How to be realistic!!!!!!!!!!!

Hello

    We've been off air for a little while due to Tommy struggling away day in and out and once again the feeling of isolation is very stark and over powering.  Tom is still like the boy in a bubble .

           His world consists of this house and me but at least some of the local services are trying very hard to get him out and about.  He finds this brilliant at the time but a couple of hours later he is exhausted and often complains of pain.  So what do you do? sit here at the four walls or make him do things. Try to be positive but live in fear that it may result in a major attack??. I tend to do the latter and remain "realistic" If I hear that word one more time then I will definatly scream albeit silently.  Tom is a lovely kid who sees his friends and siblings pass him by.  So I will be realistic and continue to try and find someone that understands him  andwill help break this vicious circle!!

     I'm am sorry for this vent but it has been brewing and the frustration of many meetings and nights /days/ years of broken painful sleep( Tom not me)  have kinda crept up on me there,but I'm not sorry that I have Tom.  Maybe that has been my problem too busy apologisisng to people for bothering them!!!

        Well that's it for another nine years ...or whoever says  Tom and realistic in the same sentance!!!

             Regards

                      Sarah M