Treatments I am receiving

By Donnavs Thursday, February 09, 2012

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I have had migraines for 40+ years that have developed into chronic daily migraines that are debilitating. I am receiving Radio Frequency Ablation treatments at Johns Hopkins Hospital. If these treatments are not successful the doctor said I am eligible for a Neurotransmitter and/or a cliical trial for new device that was invented by a doctor at Duke University Hospital. Does anyone have knowledge or experience with any of the treatments and their success level?

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Nancy Harris Bonk, Health Guide

2/11/12 9:58pm

Hello, and welcome to HealthCentral's Migraine Community!

We are so glad you shared your story with us. I hope some community members will be along to share any of their experiences they may have had with the things you've mentioned.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, http://www.MyMigraineConnection.com. Under the Find, Manage, and Connect tabs at the top of each page, you'll find a wealth of information - educational articles, tips, quizzes, workbooks, support and advocacy information, and more.

Do you have questions about Migraine? There are three ways to get answers - through our Ask the Clinician column, in our community Question and Answer Section, or through our forum. Just go to our Migraine Answers page HERE.

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Welcome again,

Nancy Bonk
HealthCentral's Migraine Community Manager

PS: If you receive this message from more than one of us, please excuse the overlap. Thanks!

donnavs

2/16/12 12:52pm

Dear Nancy, Thank you for the welcome to Health Central Migraine Community. I'm looking forward to any insight the site can provide. I hope someone has experience with Radio Frequency Ablation, Neurotransmitter or the device invented at Duke University Hospital awaiting FDA approval.

Blessings to all my fellow migraneurs.

Nancy Harris Bonk, Health Guide

2/16/12 5:06pm

Hi,

You might want to try asking the same question over in the discussion forum. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Laura Larrett

2/16/12 10:40pm

I had 2 neurotransmitters implanted. The first time the electrical leads gell off the nerve (called "lead migration.") They unhooked it but they left the wire in my back and the transmitter also. When it was time to hook it up again, the wire had poked through my skin and I got a pseudomonas infection. They had to take everything out. We waited another year to hook it up again but they used a different hookup and it never worked/. It was made by Medronics. The docs tried to blame the loose lead on me!!! The transmitter is at the base of my spine and I am afraid of yet another operation. The docs did no followup after the initial few months.

What is this trial you are talking about?

Anonymous

2/17/12 11:25am

I don't know much about the trial. A doctor at Duke University Hospital invented a new device awaiting FDA approval. The next time I go to Hopkins I'll see if I can get more information. I know that it's less invasive than a neurotransmitter because it's smaller. When it's approved I would probably have to go to Duke in North Carolina. The doctor at Hopkins said he doubted Duke would allow Hopkins to participate in the trial because of the competition aspect. Thank you for sharing your experience with the neurotransmitter. It sounds horrendous.

Treatments I am receiving

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