Migraines, headaches, pain, and HOPE!

Dear Teri:

Thank you for sharing the highlights of your visit to Dr. Krusz office, and the great news of two "breakthroughs" for patients whose headaches were nearly intolerable. 

I just wanted to share an update of my own (a success story with a specialist) and the importance of delving into sleep and endocrine issues. 

As you may already remember, I have had hormonal migraines for decades and other endocrine diseases including hashimotos, PCOS, female cysts & polyps.  A recent series of visits to a headache specialist in California indicated that I have a host of pituitary/hypothalimic dysfunctions and that in addition to hormonal migraines, I have hypnic headaches (that wake me up exactly at the same time every night, during REM sleep).  The clues were the exact timing of the nocturnal and morning attacks, the severity & features of the attacks, and for me, a history of crossing time zones constantly for work, shift work, and moving across time zones.

I don't know if most migraine patients know about hypnic headaches, because I did not until this diagnosis.  Half of those with hypnics have a long history of migraine disease.  I know I am one of the lucky ones who got diagnosed by a specialist (who had heard of them!) before I did something impulsive due to feeling hopelessly in pain, and rapidly declining in health.  I am glad that Dr. Krucz integrates questions regarding sleep and endocrine issues into his history, and hope that in time, many other physicians will do the same. 

I hope you are doing great, and thanks again for sharing more positive news with us. 

Clemmie 

Teri,

Your statement on hoping that Kristen and Susan's situation would give us some hope did touch my heart some. I don't think you realize the hope that you give to so many of us. You really give us inspiration to want to pursue as many options that our out their for pain sufferers/migrainers.  My gosh, if it weren't for you alot of us probably wouldn't even know our rights as a patient in a hospital/ER setting let along our own General Doctor's office.

Yes, very much do we appreciate you passing along the information from your Dallas Migraine Office visit. 

Enjoy the Holiday Season Everyone!

Marlene  

I wish I had joined this family two years ago!  I had no idea I was only three hours away from him!! 

What a wonderful week you enjoyed and I am excited and hopeful once again because of you and because there are other doctors out there who "get it".

Teri, with all my heart, I say:

God Bless!

Laura M

Thank you so much for sharing this, Teri. In reading your share post, it gradually occurred to me that there is absolutely no reason for me not to try the clinic and Dr. Krusz. I live about eight hours away, and I feel as though I've exhausted my options here.

Sometimes it can be hard to know whether your writing or work is touching people. I think this share post is the start of something really good for me. I have an appointment to visit Dallas in the new year. I can't wait!