Tuesday, February 14, 2012

Migraines are making it difficult to live my life

Written by

S LV

S LV

Tue, July 22, 2008

I'm 25 years old and have been living with migraines for nearly my entire life.  I've had them as far as I can remember, which is about 4 years old.  Fortunately, as a child I got migraines only occassionally, and like most migraine sufferers I quickly learned to cope with chronic/daily headaches, which were not nearly as bad as the migraines. 

 

About 2-3 years ago I noticed my migraines worsening and eventually found my way to a neurologist who specializes in migraines.  To my relief, he was quickly able to diagnose and treat the cause of my chronic headaches--occipital neuralgia.  I now take lyrica, which works great.  The pain caused by the occipital neuralgia, also, seemed to increase the frequency of my migraines, but it is clearly not the only cause.  I am now on an antidepressant and I have tried a variety of antiseizure medications, which help prevent migraines, but have terrible side effects that I just can't live with. 

 

I don't know which is worse, not being able to get out of bed because of the migraine symptoms or feeling either too tired or out-of-my mind to do anything because of the medications.  Recently, I was in a position where I was out of work for a few months, and I found myself feeling well more days than not and was able to enjoy my life.  Now that I'm back working, albeit less than before, I am finding myself back in a situation where I feel too sick most days to do my job properly and many times can't even make it to work.  When I do feel well, I end up making up for lost work days and missing out on spending time with my fiance. 

 

Ideally, I think it would be best for me to work from home part-time, but we cannot afford for me not to bring home a sizeable paycheck because we have all kinds of bills, especially with upcoming wedding and new house.  I cannot think of a winning solution so that I can feel well more often and be able to both spend time with my fiance and work.

 

Does anyone have any advice?!

7/22/08 11:38am

Since you didn't mention where you work or what you do, this is kind of general.

 

If you work in an office and on a computer, there are a couple things you can do.  First, get an anti-glare cover for your computer screen.  Second, if you have flourescents in your office, see if they can turn off the one above you.  There is also something available called a Cube Shield which blocks light and noise.

 

It is also important to have a survival kit at your desk, things like cold packs (try Be Kool for Kids), all your medications, sunglasses, peppermints (for help with nausea)

 

I have to say, I understand where you are coming from.  I work from home full time, and I still have near daily migraines.  I don't even think I could go back to working in the office.  I also believe if I wasn't working full time, I would have a lot fewer migraines.

 

Don't give up on preventives either.  There are over 100 medications for migraine prevention, so the right one is out there for you.  And by right one I mean something that controls your migraines without all the awful side effects.

 

Good luck Smile

7/22/08 2:51pm

Hello, and welcome to MyMigraineConnection.com!

 

We are glad you found our site. Not all "specialists are created equal. Neurologists may be fine doctors, but Migraine specialists devote their entire practice to treating patients with Migraine disease and headache disorders. These doctors are on the cutting edge of treatment options and diagnostic tools. For our patient recommended doctor list, click HERE.  Think of it this way, when you break a pipe under your kitchen sink you call a plumber, the expert. You could call a carpenter who can fix the pipe, then fix the cabinets, paint the room and so forth. Neurologists treat so many different conditions it is hard for them to be experts in any one area. A Migraine specialist is just that - an expert treating only Migraines and headache disorders. Migraine and Headache Specialists - What's So Special? 

  

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. We hope to see you there where you will find lots of support. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

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