30 Things About My Invisible Illness (Migraine) You May Not Know

Nancy Harris Bonk Health Guide
  • Well, here is my "meme" to celebrate National Invisible Chronic Illness Awareness Week, September 14-20, 2009. There are some things in here I didn't even realize. 

    1. My illness list includes but is not limited to (LOL!): Migraines, intractable chronic head and neck pain (from mild traumatic brain injury), Idiopathic Intracranial Hypertension (IIH) and a few others... 

     

    2. I was diagnosed with: Migraines, intractable chronic head/neck pain 1997, IIH in 2003.

     

    3. But I had symptoms since: Over-the-counter (OTC) medications kept "headaches" in check until I fell on December 9, 1996.  

     

    4. The biggest adjustment I've had to make is: My ability to multi-task, lack of concentration, dealing with chronic pain, and not being the same person I was before I fell.

     

    5. Most people assume: "You can't possibly be in pain, you look fine." 

     

    6. The hardest part about mornings are: Getting out of bed and starting the day. Having sore and stiff joints; chronic pain usually doesn't make me eager to start the day.

     

    7. My favorite medical TV show is: Used to be "ER", now I love "Mystery Diagnosis".

     

    8. A gadget I couldn't live without is: Well, I guess I could live without it, but I would miss my new little phone.

     

    9. The hardest part about nights are: Staying asleep, and not waking up once every few hours in pain. 

     

    10. Each day I take 3 supplements, 8 pills, Migraine abortive and rescues when needed.

     

    11. Regarding alternative treatments: I'm all about alternative treatments, they are great for relaxation and meditation.  For me - not so much on the Migraine reduction front. 

     

    12. If I had to choose between an invisible illness or visible I would choose: Neither.

     

    13. Regarding working and career: My invisible illness has pretty much put my career choice on a totally different path. Certainly not the one I was trained for, but one I wouldn't trade anything for. 

     

    14. People would be surprised to know: I teach piano lessons and was a Music Business major.

     

    15. The hardest thing to accept about my new reality is: not being who I was.

     

    16. Something I never thought I could do with my illness that I did was: Learning to help others by becoming an educated Migraine patient myself. I am very lucky to be able to help others learn about Migraines and headache disorders so they can work with their doctors to form a great health care team together.

     

    17. The commercials about my illness: I hate.

     

    18. Something I really miss doing since I was diagnosed is: Not being able to laugh without getting a headache.

     

    19. It was really hard to have to give up: My marriage, (but I'm ok now!) and not being the awesome multi-tasker I was!!

     

    20. A new hobby I have taken up since my diagnosis is: Ummm, do I have a new hobby since I fell? 

     

    21. If I could have one day of feeling normal again I would: Go to the symphony, have a five-star dinner, then stay up all night talking with friends and not have to pay the price for days on end.

     

    22. My illness has taught me: That my strength and loyalty are two of my best qualities. 

     

    23. One thing people say that gets under my skin is: "Must be nice to stay home all day."

     

    24. But I love it when people: Actually ask me about Migraine disease, something I know and enjoy talking about.

     

    25. My favorite motto, scripture, quote that gets me through tough times is: "Lord, grant me the serenity..." 

     

    26. When someone is diagnosed I like to tell them: I understand. and you are not alone."

     

    27. Something that has surprised me about living with an illness is: how much emotional damage a chronic illness may inflict upon family members. 

     

    28. The nicest thing someone did for me when I wasn't feeling well was: My friend Gisele basically handled my life for me when I needed it.

     

    29. I'm involved with Invisible Illness Week because: No one wants to be invisible. 

     

    30. The fact that you read this list makes me feel: helpful, happy, and productive.

    Feel free to copy and paste the questions, then change the answers, and post this to your blog or a sharepost. That way it makes it easier, and we can keep it going.

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    Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at
    invisibleillness.com.

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Published On: September 16, 2009