I have found over the years, through allergic reactions, urticaria, nausea and vomiting, dislocating jaws, passing out, and generally missing out on a good portion of my life. Migraine meds and the doctors who prescribe them are not the, "know it alls", I was taught. That said, I have been working with a pain specialist and my physician here in Arizona. We have come up with "compounding medicines". These range from pill to suppositories, and more. Of course, "the powers that be", drug companies are trying to ban this service.
There is a place to have yourself heard on this matter. It is very important because the drug companies feel this is cutting into their sales, revenue and Rx development, are lobbying the government to delete this service, completely. They are counting on the people with illnesses this serves will be too sick, apathetic, and just not caring enough to make ourselves heard.
I haven't seen any other postings here about this service. The website is: www.savemymedicine.org I got this information from the pharmacist that compounds my medicines. Patients and Professionals for Customized Care, P2C2 is vital and important to those of us who can't take many of the "shelf meds", not just for migraines but all infirmities.
This has enabled me to take better control of my symptoms, and treatments. It has effectively cut down on my calls & visits to the doctor and ER visits. Fortunately, my physician is willing to work with my husband and I, which means more work for him, but the compounding pharmacist is there to back him up. In some cases the Rx is less costly
and insurance companies have paid for some of these compounds as opposed to in hospital management.
We migrainuers can benefit from programs like this, so it is important to make your voice heard, not just on the petitions and other forums. I fervently hope you will join me in supporting this cause, and that I haven't run afoul of the terms & conditions set forth.
If that is the case, I apologize. I would like to know where I can post this information without running afoul of the terms and conditions. Thank you and good health to all.
Hey there! It's been a while!
I count on compounding pharmacies for part of my meds too, and I was quite upset, ready to sign on to the site you linked to -- until I taked to my doctor who prescribes my compounded meds and read the FDA notice on the BHRT issue.
After I read the FDA notice HERE and talked with a couple of people who had used some of these products, I think the FDA action may well be appropriate. Some of these supposed bioidentical products contain estriol, which has never been shown to be safe for human use. There are also a lot of web sites making claims that just can't be substantiated.
Anyway, after researching, I really don't think there's any danger to legitimate compounding pharmacies.
Teri
Hi Teri
This may be the case, (additives that is), therefore I go over with my Dr. the compounds used and any others. Making sure there is nothing added that could be harmful. My compounding pharmacist is also happy to share this information, giving me a breakdown of each medication, in writing and verbally.
Where I live now is verrrrrry rural, and it's over 30 miles each way of country roads. Because the larger volume, chain drugstores feel this isn't in their best interest to provide this service.
Furthermore, I really have a hard time trusting alot of the decisions the FDA has made. Especially, those in favor of the the drug companies verses the patient. It would be just like them to couch more than one of these addendums, bury it in a maze of words and rhetoric and low and behold we no longer have this legitimate service. Which by the way, is the only way I can get any type of treatment in this rural burg.
Thank you for allowing me to voice my concerns and opinions regarding this important service.
Onward with the Knowledge!