Is there anybody who is familiar with chronic daily migraine? This is what my son is being treated for. He is on Sandomigran now for two weeks and still has an ongoing migraine. He is short tempered and different acting on this drug. So far I don't like it. The migraine is still there and his stomache feels sick all the time. Can anyone help? Thank you. Patricia
Yes i have daily migraines and im only 17 1/2 years old , I know that when I was put on a medication called topomax it changed my attitude and my outlook on life , also I was unable to focus. topomax is also known by some neuologists as dopomax. I would immidiately contact my Neurologist if i was acting differently , or if the medication made me feel physically ill.please feel free to email me back , im not an expert but I am in the same situation with the pain.
Thank you for e mailing me. You are so young to have to deal with this. I will take your info. to the neurologist this coming Tues. I have been told by her nurse she is going to change his medication. Tomorrow he is having an MRI. What country are you in? We are in Ontario, Canada. Take care and I hope the topomax continues to work for you. Patricia
I too have a child (now a young woman) with migraines. There are many causes and many treatments and this makes it difficult because what works for some does not work for others. And what works for a while, may stop working and then you are back at square one. The best advice I can give you is to educate yourself. Go on line and learn about all the different classes of drugs used to treat migraines, the benefits, the side effects and use your "mothers intuition". Treating your child will be a collaborative effort with your healthcare provider, and no one knows your child as well as you so it is imperative to educate yourself and be his advocate. I hope he will be pain free soon.
Thank you for e mailing me. I am learning to be my son's advocate. Today I wrote out my list of questions for the neurologist tomorrow. I also went to the hospital today and picked up a burned CD of his MRI he had yesterday to give to the neurologist before she goes away for two weeks. This Sandomigran has not done a thing for him in three weeks. In fact, I think he is worse on it. I will be telling the doctor that. I hope your daughter is doing better now. I thank you for reinforcing to me to keeping trying. Our kids deserve to have happy, functional lives. Sincerely, Patricia
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Hello, and welcome to MyMigraineConnection.com!
Pizotifen aka sandomigran, an anthihistamine sometimes used for Migraine prevention for children. Have you spoken to your doctor about your sons change in behavoir? That may be your first step, letting him know your son cannot tolerate being miserable and in pain. Don't give up hope though, there are many options left to try for your son.
Here's the thing - - neurologists/pediatric neurologists may be fine doctors, but rarely have the time to specialize in Migraine and headache disorders. Migraine specialists do just that - treat people with Migraine disease and headache disorders only. They get extra schooling in this area, take extra continuing medical education courses and attend scientific conferences to be on the cutting edge of Migraine treatments and daignosis. For more information, continue reading: What's So Special About Migraine Specialists? Sandomigran is no longer available in the US, I suspect you may be in CA or the UK. We do have Migraine specialists listed on our patient recommend list from outside the US you may want to look into. You can see that list HERE.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
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Welcome again,
Nancy BonkMyMigraineConnection.com Expert
Thank you for replying to me. I have a question regarding Sandomigran, why is it not used in the U.S. anymore? This concerns me greatly. It is not doing a darn thing for my son and I will be telling the neurologist that tomorrow. Thank you for stressing the important of Migraine Specialists as well. I now know that neurologists are not the only doctors to seek out. Sincerely, Patricia
To the parent of the 12 year old w/chronic migrains. How did it effect schooling? And he missed alot of school what did you do? Who was there in your defense? My son is 16 and has migrains at least 2-3 times a week. some needing ER help. He has missed alot of school because of his migrains.
Hello Mike,
My son is now 13 1/2. He missed most of grade seven. The school board approved a teacher to come to the home four hours a week. As for support/defense it has been a long haul. Most people don't understand. Even my son's neurologist believed he could attend school more than he did and persevere with the pain. The teacher who came to the house saw how barely he functioned. Sometimes she could only stay 20 mins. on a read bad day. After two years of drug trials, we have finally stumbled on one that has helped. This is taken nightly and to get him through grade eight, he will stay on it the whole acedemic year. He has missed about 10 days since September, but for him that is amazing. Watch for depression. With chronic pain, depression often follows. You need a doctor's support to write a letter to your son's school. You need to meet with the vice-principal and explain how chronic and serious migraines can be. My best line I tell people now is: for every ailment there is always going to be individuals who suffer from an ailment to the extreme. Yes, there are many people who get migraines, but our sons get them to the extreme. Migraines are not headaches!!! Stand by your son and be his advocate--a photograph of him when he is sick tells a thousands words to some people who don't understand (migrainers always get those awful eyes and pale skin). Please contact me if you want any further info. We live in Canada. Take care.
My 13 year old daughter had only gone to three weeks of seventh grade when she suddenly developed horrible debilatating migraines. She has not gone to school most of the school year. We are trying so many different drugs. First, Elavil. It worked. Took it everyday. It was a preventative. She is also an insomniac and has been for about three years. Doc RX'd Trazadone as well to help with sleep. My daughter was so drugged up feeling horrible during day. Could not concentrate, or feel like she was fully awake. Yet, still remained insomnia. Then, we DC'd the Elavil and the Trazadone, to get her to not look and act so drugged up. Took her to the ER. Attending ER Doc said, have PCP try her on Maxalt, to be used only when feel migraine coming on. She did as instructed, it did work. Still continued to have headaches thru out day, but not migraine. Doc RX'd ambien for insomnia. She slept thru the nite, no stirring and for at least six to seven hours. She is groggy from the Ambien. And still cannot get up in morning to go to school. She was a TAG student, worked above her grade level since first grade. Good, courteous student. Well liked by everyone. Close to me, her mother. Now she is quiet, irritatable, non communicative, not the same child. Depression set in hard. She is now on Celexa. Says she does not feel happy at all. After taking Celexa for two weeks now, no change. She was just taken off the Nuvaring for extremely heavy menstrul bleeding. Doc thinks maybe the hormones are aggravating migraines and affecting her moods. Gosh, at this point, I just want my daughter back. She is too young for all these drugs. Dear Lord, I pray every night things will change. It has been nine months. She won't meet my eyes and most days does not want to join in on family time. She says she is constantly feeling like Hell and tired. Someone else out there have same issues???