Hi,
I'm new to this forum, however, I wish I could say that about experiencing migraines. I am now 44, and have been contending with them since I was 18. I managed to complete my 21 year military career in 2003. I was doing very well upon retirement and had gone quite some time until "it" came back. However, I have not been so fortunate for the past two years, they have become a very familiar and frequent occurrence.
My health insurance is Tri-Care - which is so adequately named at times - Try To Get Care as I refer to it. Needless to say, this has probably contributed somewhat to my frustrations...but I persist.
I began my path to treatment in 2004, with my primary care physician, who did not want to treat me for my headaches and insomnia. I then changed primary care physicians in 2005, and received good treatment. My doctor prescribed various rescue meds, and in 2008 referred me to see a neurologist due to the migraines. I was having many side effects attempting to take Topamax, and experienced tachycardia with Imitrex.
I'm currently seeing a neurologist, just recently having completed a sleep study, MRI and CAT scans. All tests came back with no abnormalities. I began the process of trying to find the right medication combination to 1) prevent future migraines and 2) to have a rescue medication. I've pretty much run course on triptans - and have expressed my intrepidation after the tachycardia incident, accompanied with my family history of heart disease.
I have missed many days of work in the past three months, as all I want is the coldest, darkest, and quietest place I can find on earth to crawl into. I've missed 2-3 days per week for the past month or so.
I was placed on an entirely new regiment of medications last week (Nov 12) to "stop the cycle" as the RN informed me. This included predisone, Amerge, increasing gabapentin, phenegran and lortab for rescue. I have complied with the instructions of what to take and when, and today when I contacted my neurologist office - well the "wheels came off" between his RN and I.
First, I was accused of taking too much medication, after which I went drug by drug, doseage by doseage with the calendar to indicate to her that I had only taken what had been given. I then got an apology for that "misunderstanding" and she would confer with the Dr. and get back with me.
I waited approximately 4 hours, with my headache intensifying, no more rescue meds, and called back. The second call resulted in an increase in my gabapentin. I informed the RN, I was experiencing a pretty significant amount of pain, and it was getting very difficult to cope with the searing pain in my head. She told me she would consult with the Dr and get back with me.



Hi there.....I am a frequent miagraine sufferer as well as a critical care nurse. I work very closely with several neurologists who treat miagraine suffers. I get to see the ins and outs of sufferers almost every day. I must say it is very easy to become frustrated with the medical team.....however, don't get too worked up due to your pain. The pain can cause you to lose that sense of right and wrong. I unfortunately understand both sides of the fence. I know for me suffering from my miagraines renders me unhuman....in every aspect of my life. I cannot eat, drink, think, sleep, or talk. My mind is a temporary cloud of insanity. Expecting ANY human who does not experience YOUR type of headaches (this includes fellow miagraine ssufferers, too) will only add to your cloud of insanity. I find for myself to ONLY talk to my doctor when I am lucid and free from a miagraine. This will portray of picture of being "All wrapped up, and fine looking." In other words, "she seems OK, not a nut job at all!" Please have your signs ans symptoms on a piece of paper, highlighting the most serious ones. Also have an excuse on how this effects you from living your life. I find the more info I give the doc on paper the more time I get to discuss what I need in terms of meds. I know this is a terrible system to have to have shortcuts to get what you need. I am terribly sorry that you did not get the response you needed from the docs office. Don't give up.....see if there is some type of EMERGENCY plan you can devise with him. You will only use this plan in dire straits. This may seem fruitless to you, but you may be surprised the way you are received it in. You may find him receptive to this and a emergency plan my ease your miagraine pain at the most severe times. Having a plan alleviates the "I am in so much pain,,,,I NEED HELP NOW mindset." Good luck! I hope some of my methods will help!
Kim,
Thanks so much for sharing your words of wisdom and advice. It definitely put things into a perspective for me, and provided areas where I can improve on my relationship with the neurologist. Your tip on how it impacts my life - is something I completely missed today - I could have articulated it much better than I did.
I am organized and have things written down to discuss during my normal scheduled appointment. However, today - I was not the same lucid person on the end of the phone, who sat in the office.
Again, thanks for your comments.
Carol
Carol,
I too am a migraine sufferer - have been for about 20 years. I went through a period about ten years ago when I literally had a migraine for about 18 months straight. I was an attorney and had to leave my job. Anyway, when i was at my wit's end - in pain and not getting help from the medical professionals- I went to the Diamond Headache Clinic in Chicago. It saved me. They check you in-patient and really understand migraines. My headaches are a little more manageable now and I got sick of having to go to Chicago for medical care so now I see Stuart Stark at the Neurology & Headache Treatment Center who I love. He's in Alexandria and I highly recommend him. Anyway, just thought I would throw out those ideas. Know you are not alone and I hope feel better!
Tracy Mulroy
You said that your good Doc is in Alexandra. Is that in Minnesota? Sorry if i mis spell, head pain makes it hard to think. Thank you,
Denise
P.S. What does the good Doc do for you. I take percocet and my Doc wants me off and I can understand that because it causes rebound headaches. But it gives me a day. My primary care wants me to find a migraine clinic to go to. I think he is getting sick of me.
Denise,
Sorry - I should have said Alexandria, Virginia. He and the Diamond Headache Clinic both put me on preventative drugs - Topomax, an unusual antidepressant (Vivactil), 2 blood pressure meds. They also use DHE when I have a severe headache -it is nasty stuff - but it works every time. Also, imitrex and that whole class of drugs. They also have me on over-the-counter Magnesium. I can no longer take DHE or imitrex because I had a heart attack. So now I take Fiorinal with Codeine and Zofran when I get a migraine. I also get trigger point injections in my neck. They also sometimes give valium or some muscle relaxer.
I learned the hard way that the best way to manage migraines is with a migraine specialist - someone who really gets it. I don't think a GP should be managing migraines in a case as severe as yours - I know it didn't work for me. I really hope you feel better and get some relief soon!
Best,
Tracy