pain with no relief and that is what is happening here. (of course it doesn't help that they won't send me to a dr who knows how to deal with migraines!!!!)
12/16/07 11:24am

Hi L Scott,

 

I understand what you are going through. I had a very hard time finding a doctor or speacialist that would help me with my migraines.

Mine always seemed to start out like tension headaches but ended up in the explosive type that you mention.

I tried a lot of doctors, medications and was made to feel really bad because I couldn't find relief for the pain.

The ER doctors wouldn't help, the urgent care centers wouldn't help, until as a last ditch effort I asked to see a pain management doctor.

She evaluated me asked me questions and really tried finding out what was going on. She didn't think I was a drug addict, she knew from listening to me that I just wanted help. Since I have seen her I have only had 2 headaches in 1 month compared to 6 or more. They are gradually getting less and less.

I was at the end of my rope, I even fired some doctors who told me they wouldn't help me with the pain I was having with the headaches. I would really like to go back to them and tell them what I thought about them and their methods of care they say they offer their patients.

So, if all else fails and you haven't been to a pain management docotor yet I would highly recommend it. After 7 years I am finally getting somewhere.

 

Good luck,

Karen 

By Teri Robert, Health Guide— Last Modified: 09/06/11, First Published: 11/25/07