My Life.... If You Can Call It A Life

I put up a Share Post yesterday about my pain, but I think that it would be helpful to hear the whole story ( the short version ).

I was diagnosed at the age of seven, and I was told I probably had them all my life, so I really don't know what life is with out them. 72 hours of exqrusiating pain and all I was given was asprin. Just childrens asprin.

As I grew, so did the headaches, some last weeks. I tried everything. Narcotic wasn't an option because I was still a teen.

One medication they gave me was a large shot and they put me in a dark room and I threw up for 20min.  I don't know if it was the shot or just I was so tired from the ordeal, I would go and sleep for 24 hrs.

It became an issue with school and with my family life, even as a child.

I would get horrible pain, go to sleep, and when everythng was said and done, I was accussed of doing things I had no memory of.

Jump to my early adlut life.

I learned to keep the pain down so I could work, but as soon as I got home, I was in bed crying.

Many Medications, Many procedures ( including the numbing of the occibital  nerve numbing- which not only didn't work, but I had a headache that put me down for weeks)

I couldn't go the the ER's anymore because they always treated me as a drug addict, I was dismissed from many different doctors because they were not comfortable with the treatment that works for me.

I even had a Hystercetomy to deal with the mensaul migraines.  It only stoped 4 headaches a month... I was averaging 12 to 14 a month - so basically every day.

Then the stroke hit. I was devistated and scared.  They fired  me from my job stating I must have been on drugs that day to have that type of behavior. ( And this was a large doctors office, and none of the PA's or doctor came out to help me. The ER was right across the street and none of them even thought about taking me there.) I went untreated for the stroke for more then 4 hours so the damage was already done.

Black out episodes increased. These were the same type of situations that when I was a child was blamed for things I had no memory of.

It was then that I was Diagnosed with Severe Chronic Acute Migraines with Dissasosiative Disorder and Seizures. ( thats a mouth full to say )

I was denied disability so I had to go to court after a three year battle.  I couldn't work, I had no income for my kids and I was at a pretty low point.

I found a councelor who took me on as a regular patient as well. He has been great! And he tries very hard to make my quality of life better. But when the seizures started happening 6 month ago, it was like someone threw a monkey wrench into a runnung engine.

I hate taking all these drug, I hate having the childs see the seizures and I hate that my husband has to pick up the slack at home as well as.

The pain can come at any time and it can be fast and it can be slowly leading up. Neither of which I desire to have.

I have done all the natural treatments and I have tried acupucture and massage. I do have a chiropractor that does deep tissue massage work, and it works for the stiffness I get in my neck before, during, and after the attack.