Saturday, May 26, 2012

I hate Fall & Winter....

By dualdog Sunday, October 28, 2007

Just Sharing:

 

I suffer from what I call sinus headaches, but have been diagnosed as migraines.  As soon as the cooler weather starts my sinuses swell and I get headaches for 5-7 days at a time until the warmer weather comes in the spring.

 

Every year around Feb-Mar I get a sinus infection which increases the headaches to unbearable for about the next 2-3 months. Usually with one visit to the hospital where they give me the usual mixture of stuff for the pain and send me home.

 

When I was younger (I'm 39) I never had headaches. I got my first migraine after either (In my late 20's) my 2nd or 3rd sinus surgery (@1997) - I currently have had 6 surgeries.

 

I have the light & sound sensitivity. My sinuses hurt and my jaw starts to hurt, my stomach gets upset - but one of the worse problems is my teeth get real sensitive to cold, hot foods & drinks.

 

I have also been under a lot of stress for the last 7 years. I live at home with my mom, and in 2000 my father passed away after a stroke in the fall of the previous year and my Mother went into a deep depression.  She just doesn't care about anything or anyone anymore.

 

Mother history: Depression, arthritis, alcoholic and smokes. I have to put up with it because I can't afford to move out because I cannot work a full 8 hour day, keep a job for more than 3 years and financial difficulties. I also have fatigue problems that are probably due to my sinuses.

 

So the stress has now caused headaches to also occur in the back of my head above the neck.

 

I have been seeing a Neurologist since the first signs of the migraines 7 years ago. He has tried all the migraine medications available, the imatrex shots helped one year - but not anymore. I should probably get a new doctor.

 

He recommended I go see a neurologist at Jefferson Hospital (it's either in NJ or PA), but due to high co-pays ($40 for a specialist visit) and financial reasons I decided not to go.

 

I have been under a lot of stress related severe pain symptoms since March (gallbladder, stomach, abdomen) - all undiagnosed and untreated. And at least 5 Ultrasounds, 2 CT Scans of various body parts (including my sinuses) and a endoscopy of my throat, which my insurance does not fully pay for any of it. This went on for about 6 months and then the pain faded away on it's own.  So not only do I have a lot of medical bills to pay, I have found that I no longer have much faith in Doctors or Specialists.  I feel like they (and family & friends) think I am a hypochondriac.

 

My doctors do agree my sinus passages are swollen but give me the same treatment of nose sprays, flushing my sinuses and keep taking allergy pills every visit.

 

Ok sarcasm - um if a patient comes in over and over again with the same symptoms every year, wouldn't you think they would try something different since what they gave me didn't work any other time!

10/30/07 12:47am

I hate these headaches and it's my sinuses, my teeth hurt, I get awful cravings and low blood sugar and I'm just useless.

 

Very frustrating. 

Anonymous
maura
1/31/09 5:33pm

i know what you mean about feeling like a hypocondriac.  i, too, have the kind of migraine you're talking about.  i have been very frustrated trying to find a doctor to take my symptoms seriously.  i finally went to an ear, nose & throat specialist and got a sinus scan which came out clear so he sent me to a neurologist who diagnosed me with "migraine unlimited" but there's not much on the web about anything other than the classic kind.  i am trying to follow the migraine diet now- have you tried that?

Teri Robert, Health Guide
2/ 1/09 12:51pm

Maura,

 

"Migraine unlimited" is most likely a billing diagnosis. For purposes of treatment, learning about your Migraines, being able to get care if you're away from home, etc., you need a full diagnosis of what type of Migraine you have. You can read more about this in The Type of Migraine Does Matter. At the end of that article, you'll find links to "Basics" articles about the different types of Migraine.

 

If your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

 

Good luck,

Teri

Anonymous
maura
3/ 2/09 3:02pm

thanks for the info.  i'm doing the migraine diet and the first thing i added back in (fresh baked bread) seems to be a trigger.   darn.    oh well- at least I know.   thanks again!

Anonymous
Sinus sufferer
12/11/09 12:41pm

I have exactly the same problem and after many doctor visits, my own research and logging triggers for months I am certain that I have hay fever, chemical allergies and am especially sensitive to cigarette smoke and perfumes.   I'm 47 now and grew up in a house full of smokers and in a city full of pollution from a paper mill.    I also have a family history of hay fever.  I believe this early exposure to smoke and smog - which was constant - has exaggerated my sensitivity now.  I am also hypoglycemic which means that I am prone to low blood sugar. 

 

So - if I avoid my triggers (perfumes, seasonal pollens, dust (really mite poo) and eat 5-6 small meals a day to maintian good blood sugar, I'm fine.  It's difficult but it's become routine now.  I can't wear perfumes, can't use most laundry soap, can't use dryer sheets and can't use most lotions. I can't go out for an evening where even a few people are smoking.  I keep visits with family short because they are smokers and don't seem to understand what it does to me.  I rarely eat out because institutionalized food in chain restaurants is full of triggers, Chinese is a definite NO-NO!  I must dust and vaccum regularily, especially the bedroom or I wake up feeling just awful.

 

Rather than relying on doctors to "fix" you, you really need to take control of things yourself.  Get out of the toxic environment (cigarette smoke) where you live and create your own environment that's as allergen-free as you can make it.  It's not easy but it beats surgeries and pills that put you to sleep.

 

Good luck.

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Anonymous
Realistic
12/11/09 5:20pm

"Rather than relying on doctors to "fix" you, you really need to take control of things yourself. Get out of the toxic environment (cigarette smoke) where you live and create your own environment that's as allergen-free as you can make it. It's not easy but it beats surgeries and pills that put you to sleep."

 

Well, aren't you special. Seriously? It's just not that easy for all of us. Most of us can't avoid all of our triggers. Hell, I can't seem to avoid any of mine. Every try to avoid a weather front? Ever try to avoid the hormones from your menstrual cycle?

 

I'm sure you were trying to be helpful, but lots of us, even those of us who HAVE taken control, still must work with our doctors and take meds. Oh, and pills don't have to put you to sleep.

 

Get over yourself.

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By dualdog— Last Modified: 12/11/09, First Published: 10/28/07