IMATCH treatment program

SusieB Community Member August 24, 2010
  • My first appointment with Dr. Mark Stillman at the Cleveland Clinic was last Thursday. He suggested that I should have a sleep study done since fibromyalgia tends to interfere with deep, REM sleep patterns. He also thought I would benefit from the clinic's IMATCH treatment program, a 5-day-a-week, 3-week outpatient program. They pretty much clean out the system of all the pain meds and current ways you are treatment headache/migraine, and then "reboot" your system, so to speak, with preventive medications. There's also individual & group physical therapy, cognitive behavioral therapy, etc. While I cried to think of what he said -- that he could take my daily chronic headaches to minimal migraine attacks like when I was 15 -- I now am worried. I grind my teeth and get headache after eating (thus mechanically problems there). I also have fibromyalgia, not just the headache and migraine attacks.

     

    The cost of staying up in Cleveland. Staying there alone and possibly feeling worse than I have recently. It has seemingly stunned me, made me fearful and rigid. I know I can't stay with Excedrin forever though. My stomach hates it and the relief doesn't last. Anyone else panic over a treatment like me? I actually worried about clothing and food! Like I'll starve or something. lol (I don't have many outfits since I am no longer working.) I also was offered to go through a "detox" of sorts before, but the doctor said with my TMJ disorder and fibro, he didn't think it would make a difference. What if it doesn't work? Any positive thoughts are welcome right now. I should name this post: Nervous Nelly. :)

3 Comments
  • Nancy Harris Bonk
    Health Guide
    Sep. 03, 2010

    Hi there,

     

    I know this is a bit late, but here goes. I think it is normal to feel anxious about anything we try new. From food to cloths and anything else we travel with. And add the medical component to it and I don't blame you a bit for being anxious.

     

    Hang in there ,

     

    Nancy

    • smashingthanku
      Feb. 02, 2011

      Did you go through with it? Did it help?

      I am now facing the same decision, and like you, am very hesitant. I am desperate for relief, though the cost and time away from both work and my family for a "maybe 45% reduction in pain" is terrifying to me. I don't know what to do, and feel pressured to make a decision.

      Please let me know how things turned out for...

      RHMLucky777

      Read More

      Did you go through with it? Did it help?

      I am now facing the same decision, and like you, am very hesitant. I am desperate for relief, though the cost and time away from both work and my family for a "maybe 45% reduction in pain" is terrifying to me. I don't know what to do, and feel pressured to make a decision.

      Please let me know how things turned out for you.

      I hope you are doing well.

      -Shannan

    • SusieB
      Feb. 03, 2011

      Hi, Shannan, I haven't gone yet; I still can't afford the stay there. If it were in-patient, the program cost to me would be much less. In the meantime, I asked for a sleep study (which the Cleveland Clinic doctor wanted) and am going to check with my pain management specialist for the name of the psychologist he recommended for dealing with pain. I figure...

      RHMLucky777

      Read More

      Hi, Shannan, I haven't gone yet; I still can't afford the stay there. If it were in-patient, the program cost to me would be much less. In the meantime, I asked for a sleep study (which the Cleveland Clinic doctor wanted) and am going to check with my pain management specialist for the name of the psychologist he recommended for dealing with pain. I figure if most of the reason I'm wanting to go there is to learn how to best handle and deal with pain, then maybe I can use the resources here in town while I wait for the money to do more.

       

      I definitely felt pressured, btw. I had the coordinator calling me about the program twice, but when I told her I just don't have the funds yet, I think she understood. This forum has taught me the most valuable truth: my treatment is my decision, not anyone else's. No one else goes through what we go through and won't be going through any treatment we decide to go through. If you go through the program before me, please let me know what you think. Sending my best wishes and virtual hugs. You're not alone!