Will this ever end?

By susan212 Sunday, March 08, 2009

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I have had migraines for years on and off but in January I was diagnosed with Crohn's disease and was out of work for a month from that. Since then I have had migraines every day and can't seem to find any relief and it is so frustrating. I don't have a life because I am battling a migraine everyday. I am either sleeping from the meds, crying from the pain, nauseated and vomiting, or going to the doctor to try to figure out what to do to stop this mess. I would really so love to feel normal again and I am hoping maybe someone here has a miracle answer. I am currently on Topamax, Midrin, Maxalt, and Phenergan. They tried me on Propranolol but that didn't work. I was also on Celexa and Effexor at some point but they took me off those because of the side effect of migraines. They just started me on Wellbutrin. I am watching what I eat which leaves very little for me to eat between the Crohns and the migraines but I am starving because I am on Prednisone for the Crohns. Well, thank you for letting me share here. It is so hard to feel like I am suffering alone without any hope of relief. Susan

Comments (2) |

aimes82

3/ 8/09 8:18am

hello my name is Amy,

u poor thing, i hope they find something out for you, I have chronic daily headaches mine are just constant dull headaches which are there usually every day they are annoying and debilitating, i have been to neurologists and doctors and in and out of hospital so i know how frustrating it can be.

Have u tried acupuncture for some relief i havent tried yet but a friend of mine who also suffers from bad headaches and migraines does and says it helps her.I am going to try i will let u know how i go with it and maybe it will help u aswell.

Here is to us both finding some relief soon.

Hope you feel better soon.

Aimes

Nancy Harris Bonk, Health Guide

3/13/09 9:19am

Hello, and welcome to MyMigraineConnection.com!

I'm so glad you've found our site. Our clincial information on Migraine disease and headaches is physician-reviewed. Let's see what I can give you to help you out, how does that sound?

From reading your Sharepost, you have been on many medications to treat Migraine in a short amount of time. It may take up to three months to see a reduction in frequency and severity in our Migraines as our bodies adjust to new medications. How long was Propranolol used? If it was only taken for a couple of weeks or so, it wasn't given a fair trial; for you or the drug. When we keep switching medications quickly (at our doctors recommendation) never allowing enough time for our body to adjust to the theraputic dose, we tend to go through drug after drug getting very, frustrated very quickly.

Another issue may be Medication Overuse Headache, MOH. If we take certain OTC and/or prescription medications more than two to three days a week we may be at risk for MOH. If we have MOH no preventive on earth, like Propranolol or Topamax will work. Continue reading this for more information: Medication Overuse Headache - When the Remedy Backfires. And a more important article for you may be Transformed Migraine - Risk Increased by Some Medications. Not because of opioid use, but Transformed Migraine, we don't want that.

You may want to consider seeing a Migraine specialist. You deserve the best possible treatment you can have. I'm not saying the doctor you are seeing isn't a good doctor, clearly he is not an expert in Migraine disease and headaches. Some neurologists say they are "headache specialists" but that really isn't the case. They treat so many different conditions like MS, Parkinsons, and stroke they don't focus on one area. A Migraine specialist treats patients with Migraine disease and headache disorders - that's it. You probably see a GI doctor who treats your Crohn's, right? He/she is a specialist in one area, like a Migraine specialist. We have a great article you can read more about: Migraine and Headache Specialists - What's So Special? If you'd like to look for a Migraine specialist, you can check our patient recommended specialist list HERE.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful.I do hope you'll come see us. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

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