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northerntigger
Thursday, August 20, 2009 at 10:55 PM -
I feel your pain
headachelady
Saturday, August 22, 2009 at 09:14 PMHey. Hope that 2 day migraine has broke. I have suffered with chronic migraines and chronic daily HA for about 2.5 years now. I am unable to work. Are you on any preventative meds? I am on some new preventatives and am finding some relief. I take Namenda (it is an Alzheimer's drug that has been proven in some studies to help prevent migraines), verapamil (blood pressure drug), zonegran (seizure drug) and magnesium. I was in an almost 3 week migraine cycle when I was lucky enough to get an appointment within 1 day at the headache clinic at the Cleveland Clinic. I had been treating at a headache center in Pittsburgh for 2.5 years but the HAs have gotten progressively worse. The new doc took me off some of the meds that the other HA doc had put me saying that they were causing rebound or medication overuse headache. The old doc said that I could take ibuprofen 3X a week, but the new doc said that was way too much. So I am coming off a bunch of meds. To break that cycle I was on a high dose 6 day prednisone taper. It brought it down from about an 8 to a 3 or a 4. So I am waiting for all of the new preventatives to take affect. Do you have a HA specialist? I pray that you find some blessed sweet relief. - Kayleen
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Untitled Comment
Nancy Harris Bonk
Sunday, August 23, 2009 at 07:32 PMIf your doctor isn't able to help you, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.
FYI - Fiociet is a medication the Migraine specialists we work with do not recommend in the generic form. It just doesn't work as well. And ANY use of opioids or barbiturates and frequent use of triptans and NSIADs are associated with increased risk of transformed Migraine. See Transformed Migraine - Risk Increased by Some Medications for more information on this.
Thank you for creating a SharePost. SharePosts are a form of blogging, and there are many things you can do with them. You can share an experience, suggest something that's helped you, use SharePosts as a Migraine and headache journal, and many other things.
We also have a discussion forum that you may want to check out. Especially if you have questions or are looking for information, you may find the interaction on the forum to be quite helpful. To get to the forum, just look for the orange box marked "Manage" and click on the Migraine Forums link. Because our forums are maintained by a third party, you'll need to register for the forum. You can use the same information you used to create your community log-in if you like. If you want to go directly to the forum, you can click HERE.
Along with your personal "My Home" page and the discussion forum, you'll find links to a great deal of helpful information and a spot to sign up for our free newsletter on the main page of our site, http://www.MyMigraineConnection.com.
If you have any questions, please feel free to post them to the forum or send me a message through my profile.
Welcome again,Nancy Bonk
MyMigraineConnection.com Expert
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First of all I know ur pain all too well. I deal with them on a daily. I am tired of doctors tellin me that they are at a loss about what to do. Right now im on a injection called Stadol and i inject myself 2 times a day and for now it works along with other meds,but we have to hang in there until someone out there finds something to help ppl like us out.