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Hello, I have been a migraine sufferer for many years I nee to find out a name of a good neurologist with a bedside manner. I have one now but I am not getting what I need which is to get my headaches under better control. Should anyone like their doctors who are currently being treated and are under control please share his/her name. I live in Norwood, Ma I need a doctor who does not say I can't treat you anymore because I am nota success story and I am not finding relief. Thank you!
Hello Judy, it seems as though we might be in the same boat. I just had an appt with another neurologist yesterday (my 3rd or 4th neurologist) and I was not happy with the visit at all. It seems he wants to put me on a medication that will cause substantial weight gain (already gained 10-15 lbs just last year), can cause major liver/kidney damage, and is fatal to a fetus. Now my question is, why would someone want to take this med? He stated several times as well that he would not prescribe any narcotics and that I would have to continue to get them through my primary doc. I had to pull information out of him, like whether it is safe to stay on a certain med or not.
I just have not had any luck with any neurologist that I have gone too. The one before this one yesterday, was a very hateful woman who would yell at me in her office when I didn't answer a question like she wanted me too.
I have been having chronic daily migraines for 7-8 yrs and have not been able to find any relief whatsoever. It is really affecting my daily life. I live each day in fear of how bad the headache is going to be that day and if I'll be able to make it to the end of my work day or not. My boss has been very understanding but I know he is getting frustrated. I have worked for the same man for 13 yrs now. I have done every test imaginable and everything comes back ok, which is good but doesn't help when I am trying to find a cause for the headache.
hi headache girl. i know the frustration of going to doctors and not finding one that listens to you. i have migraines for the last 5 years since my hysterectomy and i cannot get one doctor to listen to me. i have seen a couple of doctors already and i am frustrated. i have also worked for doctors for the last 28 years and i know how they can be. being a female, over 50 and plus size to boot one said just exercise, the other doctor did not even want to examin me but he said that " i may as well". i am not that repulsive that i cannot be taken seriously and even if i was, i still have a problem. i am disgusted and don't even know what to do or where to go. it is so sad that the medical profession, especially men only want the young pretty patients. maybe it is a long island thing. i don't know. in any event, i have another name of another doctor i am still considering trying one more time. i hope you find a doctor that has the knowledge and the bedside manner to go along with it. it is a rare combination these days. good luck in your search.
Greetings Meryl:
And so it goes! I completely hear what you are saying about getting respect for headache care. Truly, there are physicians out there who will go to the edge for the many who have been diagnosed with headache; and as you (all) have noted, there are a number who are unprepared to manage those with chronic conditions and often mixed with other diagnosis, that you are left out in the cold!
On our website, www.headaches.org we have a variety of potential options for you to investigate...lists of physicians who might be in your area, let me know and I will send them directly vial email to you; we also offer an online pen pal program as well...and modules and topic sheets and education and well...if you haven't been to our site, do!
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My husband has had daily migraine or headaches for 6 years his pain level is at 7-10 daily with out much help with pain meds or other remedies we have tried so many things and no one can diagnosis where the pain stems from...his pain is almost always behind his left eye
Monday at 7:30 am he is having an ocipital nerve stimulator installed...all we can do is pray it works to help ease his pain.
Has anyone out there had success with this procedure?
Please give me some feedback
Kathy
Hi Kathy--realizing that this reply falls well after the occiptal nerve stimulation (ONS) implantation date--I am curious about your husband's response to this. I suspect you both had done a great deal of reading, but for those of you who aren't familiar with this approach, according to the American Academy of Neurology's meeting in 2006 the following statement was presented by the reserach physicicians from the Mayo Clinic in Arizona who had completed clinical studies indicating that:
"ONS as a safe, effective treatment for chronic headache."
ONS treatment involves implanting a neurostimulator under the skin at the base of the head. The neurostimulator delivers electrical impulses near the occipital nerves via insulated lead wires tunneled under the skin.
Please let me know how things are going for him. Thanks, Susan, NHF
Kathy, i myself have recieved an ONS and it has made a tremendous diffrence in my qualitly of life. Much like your husband i suffered the same jkind of pain daily. Since mine was turned on my life has gotten so much better. I am curious if you husband has had a similar responce to his. I know this is a year latter from your post, coincidentally mine was turned on around the same time as your post. Hope things are well.
~Paul