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Glad to see others coming out
midnite
Friday, September 25, 2009 at 10:41 AM -
Kristen
TXmigrainmom
Friday, September 25, 2009 at 03:39 PMI am so glad that she was able to even get through the award. I also agree that while I was not happy that she had one, maybe with more people "coming out" about their migraines that are in the public eye , then there will be an increase in awareness and funding.
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Triggs
MP
Saturday, September 26, 2009 at 02:25 PMBut what happened when you have no control over your "triggers"? I am very frustrated because my doctors and providers make me feel than it is my fault that I am not better. That I am surely doing something grong, than I am dumb as a door nob for being unable to not managed my so call triggers ritgh? The only food that trigger my migraine is onions, so obviosly I do not eat onions. It was a easy one to discover. Chocolat is not a trigger for me, neither is red wine, or cure cheese but since I only enjoy these a few times a year and I have migraines 4 times a week,they would have been a easy culprit to eliminate. My triggers are weather changes, thunderstons, rain, banometric presure changes, my mestrual period week, emotional stress (like my grandmother getting sick, or a family member car accident),bright ligths, photo flashes,sunshines,strong odors, loud noises, sensory overload (just put me in a croud mall like the Mall of America in a week end). In other words: life in the 21 century in a city. Since I got sick , gradually of course, insiduosly, I lost so much of my life...I was living a busy full live of a profesional working mother, with a fulltime position and time to also keep a very clean house with a little help. Now I am living in this perpetual twilight, dark inside my house, cannot work any more. Everyday in pain. I barely go outside and went I do is with my dark glasses. Going shoping starting triggering not only migraines but also panic attacks. The firts panic attacs cortesy side effets of Imitrex, them I din not need any help.
It is not my fault I am sick. I do not want to be sick. I did not choose this illness. I have try many, many, medications. None have worked. Some have harm me. I just wish that when doctors cannot help me at least they do not blame me. I am not blaming them, as I could as for example say that they have no clue what they are doing. Or that in my opinion if they know so little about migraine is because it was considered a women disase, therefore irelevant. I think that doctors focus to much in treating the symtoms and to little in healing what cause the illsness therefore the symtoms. Its like the trees do not let them see the forest. How they can cure migraine when they do not evenknow what a migrine is, what really cause it or why?
re: Triggs
Nancy Harris Bonk
Sunday, October 04, 2009 at 02:13 PMThey (the researchers) are getting closer all the time to figuring out how a Migraine starts. It is such a complicated process with a very complicated organ. We do know a few things like it is genetic- if you look back in your family, someone probably had some type of headache. They may have called it a "sick" headache or "sinus" headache, but it probably was a Migraine. We also know that Migraineurs have overactive neurons in our brain, and the Migraine process may begin in the cortex and brain stem of susceptible people.
And for sure that is not your fault, that we definately now. Any doctor who insinuates that needs to have his "sorry butt fired" as Teri often says. Neurologists are fine doctors, but not specialists in one area because they treat so many different conditions including MS, stroke and epilepsy. If you doctor isn't able to help you and making you feel like you are at fault, it is definatley time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
Thanks for reading and I hope this helps.
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I was watching the awards and saw that...
Jamie Sohn
Tuesday, September 29, 2009 at 10:50 AMIn fact, I turned to DH, and since we're both Huge fans- back from her You're A Good Man Charlie Brown days-and said "she doesn't look right to me, does she to you?"
When she got up from her seat, she sorta had to steady herself... and then taking the walk to the podium, she was shuffling in a way that I call my "photophobia dance" where you can open your eyes just enough to see where you're going, but not have them all the way open.
Then accepting the award...she REALLY didn't seem like herself. Slight slur of the words, it then almost seemed like mild aphasia as she kept talking, and being hugged/helped off stage by the presenters.
DH had been watching carefully, and said something like "She kinda looks like you do with a Migraine- and she's usually so well spoken and chipper- and perfect diction..."
And I wondered... Until the next day- when I found out that he had been right. I called him at work to let him know that he had been right on with his guess the previous night.
He said something that hadn't occurred to me until that moment " Maybe now the world will see that it's not just a headache- she really did look awful, and lots of people were watching. And now they know it wasn't 'cause she was on any substance."
I had been thinking of it from the fundraising opportunity potential until he said that- and then I realized how right he was. Lots of people had seen the Emmy's, seen her like that, and it was now known that she had a Migraine at the time.
Maybe it'll also help other Migraineurs who never would have been diagnosed correctly- perhaps they'll be able to identify with some aspect of her Emmy win and "how they sometimes have those symptoms," as it was talked about in many of the major papers the next day.
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I hate to say it but I'm glad to say that I'm happy to see people in the public eye finally coming out and saying" I suffer from migraines" or " I'm having a migraine right now". Maybe now that being brought into the news media's eye like Cyndi (please forgive me I can't remember her last name) That spoke at the conforfence for us migrainers and this star has tweeted. it'll help our cause.
Teri & Nancy have been doing a GREAT JOB!
Midnite
Having a migraine right now myself.