Hello all - so nice to know I'm not alone.

I've suffered from migraines since I was a child. Over the past 5 years the headaches have increased in frequency. As of the summer of last year I started enduring migraines that last weeks on end. I've been through the gamout of preventive medications and they are not working any longer. I've gone weeks without medication to prove they are not rebound headaches and let me tell you that really can be fun. I've done 3 rounds of IV DHE therapy. The first two times worked to break the headache. Then I would be headache free enough to return to work and lead some kind of a normal life, or I should say try to get back to a normal life only to have a headache return. This last time, started Feb 4, same round of stuff: meds, prednisone, then DHE. But 5 days of DHE and the headache hasn't broken. I find the headache is like a 3 then sometime during the day will slam me.

As you all know so much time spent dealing with severe migraine puts you in bed, you don't eat, sleep, exercise, anything right. So of course everything gets out of wack. Now my job is also a very real concern.I've tried to stay upbeat but the depression finally really got me this time. Just really hard, as you all know. I'm waiting for an appointment with John Hopkins in Baltimore. Curious if anyone has any experience with them?

I decided it was time to talk to people who could understand what I'm going through so I found this. And right now just reading some of these stories and knowing that others out there actually suffer for weeks as I do is almost comforting. I don't wish this disease on anyone in the world but to know I'm not alone is a blessing.

Thanks