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Untitled Comment
mamalu
Saturday, October 17, 2009 at 12:07 AMWow, I am not sure how to answer that?? It sounds like you are very sarcastic and like her pain is not real or she is pretending. I don't know you or your wife but if you feel like it is robbing you of your freedom just take one moment to think about her and her freedom. If you love her that is what you would do. Give her some compassion and show her you are concerned and that you care... I can tell you the migraine not mindgraines,is a horrible disease so please don't make light of it.Tey a new approach and love on your wife and she will feel your support and that is very important.
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Support in a difficult time
Melanie
Saturday, October 17, 2009 at 02:53 PMDear Walt,
I am so sorry to hear what both you and your wife are going through. It sounds like each of your lives has been impacted in a huge way by these diseases and, now, by their treatment. I know it can be overwhelming dealing with chronic pain, not only for the sufferer but for family members who are trying to offer support and care and aren't sure if anything they are doing is helping. And you're right, a huge loss of freedom is often part of it and can be hard to come to terms with especially if the situation has changed suddenly for the worse.
Hang in there! You're doing the right thing by reaching out for help and this is a good place to start. You can find lots of accurate information about migraine disease here which might make some of what you and your wife are going through seem less frightening. In the forums section there is even a place for family members of migriane sufferers specifically to talk about their experiences.
You probably have a long journey ahead of you, but please know you're not alone.
re: Support in a difficult time
Walt52196
Saturday, October 17, 2009 at 08:50 PMThank you all for the ideals, I will apllied them as needed Over the next few weeks we are going to monitor things and see which does what so far we know that the weather does bother her and certain foods heres something that we cant understand if she make a cheese burger here at the house and eats it she gets a headach from it like 3 hours later but yet if she eats a cheese burger from Mcdonalds shes ok thuoght I might mention that. I know that the mygraines effect each person differently And you are right I cant really Imagine what she is going threw, I assured her that were going to beat this together as a team after All I said when I do 13 years ago I ment for either good times or bad times.
re: re: Support in a difficult time
Melanie
Sunday, October 18, 2009 at 02:03 PMSounds like you are already doing some good work with trigger identification. Regarding the cheeseburger at home vs. at McDonalds, I don't know for sure, but it may be that the cheese you're using at home is real, aged cheese which tends to have higher tyramine levels, a known migraine trigger. The cheese used at McDonald's is probably a "cheese food product" that's not aged. That's one possible explanation, anyway.
I know it can seem like a lot of work, but as Nancy mentions, keeping a detailed, daily migraine diary is highly worthwhile. In my case, not only did I track pain levels, medication and side effects, and what I ate, but the weather conditions and temperature, my menstrual cycle and what activities I did each day. The pay off was being able to see patterns that emerged after several months and what things helped and what did not. Then you have a written record that you can review with your doctor to show if a certain medication or supplement is effective for you or not.
Good luck to you!
re: re: re: Support in a difficult time
Sage
Wednesday, October 28, 2009 at 03:39 PMRe: Cheese
McDonald's does not serve cheese -- is is the cheese food type product. I suspect that a switch to Cheese Food Type Burgers built with Velveeta would do the trick. If aged cheese is triggering migraines there are surely other foods to stay away from.
Weather is a trigger for me. Rapid changes in barometric pressure, impending thunderstorms, changes to the electrostatic equilibrium that accompanies full moons. The worst though is the really nasty hot dry winds know as the Santa Ana's (or Santanas actually - Spanish for Devil Winds).
Look Walt - you're engaging with people here and particpating in her treatment and being a good husband. But your protestations that your freedom is taking a big hit -- if shared with your wife -- are not going to help matters. Trust me on this. My wife used to complain about how my migraines are dragging her down and to be honest - I've realized she has no idea what I'm expereincing or how profound the pain. So I had her eat a small bowl of sherbert real quick to get the spike headache (she'd neve had one.) She got the spike and I said, it's like that only much longer. From that point forward she had a much different attitude.
So consider this: Migraine is a real deal "disease". So is Lupus. Both can result in people labeling you as lazy, a hypochondriac, a sissy or a baby and "mental" ... or worse. Would you feel deprived if your wife had been diagnosed with say, epilepsy or heart disease? Maybe. My point - change your thinking about this and you'll change the way you feel. You guys are just taking the first few steps down this path and there are a lot of things you can do here. I'm not going to lie to you and say it's absolutley going to get better but what I can promise is that you'll end up dealing with this in a way that makes the best of things. So yeah, it's a bummer but hang in there. I encouraged my wife to get into some things that would help her build a community so when I'm out of commission she can have have a life. (And that had been an issue for us.) Now she belly dances like a pro and does something called "Zumba" and it's amazing how much better we're both dealing -- and how much healthier she is!
Sage
re: re: Support in a difficult time
Dragonfly
Wednesday, October 21, 2009 at 01:18 AMSomething to look closer at with food triggers i.e. the cheese burger, are things like aged cheeses. For example you may use cheddar cheese at home & Mc Donalds uses american.
Keep a food diary along with your headache diary. It takes awhile but adventually you will
figure it out. I found out for myself I was now sensitive to citrus and a preservative called Citric Acid its in all kinds of things.
Have patients with each other, it's difficult for both parties.
I've been a sufferer for over 3 yrs. now. My husband is my rock.
I know it's hard on him sometimes. But hey a marriage is in sickness and in health right.
Hang in there your not alone.
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Untitled Comment
Nancy Harris Bonk
Sunday, October 18, 2009 at 11:48 AMHello, and welcome to MyMigraineConnection.com!
I'm so sorry to hear about your wife's Migraines and lupus. Please know that you both are not alone, we have a large community here that is very supportive. Let's see what information I can give you to start you off, ok? And, any chance your wife can come here and read along with you?
One of the first steps is to get the right diagnosis - exactly what kind of Migraine your wife has. This will help with the kind of treatment she gets and how to take care of herself while at home and if she travels, for the holidays let's say. You can read more about this in The Type of Migraine Does Matter.
You mentioned your wife gets a Migraine when she eats a cheeseburger out but not at home. This may be due to certain additive or other ingredients that are added to the meat in the restruant. Keeping a Migraine diary is a great way to find our what foods may or may not be triggering an attack for her. You can download our free Migraine diary HERE. If you have any questions about it, please feel free to ask.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. I hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy Bonk
MyMigraineConnection.com Expertre: Untitled Comment
Walt52196
Monday, October 19, 2009 at 05:06 PMHELLO THIS IS CHERYL, WALTERS WIFE. IHAVE LUPUS AND MIGRAINS SO SEVERE THEY
HAVE ME TO THE POINT OF PASSING OUT. I CANT STAND LOUD NOISES OR BRIGHT LIGHT. EVEN THE TV HAS TO BE ON LOW. YES AT TIMES I THINK MY HUSBAND THINKS I AM PRETENDING BUT BOY WOULD I LIKE TO EXCHANGE PLACES WITH HIM FOR ONE DAY. HE IS A MUSIC MAN AND LIKES TO PLAY GUITAR WITH HIS AMP, SOMETIMES I CAN HANDELL IT AND OTHER TIMES NOT. EVEN THE SOUND OF MY GRANDDAUGHTERS VOICE WILL SET ME OFF. I HATE THIS, I DO CRY ALOT. I AM ON 9 MEDS AND
I HAVE ALSO BEEN TOLD I HAVE BOOP, THYROID , CARPEL TUNNEL, HIGH BLOOD PRESSURE, ARTHRITIS, BESIDES THE LUPUS AND MIGRAINS. I HAVE GOOD DAYS AND BAD ONES. BUT LATELY THEY HAVE BEEN MORE BAD.
re: re: Untitled Comment
Nancy Harris Bonk
Monday, October 19, 2009 at 09:22 PMHi Cheryl
I'm so glad to see you posting. Although I must say, it sounds like it is time to see a "true" Migraine specialist. These doctors devote their entire practice treating patients with Migraines and headache disorders. See, here's the thing, a neurologist usually isn't a Migraine specialist because they treat so many different conditions, like MS, stroke and epilepsy. This makes it hard for them to be experts in one area. What is sounds like you need is an expert, a Migraine specialist who treats one disorder - ours- Migraine disease and headaches. Take a look at this article: Migraine and Headache Specialists - What's So Special? If you need help looking for a Migraine specialist, look at our Patient Recommended Migraine and Headache Specialist list.
If you'd like to talk with other Migraineurs and get some additional information and support, come join our discussion forum. You'll need to register again once there because it's a separate membership database, but you can use the same member name, email address, and password that you used here. You can find our forum at http://forums.healthcentral.com/discussion/migraine/forums.
I hope to see you over at the forum for lots and lots of support!
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barbie
Thursday, October 22, 2009 at 11:46 AMHi Cheryl, I've suffered from migraines for 25 yrs, my husband was not sympathetic either and is a musician. I went through hell. Now he is better and does not play his drums in the house realizes it is horrific for me. My husband never went for counselling but should have and maybe your husband should, some need to they can't accept a sick spouse. I wish you luck . I was extremely sick with migraines, vomiting and in bed for days.
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Support in bad times
Walt52196
Tuesday, October 20, 2009 at 02:42 AMHi this is Walt what I think im gonna do today is have Cheryl make a account here so this way no one will get confused but back to what Cheryl mention Yes at times I guess I do think she bluffin I guess thats because shes the type that likes to have full controll on everyone and maybe its me but sometime she uses her health to get what she wants. I didnt mention the other stuff that going on with her for the simple fact I dont want to mention our whole ife to the world but I guess its to the point of some how getting things off of our chess and hopen to seek counselors and other profressnoals how ever I dont make that kind of money nowa days because of the rearend accident I had back in last setptember where I was rear ended by another 18 wheeler so yes I have my issues to be dealing with but this is for Me as well as for Cherly to seek for some kind of help and treatments My medical insurance is Blue cross and shield thank Goddness I have that for now but who knows for how long.
Im on compensation and from the looks of things I wont be going back to being a truck driving Im stuck for now doing light duty work with restrictions as well so hey were a hand to handle at the moment but like I mention we need to get a grip on things..
re: Support in bad times
Nancy Harris Bonk
Tuesday, October 20, 2009 at 12:58 PMHi Walt,
I don't think anyone would get confused between the two of you. If you've never experienced a Migraine attack, I'd recommend not suggesting your wife is "bluffin." With all her other health conditions, why would she want more? Migraine disease is very painful.
You may be interested in reading my rather painful account of getting SSDI. I was married for 24 years and thought I had a supportive husband. When we got married there was something about "in sickness and health....." Anyway, take a look at My Social Security Disability Journey it is pretty interesting. Migraines are a chronic condition no one wants to have.
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sympathy
lfontaine
Thursday, October 22, 2009 at 11:25 AMDear Walt,
Wow! It sounds like you are overwhelmed by your wife's illnesses which is to be expected, but maybe have a little sympathy!
Just for a minute, imagine what it would feel like to have someone hit you in the back of the head with a wooden bat, continuously for 24hrs. No breaks. This is what your wife is dealing with. She needs peace in her life, so if you can't help her with that, I would suggest that you find a way to let others help her and step aside.
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Walt is mess wit yo head
Busted?
Friday, October 23, 2009 at 12:16 AMHi everyone,
I read with interest Walt and Cheryl's posts, and my edyoocated guess is that he/she/they is messing with you all. I have no problem with ex-truck drivers who can't spell doing their best to type a coherent message, but I think "Walt" is seeing how far he can go before people finally get that it's all a poorly enacted hoax. See in particular Cheryl's post: neither of them mispell commonly mispelled words, instead making up the same kind of silly mispellings, refusing to spell migraine correctly, and listing a near endless supply of ailments.
I'm glad that everyone has been so kind and supportive, but I'd suggest you place your effort elsewhere!
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Untitled Comment
Sherry
Friday, October 23, 2009 at 11:45 PMWalt,
Please be patient with your wife and what she is going through - not only with the migraines, but with trying new medications that may make her "not herself". I have had migraines since I was about 14-15, but back then they only came on about once or twice a year. In my early 20's, they became more frequent, and that is when I sought treatment for them. I have been on some preventative medications that have worked well for long periods of time, but about 2-1/2 years ago, they got a lot worse, now I have what they call "transformed" migraine - it is here all the time, just varies in how bad the pain is. My husband was not nearly as understanding in the beginning as he is now. He has learned more about the disease that I have and does anything and everything he can to help me avoid triggers, and to comfort me when I need it. You have to remember, your vows said in sickness and in health. I know you her illness is also affecting your life, which is very hard on a marriage, but just think of how bad it is for her! If you yourself have been living with an injury, you should know what chronic pain feels like. My suggestion would be for the both of you to learn all you can about this disease. A good start is Teri's book - it is a really great resource, as well as this site - look around, read some of the articles, others' shareposts, check out the discussion forum. But most of all, continue to show your wife love and support. And please do not doubt her when she says she has a migraine. Please try to be sensiitive to her needs, especially while in the middle of an attack. Yes, you may have to give up some things, but not as much as her! Just my 2 cents. Welcome and I hope you find a lot of help and support here as I have for years!
Sherry
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