DHE IV TREATMENT

msmigraine Community Member September 16, 2007
  • I have been having problems with MOH headaches.  I have also been diaganosed as having refractory headaches which are those that do not respond to treatment...yay for me!!  I was told by my new neurologist that the next migraine I get I should come to his office and get about a 45 minute DHE IV treatment.  I have read other posts on this site and there is a lot of talk about this being a 3-4 day treatment.  Are there different types of this? Blush My dr. told me that I need to limit the use of imitrex to try to get rid of the MOH headaches, but this is so hard, due to almost daily headaches.  Last week I ended up going to the clinic and getting a shot of toradol and an anti nausea shot.  This broke the migraine cycle for 4 days, but today I got a migraine.  Of course it's a Saturday and my doctor is the only one in my area who does this...the ER doesn't, so I just took an imitrex.  I'm crossing my fingers that I can make it through the weekend without another headache.  I have read that many people have nausea issues with this treatment so I'm kind of anxious, but if It can break my headache cycles it's well worth it. 

    SarahBig Smile

9 Comments
  • lori
    Sep. 21, 2007

    A very good alternative for DHE is STEROIDS/Cortizone!!!

    Youre Dr can give you an injection of it and then there is a 6 day pill pack of steroids that you take for one week and it works extremly well!

    Ive been getting headaches daily and I was stuck in a rebound cycle or MOH b/c I was taking imitex every day.

    My dr first gave me a steroid injection...

    RHMLucky777

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    A very good alternative for DHE is STEROIDS/Cortizone!!!

    Youre Dr can give you an injection of it and then there is a 6 day pill pack of steroids that you take for one week and it works extremly well!

    Ive been getting headaches daily and I was stuck in a rebound cycle or MOH b/c I was taking imitex every day.

    My dr first gave me a steroid injection and then I took the steroids in a 1 week pill pack. You start by taking 24 mg on the first day and then every day you decrease the dose by 4mg so by the last day you only take 4 mg.

    I was completely headache free by day 1!!!

    Those of you who were as hopeless as I was, dont give up and ask about this drug.

     My dr also has me on Pamelor as a preventative (after I broke my rebound cycle with the steroids) and so far no complaints.

    ~Lori

     

    • msmigraine
      Sep. 24, 2007

      The steriod injection and pills didn't bring on any type of rebound?  I will definately have to check into this.  Thanks for the info.

       

      sarah

    • lori
      Sep. 24, 2007

      The steroids do not bring on any rebound, in fact it was given to me to pull me out of the rebound phase I was going through.

      Most doctors don't like to prescribe this medication since they say its a very strong drug and has side effects if you take it for too long but all you really need is the one week pack I mentioned-...

      RHMLucky777

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      The steroids do not bring on any rebound, in fact it was given to me to pull me out of the rebound phase I was going through.

      Most doctors don't like to prescribe this medication since they say its a very strong drug and has side effects if you take it for too long but all you really need is the one week pack I mentioned- and that has no side effects. And if you can get an injection of  the steroid too like i did, I think that helps a lot too since i was feeling better by the next morning (even before i started the pills.) And im sure its a stronger dose when its injected and stays in your system longer.

      Ive been off the steroids for one week now and i cant tell you how much better i'm feeling.  Im also taking 50mg of pamelor every night as a preventative.

      good luck, hope it helps. :)

       

    • Anonymous
      Chloe
      Oct. 11, 2009

      I've been having clusters for the last 5 years. My idea of a good week is on where I have maybe one headache free day. I am very lucky that both my primary doctor and the ER work with me with IM and IV treatments. I've been to ER's where the treatment of choice (after a 15 hour wait) was IV saline and IM Benydryl. (If I wanted Benydrl, I would have gone to...

      RHMLucky777

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      I've been having clusters for the last 5 years. My idea of a good week is on where I have maybe one headache free day. I am very lucky that both my primary doctor and the ER work with me with IM and IV treatments. I've been to ER's where the treatment of choice (after a 15 hour wait) was IV saline and IM Benydryl. (If I wanted Benydrl, I would have gone to Rite Aide.)

       

      I've been going to the Headache Clinic with UC/ San Francisco; Dr. Goadsby is treating me. I've been having occipital nerve blocks for the past year and they have worked well in that they can give me two weeks befor starting my headaches up again.Doesn;t hurt but you can hear it going in, which is tather odd feeling. I do have to have a driver, but then, I need a driver for almost anything I take IM.

       

      Morphine and Demerol/Diladid haven't worked for about three years. Indomethazine works great except is makes me throw up; there are indomethazine suppositories that are immensely helpful, but they do make me sleepy.

       

      Imitrex is another dandy one, except if make me feel like I've been lit up by a blowtorch. I've even rigged the self-injector so that I'm getting 3 untis instead of six and I still get that blowtorch effect, which is as bad as the headache. If I could get a smaller dose, I think that might help.

       

      I was on Lithium for a very short while; it is a great drug for many people but it only mad me want to kill myself. I have tanks of O2 with a non-rebreather mask. That will give me relief 1:30 times--enough that I keep trying.

       

      I go into hospital next week for a ten day DHI IV treatment--every eight hours. I'll be in a cancer hospital where the medical professionals are highly skilled with the picc line and controlling nausea.

       

      I hope for the best. I did have a good 20 year run with no headaches at all, so ever the optimist, I think I have a good chance of getting some good results.

  • Aprilheather
    Sep. 21, 2007
    I read your concerns about DHE.  It can be very effective.  I've had several different treatments of DHE--infusion lab, hospitalization, doc's office, and also the at-home injections--either way, DHE makes me sick, sick, sick!  It does stop the migraine, though.  I've had lidicaine shots in my head which did not work at all. ...
    RHMLucky777
    Read More
    I read your concerns about DHE.  It can be very effective.  I've had several different treatments of DHE--infusion lab, hospitalization, doc's office, and also the at-home injections--either way, DHE makes me sick, sick, sick!  It does stop the migraine, though.  I've had lidicaine shots in my head which did not work at all.  If you could do the shots at home--that's the best alternative I've experienced.
  • Nancy Harris Bonk
    Sep. 16, 2007

    Hi Sarah,

     

    Sadly, if you are still taking too much Imitrex, which can cause MOH, any preventive medication will not work. This means more than 2-3 days during a one week period.

     

    There are a few different in-office options doctors have available: IV Therapy for Refractory Headache and IV Lidocaine.

    I've tried IV therapy with succes...

    RHMLucky777

    Read More

    Hi Sarah,

     

    Sadly, if you are still taking too much Imitrex, which can cause MOH, any preventive medication will not work. This means more than 2-3 days during a one week period.

     

    There are a few different in-office options doctors have available: IV Therapy for Refractory Headache and IV Lidocaine.

    I've tried IV therapy with succes on a number of occasions to break a Migraine cycle.

    Good luck and feel well soon.

    • jennyc
      Sep. 16, 2007

      Hi Sarah!

       

      I've had experience with the IV DHE.  I had it in the infusion clinic at the hospital near my headache specialist's office.  They gave it to me as a series of IV "pushes"--they had an IV in my arm with no fluid running.  Every few hours, they brought a syringe and "pushed" a little bit of DHE into the...

      RHMLucky777

      Read More

      Hi Sarah!

       

      I've had experience with the IV DHE.  I had it in the infusion clinic at the hospital near my headache specialist's office.  They gave it to me as a series of IV "pushes"--they had an IV in my arm with no fluid running.  Every few hours, they brought a syringe and "pushed" a little bit of DHE into the IV.

       

      The nurse at the clinic told me that this way of giving it is unusual.  I understood her to say that typically they hang an IV bag with the DHE inside and give X amount of medicine over X period of time...obviously I'm not a doctor, so I'm not sure if this is really true!!

       

      Just a little note:  I absolutely needed a nausea medicine along with the DHE.  From everything I've read, nausea is a very common side effect to this medicine. 

       

      I also use DHE at home as my abortive.  I use a needle and inject it...It's been VERY helpful to me!!

       

      You may want to ask your doc if you will need a ride home after an infusion like this.  I know the nausea meds they gave me made me VERY sleepy and I could not have driven myself!!

       

      jenny

    • msmigraine
      Sep. 24, 2007

      Is the injection pre-drawn like the imitrex shot, or would I need to prepare it myself?

      Do you use it the same....just at the onset of the migraine?

      sarah

    • jennyc
      Sep. 24, 2007

      Hi Sarah!

       

      The DHE comes in vials.  You break open the glass vial and pull the liquid into an empty syringe for injection.  (In other words, you do have to prepare it yourself!)

       

      My doctor instructed me to use DHE at the onset of migraine, but she also told me to try it even if I am well into an attack--for some people, DHE will still...

      RHMLucky777

      Read More

      Hi Sarah!

       

      The DHE comes in vials.  You break open the glass vial and pull the liquid into an empty syringe for injection.  (In other words, you do have to prepare it yourself!)

       

      My doctor instructed me to use DHE at the onset of migraine, but she also told me to try it even if I am well into an attack--for some people, DHE will still abort the migraine even mid-attack.

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