On October 18, 2004 I woke up with a migraine. After two weeks the headache had still not gone away so a neurologist put me in the hospital for a DHE treatment. I started to feel a little better, but the second day in the hospital I had a dystonic reaction to compazine, an anti-nausea drug. The nurse did not believe me when I told her something was wrong so for 5 hours I slowly went down hill. I stopped breathing and the nurse finally gave me something to reverse the dystonic reaction. After that hospital stay I never felt better. For four years I didn't really get out of bed. I only went to a total of 3 months of my senior year of high school. I was not able to finish college. I was hospitalized multiple times to try and get my pain under control. Nothing ever worked. I saw 4 different neurologists, 3 neurosurgeons, and a ton of other doctors. I tried traditional medicine and alterative medicine. No one could find a reason for me to be hurting like I was. When I was 18 one "headache specialist" told me that I was going to hurt forever and there was nothing I could do. He told me to just drop out of school and that I should just get over my pain. Another neurologist told me that I should se a pshyciatrist because the pain was all in my head. In June of 2008 a chiropractic intern finally gave me some relief and until September of 2009 I was doing pretty well. My headache pain stayed around a 1 or 2, but since September my pain has not gone below an 8 without opioid medications.
Hello, and welcome to MyMigraineConnection.com!
I'm so glad you found us. You are in luck because you live in the same state that a wonderful Migraine specialist lives in, and it IS time to see one - the sooner the better. You have suffered too long and it is time to try and end it. Any doctor who told you it was "all in your head" " and something you have to live with" is full of nonsense. You don't have to live in pain all the time, nor should you.
Now that it is time to fire your current neurologist (or whomever!) you can find a "true" Migraine specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy BonkMyMigraineConnection.com Expert