Hello there, my name is Brandi. I've been being treated for migraines for oh I dunno about 5 years or so now... This summer everything came to a peak. I had one for 3 weeks straight ended up getting sick at work having insane disorientation and my arms went numb.... Needless to say my mom decided it was time to look a little further into it. So I asked the family doctor to do a ct scan after explaining what had been happening. That ended up showing enlarged ventricles. I was also put on Topiramate to help prevent and fluvoxamine since my moods were out of wack. I ended up with a 2 month leave from work to adjust to the meds but they still made me sleepy in the morning... now they dont so much... In february I had an MRI done and it was confirmed I have enlarged ventricles from too much fluid on my brain? so there may be a blockage and now I am waiting for an appointment with a neurosurgeon...I'm 23 and I take naps after working 4 hours it really sucks, I just want to have a normal life...
Hello, and welcome to MyMigraineConnection.com!
I'm glad you've found our site, I hope we can give you some information to help you. Have you had a spinal tap lately? Enlarged ventricles, CSF and Migraine lead me to the Hydrocephalus Association Website. Now, I'm not saying you have this, it is just for your own information, ok? I'm not a medical professional.
A condition called Pseudotumor Cerebri (PTC) or most recently called Idiopathic Intracranial Hypertension (IIH) happens when too much CSF (as you mentioned in your post) is produced or not properly absorbed in our bodies. We have information on that HERE. Another condition called Chiari Malformation that may have some implications for you. Information on this condition is located HERE.
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Welcome again,
Nancy BonkMyMigraineConnection.com Expert
Finally got to do a bit of reading on those articles. No I haven't had a spinal tap.. first one IIH? has alot of symptoms I can relate with... the Chiari malformation, pardon my non technical terms but is that sac which they speak located around back of neck? I know the doctor and teck mentioned they had thought that a membrane may have gotten down in to a cavity ... I know I'm not much help but I guess they ruled that out.... thanks so much for the help
Ummm, I think the membrane your doctors and tech may have been speaking about could be cerebellar tonsils. In any case, it really needs further exploration because sac, membranes or what have you, shouldn't be in any other cavities
then where they are supposed to be! Here is a site with more information. I'm not suggesting you have this condition, I am not a medical professional, just giving you information to discuss with your doctor.