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Monday, December, 01, 2008

RE this article: IV Treatment of Refractory Migraines

by  twyxtz
Wednesday, May 21, 2008
twyxtz

twyxtz

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I have been put on this "IV Treatment of Refractory Migraines" and the article does not mention one important thing.  I have been taken OFF ALL triptans and ALL analgesics.  This is important - NO PAIN RELIEF!  I cannot take any at all while on this regiment for the six to eight weeks my neurologist requires I maintain it to recover from what he considers too much pain medication usage.  He insists that I am having rebound headaches, despite my knowing the difference between rebounds and true migraines.  Gee, wouldn't I know my body and brain a little better than a man who has never experienced a migraine in his life?

 

And excuse me, but he considers my taking one or two Percocets in 24 hrs too much?  I only take what I dare to take the edge off and still function.  I've already lost my most recent job, due to the fact I was taken off work 8 months ago for chronic migraines.  I am not allowed to do anything but hold a cold pack to a incapacitating migrained head, crawl into a very noisy outpatient facility (which also has major construction going on right outside the front doors), and sit in a noisy main room for nearly two hours, and not get any real relief other than the exhausted drowsiness from the Compazine.  Oh yes, I can get some vague relief from the DHE-45, but only three times a week.  I am in week four of this torture, and have had no real relief at all.  He boasts that it won't be so bad, but you all can imagine what is really going on in my thoughts. 

 

I won't list them, but I am on a cocktail of preventatives, including anti-depressant, anti-seizure, beta-blocker, anti-inflammatory, and a couple other things not associated with migraine, and some herbal/vitamin supplements.  I have had migraines since age seven or eight, but was not diagnosed until age 35.  I am 50 this year, and they have only been getting worse for the last year and half.  Both my parents, in their mid-70's, have migraine and still experience them more than once monthly.  All my siblings have them but rarely and not as severly as I do.  I'm glad for them.

 

I have an appointment with my regular doctor this week.  I'm praying she'll save me, instead of sending me back to him.

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