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Monday, November, 23, 2009
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Winter Holiday GuideEnjoying the Holidays Despite Migraines and Headaches --> Info for you...

unrealistic expectations?

ca dreamer
ca dreamer
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ca dreamer is ca dreamer

Started having migraines after a car accident nearly 3 years ago. ...

ca dreamer

Saturday, November 22, 2008
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Saturday, November 22, 2008 at 11:48 AM It is comforting knowing I'm not alone in my "habits" now.  I used to play soccer 3-4times/week and this a.m. I can't even motivate myself to take a walk.  I have been trying to walk to get some kind of exercise and feel better, but there a...
  1. Wow can I relate!
    Megan Oltman
    Saturday, November 22, 2008 at 01:23 PM

    CA dreamer I always used to say "I'm the captain of this house, and without me you'd all sink!"  In my case, I have a husband and two kids with ADHD so although I am not the best organizer and keeping-track-of-things person in the world, I am far and away the best one in this house. So for the past few years when I can't be the captain any more first things really did feel like we were sinking. it took a lot of talking with my husband to figure out how to work as a team on this. things I thought he should be able to just take over, he's more than willing to do, but he needs to tell me very specifically what I need. 

     

    so I guess my question to you would be - how specific are you in asking for what you need? I think we all wish people would just take care of things the way we would. But they don't, because they're not us. but if you sit down with them and ask for help and ask them to help you figure it out... I bet you can work something out with them. Good luck! Laughing

    - Megan

    Reply
  2. Hi
    Nancy Harris Bonk
    Saturday, November 22, 2008 at 08:40 PM

    I can hear the frustration in your voice. Migraineurs, people with other chronic conditions and even people who are not ill, feel overwhelmed and taxed from time to time. It is difficult to motivate oneself to get out of bed when we are not feeling well, let alone take care of the family and household. Coping with chronic illness takes courage and strength on a daily basis - some days are better than others. 

     

    When it comes to taking our medication, as long as we are of able body and mind (not impaired in anyway or diminished capasity) it is our responsibility. I am talking in general terms here, not legal ones. It is up to us to make sure we know what medications we are taking, the dose, how much and when. If we experience any unwanted potential side effects, it is our job to report them to our doctor - unless we are unconscious then we hope a loved one will call for help. It really isn't anyone else's job to take over our medication regime, we need to be proactive about our treatment. If we feel we are not making progress, then it is our job to discuss possible changes with our medical team. This site has wonderful information and support on just these topics. Have you made it over to the forum yet? We hope you do. You can click HERE to get there. 

     

    As far as interactions between medications go, all our doctors need to know all the medications we are taking. Some medications may interact with each other, others may not. If we have multiple doctors, they need to work as a TEAM with you so you are getting the best possible health care.    

     

     

    Reply
    re: Hi
    ca dreamer
    Sunday, November 23, 2008 at 12:42 PM

    I'm not sure you read my comments correctly.  I was mentally impaired during the first year after my car accident.  How could I in that condition, been responsible enough to take care of myself?  I could barely dress myself and I'm in charge of my medication??!  That's why looking back on it now bugs me.  My family did know I couldn't care for myself; the doctors did know my living and drug regimen.  I communicated as well as I could, but therein is the crutch.  Could no one see for themself?  I feel my progress was greatly impaired by all the mistakes I made during that time.  It just would have been nice had someone stepped up to help coordinate things at the beginning instead of waiting til I hit rock bottom before noticing me.

    Reply
    re: re: Hi
    Nancy Harris Bonk
    Sunday, November 23, 2008 at 07:39 PM

    I'm so sorry I didn't read your post correctly, please accept my apologies.  In that condition, I don't think anyone could have made responsible decisions. And yes, your family should have stepped up and certainly it would have been nice if your doctors had done their jobs correctly.     

     

    When I fell and hit my head 12 years ago, the ER doctor pretty much dropped the ball. I had a normal CT, but had been unconscious for about 20 minutes, didn't know who a dear friend who brought me to the ER, and couldn't remember how I got to there. Never did a X-ray of my cervical spine and the story goes on....

     

    I gues my point is I may know a little about how you feel. I was in a sad way and no one knew what to do. Maybe your family  didn't know how to handle the situation either. My certainly didn't. We never dealt with anything like that before.  It has taken a lot of time to get over the whole "doctor dropping the ball thing" and looking for a magic pill to fix the what have become chronic conditions since my fall. 

     

    So after 12 years, I concentrate on the things I can control. I couldn't control my fall and what happened after. I lost part of myself that day with a mild traumatic brain injury. Does that make any sense?

    Reply
    re: re: re: Hi
    ca dreamer
    Monday, November 24, 2008 at 12:47 AM

    No need to apologize; I know you didn't do that intentionally.  Yes, I do know what you mean about losing a part of yourself.  I'm finally at the point that I can remember that I have forgotten a lot!  My family is still at a loss since they have seen progress and think it will lead to my old "normal" self.  I know differently, as this has been life-changing, so even if all my mental capacities return, and the headaches and migraines diminish, I will carry a certain amount of...perhaps it's a fear of some sort.  I played soccer with broken ribs, various sprained parts of my body, and walking pnuemonia.  My love of playing was that strong, but now I am off the field and when I think about returning, I cringe at the thought of getting hurt.  I do not need any other outside factors causing me pain.  I am still adjusting to the constant pain I currently have.

     

    You mentioned that the doc at ER didn't look for a spinal injury.  Has that been the cause of your continued pain?

    Reply
    re: re: re: re: Hi
    Nancy Harris Bonk
    Friday, January 30, 2009 at 08:42 AM

    I'm so sorry I didn't get back to you Embarassed. Cervical spinal issues are just part of my daily chronic pain that stem from my fall. Apparently my fall triggered all kinds of nasty responses in my body, (which can happens sometimes from a mild traumatic brain injury from what doctors and research tell me) - autoimmiune - lupus, and IIH - idiopathic intracranial hypertension.

     

    Hope your holidays were great and Happy New Year a bit late! 

    Reply
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