migriane associated virtigo undiagnosed

 Hello Andy,

I'm so sorry I didn't get back to you sooner,

before my topamax my visuals were so bad when I was on the computer, I found it hard to navigate this site, I did eventually receive a diagnosis of migraine associated vertigo, if you could call that!  A diagnosis " I wouldn't"

I think that's just a symptom of migraine myself

My migraine, futures much like simple partial seizure, very upsetting.

I was left to suffer for 15 very long years, vertigo the whole shebang!

I have nothing but distain for the medical profession in any form, despicable useless creatures

They ask me if my blood pressure is always this high and I tell them No never!

Its only when I'm around Drs.

It's funny I get the same stupid look they gave me back when I tried to explain my symptoms to them years ago.

My neuro ‘s advice to me was this, ok I'll hand you to your GP she can take over from here.

Any med I give you will be worse than your illness and will make you gain weight.

Obviously, this man has no idea what this illness does to people.

I have walked around holding onto walls to get from room to room.

I sometimes can't speak,

I may not suffer migraine type pain, but do have pain at the back of my scull.

Deep burning sensation. Quite painful radiating along my neck and shoulders.

I can wake in the morning with aura, and not remember the rest of the day.

Like I have time distortions

My hands and foot flinch

My lips go numb

Alice in wonderland syndrome

I rock like on a boat 24/7/ which was my initial symptom.

I am not over weight. So how dare he say that to me?

I'm not sure how many of these symptoms I acquired along the way were also a directly related to anxiety. Trust me I had anxiety after only 1 month of vertigo.

He needs his license taken away!

Do I sound mad! To you

Well Andy yes I am.

With a lot of help from a forum friend and I'm now slowly regaining some stability, its onwards and upwards from here.

My meds will eventually be, topamax, 100mg, after waiting 3 month if not fully stable,

Adding effexor at only 37mg only, titrating very slowly on both meds, cutting in 1/4 weekly. I'm so sorry your feeling this way and hope you get the Dr we all deserve, I'm sure there's One out there somewhere.I didnt find one in Australia.

I'm not sure how many of these symptoms I acquired along the way were also a directly related to  anxiety. Trust me I had anxiety after only 1 month of vertigo.

(((( hugs )))) jennyd

Hi Jenny, I am very glad to meet you! Out of months of searching tons of sites on the internet, lots of different posible causes, medications, multiple doctors and procedures I am still pretty much in the same boat. Your blog is the only one I ever replied to because it sounds so much like my symptoms. But I have only suffered for 3 years, I can not imagine being like this for 15 years!! Topomax was the first solution they gave me. I was up to 250mg on the topomax at the end. It worked great for about 8 months and then stoped. That seems to be the fate of most migraine medications my resurch has seemed to find... I have also come up with a constant tremmor. They can not, or will not identify it right now. I am told it's not essensial, or Parkenisons, or corea though it acts kind of like corea... they don't know... my eyes always bother me - my worst symptom. I also get spike pains in my hands and feet, and am starting to hold my right foot up constantly and hold my left hand in a funny position. it just automaticaly goes to that place... I was also just starting to get sever cramps in my legs and back that would not go away... I was on Propranonol 240mg for 6mo and was so sick and it didn't help, so now I have just started a new medication Zonegran. I am not sure the dose I am on. It has really seemed to work wonders though. I feel much better and the tremmors are actuall under control which is a side effect of this medication. It doesn't help with my eyes, but I don't feel as sick or nearly as cloudy headed (which is good as my work is very intensive and I can't aford to be druged out all the time.) I haven't taken it long enough to know if it stops the migraines though, but I will let you know. I wish you the best of luck and that the Topomax works. I found it made me very cloudy, but otherwise didnt' have much bad side effect. 

Best wishes!

Andy