My daughter just turned 15 and has never had a migraine until 2 months ago. She has been diagnosed with complicated migraine. She has had almost every test possible from a CT scan, lumbar pucture, EEG, MRI,EKG and chest x-ray and a variety of blood tests. She also had allergy testing, showing some food and environmental allergies. During her first series, the migraines clustered for 6 days straight, then off and on since. She has the aura and we have been told not to take estrogens and triptans as they can increase her risk of stroke.Her migraines lead to complete paralysis for 1 1/2-2 1/2 hours, then it leaves her exhausted and achy for several more. She is 14 days migraine free!!! She is on Cyproheptid (which helps with allergies also), CoQ 10, B2, Magnesium (we separate the Mg and Ca) a multi vitamin (she takes her supplements in 3 divided doses during the day)we have eliminated certain foods and she had a bite plate made for night when she sleeps. We also think...not sure... that they could be tied into her cycles. She is now also doing an independent study program from home, which allows her some flexibility.I know it has only been 14 days, but we every good day we can right now. I also know it is different for everyone, but I hope sharing this has helped in some way.
I am sorry your daughter is suffering. I want to let you know there is hope! Migraine is a genetic neurological disease. As of now, there is no cure, but with the right treatment plan, it is possible to cut down the frequency and maybe even the intensity of Migraine. According to the International Headache Society, "complicated Migraine" is not a proper diagnosis. Many doctors use that term for any Migraine more complicated to treat then just Migraine or Migraine with Aura. We have a listing of all types of Migraine on our site: HERE.
Also, please take a look at our Patient Recommended Migraine and Headache Specialists. With the symptoms your daughter is having, she needs a specialist. See our article explaining why Migraine Specialists are so special: HERE.
I am happy to hear that your daughter has had 14 days Migraine free! That is wonderful!!!
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Eileen GrayMyMigraineConnection.com Expert