I would like to let you know how excited I am to be joining MyMigraineConnection in an official capacity. Being able to support, educate and assist people with Migraine disease and chronic illness is very important to me. Having more than my share of autoimmune "issues" makes me uniquely qualified to share my thoughts and feeling on how difficult life can be when trying to cope with these conditions.
Three different autoimmune issues, Idiopathic Inracranial Hypertension (Pseudotumor Cerebri), chronic head and neck pain and a two level cervical spine fusion round out my current list of diagnosis. Daily issues, like trying to clean the kitchen and completing the laundry, are sometimes impossible to do because of extreme pain and fatigue. One of the most frustrating things I have encountered with my chronic illnesses, is that they are, for the most part, invisible. Meaning, "gee, you look so good, what is bothering you today?" That brings up all kinds of feelings, some of them not too pleasant. Would folks rather I looked really awful? Sometimes I believe they would, because to most people, seeing is believing. If you can't see it, or touch it, then some people have a hard time accepting it.
This brings me to acceptance, of my fairly new conditions, and peoples attitudes towards them. I thought having chronic head and neck pain, which triggered Migraine attacks was difficult. That almost seemes like cake compared to this....
The ownership is on me now. Not letting their attitudes invade my thoughts and actions, or in some cases lack of actions. Like not going out in the sun too much, or being unable to go to family gatherings if I am not feeling up to it.
It isn't easy, but hopefully together here at MyMigraineConnection, we can help each other get through the good and bad times.
Published On: April 30, 2007