Tuesday, February 07, 2012
I had 2 migraines about 5 months ago, so bad I went to the emergency room. Had MRI and other tests taken and they said I had a severe migrane. Went to other docs, exams, more exrays etc. I haven't had a migrain in 5 months but the aura has not left. 24 hours a day. Can't drive, on a leave from work, and can barely read. Words just pop out and go away. Been to many 'specialists' tried many meds and...NOTHING seems to help.
Hello, and welcome to HealthCentral's Migraine Community!
Oh boy, that has got to bet old really quickly, having a constant aura. What kind of aura are you seeing? Is it all day, all the time? Sorry for all the questions, if I have more information I may be able to point you in the right direction.
I'm sure you know there are a number of neurological symptoms that accompany Migraine. Symptoms of the aura phase can include flickering lights, wavy lines and other visual issues, in addition to other symptoms. Take a look at Migraine with Aura - The Basics for more information.
I know you said your tests came back ok, but it is really important to make sure nothing else is going on that would cause constant aura. If your doctor isn't able to help you, or isn't listening, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Now here's the thing -neurologists may be fine doctors, but have a hard time being experts in one area. This is because they treat so many conditions like MS, epilepsy and stroke. A Migraine specialist is just that, an expert who treats one condition - ours - Migraines and headache disorders. When you get a chance, take a look at article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs at the top of each page, you'll find a wealth of information - educational articles, tips, quizzes, workbooks, support and advocacy information, and more.
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Welcome again,
Nancy Bonk
HealthCentral's Migraine Community Manager
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!
Thanks Nancy, I do have the aura constantly, even when I lay down and close my eyes, but it isn't as bad. I see; bright spots, the wavy lines you discribed, when trying to read, words just disappear, and I can't compose my thoughts or memory for more than a hlf an hour. I don't have the migrains, if one starts, I do have the typical Rx that is used, but very seldom do I need it. But............for 6 months now, the Aura is always there.