Had appt. with MS specialist yesterday.....what a frustration

I posted on Sunday that I was seeing an MS specialist at the Cleveland Clinic yesterday.  What a joke.  I am so frustrated that I don't know if I should cry or spit nails.  The appointment didn't start right.  The other hospital sent records on friday and somehow the doc never recieved them.  The records that he did receive weren't helpful.  The neuro exam wasn't very thorough.  He said that my neuro exam was too normal.  I had an awesome timeline which documented all of my symptoms and when everything started and all of that.  I don't think he even read it.  My MRI from 4/08 said that there were "white matter changes" and a "focal lesion in the right temporal lobe".  The report said "these findings would not be inconsistent with the dx of MS."  I don't know if the ms doc didn't read that or if he didn't agree or what.

He did say however that he would review the other records when he receives them and would call me if he needed too.  He ordered 9 blood tests to check for some other things that could be causing my neuro sx.  One of the things that he is looking for is Wilson's disease.  I googled it and it definitely fits my sx.  He is going to forward the results to my HA doc who I will see on the 24th.  I asked if I should have another MRI and he said that he didn't think that was necessary.  That really frustrated me to no end. 

My neuro sx just used to happen with migraines, but now they are happening all the time.  I have constant numbness and tingling in my hands, arms, and face.  I have constant visual disturbances.  I have widespread muscle pain and weakness.  Horrible fatigue.  Incredible heat sensitivity.  And of course the migraines.  The sx are also worsening with time.  I feel like no one is listening to me or taking me seriously.  I am soooo sick of these docs blaming everything on these blasted HAs!  In my gut I believe there is something else.  I know that I have migraines, but there is something else.  What are they missing.......Kayleen