What’s a Headache or Migraine Sufferer to Do without Support?

-from Susan Barron, NHF Support Group and Membership Services Coordinator

Although my "headaches" didn't start until I was in my mid-30s, I was completely unaware of what was happening to me. I didn't have a clue as to why I was so sick at work and in the bathroom several times a day, and then as soon as I got home, headed straight to bed with a terrible headache.  I was convinced I had a brain tumor.  Because I was working in healthcare, it didn't take long for me to learn that I needed to see a physician to find out what was really wrong with me, and why I had these recurring "sick" headaches. I did receive a diagnosis of migraine with aura. That is when I realized I needed additional support, beyond my prescription, to cope successfully with this severe pain and disruption to my life.

The National Headache Foundation (NHF) knows how important it is for headache and Migraine sufferers to receive this additional support, to share their experiences and to stay current on the medical research. That's why we offer the Headache Education and Support Group (HES/G) program for those who suffer with headaches and Migraines, and who like me, need assistance in management and coping skills.

Now in its 12^th year, the HES/G remains one of the most successful ways that the NHF carries out its mission. It enables headache sufferers to come together to talk about behavioral concerns that they often don't have time to discuss with their healthcare providers. This program has grown from six to 22 groups that meet in 18 states, as well in Europe at the Landstuhl Regional Medical Center in Germany.

One key to the success of the HES/G program is that one volunteer leader of every group is a licensed healthcare professional who is equipped with all available educational resources. These include frequently updated materials that guarantee each attendee has access to the latest information about methods to improve their headache and Migraine management.

In addition to structured discussion groups, invited guest speakers are an important component of the curriculum for educating members. Program speakers often include pharmacists, nutritionists, physical therapists, neurologists, massage therapists, biofeedback technicians, dentists, and others. These volunteer speakers are frequently staff members from a co-sponsoring healthcare facility. They offer a rare opportunity for chronic headache and Migraine sufferers to hear a healthcare professional discuss headache improvement methods on a more personal basis.

Fortunately, as I have aged, my headache condition has dissipated, and headache healthcare has seen a new rise in understanding and treatment options, but still, many cities nationwide are left without adequate support resources. If you would like to learn more about groups in your area or establishing a local HES/G, why not contact the NHF?

Please email me at e-mail sbarron[at]headaches.org or contact me by writing to the National Headache Foundation at 820 N Orleans Street, Suite 217, Chicago, IL 60610-3132, or calling toll-free 1-888-NHF-5552.