I'm discovering that I have been lucky. My doctor does recognize migraines as a legitimate disease, and wants to help me as much as he can. However, he has very few patients with migraine, so he appreciates my getting information through this site and my other Migraineur friends. Also, my boss suffers from migraines. As cursed as migraine is, I have many blessings for which to be thankful, including you, Teri, and this site. I'm thankful for your gift of writing and that you use it for good. I hope you have a wonderful, migraine-free Holiday season.
Win
Great share post Teri *as per usual!*
That is quite astounding that they didnt mention euphoria as a possibility in prodrome...Aren't mood changes like the biggest tip off? Though really i shouldnt be surprised should I? I feel that doctors in general are woefully undereducated about migraines, simply because migraine is still a misunderstood disease, still falling prey to many myths.
I know that I am very grateful for your site in all its migraine myth debunking splendor
... Because seriously, without it, I wouldnt know as much as I do...
Thank you Teri...
much love always
Bim
After what happend to my aunt during turkey day (passed out at the table, suffers from seizures) I was reminded of another friend I have that also suffers from seizures. She used to tell me how she felt "off" before a seizure.
I have started to do research on this. I find it interesting that many neurological disorders share similar symptoms such as some sort of a prodrome or aura.
I thought it was interesting that the paramedics mentioned aura to her - that they knew about it - since that would not even have occured to me - someone who is familiar with this type of stuff! (Then again, I was panic stricken!
)
I enjoyed your post Teri - and also the other blog!
Eileen
I feel the same way and it is much worse for cluster headache suffers. First off, I can't believe the word "headache" is used to describe it....it's more like "head explosion". If a doctor knows about clusters, they think it mainly men and dismiss the idea of a women possibly having the disorder.
I suffer from chronic clusters (2 1/2 years now) w/ associated migraines and occasionally optic migraine. On disability at 40 years old and doctors keep shoving the Rx down my throat with no real results. It's bad enough that migraines do not get the funding it deserves, but there is zero funding for clusters from what I can tell.
Lynn,
Please keep watching my SharePosts. There's an advocacy group working toward more NIH research funding for headache disorders, including clusters. Shortly after the first of the year, we're going to need everyone's help sending email to Congress at the right time to make a difference. Cluster sufferers haven't been forgotten in this.
Teri
Hi, Lynn!
We're going to try email first. If it comes down to it, we may ask people to join us in DC to visit Congress. You might read this SharePost on Headache on the Hill to see what's been done so far.
We're setting up a new web site to work on this issue. As soon as it's ready, I'll be posting on it.
I'm so glad you're interested!
Thank you,
Teri
Hi L Scott,
I understand what you are going through. I had a very hard time finding a doctor or speacialist that would help me with my migraines.
Mine always seemed to start out like tension headaches but ended up in the explosive
type that you mention.
I tried a lot of doctors, medications and was made to feel really bad because I couldn't find relief for the pain.
The ER doctors wouldn't help, the urgent care centers wouldn't help, until as a last ditch effort I asked to see a pain management doctor.
She evaluated me asked me questions and really tried finding out what was going on. She didn't think I was a drug addict, she knew from listening to me that I just wanted help. Since I have seen her I have only had 2 headaches in 1 month compared to 6 or more. They are gradually getting less and less.
I was at the end of my rope, I even fired some doctors who told me they wouldn't help me with the pain I was having with the headaches. I would really like to go back to them and tell them what I thought about them and their methods of care they say they offer their patients.
So, if all else fails and you haven't been to a pain management docotor yet I would highly recommend it. After 7 years I am finally getting somewhere.
Good luck,
Karen
Hey, thanks for linking to my blog, Teri. You're right in claiming that in my 2nd year neuro course we weren't taught the complete list of prodromal symptoms for migraine. However, I will quibble with the use of the term "migraine headache". We were correctly taught in our class that migraine is a syndrome and that headaches are one component of migraine. However, because the headache is due to the syndrome I don't think I'm incorrect in referring to "migraine headaches", that is headaches due to migraine.
Hi, Josh,
You're welcome for the link. I'm always looking out for good blogs and bloggers with whom to have enlightening conversation.
In recent years, Migraine actually has been classified as a neurological disease. As for "Migraine headache," I agree that's a perfectly acceptable way to refer to a headache when it's a Migraine symptom. What bothers me is when the entire Migraine attack / episode is called a "Migraine headache." As you know, a headache is but one possible symptom of Migriane, and some Migraine attacks occur without the headache. Sorry if I misquoted you.
Teri