I was referred to a neurologist that specializes in migraines. However, once i called the office, i was told that they didn't handle our insurance company........ugh...
I remembered a neurologist that was called in to consult...when I was hospitalized in 2004. He seemed knowledgeable and compassionate....*he has migraines*....THIS is huge for me/us....
So, we *DD* and I have an appointment the 17th of next month....I hope that we can hold out til then. I sense that our GP is losing patience with us. I like him...he does communicate with us...and tries to listen. However, he is reluctant to allow my daughter to take a narcotic type of analgesic. Triptans...so far...have little effect for her. She and I have both weaned off of a preventative...Topamax. We had a series of side-effects that just wasn't out-weighed by the benefits of the drug. ( i am so thankful that many are helped by this drug...i have a 4 yr old niece that takes topamax...for the migraines caused by Chiari malformation)
We are still having migraines almost every day. Thankfully, my daughter's boyfriend is very compassionate and helpful..... About 3 weeks ago, my daughter experienced a series of seizures...while with her boyfriend. He, wisely, brought her to the ER. When the ER dr. was informed of her meds....he was not aware that seizure could be a side-effect....*where's the PDR here...?????* Since this episode, we have spoken to 3 different pharmacists...who all verify that seizure is a possible side effect....once a "saturation level" is reached in the system. Now when we met with our GP dr. his comment was "it's an ANTI-seizure drug" ......ok, i really, really did know this ...
Well...i've whined and complained enough....
Hugs to all....May you all find peace today
......... j

