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Monday, November, 23, 2009
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Winter Holiday GuideEnjoying the Holidays Despite Migraines and Headaches --> Info for you...

Interview with Cindy McCain: Migraine Sufferer, Advocate

Teri Robert
Teri Robert
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Teri Robert is Writing a SharePost
Author of "Living Well with Migraine Disease and Headaches"

Patient advocate and writer Teri Robert's career moved in this...

Teri Robert

Friday, September 11, 2009
View All of Teri Robert's Posts
"I'm going to put together an action committee to go door-to-door in Congress, particularly the Senate, to make them understand... to make them understand how little research there is, the huge number of people impacted... to make them understand what the economic problems caused by Migraine are too....
  1. Thank you, Teri!
    Eileen Gray
    Friday, September 11, 2009 at 02:05 PM

    I knew when I heard that Cindy McCain was going to be at the conference that you would get to chat with her. By then end of your article, I was welling up.

     

    I too, like many of us, have longed for someone directly in the public eye to come along and help our cause! I am so glad Mrs. McCain has come forward and has decided to not only be public about this disease, but also become an advocate.

     

    Thank you, Teri, for going to the conference and being our voice! Thank you, Mrs. McCain for coming forward and becoming and advocate as well.

     

    I have a feeling with Mrs. McCain's Senate connections and her determination - this is really going to change things for us. Thank you! Thank you!

    Reply
    I was arrested for having a migraine!
    lots of pain
    Tuesday, September 15, 2009 at 03:09 PM

    I have suffered from headaches since childhood.  I hid them for a long time until I started suffering from hemiplegic migraines. This type of migraine affects my speech, balance, eyesight not to mention the effects on my personal life. On January 1, 2006, I was driving home from work and was talking to a friend on my cell when my vision became blurry, my speech became slow, and my left side was numb. My head had been busting all day. I am a nurse and nurses aren't allowed to take any meds that may affect performance. I agree with this. I pulled over to a parking lot and was going to call my brother to drive me home. A sherrif's deputy stopped and asked me some questions. Since this affects my speech, I did the best I could. Suddenly, there were other officers there and I was given a field sobriety test which with poor balance and left sided weakness, I failed. My car was searched and I was arrested for DUI.  I never went to a cell as my family posted bail. I called my doctor and I was admitted to the hospital for 6 days. Eight agonizing months later the toxicology results were in. I had no alcohol in my system but I did have phenobarbital in my system as I also have a seizure disorder. The assistant DA built a case on the suspicion I was abusing phenobarbital. My physician saved me. He testified on my behalf and the case was thrown out. The damage was done. I lost my job, and my supervisor turned me into the State Board of Nursing. I passed all of the tests and examinations by the Board and my license was unaffected. A large part of me died that New Year's night. I hope my story helps prevent someone else from the same thing. I wish I could share my story with Cindy McCain. If there is any way I can help in the awareness of migraines and treatment, I would happy to.

    Reply
  2. Hats off
    midnite
    Friday, September 11, 2009 at 02:09 PM

    I agree Terri Hats off to Cindy McCain maybe someone in the public eye can shake it up wake them up that we are out here suffering, losing time from work. But also Terri you have done so much for us too. You keep us posted YOU ARE OUR  voice to doctors and groups around the globe.

                       Hats off to you & Nancy too ..you are Awesome too! Thanks for being my surrport ,my friends, my crying towel too.

                                                                  Midnite/Jody

                                                                  Florida

    Reply
  3. thank you
    kja
    Sunday, September 13, 2009 at 02:06 PM

    I am so glad that there is somone out there who can communicate personally about how disabling migraine is. I have such a hard time making people understand that migraine is "not just a bad headache." Thank you

    Reply
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This animation shows one of the key causes of pain during a migraine--changes to the blood flow within the brain.

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