Sunday, May 27, 2012

Disability and Migraines

By Kim R Monday, December 24, 2007

Good Day,

I have had migraines my entire life but recently within the last 10 years they have gotten really bad. I will get anywhere between 1-2 a week and they normally last 2-3 days. I have tried a good many of the Imitrex type meds and none have worked for me. So far the only medications I am taking is Staydal and an Antidepressent. I had a very good well paying job that fired me after 8 years of service because of the time I missed due to my Disability. I went to the hospital for a migraine attack and the next day when I returned they fired me. I had already used up all of my FMLA that was the excuse for firing me. I am currently working part time due to the fact I get these migraines so often it is impossible for me to work full time. Has anyone been able to receive Social Security Disability for this Desease? My first Doctor told me that the would NOT Fill out Disablity paperwork for a "Headache" After this conversation with him it dawned on me that he as a Heath perfesonal did not understand exactly what a Migraine was {this I found to be really sad} and that he thought of it as just a  Headache. This really discouraged me. I  have a new doctor but he seems to be just as out of touch as my old one thinking I am depressed and this is causing my migraines, I try to tell him that I am depressed BECAUSE of my Migraines not my Depression is CAUSING my Migraines. The Big Problem I am currently having is I have NO HEALTH Insurance So I can not afford any "tests" or very expensive drugs anymore.. My family is urging me to try to get my Social Security Disabiliy but I have no clue how to even try. Any Thoughts? KR

12/24/07 5:28pm

I know, you already know that.

 

I know that some people do get disability for migraines, but I think it is not easy.  You will see some people posting about their experiences with disability applications in the Advocacy folder of the discussion forum:

 

Advocacy folder

 

While you are over on the discussion forum, I hope you will register there (it's separate from registration from this page) and become one of our forum members for additional information and support.  We would love to have you.  You can also get to the forums by clicking on Migraine Forums under the orange Manage bar.

 

As far as disability applications go, contact your Social Security Administration office to get started.

 

We keep a list of migraine/headache specialists on this site.  It's a good idea to find a doctor who really understands your disease.

 

Are you on preventive medications ?  If not, discuss the matter with your doctor.  Click on the link I just gave for a list of the options.  I think you will be surprised how many of them there are.  Some of our forum members print the list and take it with them to the doctor.

 

You've probably already realized that you've come to a site with a lot of great information.  I really hope you will join us on the discussion forum as well.  If there are other questions, let us know, here or on the forum.  Medical decisions are between you and your doctor, but we will give you as much information and support as we can.

 

Take care of yourself.

12/25/07 12:59pm

Hello,

Thank you for your comments. As to your question on preventive medications the only med I am on is the antidepressant. I was taking Topomax but when I lost my job I could no longer afford the $300 a month bill and I was having some really weird side affects with it so I am kind of glad I cant afford it. I also Cant afford the imatrex type meds the only drug I can afford right now is the Staydal  and I take that only when I can no longer take the pain. 

 I will check out the other forum. Its good to find other people that are going though what I am going though and be able to get support from them. Thanks Again Kim

12/25/07 2:03pm

Topamax is far from the only preventive option.  There are other, and cheaper, alternatives, even in the same class of medications.  Do take a look at the list on this website.  If cost is a consideration, check with  your pharmacist as to which meds might cost less.

 

You can check out this web site:

 

www.needymeds.com

 

for a list of programs to assist people who can't afford certain meds.  If you are otherwise able to take triptans, you could look for programs for those meds, as well.

 

I hope to see you on the forum soon.  Take care.

11/29/10 9:24pm

Speaking of the subject, I am a 32 year old male and I have suffered from a migraine all day. I felt it coming on this Monday morning 11/29/2010 while I was at work. I had to ask the boss, once again, if I could be excused from work. I've only had this job for about 6 months and have missed around 7 days of work due to migraines, for which seem to be more frequent. I got the job when I moved here to Mn from Mt to live with a friend and his girlfriend that I haven't seen in years. Anyhow, I love the job. It involves fabrication of steel and welding type work. But when I get a migraine, it's more like a battlefield going off in my head. I've been a life long sufferer from very severe, painful migraines. Often I refer a bullet in the brain being a relief compared to the pain of a migraine. And no, I don't mean in a suicidal sense. Anyways, today I also got laid off. It's been a discussion brought up in weekly meetings that it could happen due to the main owner passing on and some failures happening within the busyness. But come to my attention, I was the only one laid off. I like to thank my migraine for this. I've never lost a job because of a migraine. I lived in a small town in Mt where people were very understanding and humble. Plus I had a flexible job as well. But migraines never had good timing. So I guess I am a victim to migraines and may lose more jobs because of their pain, but I will always stay optimistic that we who suffer from these severe type migraines will one day claim disability. 

12/25/07 11:11pm

I see you already got a lot of good information from nutcracker. I didn't know about the needy meds site, but I do know you can go directly to the pharm. companies websites and apply there. Since you have no health insurance, if you meet income guidelines, you can get your medicine through them for free. I currently get my Maxalt, Effexor and Singulair through those programs. Then I only have to pay for my generic meds. It pays to shop around on those,too. Target and Wal-mart have a $4 generic program that covers over 300 generic medications. I have noticed that other meds can vary greatly from pharmacy to pharmacy. It seems like you really need to find a good specialist first, though. A lot of doctors give discounts to cash patients. Plus, once you get the migraines under control, you can cut back on your visits to every 3-6 months probably. You also need to know that taking medications too much can cause rebound headaches.

 

I hope this helps some and if I can help you anymore, just let me know. You really should join us on the forum. It is a great place with lots of great people.

Good luck!

 

Sherry 

Nancy Harris Bonk, Health Guide
12/26/07 1:02pm

Hello, and welcome to MyMigraineConnection.com!

 

First, let me congratulate you regarding your knowledge on Migraine disease. Firing your doctor who clearly doesn't understand Migraine, a genetic neurologic disease, was wonderful. Nice job!  

 

Losing your job due to your Migraines becoming intolerable is horrible. Your former employer should be ashamed of themselves. As nutcracker said, some people do receive Social Security Disabilty for Migraine disease, but it can be a long a difficult process. It is absolutely imperative to have your doctors cooperation to accomplish this. You can find information on SSDI and SSI HERE. There is also a program called Partnership for Prescription Assistance, PPA, a prescription program for those who don't have insurance. We have some information that may be helpful. Partnership for Prescription Assistance:
Helping Those Who Can't Afford Medications
.

 

Depression and Migraine can go hand in hand. Headache had a report in 2000  that showed a 47% prevalence of depression in Migraineurs in comparison to the general public. Depression doesn't cause Migraine disease, but can certainly play a part in it.

 

Thank you for creating a SharePost.  SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful.  We hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com



If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk
MyMigraineConnection.com Expert

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

 

 

 

 

 

11/11/08 2:21pm

I see that many of the responses will really assist you in obtaining medications and an appropriate doctor.  How sad that so many doctor's don't understand Migraines in this day and age.  A first priority is finding the right doctor.

 

Here's the shocker:  If you apply for Social Security Disability Benefits, understand that you will probably wait 2-3 years before getting into the program, receive any benefits or receive Medicare.  Congress is currently looking at new SSA disability claims which are taking over 700 days to approve.

 

Many people think it's a matter of "applying" and receiving benefits in a reasonable time frame.  It's not.  

 

It is far more complex.  You MUST get a Social Security attorney (check your local yellow pages).  You MUST have a doctor to back up your migraine claims; it needs to be well documented.  Sometimes the Social Security attorney knows of doctors that specialize in your disability; and YES, migraine headaches can result in FULL disability.

 

Start keeping records NOW about how many days a week you have a migraine; the severity or intensity of the pain (Scale 1-10 where 1 is no headache, 10 is the worst headache of your life) , whether you had aura, whether you had nausea and/or vomiting or sensitivity to light and sound, perhaps taste.  Document your last year at your work place; how many days did you miss due to migraine?  List any accommodations your employer made for you.  You need to prove you attempted to work yet could not due to migraine, and lost your job because of it.  That will help you in your claim.

 

You will need to appear before a judge.  He or she decides whether or not you are qualified to be considered fully disabled.  A good attorney will prepare your case and present it.  You will have an opportunity to testify.

 

Any additional questions, please feel free to write to me.  I've been through it all!

 

The information I'm providing is based on personal experience and that of others in my disability circle, and does not substitute for legal or medical advice from experts in their respective fields.

 

Much luck to you,

Lorraine

 

 

By Kim R— Last Modified: 11/29/10, First Published: 12/24/07