Friday, February 10, 2012

Never a painfree day!

Written by

CheekyFrog

CheekyFrog

Tue, May 29, 2007

Additional Posts

View all Posts »

Hi, my name is Kim I am a wife and a mother of two boys ages 1 and 4. I have been suffering with migraines for as long as I can remember. The last 6 years they have turned into daily headache/migraines. Not so fun. I wish just one day I could wake up pain free. I am slowly losing my desire to do anything as everything seems to make it worse. My poor Hubby :(
I have started ANOTHER daily pain med regime and still no luck. Back to mr. neurologist (#3) again... *sigh*
How I evny nearly EVERY person who walks down the street besdie me. How light their head must feel when they wake in the morning. How easy they must have it to run after their child. To play in the park. To enjoy just doing nothing and feeling so good about it!
Will it ever end?

5/30/07 9:06am
Kim,

Hello, and welcome to MyMigraineConnection.com!

I'm sorry you're in such a tough situation. What kind of daily pain meds are you taking? Many pain meds, if taken more than 2 or 3 days a week, can make matters worse by causing medication overuse headaches, aka rebound. For more information, see

Medication Overuse Headache: When the Remedy Backfires


Have you considered an appointment with a Migraine specialist?

Thank you for creating a SharePost. (If you haven’t created a SharePost by the time you read this, I hope you’ll create one and tell us a bit about yourself.) SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.

We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.

Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information on the main page of our site, MyMigraineConnection.com.

If you have any questions, please feel free to post them to the forum or send me a message through my profile.

Welcome again,
Teri Robert
MyMigraineConnection.com Lead Expert

5/30/07 10:36am
Hi, Yes I know all about 'rebound' headaches. My neurologist has me on Topiramate and I am not allowed to take anything as in Tylenol or Advil for those reasons. I was over taking them and he was sure they were causing me to have daily headaches. I have not had Tylenol or Advil or anything like that for 3 months now and if you look at my headache diary you would totally think that I am having recurring rebound headaches. I have an allergy to the 'best' migraine abortive med Imitrex and Amerge too. They cause me to stop breathing. Tighten my chest and my throat. They totally take the pain away but then I can't breathe. Not so good. My doc has perscribed Demerol now as he does not know what to give me for fear of giving me something with same ingredients that I am allergic to. I just don't know. Back to the neruologits next week. On my sons fourth birthday actually. Happy birthday to him. Mommy gets more drugs. I miss being a happy person. I wish I could be a happy mom. My poor family. My husband. My boys. I am just not the person I know that I would be if it weren't for this stupid head thing. 'It's all in my head' I've been told. Ya, right. I've have a CT, X-rays, blood work to kill a horse. No luck. Nothing there. Just me, a crabby painfilled woman and her pain. *sigh*
5/30/07 11:22am
I'm glad you already know about rebound. Unfortunately, too many people aren't told about it until they're already rebounding. :-(

I've known people who couldn't use some triptans but could use others. Has your doctor suggested trying any of the newer ones? If you'd want to do that, you could try it in your doctor's office in case you have a problem.

Last week, I interviewed Migraine expert Dr. Richard Lipton and one of the questions I asked was what he recommends for people who can't take triptans. He finds that prescription strenght naproxen taken with an antinausea med such as Reglan, Phenergan, or Compazine, helps many of his patients.

How many days a week are you taking Demerol. It can cause rebound too. Are you trying preventives?

Don't lose hope. There is help available. Sometimes, it takes us a while to find that help, but it's out there.

Please consider joining our forum for more support?

Teri
5/30/07 5:57pm
Yes I am on a preventative. Topirimate daily. At the moment I am on 75 mgs. I have only taken one demerol. I won't take it unless I am sick sick sick. The only problem with it is I am at home with my sons and I didn't know how it would make me feel so I waited until DH got home and by that time it was too late. It took 3 hours for the demerol to work and then it only helped for 2 hours and the pain came rushing back. I have that problem all the time. I wait too long before I take something and then it is too late and I am too sick and nothing will work. Then I have to wait until the pain subsides a bit since it never totally goes away. There have been times when I can lie perfectly still and if i make the smallest movement it sends sparks through my head. One night I was almost asleep and was perfectly still again and a thought popped into my head and it was almost like I had lightning bolts shooting through my brain. Almost like I could SEE the pain in my head. Pretty bad when my *thoughts* actually hurt. And im not even blond! HAHA had to ad that in.
I am going to ask my neuro about another kind of abortive other than a triptan since I don't obviously know what in it I am having a reaction to. I am sure like you said that there are more out there and I am sure he knows. He was sure that Amerge would be ok for me. As compared to Imitrex with its history of this side effect. *Shrug* I always have to mix it up :) I am truly glad for these sites though. And for people like you who take the time to talk to us and understand!! It feels good to be understood and to not feel like I'm crazy.