I've suffered from migraines since I was a child. Over the past 5 years the headaches have increased in frequency. As of the summer of last year I started enduring migraines that last weeks on end. I've been through the gamout of preventive medications and they are not working any longer. I've gone weeks without medication to prove they are not rebound headaches and let me tell you that really can be fun. I've done 3 rounds of IV DHE therapy. The first two times worked to break the headache. Then I would be headache free enough to return to work and lead some kind of a normal life, or I should say try to get back to a normal life only to have a headache return. This last time, started Feb 4, same round of stuff: meds, prednisone, then DHE. But 5 days of DHE and the headache hasn't broken. I find the headache is like a 3 then sometime during the day will slam me.
As you all know so much time spent dealing with severe migraine puts you in bed, you don't eat, sleep, exercise, anything right. So of course everything gets out of wack. Now my job is also a very real concern.I've tried to stay upbeat but the depression finally really got me this time. Just really hard, as you all know. I'm waiting for an appointment with John Hopkins in Baltimore. Curious if anyone has any experience with them?
I decided it was time to talk to people who could understand what I'm going through so I found this. And right now just reading some of these stories and knowing that others out there actually suffer for weeks as I do is almost comforting. I don't wish this disease on anyone in the world but to know I'm not alone is a blessing.
Thanks
Hello, and welcome to MyMigraineConnection.com!
It can certainly feel like you are all alone being in chronic pain, but Rest assured, you are not. You've come to the right place for support and information.
Another piece of good news is that while it may feel like you have tried every medication out there, that really isn't possible. This article will give you a better idea of what I mean: Migraine Preventive Medications - Too Many Options To Give Up!
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. You can also sign up for our free newsletter about Migraine disease and headache disorders on the home page in the upper left hand corner.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy Bonk
MyMigraineConnection.com Expert
PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!