Hi,
Thank you for this bit of insight. I really appreciate it. Unfortunately, don't have any doctors on my side, willing to think about what tests should be done to clarify what's going on for me, so I have to go armed and ready when I visit them!
I just visited my eye doctor today because of the extreme orbital pain I've been having, similar to what I first felt when I had my first seizures following my heart surgery 4 years ago. And while my eye doctor said the eye looks fine, he said that I show signs of an organic brain disorder or a past TIA. (And I'm thinking it could also have to do with several head injuries, both in the past and from this year) Until reading this I didn't have much hope of having this ever really understood or clarified for the professionals I deal with.
Since I have a history of psychiatric care, all too often Neurologists have been ready to blame any symptoms they didn't quite understand on my past trauma. However, they are ignoring a great amount of inability on my part to function. They also seem to be looking for every loop hole they can- psyhological reasons for seizures, for dialation of pupils, for balance issues and inability to walk, ect. Why is it that doctors don't take head injuries seriously?
And what type of doctor might order this test?
Thanks again for sharing ~
and may you have a painfree day!
zoe
Thank you Nancy for this great information. Hubby suffered a brain injury 10 years ago. Then we were told that there is not such a thing as a mild brain injury, a brain injury is a brain injury there are severe ones with lost of brain matter but thes are almost miracle if they survive . We were lucky he was chosen for a study and was followed by a team of dedicated specialists therapists. The outcome at first was brim I was told to be lucky if he can function but won't be able to go back to work or drive or live by himself. With patience and love he did recuperated quite well. The first days were just to save his life, to stabilize his vitals, then as soon he was strong enough to move they kind of invaded his space , his life and mine too, to our best interests .It was very hard work I had to be full part of his rehab. If he had not have these cares I am afraid to think what he would be today. Oh don't get me wrong, he has limitations but I am the only one knowing. TBI sufferers are good to dance around the words the problems, etc. One thing about him having head pain at first is that he completely understand my migraines. Now he doesn't have them anymore. he went back to work having a very good boss how was part of his rehab too, he did work for 6 more years before retiring at 60 he dreamed to go to 65 but the chronic fatique did not permitted it. He got his driving licenses back, I can tell you if everyone would have to go through the testing he did we would have better and more attentive drivers.
Again than you.
Hi Marie,
I'm so sorry to hear about your husband, but thrilled to hear how well he is doing. It is always amazing to me when doctors (whom are very good) don't know some basics - like there is such a thing as a mild traumatic brain injury. It is stunning actually, but that was 10 years ago too. My fall was almost 12 years ago and when I think back trying to remember the events of the day, I'm almost certain that by today's standards I would have been in the hospital for the day!
The reason why thet said that there was not such a thing as mild brain injury was because they wanted all TBI investigated as severe ones. Too many hospitals will brush over "mild "ones and you know very well how incapacitating they can be.
You are doing a great job here keep the good work.
Marie