I put up a Share Post yesterday about my pain, but I think that it would be helpful to hear the whole story ( the short version ).
I was diagnosed at the age of seven, and I was told I probably had them all my life, so I really don't know what life is with out them. 72 hours of exqrusiating pain and all I was given was asprin. Just childrens asprin.
As I grew, so did the headaches, some last weeks. I tried everything. Narcotic wasn't an option because I was still a teen.
One medication they gave me was a large shot and they put me in a dark room and I threw up for 20min. I don't know if it was the shot or just I was so tired from the ordeal, I would go and sleep for 24 hrs.
It became an issue with school and with my family life, even as a child.
I would get horrible pain, go to sleep, and when everythng was said and done, I was accussed of doing things I had no memory of.
Jump to my early adlut life.
I learned to keep the pain down so I could work, but as soon as I got home, I was in bed crying.
Many Medications, Many procedures ( including the numbing of the occibital nerve numbing- which not only didn't work, but I had a headache that put me down for weeks)
I couldn't go the the ER's anymore because they always treated me as a drug addict, I was dismissed from many different doctors because they were not comfortable with the treatment that works for me.
I even had a Hystercetomy to deal with the mensaul migraines. It only stoped 4 headaches a month... I was averaging 12 to 14 a month - so basically every day.
Then the stroke hit. I was devistated and scared. They fired me from my job stating I must have been on drugs that day to have that type of behavior. ( And this was a large doctors office, and none of the PA's or doctor came out to help me. The ER was right across the street and none of them even thought about taking me there.) I went untreated for the stroke for more then 4 hours so the damage was already done.
Black out episodes increased. These were the same type of situations that when I was a child was blamed for things I had no memory of.
It was then that I was Diagnosed with Severe Chronic Acute Migraines with Dissasosiative Disorder and Seizures. ( thats a mouth full to say )
I was denied disability so I had to go to court after a three year battle. I couldn't work, I had no income for my kids and I was at a pretty low point.
I found a councelor who took me on as a regular patient as well. He has been great! And he tries very hard to make my quality of life better. But when the seizures started happening 6 month ago, it was like someone threw a monkey wrench into a runnung engine.
I hate taking all these drug, I hate having the childs see the seizures and I hate that my husband has to pick up the slack at home as well as.
The pain can come at any time and it can be fast and it can be slowly leading up. Neither of which I desire to have.
I have done all the natural treatments and I have tried acupucture and massage. I do have a chiropractor that does deep tissue massage work, and it works for the stiffness I get in my neck before, during, and after the attack.


Welcome to MyMigraineConnection.com!
Let me first apologize to you. I got you confused with another Denise that is a member here. Please forgive me and let me move on to the official MyMigraineConnection Welcome - if that is ok?
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things. Many people find it theraputic to share their experiences here, knowing there are others who have been going through similar situations.
I'm so sorry to hear you have had such a hard time. I think it is now time to see an expert. This is probably the last thing you want to hear - that you need to see another doctor. But let me assure you there is a difference in doctors. A true Migraine specialist (not just a neurologist who says he specializes in headaches and Migraines) devotes his entire practiceto treating people with Migraines and headache disorders. He attends scientific conferences to learn about the latest research and treatments. You can read more information in this article: Migraine and Headache Specialists - What's So Special? After you read this article, you may want to find a specialist in WA. You can find one on our patient recommended specialist directory HERE. Something to keep in mind though is good specialists may take a while to get an appointment and you may have to travel. But if it reduces your pain and gives you back your quality of life it will be well worth the trip. We have members here who travel from WV to TX to see their specialist - without insurance.
Do you have true motor weakness with your Migraine attacks? There is a rare form of Migraine disease called Familial Hemiplegic Migraine (FHM) and Sporadic Hemiplegic Migraine (SHM) that have paralysis as one of its many symptoms. I only mention this because this type of Migraine is often difficult to diagnose and can mimic stroke, epilepsy and other vascular conditions and you mentioned that you've had a stroke. This is when seeing the expert is a must. We have more information on this type of Migraine you can find HERE.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. It is a great place for support, we hope to see you there. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,
Nancy BonkMyMigraineConnection.com Expert