New Member in Texas!

By Dream2BFree Tuesday, September 02, 2008

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I cannot take triptans as it seems they make the pain/spasms much worse. At least the Zomig did and I am afraid to try any other triptans until I get more answers. My treatment was interupted just as I was getting referred to a Neurologist due to our relocation.

I have now gotten a new referral to a new Neurologist here in Texas. There has been one trip to the ER. I am very scared. I have had some visual aura since April that has NOT gone away. I hope to get some answers soon.

Sorry this post is so lengthy. Thanks to everyone that has the patience to read it all....

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Nancy Harris Bonk, Health Guide

9/ 3/08 1:14pm

Hello, and welcome to MyMigraineConnection.com!

We are so glad you found us, let's start right at the begining. Migraine is condsidered a genetic neurologic condition that has flare-ups - the Migraine attack itself. A Migraine can have four phases: prodrome, aura, headache and postdrome. Not everyone experiences each phase with every Migraine. I typically do not have aura with my attacks. Some people have Acephalgic Migraine, or silent Migraine.

Retinal Migraine and Migraine with aura can may be hard to tell apart. The main difference is Retinal Migraine's visual symptoms are usually monocular (one eye) and

can include total, but temporary blindness in one eye.

Migraine, a progressive brain disease is showing that it can cause brain damage if left unchecked. Anyone suffering more than three Migraine attacks a month will benefit from preventive medication. Yes, Migraines Can Cause Brain Damage and Is Migraine a Progressive Brain Disease?

Don't lose hope because there are plenty of options to treat Migraines. In fact there are over 100 medications available. Migraine Preventive Medications - Too Many Options To Give Up! Another good idea is to see a Migraine specialist. Neurologists treat people with many different conditions, while Migraine specialists treat patients in one area. When your head hurts, you want to see the expert, and that would be a Migraine specialist. To see our list of patient recommended specialists click HERE.

Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,

Nancy Bonk

MyMigraineConnection.com Expert

1026laurie

9/ 5/08 10:57am

I feel your pain, literally. I've been diagnosed with Chronic Daily Transformed Migraines since November 2006. I have a great Neurologist, Migraine Specialist and Pain Management MDs. My headaches average 7-8 (on the pain scale) daily. According to my Migraine specialist I am one of the 3-4% of people who do not respond to the aggressive Migraine management. I just keep telling myself that God has given this burden to me for a reason. I do find comfort in the shared personal stories here. Just knowing that I am not alone some days is what gets me through the day. What part of Texas are you in? I live about 60miles southeast of San Antonio in a small town, population less than 600. Falls City, ever heard of it? If I can help with any information or just to sound off, please don't hesitate.

MelissaMom

9/11/08 11:11am

I too was a "late-learner" that I have migraines. My brother has always had migraines all of his life, and I thought I was just the lucky one to not be affected as he was. But I WAS affected and I DID have migraine the whole time - I just didn't know it.

I too was ALWAYS getting motion sickness. Car sick, sea sick, roller coaster sick - I could never really do the "fun things" in life that other people did because I was always getting sick. I always had to go on the riddie rides at amusement parks instead of roller coasters because I would get sick. I even got seasick on a very calm LAKE at one time. So I completely understand where you are coming from. I always thought I just had a really sensitive inner ear or something.

And then of course there were the "monthly" headaches. I never related these to migraine, but rather anemia (loss of blood) each month.

When I hit 40 (around), I was bombarded with awful motion sickness out of nowhere, unreal head pain, insane dizziness, and just utter grief. I thought I had cancer or something. I was diagnosed with Labyrinthitis (an inner ear disorder), sinusitis, depression/anxiety, etc. After a LOT of research on my own, I concluded that in fact I was experiencing MIGRAINES. Because of the new hormonal shifts in my body due to perimenopause, it pushed me over the migraine fence that I had been sitting on all of my life and boy did I hit the ground hard. The hardest part was that NOBODY MENTIONED MIGRAINE as my problem. One of my doctors even told me it was all anxiety/depression related because my dad has cancer! Those days were very dark - the unknowing, the simple fact that I thought this horrible ill feeling that I had all the time was caused by MYSELF and my lack of mental self-control.

But now that I KNOW what is wrong, it is easier to deal with - now at least I can began to heal. I was stuck in that darkness for a good 1 1/2 years and it was awful. I cannot even begin to imagine what YOU were going through as a child, and all throughout your life, with nobody helping you and just telling you to get over it. That is just so heartbreaking to me, and I'm so sorry. But I AM glad that you are now in the LIGHT and understand what is going on and can too, begin to heal!

Melissa

kdnewton

9/11/08 12:12pm

This all sounds very familiar as I read your story--I am 43 and also have gone most of my life(from about 10) with the same types of symptoms(only w/o aura and vision problems), only to be dismissed or feel isolated and/or misdiagnosed. At least we live in a time when people are getting more and more information about what migraine really is and some of the treatment/lifestyle changes we can use to help ourselves. Its horrible so many have had this common history of chronic, undiagnosed and untreated pain that cuts away at every quality of our lives. Of course, then there is the depression from it all, either the genetic predisposition or just having endured so much pain and feeling so alone for so many years. I hear it all in what you have been experiencing. Take heart you are not alone and stay strong in your quest for "normalcy". I have to stay strong as I have a 9 year old who is following my history, and at least she has my total understand working FOR HER. She will have the gift of being educated and empowered!! Keep breathing, KD, Austin, TX

New Member in Texas!

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