Sunday, May 27, 2012

Why are "Barometric Pressure Migraines" not listed in "Types of Migraines"-really bothered

By jhona Friday, January 02, 2009

Had to write email to "comments" asking them to consider adding Barometric Pressure Migraines to their list. These are real migraines, caused by weather, and can be one of the hardest of the migraines to prevent. Treatment is, unfortunately, strong pain meds, blood pressure meds, and in my case anti-vertigo meds. My neurologist of 18 years, who recently passed away and broke my heart, had been trying hard to get migraines listed, identified as a brain disorder, that can be so debilitating that some people cannot hold jobs etc. SSI needs to decide with each different case, whether a person can get SSI for this disorder. They vary to the extreme, some people get one or less migraines a month, then others, like me, have consistantly suffered from 2-3 a month, with the attack typically lasting 3 days. And I am not talking about rebound migraines either, I can easily identify those and take 3 advil for them and that works just fine. Weather: rain, storms, heat waves, what the barometric pressure gauge is, when it dips down below 30, I am on my way to hell for a couple of days. Many people suffer from this type of migraine. In Canada they have a toll free number for people to call to get the pressue gauge, storm predictions etc. This is important if you don't want to have to constantly cancel meetings or appointments. I know 2 days in advance that one of my monsters is on the way. What I don't always know until it hits is how bad it will be this time around. During the worst ones, I medicate but then also put myself to sleep with trazadone, because I simply cannot tolerate the symptoms, and sometimes, even with the pain meds, the electrical storm going on in my head, it cannot be quelled enough by the medication. Due to wonderful and compassionate professors, I managed to get through years of college, even though missing a lot of classes, I always stayed ahead with my work. If the teacher deemed that he/she was not comfortable having me take the final due to being absent so many times, I was always offered to present a relevant paper to write (25pgs) for the grade. Being a good writer, this was a generous offer from them and my stress would deflate immediately. Anyway, this is the first time today that I have been able to sit up long enough to write my input on this topic .I have been in bed for about 3 days now due to a monster migraine that blew in with the storm. Thanks for listening. If there are others out there who suffer from this type of migraine, would you please post? or email me and tell me how you deal with your barometric type migraine, okay?

Teri Robert, Health Guide
1/ 3/09 12:31am

Jhona,

 

Welcome to MyMigraineConnection!

 

"Barometric Pressure Migraines" aren't a type of Migraine. They can be Migraine without aura, Migraine with aura, hemiplegic Migraine, any type of Migraine. Barometric pressure is the trigger for many people. Migraine types are categorized by the type of symptoms and, in some cases, the area of the brrain most affected, not by what triggers them. Otherwise, we'd have food Migraines, sleep Migraines, perfume Migraines, etc. Does that make sense?

 

I'm not sure what you mean about your neuroilogist "trying hard to get Migraines listed, identified as a braind disorder." Do you mean with the Social Security Administration for the purposes of disability benefits? Migraine is considered a genetic neurological disease by most people in the medical community.

 

Some people have been successful in taking Diamox when they know a weather front that is likely to trigger a Migraine is coming. Maybe you could discuss this with your doctor.

 

Welcome again!

Teri

Nancy Harris Bonk, Health Guide
1/ 3/09 5:38pm

Hello, and welcome to MyMigraineConnection.com!

 

I'm so glad you found our site. There is plenty of information on how to manage Migraine disease here and supportive members who are always willing to share information with each other.

 

Barometric pressure changes maybe Migraine triggers for some, just like chocolate or MSG. Unfortuntately we can't stop the weather from changing like we can stop eating chocolate!  One theory about barometric pressure triggers is that it raises our cerebrospinal fluid pressure, which can trigger a Migraine. We have some information from Dr. Krusz in our Ask the Clinician section : Weather and blood pressure and an article Migraines Often Triggered By Change In the Weather. Some members here take Frova or Diamox as a preventive when they know a weather front is moving in. This may be something to discuss with your new doctor.

 

I'm so sorry to hear your neurologist passed away. This may be the time to find a Migraine specialist. This doctor is an expert in the area of Migraine disease and headache disorders. They are on the usually on the cutting edge of the latest medications and treatments used for Migraine and headache. We have a list of patient recommended specialists you can see HERE. 

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

Anonymous
Anonymous
4/30/09 10:37am

I live in Northwest Indiana about 20 miles from Chicago and have been suffering from headaches for many years. In most cases I am able to take prescription meds like Imitrex which relieves the pain most of the time. However, there are occasions when nothing seems to work. I thought that it could perhaps be a sinus infection but, the over the counter meds didn't work. So, I began researching "barometric pressure headaches" on the internet. I believe, after concluding my research that, this is exactly what I'm suffering from. My questions are as follows: 1) Is there a certain barometric pressure level that I should be looking for in anticipation of an attack? 2) If I know an attack is inevitable based on the BML, what steps can I take to avoid a headache attack?  Is there a barometric pressure gauge on the market that is designed specifically for migraine sufferers?  Thank You.  Rick in Indiana    

Nancy Harris Bonk, Health Guide
5/15/09 9:51am

Hi Rick,

 

Sorry it has taken me so long to get back to you. Barometric changes can trigger a Migraine attack.

 

The weather sites have the barometric weather changes you can check, or you could go to the National Oceanic and Atmospheric Administration (NOAA) site and check the barometric pressure there. Getting a home device may be helpful too.

We have information on weather and Migraines in this article. I wouldn't say there is a "set" point for the pressure because each person experiences the weather differently. For example, I usually am not bothered til after the change in weather, but I know many Migraineurs Migraines are triggers before a weather front move in. Do you see what I mean?  

Migraines Often Triggered By Change In the Weather

 

There are some medications people take when a barometric change is coming. We have information on this here: Preventing Migraines triggered by weather changes and flying? 

 

Have you every kept a Migraine diary? It is an easy way to see if there are other things other than the weather, like food, sleep interruptions and dehydration that may be triggering your Migraines. Click HERE for our free diary.

 

I hope this helps.

Nancy

2/10/09 2:10pm

My daughter is 15, I'm 40 and we both are severly affected by the barometer. Even her neurologists office admits they are significantly busier during these times. We also get chronic and ice pick migraines. Have you found anything else that helps? I am desperate to help her.

Nancy Harris Bonk, Health Guide
5/15/09 10:03am

Hi,

 

Spring seems to be a rough time for many of us, myself included. I'm going to give you some information that may be helpful. Will you let me know if it is? And I'm so sorry it took this long getting back to you Frown.

 

Migraines Often Triggered By Change In the Weather has information about barometric pressure changes and Migraines.   Preventing Migraines triggered by weather changes and flying?

 

We have information on  Ice Pick Headache HERE and Cluster Headache information is HERE.

 

Hang in there, and how about seeing a Migraine specialist? It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

 

I hope this helps.

Anonymous
Karen
9/29/09 4:08pm

Hi there!  I am also struggling from barometric pressure migraines. I have had migraines since I was 12. Im now 43 and for several years now Im having horrible frequent headaches from the weather changes. Im just now studying on what I can do. My doctor just put me on  Inderal. I have only been on it for a couple weeks so Im not sure yet how it will help. I have also heard that drinking alot of water will help and taking magnesieum als will help. Not sure how all this will work but Im gong to try. Just wanted to hare with you hat I have learned so far. Please inform me if you find anything that you could maybe help me with. Im miserable and dont know hat to do at times. The pain sends me to the ER and Im in bed for days at a time. Thanks, Karen

Anonymous
MrDave
2/19/09 7:12am

I too, get Migraines with Aura during changes in the weather. I will start to follow the barometer since I am in Canada as well.

 

I always use cannabis to combat the severe nausea and to dull the headache. I recently received some perocets from my doctor after unsuccessfully trying many prescription migraine preventives.

 

I do not like to use them very often as the risk of addiction is quite troubling, but the pain is just too much.

 

Anonymous
Brian
3/12/09 3:48pm

I seem to be affected most by weather changes just as a warm front moves in. In short, the nice weather arrives just in time for me to enjoy it... From my dark basement.

 

I am getting really sick of worrying about my attendance at work, I usually miss a day a week now, since I moved to British Columbia where the weather changes quickly and seems to wreak havoc on my head.

 

I am starting to wonder if moving somewhere where the weather is more stable is a feasible option for me. Trying to find work there is my biggest concern. I was in Arizona once for three weeks and felt like a had released a blow-off valve in my head.

 

I use rizatriptan at onset (when I can catch it). Since, I cannot find a family doctor in this province, I can't get a renewable prescription making this very difficult in my life.

 

I have a big problem with waking up to a migraine, which means that I will have not caught it at onset, making my medication useless. I am working on developing a digital barometric pressure gauge with an alarm. I am planning to track the barometric pressure when I have a migraine and set it to alarm when the meter reaches close to that range, that way I can wake up to the alarm and take my medication.

 

If it works I should make a bunch!

Anonymous
C. Hinnendael
3/28/09 7:52am

     I live near Savannah, GA in SC.  I drink black room temp coffee.  This is my AM remedy for the onset of the storm forecast, sometimes as far away as Texas.  The tornadoes in Mississippppi, Alabama recently 3/25/09 caused my eyes to swell 2 days before they touched down.

I stay away from chocolate, any cocoa base.  This also causes severe throbing pain.

     Before the car accident 05/06.  I had never had any kind of head ache.  After the accident the migraine attacks never began until a year after whiplash.  The seattlement not in my favor because I never complained of headaches until 12 months after accident.   I will gladly be a guinea pig for research.

CH

Anonymous
JudyAO1
4/17/09 1:03pm

Hi,this is my 1st time posting.I live in the mtns.(5,000ft) & the only way to get relief from these headaches that last all winter-start when low pressure(below 30)rolls in-around Nov.& starts to have some lift in Mar-Apr.,off/on,then finally gone for summer,but the only relief in winter,is to just get in the car & start driving south(I'm in N. Calif. mtns.)I drive thru Nev. toward Arizona.Right around Hoover Dam-pop,pop,pop!They are instantly gone,along w/stiffness in my neck.I believe my symptoms are from a bad accident years ago where I was thrown thru a windshield head first.

Nancy Harris Bonk, Health Guide
5/15/09 9:33am

Hello, and welcome to MyMigraineConnection.com!

 

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

 

Barometric changes can certainly trigger a Migraine attack. Some people take medication when they fly or know a weather front is moving in. Our Migraine trigger page has information on weather triggers that may be helpful. Migraines Often Triggered By Change In the Weather.

 

This question is from our Ask the Clincian section: Preventing Migraines triggered by weather changes and flying?


We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

 

Nancy Bonk
MyMigraineConnection.com Expert

Anonymous
N
5/19/09 6:38pm

I've been suffering from Migraines of various triggers since I was 15 and am now 40.

My biggest trigger has always been weather related.I was raised in Colorado and most of my triggers out there were stress related and every once in a great while weather.

Now I live in Florida and I dread rainy season and hurricane season.My dr's  have always been worried about my migraines as when I was 21 all medication stopped working or made them worse.I've had to learn how to cope for the last 19 years without medication.The dr's said they are concerned that severity of my migraines and the varience in triggers  will in the end cause a major  embellism at any time.(which would end my life if that happend btw)

No matter how many MRI's and CAT scans they do..they have yet to offer me something that works to help control the symptoms of my migraines.Imitrex and it's products have caused them to get much worse...so again I'm left finding a way to cope and not rip my own head off.I've lost many jobs over the years due to these migraines.I can feel when most are about to come on...but never  know just how bad it is going to get.I can be down for a day  or as long as a week.

 

As far as I keep getting told there is NO help for me.

Please email me if you have any ideas or recommendations.

Thank you.

 

2/14/11 12:10am

I am a sufferer of migraines. I am on my fifth day of a migraine it is getting less intense, but it is still with me. It interfers with my job all the time.  I was told by my supervisor, that I have one of the worse work records due to my health. I have never heard of barometric pressure migraines. But I get pain like that all the time and I am on a blood pressure medicine called propanalol; it is also a beta blocker which helps the blood veins and arteries to be less constrictive.  It is a maintenence medicine that I take twice a day.  I am also on a drug called Hydromorphone(Dilodid) strong pain me for when thay do attack.  I can usually get them under controll if I catch them quick enough, but sometimes I am not so lucky.  My blood pressure has been so high at times because of the pain; pressure from throwing up, pressure from laying my head down.  No one understands what we sufferers go through, unless they experience them, themselves. I would like to hear more about these migraines you are talking about.  (barometric Pressure Migraines). They sound familier to what I have, but of course I am not sure what kind thay are I just know thay are bad and thay suucckkk   

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By jhona— Last Modified: 02/14/11, First Published: 01/02/09