Sunday, May 27, 2012

found a neurologist....

By lordhavemercy Wednesday, September 12, 2007

     I was referred to a neurologist that specializes in migraines.  However, once i called the office, i was told that they didn't handle our insurance company........ugh...Cry I remembered a neurologist that was called in to consult...when I was hospitalized in 2004.  He seemed knowledgeable and compassionate....*he has migraines*....THIS is huge for me/us....

   So, we *DD* and I have an appointment the 17th of next month....I hope that we can hold out til then.  I sense that our GP is losing patience with us.  I like him...he does communicate with us...and tries to listen.  However, he is reluctant to allow my daughter to take a narcotic type of analgesic.  Triptans...so far...have little effect for her.  She and I have both weaned off of a preventative...Topamax.  We had a series of side-effects that just wasn't out-weighed by the benefits of the drug. ( i am so thankful that many are helped by this drug...i have a 4 yr old niece that takes topamax...for the migraines caused by Chiari malformation)  

     We are still having migraines almost every day.  Thankfully, my daughter's boyfriend is very compassionate and helpful.....  About 3 weeks ago, my daughter experienced a series of seizures...while with her boyfriend.  He, wisely, brought her to the ER.  When the ER dr. was informed of her meds....he was not aware that seizure could be a side-effect....*where's the PDR here...?????*  Since this episode, we have spoken to 3 different pharmacists...who all verify that seizure is a possible side effect....once a "saturation level" is reached in the system.  Now when we met with our GP dr.  his comment was "it's an ANTI-seizure drug"  ......ok, i really, really did know this ...Blink

    Well...i've whined and complained enough....

Hugs to all....May you all find peace todayHeart .........   j
 

I am encouraged...
By lordhavemercy— Last Modified: 09/04/10, First Published: 09/12/07