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Untitled Comment
Nancy Harris Bonk
Friday, January 09, 2009 at 01:54 PMre: Sandomigran
Patricia
Monday, January 12, 2009 at 04:59 PMThank you for replying to me. I have a question regarding Sandomigran, why is it not used in the U.S. anymore? This concerns me greatly. It is not doing a darn thing for my son and I will be telling the neurologist that tomorrow. Thank you for stressing the important of Migraine Specialists as well. I now know that neurologists are not the only doctors to seek out. Sincerely, Patricia
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Untitled Comment
sammiis16
Friday, January 09, 2009 at 09:38 PMYes i have daily migraines and im only 17 1/2 years old , I know that when I was put on a medication called topomax it changed my attitude and my outlook on life , also I was unable to focus. topomax is also known by some neuologists as dopomax. I would immidiately contact my Neurologist if i was acting differently , or if the medication made me feel physically ill.please feel free to email me back , im not an expert but I am in the same situation with the pain.
re: Daily Migraines
Patricia
Saturday, January 10, 2009 at 10:13 AMThank you for e mailing me. You are so young to have to deal with this. I will take your info. to the neurologist this coming Tues. I have been told by her nurse she is going to change his medication. Tomorrow he is having an MRI. What country are you in? We are in Ontario, Canada. Take care and I hope the topomax continues to work for you. Patricia
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child with migraines
Migraine Mom
Sunday, January 11, 2009 at 10:20 PMI too have a child (now a young woman) with migraines. There are many causes and many treatments and this makes it difficult because what works for some does not work for others. And what works for a while, may stop working and then you are back at square one. The best advice I can give you is to educate yourself. Go on line and learn about all the different classes of drugs used to treat migraines, the benefits, the side effects and use your "mothers intuition". Treating your child will be a collaborative effort with your healthcare provider, and no one knows your child as well as you so it is imperative to educate yourself and be his advocate. I hope he will be pain free soon.
re: child with migraines
Patricia
Monday, January 12, 2009 at 04:54 PMThank you for e mailing me. I am learning to be my son's advocate. Today I wrote out my list of questions for the neurologist tomorrow. I also went to the hospital today and picked up a burned CD of his MRI he had yesterday to give to the neurologist before she goes away for two weeks. This Sandomigran has not done a thing for him in three weeks. In fact, I think he is worse on it. I will be telling the doctor that. I hope your daughter is doing better now. I thank you for reinforcing to me to keeping trying. Our kids deserve to have happy, functional lives. Sincerely, Patricia
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Hello, and welcome to MyMigraineConnection.com!
Pizotifen aka sandomigran, an anthihistamine sometimes used for Migraine prevention for children. Have you spoken to your doctor about your sons change in behavoir? That may be your first step, letting him know your son cannot tolerate being miserable and in pain. Don't give up hope though, there are many options left to try for your son.
Here's the thing - - neurologists/pediatric neurologists may be fine doctors, but rarely have the time to specialize in Migraine and headache disorders. Migraine specialists do just that - treat people with Migraine disease and headache disorders only. They get extra schooling in this area, take extra continuing medical education courses and attend scientific conferences to be on the cutting edge of Migraine treatments and daignosis. For more information, continue reading: What's So Special About Migraine Specialists? Sandomigran is no longer available in the US, I suspect you may be in CA or the UK. We do have Migraine specialists listed on our patient recommend list from outside the US you may want to look into. You can see that list HERE.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy BonkMyMigraineConnection.com Expert