I CAN'T LIVE LIKE THIS ANYMORE!!!!

By twyxtz Wednesday, June 11, 2008

- A
- A
- A

I've followed instructions. I've been a good girl. I've stayed on the program of IV treatment of refractory migraines for six weeks now. I've lost my job and my medical insurance. The treatment requires I get out of bed, dress, drive into down town, walk around a block size building as the major construction going on right in front of the building does not allow any drop offs, wait to be paged into the back, go through the two to two and half hour long treatment with a bucket in my lap, sunglasses on my eyes against flourescent lighting and ear plugs in my ears against the communal noise, sitting in a chair that really doesn't recline, fighting against the stress the medications puts my body under, only to finally try to walk out and around to meet up on the other side of the building with my ride (if my husband can drive me).

I met with my regular doctor, she said she'd call the specialist; or get me an appointment (which is usually a 6-8 wk wait). I never heard back. My husband saw her yesterday, she asked about me. He explained under no uncertain terms how the treatment does NOT work for me, how I spend at least another 24 hours in bed just trying to recover from its side-effects. How I barely get enough time to do laundry, put a load in or switch machines before I have to go back to bed. I can barely sit here looking at the screen to post this. But I need to vent or die.

If she wants me to see this supposed specialist who apparently isn't interested in pain relief at all, from what I've heard, I'll have to fire them both and start over. If I cannot find another insurance company, I might be out in the cold anyway. If I were actually a drug addict, I would have found other ways to get my fix by now. But being a retired cop, I don't do that. I have never been in such incapaciating agony, banging my head against concrete doesn't hurt. And no one professional can or will help. Instead, I am trying not to commit the ultimate sin today, which happens to be my 50th birthday.

Comments (4) | Add comment

Teri Robert, Health Guide

6/14/08 11:08am

Sorry you're still going through so much. I've never heard of IV therapy being done like this. I kmow you've read our article about IV therapy. Dr. Krusz has his patients plan to stay in Dallas for several days. If the first IV therapy session doesn't do the job, they try something else the next day and keep at it.

The only suggestion I know to make at this point is another doctor.

Sorry. Wish I knew more to suggest.

Teri

Cynthia

6/22/08 11:28am

I can relate! I have been getting migraines 4-6 days a week for 33 years. I have tried just about everything including pointless surgeries. Sumatriptans such as Imitrex, Relpax, Zomig are lifesavers but I would get more migraines than I could safely take medicine for. Recently, however, my migraine life seems to have dramatically improved. I have always had low-thyroid issues and I have been on medication for years to regulate it so I didnt think that could be related to my headaches. However, after reading a book by Kenneth Blanchard, MD, PhD called “What Your Doctor May Not Tell You About Hypothyroidism…” and beginning his protocol my headache life has improved dramatically! Dr Blanchard does things differently than most endocrinologists in that he does not believe that the ranges for "normal" thyroid levels are always accurate and his prorocol more accurately matches our own bodies thyroid ratios. You may have been getting "normal" thyroid test results for years but you may still need thyroid regulation. The only other thing that has changed recently that could possibly contribute to my migraine improvement is that also at the suggestion of Dr Blanchard, I have begun taking Vitamin D which it turns out I was deficient in and which is in actuality a hormone and not a vitamin and so it can affect thyroid function among other things. I would urge anyone who suffers from migraines to READ THIS BOOK! Good luck to all of us and hang in there!
xocynthia

dee7413

12/30/08 7:37am

Hi I had cluter headaches and wanted to die. I found this pepper spray called Sinol. I figured it was worth a try. I never had to use a shot again. It is homeopathic all natural. I evenn saw a headache specialist in Iowa city that said it makes sense that it works. so she was going to recommend it to her patiants.

I was speptical but it was the best thing I did. You can use it alot because it is natural. Capsacin has been used before but you had to put it in your sinuses with a Q tip. That is painful. Give it a try. It can't hurt.

Let me know how it does for you.Look up SinolUSA and it will tel you where to by it. \

Diane

KrisG from Chicago

12/31/08 6:34pm

I feel your pain... well, actually MY pain... but you know what I mean. I get migraines AND cluster headaches... have tried EVERYTHING including IV treatment and nothing has worked. Of course, REAL pain killers seem to never be considered by the doctors, only the "phony" ones like Topamax, etc which I can't tolerate. I think maybe if you (WE) try going to a pain management doctor instead of neurologists, that just might help!

I CAN'T LIVE LIKE THIS ANYMORE!!!!

Ask a Question