Saturday, February 11, 2012

Your Migaine and Headache Support System - Thanksgiving

When Thanksgiving rolls around, I'm sure we all say thanks for any days when we don't have a Migraine or headache. We're all thankful for anyone or anything that makes our lives better, happier, healthier. I'd like to offer a suggestion for this Thanksgiving -- Take this opportunity to say a speci...
11/17/08 5:28am

Thanks for all the info you share with us, Thanks for ideas you share to make life a little easyier.Thanks for the wonderful caring person you are,,

                                                               Jody/Midnite's Creations

                                                                   Melbourne,Fl

11/17/08 8:18am

Inside your thank you note, include a picture of yourself enjoying a migraine-free day. My pic is of me and my son outside playing frisbee on a beautiful day with our dogs.

11/18/08 6:42pm

Teri, you are so right. I try to do this with my family and friends that help me so much all throughout the year.  I am most thankful for my DH and I try to tell him as often as possible, so that he knows I do not take him for granted. 

 

But for my Thanksgiving thanks, I would like to start with you. Thank you for all that you do for us here on the site and behind the scenes, going to meetings, conferences, etc.  I really appreciate having this site to come to when I need to, to get support, information, or just for friendship!! Thank you for all that you do, all year long!! You are amazing, and such an inspiration to all of us!!

 

Much love,

Sherry

 

11/19/08 3:43pm

Dear Teri:

 

It is great to thank all of our "support systems" at this time of year.  I thought I should mention that anther time when I give "thanks" to my health partners is when I have gone through a particularly difficult time with headache control.   I know it also frustrates my physicians and my husband, so I send them notes or an email to thank them not only for their care, time, recommendations, etc., but for not giving up on our "search" for something else that might help. 

 

When I see them, I thank them for their patience, understanding, willingness to read articles that I bring into them, and for their guidance.  Particularly with a type of headache that none of them have treated before (nor the ER docs--the Hypnic headache) I know it is also very frustrating for them.  While I realize they are embarrassed by what they don't know, I remind them that "no one really knows" the answers yet, but that I appreciate having their support in the journey to find the answers.

 

When I think of you, I think of someone who is a pioneer for lobbying on behalf of headache and chronic pain sufferers amidst confusing health care and policial systems.  I also think of you as delving through tons of research contantly, being our shoulder to cry on.  You do these things even when you are not feeling so great.  It is your ability to forge ahead amidst all these obstacles and your unselfish willingness to share all that you have learned and experienced.  This often gives me hope that for those headache sufferers with the worst cases that seem not to respond to anything so far, there may be solutions just around the corner.  And if there are, you will be among the first to know, and to let us know.

 

Dr. Kreutz and Nancy Bonk--and all the moderators--also deserve our utmost thanks as their unselfish support helps in so many ways also.

 

Not giving up--and not being put off by the obstacles of politics, negative thinkers, and a health care system that is difficult to interpret and inassessible to many--show your strength of character and conviction to make a huge difference in the world.  I hope on Thanksgiving and everyday you know that I (and many others)  are in awe of your achievements and grateful for your dedication to "the cause."

 

Wishing you a Holiday season without pain!

Hugs,

Clemmie

 

11/19/08 5:49pm

Thanks Terri and all for the posts and comments. I have been feeling better lately (well you know how it goes, when I do the right things, I feel great)...and went through some rough times and expect to do so again but it is nice to read the positive articles and tips. And when I follow the advice, I have found I actually do feel better!

 

Happy Thanksgiving

KarenQ

11/20/08 8:14am

Hi, Terri!  Would like to start the Thanksgiving season by saying a big thank-you for this site.  While one is never glad others suffer, it is gratifying to know that I'm not some kind of freak or pathetic hypochondriac - as more and more of us 'educate' the medical community, we will have better success gaining understanding and one day, successful treatments for all who suffer Migraine Disease.  A wonderful Thanksgiving to all - Lynn

Anonymous
Anonymous
11/20/08 3:50pm

I agree. Teri and others on the board thanks for your information, advice and support.

Clemmie I agree it's a great idea to thank the doctors etc that do try to assist us (and encourages more of that). I feel also formally in writing or via a card is good too as it's something tangible they can keep.

We can also certainly find ways to show appreciation of our supportive family and friends. It can be doing something nice with them they enjoy, a card, gift, assisting them in something....

Cheers DJ

Anonymous
Jen
11/21/08 9:59am

What a wonderful idea! With having chronic migraines I think this is one of the best tips I have read. It is so simple, I can't believe I haven't thought to do so before. My support system for my migraines are wonderful; my husband, parents, son, doctor(s) and extended family. Thank-you for the wonderful and thoughtful idea. I am writing my thank-you cards today; hoping they get them in time.

Jen

11/22/08 10:38am

Now I know that subject line sounded negative, and I don't mean it that way. Teri your post was very thoughtful, and got me thinking. I am going off this coming week to spend Thanksgiving with my family, it's usually about 19 of us up at my sister's house (me and my husband and kids along with my  parents and siblings & in-laws, niece and nephews and some cousins), and it's always a time to reflect on those relationships and how they change from year to year. I have a very supportive family, and while I know they have been confused and upset by my Migraines and inability to fully participate in what was going on, they have not usually judged me for them. It just strikes me how little I have communicated to them - how I have failed to educate them about what is going on with me. I have certainly started to do so, but I really need to thank them - given how little they have known, they have really been very supportive and loving and non-judgemental.

11/26/08 10:45pm

I am having a severe migraine tonight and this is the only support system I really have. My family does not really understand what kind of pain I suffer with these. I have taken my migraine medication and it isnt working. Its only the second time I have taken this new medication and already no luck. I wish I could find something that worked every time. Any ideas?

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