Husband with headaches and passing out

jilliansmama Community Member May 11, 2007
  • Back in November, my husband started compaining of a headache.  The headache never went away.  He passed out, and when he came to, he started having what I thought was a seizure.  His whole upper body was contracting, and he looked like he was doing sit ups.  We took him to the hospital, and they did lots of tests on him.  They sent us home 4 days later and said that they didn't know what was going on, but said that they "thought" he was having non-epileptic seizures.  They sent him home on Keppra.  My husband ended up losing his job over this.  We had no insurance, and could not afford the medicine.  He took the medicine for about a month, and then wheened himself off.  He has been headache free since then, until this past MOnday.  He started complaining of a headache, and it wouldn't go away.  He eventually passed out.  He went to the doctor, and the referred him to a neurologist.  However, the neurologist could not get him in until July.  He passed out three more times, so we took him to the ER.  Again, he was in the hospital for 4 days.  They did a CT scan, Echocardiogram, EEG, EKG, and MRI on him.  They said his heart looked fine.  He was supposed to have a neurologist come look at him, but they never did.  They sent him home and told him to follow up with the cardiologist, and to keep his appointment with the neurologist.  We got his records and the only thing that they said they saw on the MRI was mild sinusitus changes in the inferior of both maxillary sinuses.  They also said there was "probably" a small sebaceous cyst in the right occipital scalp, and the cerebellar tonsils are slightly low-lying with the tips just below the foramen magnum.  We have not found out anything concrete about what could be going on with my husband.  He is still suffering with his headache.  They were giving him 2 750 mg Vicodins every 6 hours to help control his headaches.  So, does anyone have any advice?  Has anyone ever experienced this?  Does anyone know what is going on?
7 Comments
  • Teri Robert
    Health Guide
    May. 12, 2007

    Hello, and welcome to MyMigraineConnection.com!

    I'm so sorry you and your husband are going through so much. If I were in your position, I'd be contacting the hospital administrator about the neuro consult not happening. He should never have been discharged without it, especially with his appointment so far away.

     

    Passing out with headaches is not...

    RHMLucky777

    Read More

    Hello, and welcome to MyMigraineConnection.com!

    I'm so sorry you and your husband are going through so much. If I were in your position, I'd be contacting the hospital administrator about the neuro consult not happening. He should never have been discharged without it, especially with his appointment so far away.

     

    Passing out with headaches is not common and always needs to be thoroughly checked out.

     

    I wish I could tell you more, but we're simply not qualified to give medical advice, and really, even doctors can't do much online beyond suggesting what to discuss with your doctor. Someone should have explained the MRI results to you. That's a good place to start. Have the hospital give you copies of both the MRI films and the report to take to his neurologist appointment. That will give you a head start at that appointment. It certainly couldn't hurt to take the reports from all his other tests too.

     

    Obviously, he can't continue with this headache until July. Can your family doctor help? Did your family doc set up the neruology appointment? He might be able to get you in more quickly. Also, you might try calling the neurology office and asking to be put on the cancellation list in case an earlier appointment becomes available.

     

    Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

    We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

    Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com.


    If you have any questions, please feel free to post them to the forum or send me a message through my profile.

    Welcome again,

    Teri Robert

    MyMigraineConnection.com Lead Expert

     

    PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

  • Anonymous
    Danny
    Nov. 23, 2011

    My wife has the same problems that yall are taking about. She has been dealing with this since she was 16. Back when she was 16 she was diagnosed by a childrens doctor with innercranial hypertension-which is where there is to much fluid up in your skull. When she was through the ages of 16-20 she was passing out from these headaches/migraines up to 6 times...

    RHMLucky777

    Read More

    My wife has the same problems that yall are taking about. She has been dealing with this since she was 16. Back when she was 16 she was diagnosed by a childrens doctor with innercranial hypertension-which is where there is to much fluid up in your skull. When she was through the ages of 16-20 she was passing out from these headaches/migraines up to 6 times a day. This wouldnt happen every day but it would happen often, very often, and i have personally seen her passed out in excess of 2 hours before.We've had all these test as well but yet everything looks fine. They diagnosed her with innercranial hypertension but at the same time they have no cure for innercranial hypertension. Sorry back to my story anyways like i was saying she was passing out up to 6 times a day. Not every day but definately wasnt making it a week without passing out. Now we are married and have two kids together. Our first kid came when she was 20 and while my wife was pregnant with our first child she never once passed out from headaches. and with my second child she only passed out once. So she went from passin out sometimes several times a day to not passing out over the course of 9 months and only once through 9 months with my second daughter. My new daughter is 6 months old and these spells keep coming back and we have no idea what to do now bc every doctor we see says well everything looks fine probably just stress.

     

  • Brenda
    Apr. 13, 2011

    I have been dealing with the same thing.  It is more than my regular migraines that I get and for no reason I will go down for the count.  I really have beat myself up.  I meet with a nuerologist on Thursday but it is my second go around they do all these test and say nothing is wrong, well something is wrong cause you dont just fall down. ...

    RHMLucky777

    Read More

    I have been dealing with the same thing.  It is more than my regular migraines that I get and for no reason I will go down for the count.  I really have beat myself up.  I meet with a nuerologist on Thursday but it is my second go around they do all these test and say nothing is wrong, well something is wrong cause you dont just fall down.  At this point I have had so many test that I find myself a bit discouraged.

     

    • Teri Robert
      Health Guide
      Apr. 13, 2011

      Brenda,

       

      I'm sorry you're having such a tough time. Hope the neurologist you see on Thursday finds some answers for you. But, if not, keep in mind that neurologists aren't necessarily Migraine specialists. Don't lose hope though. There are some great Migraine specialists around if you end up needing one. If that happens, we do keep a listing of Patient...

      Read More

      Brenda,

       

      I'm sorry you're having such a tough time. Hope the neurologist you see on Thursday finds some answers for you. But, if not, keep in mind that neurologists aren't necessarily Migraine specialists. Don't lose hope though. There are some great Migraine specialists around if you end up needing one. If that happens, we do keep a listing of Patient Recommended Migraine and Headache Specialists.

       

      Please let me know how things go on Thursday?

       

      Teri

  • Anonymous
    Anonymous
    Aug. 17, 2009

    Hi I'm experiencing the same thing with my husband.  He's been passing out on the regular. Although my husband just told me that he's had this headache, pressure all his life. He is 31.  It has just gotten worse the last 2 years.  Since then doctors have done the same, CT,MRI, STRESS TESTS, GLUCOSE  CHECKS, HEART MONITOR,EEG,EKG. THEY NEVER...

    RHMLucky777

    Read More

    Hi I'm experiencing the same thing with my husband.  He's been passing out on the regular. Although my husband just told me that he's had this headache, pressure all his life. He is 31.  It has just gotten worse the last 2 years.  Since then doctors have done the same, CT,MRI, STRESS TESTS, GLUCOSE  CHECKS, HEART MONITOR,EEG,EKG. THEY NEVER FOUND ANYTHING WRONG with him. They just said maybe it was stress. He even saw a neurologist and he didn't even catch it.  A neurosurgeon last week, after being hospitalized from passing out at home and in the ER for 4 days, told him he had Chiari Malformation I'm not sure what type (there's like 4). Anyway, they also said he had Sinus infection or sinus disease. He took the antibiotic for that.  But, we're going to get a 2nd opinion this coming friday and a 3rd next month.  It's scary. I'm sorry you're going through this difficult time. If you'd like to talk send me your email.  He hasn't been working like he used to either because of the symptoms. He gets the immense pressureat the back of his head, says that it feels like his brain is going to explode.  The pain pills that they gave him were 10mg oxycontin. He took one and it didn't even help.  He doesn't like pills. He says they only make dizzier.

    • Anonymous
      Anne
      Sep. 29, 2009

      I see that you responded back almost a month ago, but I am hoping you still check this sight.  My husband has been experiencing these headaches/passing out for over a decade.  He has been everywhere and had every test done with them finding NOTHING physically wrong with him.  We have turned to hypnothereapists and intuative healers, still NOTHING. ...

      RHMLucky777

      Read More

      I see that you responded back almost a month ago, but I am hoping you still check this sight.  My husband has been experiencing these headaches/passing out for over a decade.  He has been everywhere and had every test done with them finding NOTHING physically wrong with him.  We have turned to hypnothereapists and intuative healers, still NOTHING.  I would be very interested to hear if either of the persons on this post have gotten a diagnosis or have found anything helpful.  I would be happy to have another ear to talk to, as I know how frusterating this experience can be. 

    • Teri Robert
      Health Guide
      Sep. 29, 2009

      Anne,

       

      Wow. Has your husband been to a Migraine and headache specialist? If your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special?...

      Read More

      Anne,

       

      Wow. Has your husband been to a Migraine and headache specialist? If your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

       

      Is there any information I can find for you? Anything I can do to help?

       

      Teri